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EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 18h

One multidisciplinary approach to care! Open to all delegates, the Allied Health Professionals Day brings together nursing, physiotherapy, and psychosocial care at EAHAD 2027. See the programme here: eahadcongress.com/allied-healt...

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EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 29/09/2026

📰 A Common Language for the Multidisciplinary Team. Read this article exploring how point-of-care musculoskeletal ultrasound can contribute to modern haemophilia care, and what is needed to make its use more widely integrated into clinical practice 🔗 onlinelibrary.wiley.com/doi/10.1111/...

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EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 28/09/2026

How does haemophilia affect gross motor development during the first months of life, and could factors beyond the condition itself influence how infants learn to move and explore? 🎧 Haven’t listened yet? Catch up on the full conversation on Spotify!

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Reposted by EAHAD - European Association for Haemophilia and Allied Disorder

EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 16/09/2026

🎙️ Dimitrios Syrengelas and Paula Loughnane discuss gross motor development, how it compares with full-term and preterm infants, and the insights offered by the AIMS. 🎧 Haven’t listened yet? Catch up on the full conversation on Spotify: open.spotify.com/episode/4uiW...

open.spotify.com

Meet the Author Ep. 12: Haemophilia infants gross motor development: comparisons with full-term and preterm infants of the same nationality

EAHAD · Episode

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EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 25/09/2026

#DidYouKnow? From 190 delegates in Amsterdam to more than 2,000 in Dublin. 🌍 Over nearly two decades, the EAHAD Congress has grown into an international meeting point for the bleeding disorders community.

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EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 23/09/2026

Riitta Lassila and Alberto Tosetto connect past milestones with the questions that still shape VWD diagnosis and clinical practice today. 🎧 If you missed the first episode of EAHAD Insights, listen to the full conversation: open.spotify.com/episode/6mGl...

open.spotify.com

100 Years of Von Willebrand Disease: Looking Back, Thinking Forward

EAHAD · Episode

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EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 22/09/2026

EAHAD is proud to launch Breaking Barriers: a new project exploring how multidisciplinary care can address the psychological and social realities of living with a bleeding disorder in Kyrgyzstan. Follow EAHAD to join us on the Breaking Barriers journey.

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EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 22/09/2026

🩸 Your research could be part of EAHAD 2027! Share your latest findings and contribute to the scientific programme of a milestone edition: the 20th anniversary of the EAHAD Congress in Brussels. eahadcongress.com/abstract-sub...

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EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 17/09/2026

#Elearning🎓 Managing pregnancy in women with VRCFD requires more than a one-size-fits-all approach. Our latest e-learning module brings together clinical and psychosocial perspectives to explore key challenges throughout pregnancy and childbirth: academy.eahad.org/eahad/2026/e...

academy.eahad.org

Module 25: Pregnancy-Related Complications in Women with VRCFD by Faculty Speakers

EAHAD Academy; Speakers F. Sep 10 2026; 4236447;

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EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 17/09/2026

🔬 What’s on the scientific programme for EAHAD 2027? Discover the sessions, topics and expert insights awaiting you in Brussels: eahadcongress.com/scientific-p...

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EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 16/09/2026

open.spotify.com

Meet the Author Ep. 12: Haemophilia infants gross motor development: comparisons with full-term and preterm infants of the same nationality

EAHAD · Episode

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EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 15/09/2026

🎙️ 100 years of VWD: what has a century of progress taught us? In this first episode of EAHAD Insights, VWD experts Riitta Lassila and Alberto Tosetto look back at the milestones that have shaped our understanding of VWD and their impact on clinical practice today. 🎧 open.spotify.com/episode/6mGl...

open.spotify.com

100 Years of Von Willebrand Disease: Looking Back, Thinking Forward

EAHAD · Episode

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EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 14/09/2026

Don’t miss what’s coming at EAHAD 2027! Programme updates, speaker announcements, key deadlines, and Congress news. 📩 Sign up for the EAHAD 2027 newsletter: eahadcongress.com/

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EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 10/09/2026

Pregnancy & childbirth in women with VRCFD require careful, individualised care. Explore bleeding risks, miscarriage & PPH, Factor XIII/VII deficiency management, monitoring, treatment & delivery planning, alongside the psychosocial impact. 🎓 academy.eahad.org/eahad/2026/e...

