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Unite 2 Fight Paralysis

@u2fp.bsky.social
43 followers 72 following 70 posts

Empowering the international spinal cord injury community— education & advocacy supporting paralysis research! Functional recovery to a cure! ♿️🗣 linktr.ee/u2fp?utm_source=linktree_…

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Unite 2 Fight Paralysis @u2fp.bsky.social · 12/09/2026
Remember to register for this important event September 29th, 2026 from 10AM -3PM ET. Link: www.scipfdd.org/registration... #spinalcordinjury #spinalcordinjuryrecovery #spinalcordinjuryawareness #spinalcordresearch #spinslcordinjuryrehabilitation
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Unite 2 Fight Paralysis @u2fp.bsky.social · 11/09/2026
Megan Gill and Ryan Solinsky, both researchers at Mayo Clinic in Rochester, Minnesota discuss a common problem in SCI neuromodulation work: abandoned technology, or the lack of support that comes after receiving a device like an epidural stimulator. Link: u2fp.org/get-educated...
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Unite 2 Fight Paralysis @u2fp.bsky.social · 10/09/2026
This episode features Dr. Jill Wecht, a Research Health Scientist at the Bronx VA, and Devon Colbert, a retired firefighter and Navy Veteran who lives with a cervical spinal cord injury (SCI) and is an advocate/participant in SCI research. Link: u2fp.org/get-educated...
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Unite 2 Fight Paralysis @u2fp.bsky.social · 02/09/2026
Registration is now open, virtual SCI Patient-Focused Drug Development Meeting on September 29, 2026. Join a discussion that brings the experiences and priorities of individuals with SCI directly to the FDA and treatment developers. Register today at scipfdd.org/register
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Unite 2 Fight Paralysis @u2fp.bsky.social · 30/08/2026
Headline Patrol: Brain Computer Interfaces Lead to Movement, Sensation & Commercialization? Link: u2fp.org/get-educated... #scirecovery #scirehabilitation #scistudies #scitrials #scitechnology
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Unite 2 Fight Paralysis @u2fp.bsky.social · 27/08/2026
The Twin Cities Marathon is Sold Out BUT - you can still grab a spot in this year’s race by joining Team U2FP for the marathon or 10-mile races. Just email marathon@u2fp.org with your interest and we’ll get you signed up! #scifundraising #sciadvocacy #scirecovery #marathon
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Unite 2 Fight Paralysis @u2fp.bsky.social · 20/08/2026
Tell the FDA what your priorities are - register (it’s free) for the SCI Patient-Focused Drug Development virtual meeting, happening September 29! Link: www.scipfdd.org/register #scirecovery #scifunding #scicommunity #sciresearch #scirehabilitation
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Unite 2 Fight Paralysis @u2fp.bsky.social · 14/08/2026
Wanna talk to the FDA? Check out our conversation with Ian Burkhart about a ‘once in a generation’ opportunity to meet with regulators and share your lived experience priorities. Link to full episode: u2fp.org/get-educated... #spinalcordinjury #spinalcordresearch #sciresearch
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Unite 2 Fight Paralysis @u2fp.bsky.social · 13/08/2026
Care was and is important but I was still struggling - like many quads - to gain a sense of independence that I felt only new, novel interventions could deliver. This made U2FP appealing since they were laser focused on finding a cure. Link: u2fp.org/get-educated...
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Unite 2 Fight Paralysis @u2fp.bsky.social · 05/08/2026
Save the Date! We're back at The Cedar in Mpls for the 2nd Annual Rock for Research concert to benefit U2FP with Eric Howk, Freaque, and Zoe Says Go. More info to come.
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Unite 2 Fight Paralysis @u2fp.bsky.social · 04/08/2026
Help us guide sci drug development at FDA...sign up for an informational webinar this Wed Aug 5 to learn more. Link: www.scipfdd.org/webinar #sciresearch #sciawareness #scirecovery #scirehabilitation #sciadvocacy
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Unite 2 Fight Paralysis @u2fp.bsky.social · 15/07/2026
Every bit of strength matters. Seeing improvements in my hands and upper body with the ONWARD ARC-EX has given me hope and motivation to keep pushing forward! #SpinalCordInjury #SCI #ONWARDMedical #ARCEX #NeuroRecovery
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Unite 2 Fight Paralysis @u2fp.bsky.social · 08/07/2026
The Federal Government’s Office of Management and Budget is proposing new rules for how they disburse federal grants. This will affect both the National Institutes of Health and the Department of Defense’s Spinal Cord Injury Research Program. Link: u2fp.org/get-educated...
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Unite 2 Fight Paralysis @u2fp.bsky.social · 08/07/2026
None of that happens without consistent support. Whatever you can give monthly adds up to real legislative power, because this fight needs consistency. Please consider becoming a new monthly donor and support our work on a real and workable way!! Link: secure.qgiv.com/for/unite2fi...
