Sign in

Together for Short Lives

@tog4shortlives.bsky.social
91 followers 1 following 14 posts

We are the UK charity for children and young people who are expected to have short lives.

PostsRepliesMedia
Together for Short Lives @tog4shortlives.bsky.social · 26/03/2026
Caring for a seriously ill child can leave families running on empty. "The support has changed our family's life. We can start living instead of surviving." Call our free helpline: 0808 8088 100 💜
A quote on a colorful background reads, "The support has changed our family's life. The grants helped us tremendously, and we can start living instead of surviving." The logo at the bottom says "Together for Short Lives" with a small butterfly icon.
000
Together for Short Lives @tog4shortlives.bsky.social · 20/03/2026
Eid Mubarak🌙 To everyone in our community celebrating today - we're thinking of you. May this Eid bring you peace, love, and precious time together. From everyone at Together for Short Lives.💜
000
Together for Short Lives @tog4shortlives.bsky.social · 20/03/2026
Spring clear out season is here. Your old clothes, toys and books could support seriously ill children across the UK. Anglo Doorstep Collections pick up for free - straight from your door. Book a free collection: bit.ly/3ML0pDS 💜
The image features a collaboration between "Together for Short Lives" and "Anglo Doorstep Collections." The background is purple, with a logo for Together for Short Lives in the top left corner. Text in bold pink asks, "Have you got a bag to spare?" Below, yellow text states, "Anglo Doorstep Collections pick up for free - straight from your door." On the right, there is an image of a black van with the "Anglo Doorstep Collections" logo and the tagline "Effortless Giving.
000
Together for Short Lives @tog4shortlives.bsky.social · 11/03/2026
When a child is seriously ill, everyday life doesn't stop. In 2024/25, we helped 550 families receive a free food shop or vouchers - thanks to the generosity of M&S Food, Morrisons and Rosie's Rainbow Pantry. 💜 www.togetherforshortlives.org.uk/ge…
000
Together for Short Lives @tog4shortlives.bsky.social · 10/03/2026
Are you supporting children and families in remote or rural communities? On 17 March, we're joined by Helen Malo from @HospiceUK to explore how we can bring children's palliative care closer to home. Free to attend - link in bio. bit.ly/4ddnLkn
Graphic for a webinar series titled "Together We Learn," featuring Hospice UK and Together for Short Lives. The session is on palliative care in remote communities, scheduled for Tuesday, March 17, at 11 am.
000
Together for Short Lives @tog4shortlives.bsky.social · 08/03/2026
Today is #InternationalWomensDay. Lynsey, Habon, Jess and Sarah show up every day for children and families who need it most. Four inspiring women. One shared drive to make things better. 💜 #IWD2026 #GiveToGain
100
Together for Short Lives @tog4shortlives.bsky.social · 28/02/2026
Today is Rare Disease Day. 7 in 10 rare conditions affect children. Over 50% of childhood deaths are associated with a rare condition - yet only 4 in 10 have a care plan. No family should face their child's short life alone. Because time is short. @geneticallianceuk.bsky.social
Blue and green abstract design with text: "Today is Rare Disease Day. Only 4 in 10 children with a rare condition have a care plan." Logo: "Together for Short Lives" with a small butterfly icon.
000
Together for Short Lives @tog4shortlives.bsky.social · 23/02/2026
Today is Helpline Awareness Day. 💜 If you're caring for a seriously ill child, you shouldn't have to face it alone. Our helpline is here to listen, help with practical and financial support, and point you in the right direction. Call on 0808 8088 100 or togetherforshortlives.org.uk/get-support
000
Together for Short Lives @tog4shortlives.bsky.social · 21/02/2026
A bake sale. A birthday fundraiser. A gig for someone you love. There's no one way to fundraise for Together for Short Lives - and some of the most memorable have been the simplest. 💜 Got an idea? We'd love to help 👉 bit.ly/4tRvfj8
Cyclist standing with a bicycle, wearing a "Together for Short Lives" t-shirt and a high-visibility vest. The event appears to involve cycling, with other participants in background.
000
Together for Short Lives @tog4shortlives.bsky.social · 20/02/2026
This #CareDay, looked-after children with life-limiting conditions deserve to be part of the conversation. Join our free webinar with Credo Care Fostering and Rainbows Hospice. 📅 26 Feb | 🕐 11am–12pm | 📍 Online Book your place 👉 bit.ly/46lpOie
A child's drawing shows three smiling people holding hands. One person is sitting in a wheelchair. The drawing is surrounded by colored pencils and markers.
000
Together for Short Lives @tog4shortlives.bsky.social · 19/02/2026
It's Payroll Giving Month. £5 a month from your pay before tax costs you less than you give – and helps us support families caring for a seriously ill child through our helpline, campaigning and grants. togetherforshortlives.hopg.co.uk
000
Together for Short Lives @tog4shortlives.bsky.social · 16/02/2026
New evidence @mariecurieuk.bsky.social highlights what families of seriously ill children tell us every day: access to high‑quality palliative & end of life care depends on where you live. Our trustee Brad McLean spoke to BBC Radio 4 about the reality for families. Starts 2:40 bbc.in/4cw9sa8
000
Together for Short Lives @tog4shortlives.bsky.social · 13/02/2026
In January, 173 families contacted our helpline for support. If you or someone you know could use our support, call us on 0808 8088 100 or visit our Family Support Hub. 💜 www.togetherforshortlives.org.uk/ge…
togetherforshortlives.org.uk
Family Support Hub
Our Family Support Hub offers emotional support and practical advice, connecting you with other families, and helping you access free legal advice if you need it.
000
Together for Short Lives @tog4shortlives.bsky.social · 11/02/2026
When you're caring for a seriously ill child, the fridge still needs filling. We work with Rosie's Rainbow Pantry to provide a one-off food shop to families nearing end-of-life or recently bereaved. This feedback from a family really does mean the world to us 💜
"This is what a full fridge meant to one family...""Oh my goodness I have just finished packing away our shopping delivery, thank you so much, I am so emotional." "There is absolutely everything we need in my fridge, freezer and cupboards!"  "We are incredibly grateful. I can't tell you how much this means to us and the difference it's made to a really stressful time for my family."
020