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EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 09/09/2026

🩸20 years of EAHAD. Congress Presidents Professor Cédric Hermans and Professor Thierry VandenDriessche welcome you to Brussels for this landmark edition of EAHAD 2027. Read the welcome letter: eahadcongress.com/welcome-mess...

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EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 08/09/2026

How can a more patient-centred approach reshape the treatment and care of people with haemophilia B? 🎥 Watch “Refocusing on Haemophilia B: Patient-Centric Approaches to Treatment and Care”, EAHAD 2026 Novo Nordisk symposium 🔗 academy.eahad.org/eahad/2025/n...

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EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 04/09/2026

#DidYouKnow that Brussels’ iconic Atomium was built to celebrate scientific progress and innovation? A fitting symbol for EAHAD as we look towards our 20th anniversary and continue to advance research, knowledge and care in haemophilia and allied disorders. 🔬

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EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 03/09/2026

🌍 How does VWD vary across populations, and what role does ethnic diversity play? Join us next week for our joint webinar with Omid Seidizadeh to explore the global prevalence of VWD and how ethnicity shapes our understanding of the disease. 🗓️ 10 Sep @ 17:00 CEST 🔗 eurobloodnet.eu/education/th...

eurobloodnet.eu

Updated global prevalence and ethnic diversity of von Willebrand disease based on population genetics analysis | ERN-EuroBloodNet Thursdays webinars | Education | EuroBloodNet

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EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 02/09/2026

#PhysioNews 🎙️ Are infants with haemophilia getting enough opportunities to move, explore and develop from the very beginning? 🎧 Dimitrios Syrengelas & Paula Loughnane discuss early motor development in infants with #haemophilia: open.spotify.com/episode/4uiW...

open.spotify.com

Meet the Author Ep. 12: Haemophilia infants gross motor development: comparisons with full-term and preterm infants of the same nationality

EAHAD · Episode

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EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 01/09/2026

🔬 Abstract submissions for EAHAD 2027 are now open! Share your findings with leading experts in haemophilia and bleeding disorders before 21 October ➡️ eahadcongress.com/abstract-sub...

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EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 29/08/2026

The EAHAD 2027 website is live! Take a look at what's ahead as we mark 20 years of EAHAD with a milestone Congress in Brussels: eahadcongress.com/

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EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 27/08/2026

📅 Save the Date! Join us in Brussels, Belgium from 2-5 February 2027 for the milestone 20th annual EAHAD Congress. Add these dates to your professional calendar: evt.to/l5hbmy4hcy6n

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EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 26/08/2026

Explore the evolving landscape of haemophilia B management, from daily clinical and life challenges to the emerging role of anti-TFPI therapies and their application in real-world scenarios. 🎥 Replay the Novo Nordisk symposium on the EAHAD Academy: academy.eahad.org/eahad/2025/n...

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EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 25/08/2026

This summer, we’ve been preparing new educational content for the bleeding disorders community. 🎙️ Expert podcast conversations 🎓 New e-learning modules on pregnancy-related complications in women with VRFD, haemophilic elbow arthropathy, and early motor development in infants with haemophilia

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EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 19/08/2026

📢 4 weeks to go! Join our joint webinar, organised together with EHC and ERN-EuroBloodNet, exploring the global prevalence and ethnic diversity of von Willebrand Disease with Omid Seidizadeh. 🗓️ 10 September 2026 ⏰ 17:00 CEST 🔗 Register here: eurobloodnet.eu/education/th...

eurobloodnet.eu

Updated global prevalence and ethnic diversity of von Willebrand disease based on population genetics analysis | ERN-EuroBloodNet Thursdays webinars | Education | EuroBloodNet

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EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 12/08/2026

A joint bleed doesn’t simply end when the bleeding stops. Recovery can take considerably longer, and several factors may influence how quickly a joint returns to its previous level of function. 🎧 Listen to our podcast with Gijs Aertssen open.spotify.com/episode/0pFX...

open.spotify.com

Meet the Author Ep. 11: Predicting Recovery After Joint Bleeding in Persons With Bleeding Disorders

EAHAD · Episode

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EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 11/08/2026

Ageing with haemophilia: a changing clinical landscape. Discover how we can support people with haemophilia throughout the ageing process from physical vulnerability and thrombotic risk to the psychosocial impact of ageing: academy.eahad.org/eahad/2025/e... 🔓 Free access

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EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 05/08/2026

Explore the new section on #EAHADAcademy dedicated to Congress Symposia and access recordings of the symposia presented by CSL and Novo Nordisk. Revisit expert discussions, the latest scientific developments, and practical insights whenever it suits you! 🎥 academy.eahad.org/eahad/?menu=...

academy.eahad.org

EAHAD Sponsor Section

Access educational materials, eLearning activities, accredited Live webinar sessions with polls and chat on this fast Digital Library and Hybrid Virtual Event Platform powered by MULTILEARNING LMS.

