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Irene Tuffrey-Wijne

@tuffrey-wijne.com
1.1K followers 398 following 160 posts

Professor of Intellectual Disability and Palliative Care (Kingston University, London). Let’s talk about dying, death, bereavement and intellectual/learning disability.

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Irene Tuffrey-Wijne @tuffrey-wijne.com · 06/12/2025
Webinar recording day!!! Here's the webinar production team! Hundreds of people attended live. Missed it? The recording will be on YouTube soon. But nothing beats a live attendance, so don't miss our next webinar! 5th March 2026 You can already register here: shorturl.at/AO3Ll
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Irene Tuffrey-Wijne @tuffrey-wijne.com · 01/12/2025
An amazing 700 people have signed up to our webinar on Thursday... but there's always room for more! Join the crowd at lunchtime! Register here: shorturl.at/crMpL
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Irene Tuffrey-Wijne @tuffrey-wijne.com · 14/10/2025
Continuing our new webinar series! On 4th Dec (1pm), some of our amazing team will tell you about The DAPPLE Project and its early findings. Don't miss it! Sign up here: shorturl.at/YCDmW
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Irene Tuffrey-Wijne @tuffrey-wijne.com · 29/09/2025
Can you help us find study participants? I am part of the READY Study team. We want to listen to family or paid carers of people with a learning disability who died, learning more about people who died of something other than cancer or dementia. Get in touch if you want to find out more
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Irene Tuffrey-Wijne @tuffrey-wijne.com · 24/09/2025
Kicking off our new webinar series…. Here we were in the office yesterday, hosting a webinar on our end-of-life care planning toolkit! @mariecurieuk.bsky.social
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Irene Tuffrey-Wijne @tuffrey-wijne.com · 22/09/2025
Looking forward to kicking off our new webinar series tomorrow! We’ll show you how to use our toolkit for end of life care planning - and how to get your own free resources! You can still register: shorturl.at/LgOPC
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Irene Tuffrey-Wijne @tuffrey-wijne.com · 18/09/2025
Academic writing retreat! I’d never heard of it, let alone been on one, but it was glorious. In Yorkshire, with 5 of my lovely colleagues, cut off from the world (no emails!), between us we worked on 2 grant applications and 4 academic articles. Also included: walks, lamas, yoga and great food!
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Irene Tuffrey-Wijne @tuffrey-wijne.com · 02/09/2025
“It’s very important that people read this report”. Find it here: www.kcl.ac.uk/research/leder
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Irene Tuffrey-Wijne @tuffrey-wijne.com · 30/08/2025
Out with a bang, literally! Ours was the final presentation on the final conference day, and just as we finished, Utrecht’s church bells rang out @asdsdeath.bsky.social @victoria&stuart project
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Irene Tuffrey-Wijne @tuffrey-wijne.com · 29/08/2025
Got all excited to see this IKEA coffin at #ddd17 conference. A snip at €80. I want one! My family and friends can decorate it. I find the DIY approach helpful Then I discovered it was a hoax. Alas! Perhaps we should start a please-sell-affordable-coffins-on-the-high street movement?
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Irene Tuffrey-Wijne @tuffrey-wijne.com · 28/08/2025
Brilliant book. Stories about life, not death - because everyone who dies, even if they have no-one in their life (anymore) who can organise their funeral, has a story. Loved listening to Evie King at the #DDD17 conference book group yesterday. Her talk, like her book, made me laugh, cry - and think
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Irene Tuffrey-Wijne @tuffrey-wijne.com · 27/08/2025
Arrived at the DDD Conference (Death, Dying & Disposal) in Utrecht, Netherlands! Accompanied, as usual, by our team mascot Pierre Looking forward to hearing about research and experiences from cultures, societies and minoritised groups across the world #ddd17
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Irene Tuffrey-Wijne @tuffrey-wijne.com · 24/07/2025
Lights, camera, action! Who said a university researcher’s job is boring? We’re buzzing after the most amazing film-making training. We love making videos to get our messages out, and these few days will transform it
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Irene Tuffrey-Wijne @tuffrey-wijne.com · 15/07/2025
Taking delivery of some new work-related props… watch this space! @kingstonuniversity.bsky.social @mariecurieuk.bsky.social @andreabruun.bsky.social
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Irene Tuffrey-Wijne @tuffrey-wijne.com · 24/06/2025
Today's Yellow Tulip Group (our monthly learning disability research meeting) felt a bit like a trip to the hairdresser. Trying to set a good example as we'd instructed everyone to bring something green to the Zoom screen! @kingstonuniversity.bsky.social
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Irene Tuffrey-Wijne @tuffrey-wijne.com · 20/06/2025
Look, a conference about dying, death & learning disability can be joyous and inclusive! Yesterday, we listened, shed tears and danced. Thank you everyone who helped make this happen! #PCPLD2025 @kingstonuniversity.bsky.social @dappleproject.bsky.social
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Irene Tuffrey-Wijne @tuffrey-wijne.com · 31/05/2025
Hugely proud of Dr Andrea Bruun, who won the EAPC Early Researcher Award - and presented to an audience of 2000! @andreabruun.bsky.social @eapcvzw.bsky.social @kingstonuniversity.bsky.social
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Irene Tuffrey-Wijne @tuffrey-wijne.com · 01/05/2025
Afternoon tea at the Shard, celebrating the award for our Cuppa Tea With Richard podcast! We invited our newest Kingston University colleagues to join the fun @astravolemova.bsky.social soundcloud.com/cuppa-tea-wi...
