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thuvia25.bsky.social @thuvia25.bsky.social · 19/06/2025

#WorldSickleCellDay2025 it’s #TellItLoud year. We gladly share our co-produced #haloheamstudy video - says it all so please take the time to 👀 youtu.be/1Y9rSrjLqD0?... Want to know more ? Check out halohaemstudy.org.uk We look forward to sharing the results of our survey and data linkage study.

youtu.be

HALO Study

YouTube video by School of Medicine

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Reposted by @thuvia25.bsky.social

Haemophilia Chartered Physiotherapy Association @hcpa.bsky.social · 24/04/2025

At #wfhccs in Dubai one of our UK physiotherapists Melanie Bladen speaking on the international expert panel discussing the importance of periodic visits for people with #BleedingDisorders #physiotherapy #mskcare #medsky

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Reposted by @thuvia25.bsky.social

Haemophilia Chartered Physiotherapy Association @hcpa.bsky.social · 24/04/2025

#wfhccs UK and Ireland physiotherapists Richard Davis & Mark McGowan share their work in the poster hall #physiotherapy #bleedingdisorders Developing physiotherapy guidelines for iliopsoas haematomas and Adapting physiotherapy approaches for older patients with #haemophilia

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Reposted by @thuvia25.bsky.social

Haemophilia Chartered Physiotherapy Association @hcpa.bsky.social · 24/04/2025

Professor David Stephensen, UK physiotherapist sharing his work at #wfhccs on identifying performance based outcome measures of physical function in #haemophilia #physiotherapy moving towards core outcomes in #BleedingDisorders

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Reposted by @thuvia25.bsky.social

EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 23/04/2025

The EAHAD WG+BD WG has just released the Spanish 🇪🇸 version of their booklet for young girls starting their period🩸It’s designed for girls and young people who menstruate, and also helps families better understand and support them. Download it and help us spread the word www.eahad.org/eahad-projec...

eahad.org

EAHAD Women and Girls+ with Bleeding Disorders Working Group

Time to talk: Period This booklet has been developed by the EAHAD Women and Girls+ with Bleeding Disorders (WG+BD) Working Group as an informational resource for girls who have just started or are abo...

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Reposted by @thuvia25.bsky.social

Haemophilia Chartered Physiotherapy Association @hcpa.bsky.social · 17/04/2025

Today is #WorldHaemophiliaDay This years theme ‘Women and Girls Bleed Too’. As the Haemophilia Chartered Physiotherapists Association we recognise the unique challenges faced by women and girls with bleeding disorders and aim to work together to improve access and care for all. #WHD2025

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