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EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 04/08/2026

Recurrent nosebleeds are often overlooked, but they can be an early sign of Hereditary Hemorrhagic Telangiectasia (HHT). Earlier recognition is key to timely diagnosis and appropriate management. 🎥 Watch our e-learning module featuring Raj S. Kasthuri: academy.eahad.org/eahad/2026/e...

academy.eahad.org

Module 24: Hereditary Hemorrhagic Telangiectasia by Raj S. Kasthuri

EAHAD Academy; Kasthuri R. Jun 10 2026; 4218307;

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EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 24/07/2026

Summer is the perfect time to catch up on #Haemophilia education. ☀️ Watch this #EAHAD2026 session on the evolving landscape of factor replacement therapy with Jan Astermark, Annette Bowyer and Cedric Hermans. 🎥 academy.eahad.org/eahad/2026/e...

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EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 23/07/2026

EAHAD joins EuroBloodNet and @ehc-news.bsky.social for a joint webinar on the latest insights into the global prevalence and ethnic diversity of von Willebrand disease, based on population genetics analysis with Omid Seidizadeh. 📅 10 Sept🔗Register now: eurobloodnet.eu/education/th...

eurobloodnet.eu

Updated global prevalence and ethnic diversity of von Willebrand disease based on population genetics analysis | ERN-EuroBloodNet Thursdays webinars | Education | EuroBloodNet

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EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 21/07/2026

How long does it really take to recover from a joint bleed? In our latest podcast, we speak with Gijs Aertssen about the factors that influence recovery after a joint bleed and what these findings could mean for everyday clinical practice. 🎧 open.spotify.com/episode/0pFX...

open.spotify.com

Meet the Author Ep. 11: Predicting Recovery After Joint Bleeding in Persons With Bleeding Disorders

EAHAD · Episode

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Reposted by EAHAD - European Association for Haemophilia and Allied Disorder

European Haemophilia Consortium @ehc-news.bsky.social · 14/07/2026

🎥 Missed the EHC #ERIN Webinar on #HaemophiliaB with #Inhibitors? The recording is now available — watch the conversation between clinicians & patient advocates, organised in collaboration with @eahad.bsky.social 👇️ youtu.be/KG3dpFR5V4c?...

youtu.be

ERIN Webinar - Haemophilia B With Inhibitors - From Daily Challenges to Clinical Management

Held on 3 July 2026, this webinar, organised by the European Haemophilia Consortium (EHC) in cooperation with the European Association for Haemophilia and Allied Disorders (EAHAD), brings together…

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EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 01/07/2026

🔓 Missed the EAHAD–ISTH Joint Session at EAHAD 2026? Last days to catch Guido Giunti as he explores how digital health is transforming the diagnosis and management of bleeding disorders of unknown cause. Relive the insights: academy.eahad.org/eahad/2026/e... 🔓 Free access for one week only

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EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 30/06/2026

📄 Check the recently published article, which outlines a product-specific operational pathway to support Italian clinicians in managing patients throughout the GT journey and notes that these pathways will evolve as evidence and experience grow: onlinelibrary.wiley.com/doi/10.1111/...

onlinelibrary.wiley.com

Italian Patients Journey for Gene Therapy in Haemophilia A

Introduction Gene therapy (GT) provides sustained FVIII levels without repeated infusions in Hemophilia A (HA) patients thus overcoming a major limitation of replacement therapy. However, issues rem...

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EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 27/06/2026

🔓 Limited-time open access! The collaboration between EAHAD and @isth brings together international expertise to tackle bleeding disorders of unknown cause with Floor Heubel-Moenen and Guido Giunti. Relive the insights: academy.eahad.org/eahad/2026/e... 🔓 Free access for 1 week only

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EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 25/06/2026

🎥 Missed our latest Gene Therapy online session or want to rewatch it? The full replay of "Inhibitor Development in Gene Therapy for Haemophilia" is now available on the EAHAD Academy. 🔗 Watch it now: academy.eahad.org/eahad/2026/g... 👀 And stay tuned for our next Gene Therapy webinar!