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Unite 2 Fight Paralysis @u2fp.bsky.social · 06/07/2026
Nerve transfer surgeries can restore function right now. In Rewiring Recovery (episode 145) we talk with a recipient of a nerve transfer, Macy Lauren Ledet (C5/C6) alongside her doc and neurosurgeon who pioneered them, Dr. Justin Brown. Link: u2fp.org/get-educated...
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Unite 2 Fight Paralysis @u2fp.bsky.social · 30/05/2026
Pain, Pain Go Away (Episode 142) Link: u2fp.org/get-educated...
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Unite 2 Fight Paralysis @u2fp.bsky.social · 30/05/2026
Run or wheel with Team U2FP! *E-assist allowed* Minneapolis, Minnesota Sunday, October 4th 2026 Register: marathon@u2fp.org
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Unite 2 Fight Paralysis @u2fp.bsky.social · 12/05/2026
A total testosterone number by itself doesn’t tell the whole story. Someone can have “normal” or even high testosterone on labs and still have symptoms if the hormone isn’t being properly used, converted, transported, or supported by the rest of the body.
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Unite 2 Fight Paralysis @u2fp.bsky.social · 16/04/2026
Please join us at our 2nd Annual Gala and Auction this Saturday, April 18th, 2026. This event is in person at Estes Park, CO AND online with a virtual auction. Visit U2FP.org and visit our Gala and Auction page for more details and to register!
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Unite 2 Fight Paralysis @u2fp.bsky.social · 16/04/2026
secure.qgiv.com/event/2026bi...
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Unite 2 Fight Paralysis @u2fp.bsky.social · 03/04/2026
I’ve got some sad news, some bad news, and some good news coming out of WI. First, the sad news: effectively, our window to pass our $5 million Spinal Cord Injury Research Grant Bill during this session of the Wisconsin Legislature is now closed. Link: u2fp.org/get-educated...
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Unite 2 Fight Paralysis @u2fp.bsky.social · 02/04/2026
2026 Symposium Videos Available! Link: u2fp.org/get-educated... #scirecovery #scisymposium #scirehabilitation #sci #sciadvocacy
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Unite 2 Fight Paralysis @u2fp.bsky.social · 30/03/2026
On April 18th a Silent Auction and Gala at The Bird’s Nest in Estes Park, CO. Cedar Wright professional climber/filmmaker, will be there sharing some remarks. Plus there will be live music and encouraging updates on our work from U2FP colleagues. Link: secure.qgiv.com/event/2026bi...
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Unite 2 Fight Paralysis @u2fp.bsky.social · 20/03/2026
A new study out from Samuel Stupp got the Headline Patrol treatment by U2FP’s Sam Maddox. Link for full article: u2fp.org/get-educated... #sci #sciresearch #scirecovery #scitreatments #scirehabilitation
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Headshrunk @headshrunk.bsky.social · 19/02/2026
@u2fp.bsky.social 2026 Symposium in Washington DC is in the books. The event included cutting edge scientists, clinicians, and industry leaders collaborating to find potential cures for paralysis. This event allows people with spinal cord injuries interact directly with the scientists
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David Darrow @drdaviddarrow.bsky.social · 17/02/2026
Thank you to @u2fp.bsky.social for the invitation to talk about the future of #neuromodulation for #spinalcordinjury So many good speakers and great ideas
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Unite 2 Fight Paralysis @u2fp.bsky.social · 15/02/2026
Lots of learning, sharing and community at our 20th Annual Symposium. Come join us if you are in the DC area or register for our Livestream. Link: secure.qgiv.com/for/2026annu...
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Unite 2 Fight Paralysis @u2fp.bsky.social · 15/02/2026
Our 20th Annual Science & Advocacy Symposium is happening now! Join us via Livestream if you're not able to make it here in person. Livestream registration link: secure.qgiv.com/for/2026annu...
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Unite 2 Fight Paralysis @u2fp.bsky.social · 08/02/2026
I’m writing with some pretty great news: the Spinal Cord Injury Research Program (SCIRP) has just been restored to $33M in a Defense Appropriations Act that passed both the House and Senate and was ultimately signed by President Trump. Link: u2fp.org/get-educated...
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Unite 2 Fight Paralysis @u2fp.bsky.social · 02/02/2026
We sat down with award winning hip-hop artist Brother Ali, who shares roots in Minnesota with Quinn. The conversation traces his journey from Minneapolis to Istanbul, reflecting on cultural identity, disability, and the power of community. Link: u2fp.org/get-educated...
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Unite 2 Fight Paralysis @u2fp.bsky.social · 22/01/2026
U2FP’s 20th Annual Science & Advocacy Symposium. Register now to join us on February 15-17 in Washington, D.C.! Link to register: secure.qgiv.com/for/2026annu... #symposium #sci #sciresearch #scirecovery #scirehabilitation
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Unite 2 Fight Paralysis @u2fp.bsky.social · 18/12/2025
Link to register: secure.qgiv.com/for/2026annu...