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Irene Tuffrey-Wijne @tuffrey-wijne.com · 23/04/2025
Brilliant day at work today! A delight to listen to the chat between Richard and Mel Giedroyc for his podcast soundcloud.com/cuppa-tea-wi... Watch this space...!
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Irene Tuffrey-Wijne @tuffrey-wijne.com · 09/04/2025
Hello to my 1000th follower! 👋
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Irene Tuffrey-Wijne @tuffrey-wijne.com · 08/04/2025
Glad I’m no longer on what will always be “Twitter” to me and happy to have found you all here, but it takes time to build communities. Who will be my 1000th follower..?
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Irene Tuffrey-Wijne @tuffrey-wijne.com · 04/04/2025
Don’t miss this PCPLD conference on 19th June. Best conference you’ll go to this year! Hosted by my team at Kingston University Early bird tickets extended to 30th April Register: bit.ly/4chvf3n
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Irene Tuffrey-Wijne @tuffrey-wijne.com · 28/03/2025
What will comfort you at the end of your life? Magical week of workshops in Yorkshire! 😍 Thank you St Anne’s Community Services @dappleproject.bsky.social
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Irene Tuffrey-Wijne @tuffrey-wijne.com · 26/03/2025
We’re told (unexpectedly) it’s WEAR PINK ON WEDNESDAYS at St Anne’s Community Services in Yorkshire, where we’re spending a few days with the team. I had to fashion emergency earrings. My colleagues were better equipped! @dappleproject.bsky.social
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Irene Tuffrey-Wijne @tuffrey-wijne.com · 23/03/2025
Spot the odd one out… When you land at Heathrow a day later then planned 🛩️, have to dash straight to choir to run through the evening concert 🎶 but didn’t have a concert outfit in your luggage 🧳
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Irene Tuffrey-Wijne @tuffrey-wijne.com · 21/03/2025
Counting ourselves lucky among the thousands of passengers stranded due to Heathrow fire… 🔥 Extra night in comfortable hotel and some unexpected Belfast sightseeing! Fingers crossed for re-booked flight tomorrow ✈️ #pcc2025 @pccongress.bsky.social
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Irene Tuffrey-Wijne @tuffrey-wijne.com · 20/03/2025
Very engaged audience at our workshop today #PCC2025 We had a great time demonstrating our end of life care planning toolkit! www.victoriaandstuart.com @pccongress.bsky.social
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Irene Tuffrey-Wijne @tuffrey-wijne.com · 19/03/2025
Arrived in Belfast, ready for tomorrow’s workshop #PCC2025 @pccongress.bsky.social
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Irene Tuffrey-Wijne @tuffrey-wijne.com · 06/03/2025
“Before I die…” The first of our DAPPLE workshops. We enjoyed getting to know people in Milton Keynes @meetmacintyre.bsky.social @dappleproject.bsky.social
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Irene Tuffrey-Wijne @tuffrey-wijne.com · 04/03/2025
With colleague Richard at the Department of Health & Social Care. Excellent round table discussion on Advance Care Planning & DNACPR
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Irene Tuffrey-Wijne @tuffrey-wijne.com · 29/01/2025
4 weeks left to submit your abstract for #PCPLD2025 conference! Come and share your work/project/study and be inspired by others. I’m organising it with the PCPLD Network Early bird registration open 👇
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Irene Tuffrey-Wijne @tuffrey-wijne.com · 23/01/2025
The DAPPLE research team trying to work out who its stakeholders are… who might (or should) be interested? Whose problems are we hoping to help solve? The facilitator said no other team has needed this many post-its! @dappleproject.bsky.social
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Irene Tuffrey-Wijne @tuffrey-wijne.com · 21/01/2025
This week were training to be ethnographers! @dappleproject.bsky.social Great teaching by @ericaborgstrom.bsky.social
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Irene Tuffrey-Wijne @tuffrey-wijne.com · 18/01/2025
Lovely chat between 2 researchers with learning disabilities at IASSIDD World Congress last summer on.soundcloud.com/LE96HboXU8Vb...