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Reposted by EAHAD - European Association for Haemophilia and Allied Disorder

EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 17/06/2026

Hereditary Hemorrhagic Telangiectasia (HHT) affects around 1 in 5,000 people worldwide, yet it remains widely underdiagnosed. Early diagnosis is key to improving outcomes and quality of life for people living with HHT. 🎥 Watch the e-learning module w/ Raj Kasthuri: academy.eahad.org/eahad/2026/e...

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EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 17/06/2026

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EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 16/06/2026

📄Read the new publication on the JTH supported by the EAHAD Research Grants 2024: “Prothrombotic PROC variant rebalancing hemostasis in severe haemophilia A with attenuated bleeding risk”. Congratulations to the authors on this valuable contribution to the field. 🔗 www.jthjournal.org/article/S153...

jthjournal.org

Prothrombotic PROC variant rebalancing hemostasis in severe hemophilia A with attenuated bleeding risk

Severe hemophilia A (HA), defined by a clotting factor [F]VIII level of <1%, leads to a severe bleeding tendency. A pathogenic F8 variant p.His300Lysfs∗41 accounted for <1% FVIII levels in a patient w...

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EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 15/06/2026

Last few hours to register for our upcoming webinar on Inhibitor Development in Gene Therapy for Haemophilia ⏳ Join Yesim Dargaud, Davide Matino, Sébastien Lacroix-Desmazes, and Guy Young as they explore emerging insights in the field 🧬 🔗 Register now: academy.eahad.org/eahad/2026/g...

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EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 12/06/2026

⏳ Final Call! Join our upcoming webinar on Inhibitor Development in Gene Therapy for Haemophilia with Yesim Dargaud, Davide Matino, Sebastien Lacroix-Desmazes, Guy Young to explore these key issues. 📅 Monday | 17:00 CEST 🔗 Register now: academy.eahad.org/eahad/2026/g...

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EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 11/06/2026

Missed the Novo Nordisk symposium on Refocusing on haemophilia B: Patient-centric approaches to using anti-TFPI at EAHAD 2026? The full session is now available on the EAHAD Academy. Replay the session: academy.eahad.org/eahad/2025/n...

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EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 10/06/2026

🎥 Watch the new e-learning module featuring Raj S. Kasthuri on Hereditary Hemorrhagic Telangiectasia (HHT) to review the genetic basis, pathophysiology, clinical manifestations, diagnostic criteria, and current management strategies for HHT: academy.eahad.org/eahad/2026/e...

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EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 09/06/2026

The Request for Proposals to host the Annual EAHAD Congress 2030 is now open! This is your chance to put your city in the spotlight and contribute to advancing care for patients across Europe. 🌍 Visit the EAHAD website for submission guidelines: www.eahad.org/request-for-... 🗓️ Deadline: 1 Jan 2027

eahad.org

Request for Proposals (RFP) to Host Annual EAHAD Congress 2030

Are you a clinician actively involved in the haemophilia and bleeding disorders field and a dedicated member of EAHAD? If so, we're happy to inform you that we've just launched the EAHAD 2030 Request ...

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EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 03/06/2026

Are there identifiable patterns or risk factors emerging from real-world cases? Discuss the topic in our upcoming Gene Therapy webinar, which brings together expert perspectives from Yesim Dargaud, Davide Matino, Sébastien Lacroix-Desmazes, and Guy Young. 🔗 academy.eahad.org/eahad/2026/g...

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EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 02/06/2026

📣 EAHAD and @ehc-news.bsky.social come together once again, bringing together clinical perspectives, patient experiences, and interactive discussion to support a deeper understanding of Haemophilia B with inhibitors. Register now 🔗https://form.dragnsurvey.com/survey/r/b5590c21

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EAHAD - European Association for Haemophilia and Allied Disorder @eahad.bsky.social · 28/05/2026

Which patient- or treatment-related factors influence immune activation after gene transfer? Join Yesim Dargaud, Davide Matino, Sébastien Lacroix-Desmazes, and Guy Young for an expert discussion 🔗https://academy.eahad.org/eahad/2026/gene-therapy-in-haemophilia-2026

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