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Unite 2 Fight Paralysis @u2fp.bsky.social · 10/12/2025
Link: u2fp.org/get-educated...
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Unite 2 Fight Paralysis @u2fp.bsky.social · 03/12/2025
secure.qgiv.com/for/year-end...
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Unite 2 Fight Paralysis @u2fp.bsky.social · 25/11/2025
Today, we’re talking to Dr. David Darrow for a second time. David is a neurosurgeon and assistant professor in the departments of neurosurgery and psychiatry at the University of Minnesota. Link: u2fp.org/get-educated...
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Unite 2 Fight Paralysis @u2fp.bsky.social · 14/11/2025
The reporting covers a small clinical trial in Brazil, led by Tatiana Coelho de Sampaio, a scientist at the Federal University of Rio de Janeiro (UFRJ). Link: u2fp.org/get-educated...
u2fp.org
Headline Patrol: Brazilians Break On Through
Here's a recent spinal cord injury headline about a bemusing Brazilian clickbrick.
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Unite 2 Fight Paralysis @u2fp.bsky.social · 05/11/2025
U2FP’s 20th Annual Science & Advocacy Symposium is happening on February 15 - 17, 2026 in Washington, D.C. and we’re excited to once again announce the inclusion of a poster session at this year’s conference! Link: docs.google.com/forms/d/e/1F...
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Unite 2 Fight Paralysis @u2fp.bsky.social · 26/09/2025
Registration for U2FP’s 20th Annual Science & Advocacy Symposium - happening February 15-17 in Washington, D.C., is officially open! 50% discounts for SCI Individuals/ family, and students. And PCAs are free (limit 1) Details on registration page. Link: u2fp.org/get-educated...
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Unite 2 Fight Paralysis @u2fp.bsky.social · 25/09/2025
U2FP’s veteran SCI journalist, Sam Maddox, provides details on this BCI story out of China - including comparison studies along with relevant context, links and solid insight. Link: u2fp.org/get-educated... #scirecovery #scireseaech #scitrials #scistudies #scirehabilitation
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Unite 2 Fight Paralysis @u2fp.bsky.social · 04/09/2025
Link: u2fp.org/get-educated...
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Unite 2 Fight Paralysis @u2fp.bsky.social · 06/08/2025
Link: u2fp.org/get-educated...
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Unite 2 Fight Paralysis @u2fp.bsky.social · 02/07/2025
Our Wisconsin CAN advocates have long had the mentality of The Little Engine That Could. And right now, we are at the toughest but highest point in our journey so far. Fortunately, we may have just received a big break.  Link: u2fp.org/get-educated...
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Unite 2 Fight Paralysis @u2fp.bsky.social · 27/06/2025
I have good news - thanks to your support, we have preserved the Minnesota SCI/TBI Research Grant program! Link: u2fp.org/get-educated...
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Unite 2 Fight Paralysis @u2fp.bsky.social · 02/06/2025
Chet Moritz talks to us about his role in ONWARD Medical’s development of the recently FDA Approved ARC-EX device. This segment is a great reminder of how U2FP and the SCI Community. Link: u2fp.org/get-educated...
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Unite 2 Fight Paralysis @u2fp.bsky.social · 07/05/2025
This is about stem cells and their clinical potential for spinal cord injury recovery. You don’t hear as much about these cells as we once did, but as you will see, active human trials are still being conducted. Link: u2fp.org/get-educated...
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Unite 2 Fight Paralysis @u2fp.bsky.social · 24/04/2025
The Brain Body Mind Lab is recruiting participants with complete or incomplete spinal cord injury to develop and test a new evaluation scale to understand better how adults with spinal cord injury are aware of their body and their different body parts.
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Reposted by Unite 2 Fight Paralysis
Headshrunk @headshrunk.bsky.social · 17/04/2025
Please click the link and contact your congressman.
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Unite 2 Fight Paralysis @u2fp.bsky.social · 16/04/2025
We’re joining forces with other affected disease conditions to raise the overall volume - but make no mistake, restoring spinal cord injury research funding is our focus. Link: u2fp.org/get-educated...
u2fp.org
Restore SCI Funding - Add Your Voice!
Call on Congress to restore funding to Spinal Cord Injury Research Program for our troops and our nation!
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Unite 2 Fight Paralysis @u2fp.bsky.social · 11/04/2025
Congress cuts $40M for spinal injury research for veterans, threatening Wisconsin research A program funded by the US Department of Defense was one of 23 not renewed this year. Link: www.wpr.org/news/congres...
wpr.org
Congress cuts $40M for spinal injury research for veterans, threatening Wisconsin research
Advocates for patients with spinal cord injuries are raising alarm over a $40 million research program they said was quietly cut from a Department of Defense office that funds medical research.
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Unite 2 Fight Paralysis @u2fp.bsky.social · 08/04/2025
On March 15th, Congress passed a bill which eliminated arguably the most effective SCI Research program in the world. Link: u2fp.org/get-educated...
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