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Irene Tuffrey-Wijne @tuffrey-wijne.com · 15/01/2025
Another fascinating new podcast… Richard asks Rachael Wanjagua about her work with people with intellectual disabilities in Kenya; inclusive research – and elephants! Listen here: on.soundcloud.com/sH724GgpE6Ls...
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Irene Tuffrey-Wijne @tuffrey-wijne.com · 14/01/2025
New year, new hats, new series of meetings with the Staying Alive group (LeDeR)!
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Irene Tuffrey-Wijne @tuffrey-wijne.com · 11/01/2025
Thinking about which conferences you’ll go to this year? This one will be good! Organised by me, my inspirational team & PCPLD. Abstract submission open until 28 Feb shorturl.at/HB5mE
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Irene Tuffrey-Wijne @tuffrey-wijne.com · 16/12/2024
Surprise visit from Santa & Santa in the office today! Just a shame that Sunny and Fred missed it…! @dappleproject.bsky.social
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Irene Tuffrey-Wijne @tuffrey-wijne.com · 13/12/2024
This is such sad news. Jean Willson was one of the most wonderful and inspirational people I have known. She, and her daughter Victoria, were champions for people with profound learning disabilities. Jean wanted everyone to have a peaceful death. She made sure Victoria did. I’m glad she did, too
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Irene Tuffrey-Wijne @tuffrey-wijne.com · 13/12/2024
This was my favourite poster though, as it was such a joy to design it together!
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Irene Tuffrey-Wijne @tuffrey-wijne.com · 13/12/2024
Here's our poster about the READY study @jane-bernal.bsky.social
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Irene Tuffrey-Wijne @tuffrey-wijne.com · 13/12/2024
Hurray, we won Best Poster 1st Prize with this poster on being researchers with a learning disability employed at a university #SeattleClub2024 Some excellent talks on inclusive research today - we've come far but still have a looooong way to go
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Irene Tuffrey-Wijne @tuffrey-wijne.com · 12/12/2024
The team relaxing after a busy day at #SeattleClub conference @andreabruun.bsky.social @dappleproject.bsky.social
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Irene Tuffrey-Wijne @tuffrey-wijne.com · 12/12/2024
We’re READY!
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Irene Tuffrey-Wijne @tuffrey-wijne.com · 12/12/2024
Does using a pictorial story book about epilepsy improve outcomes for people with learning disabilities? Answer: yes! @booksbeyondwords.bsky.social Great presentation by @silvanamengoni.bsky.social
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Irene Tuffrey-Wijne @tuffrey-wijne.com · 12/12/2024
Lots of interesting presentations and posters at the #SeattleClub conference, including inspiring talks from our team @kingstonuniversity.bsky.social
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Irene Tuffrey-Wijne @tuffrey-wijne.com · 10/12/2024
Ready for the Staying Alive & Well Group (LeDeR programme) Xmas party!
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Irene Tuffrey-Wijne @tuffrey-wijne.com · 03/12/2024
Come and listen to the latest research and projects in palliative care and learning disability. Better still, submit an abstract! Don’t miss out! Registration now open: shorturl.at/HB5mE
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Irene Tuffrey-Wijne @tuffrey-wijne.com · 28/11/2024
Sitting round the table with 8 old and new colleagues, & telling each other what we’re FANTASTIC at, but also what we find difficult and what helps us… gives me goosebumps. I’ve got a team of STARS! @andreabruun.bsky.social @dappleproject.bsky.social
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Irene Tuffrey-Wijne @tuffrey-wijne.com · 28/11/2024
Getting ready for the READY study! New study, new team, new logo. We had fun co-designing a conference poster. “How can we work out when someone is coming to the end of life? Especially if they die of something other than cancer or dementia?” Funded by Marie Curie @jane-bernal.bsky.social
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