iiinova — where your digital self keeps evolving

Robyn (Redd) @thredd.bsky.social · 15/06/2025

If you'd like to read more about this, @juliametraux.bsky.social wrote about it for @motherjones.com yesterday. Here's the article: The Department of Energy is quietly slashing disability rights www.motherjones.com/politics/202...

motherjones.com

The Department of Energy is quietly slashing disability rights

"If we don't put a line in the sand here, other agencies will try and do the same.”

1107

Robyn (Redd) @thredd.bsky.social · 15/06/2025

🚨Tell the Department of Energy not to change the Section 504 rules!🚨 Accessibility for disabled people is about to be REMOVED from new federal buildings unless we act by MON, JUNE 16!! Tell the gov't: If we build a new building, it MUST be fully accessible! 👇TAKE ACTION NOW!👇

Red flyer, black and white text. Header reads emergency action needed, large block text with exclamation points on both sides. Below, a call to action that reads

Accessibility for disabled people is about to be removed from federal buildings unless we act by Monday June sixteenth!

The US Department of Energy has issued a quote direct final rule end quote that would eliminate the long standing requirement that new buildings constructed with federal money must be accessible to people with disabilities!

They claim it’s unnecessary and burdensome.”But here’s what eliminating this rule really means

New federally funded buildings could be built without ramps, elevators, accessible bathrooms, or doors.

There would be no enforceable standards for accessibility in construction or major renovations.

It weakens the civil rights protections guaranteed by Section five oh four of the Rehabilitation Act.

44026

Robyn (Redd) @thredd.bsky.social · 27/04/2025

For those in #NYC or nearby - free rapid tests available. If you are part of an org/group or can help w/community distro…come grab a box and do your part! Individuals who need tests are welcome also! DM for pick up. Please share.

020

Robyn (Redd) @thredd.bsky.social · 21/04/2025

Again, if any local community groups/individuals want to help distro tests/need tests, they can lmk and arrange for pick up in NYC. I’ll also be contacting groups and doing handouts.

010

Robyn (Redd) @thredd.bsky.social · 21/04/2025

And a HUGE shoutout to an amazing community member for the last min support today! 👏

000

Robyn (Redd) @thredd.bsky.social · 21/04/2025

42 cases of *unexpired* rapid antigen tests ⬇️ #CovidIsNotOver

Stacks of cardboard boxes filled with rapid antigen tests for covid 19 acquired from the government sit in a living room on hardwood floors in front of open windows with white curtains. A white air purifier is on the ground to the right of the boxes and a grey metal rolling cart with a green handle is to the left.

263

Robyn (Redd) @thredd.bsky.social · 20/04/2025

UPDATE: Someone nearby is coming tmro to help out! Thank you for helping get word out about this.Very grateful for you all! 🫶 If any local community groups/individuals want to help distro tests/need tests, they can lmk and arrange for pick up. I’ll also be contacting groups and doing handouts.

010

Robyn (Redd) @thredd.bsky.social · 20/04/2025

Thank you so much! I believe I have one person who is available to help now. If there are any local community groups or individuals who would like to help distribute tests/are in need of tests, they can let me know and arrange for pick up. I’ll be contacting groups and doing handouts as well.

020

Robyn (Redd) @thredd.bsky.social · 20/04/2025

Please help me find someone to lend a hand with this? Feel free to share on other platforms, dm to people, post in groups, etc. These tests will be made available (free) to the community!! If I refuse the delivery it goes back to HHS. Thank you!!📦😷 #NYC #MutualAid #CovidIsNotOver

A square flier with light purple abstract shapes and dark purple lettering. In the bottom right corner, three line drawn rapid tests. The flier has an ask for urgent volunteer help.

Help needed!

Mon April 21 in NYC, Harlem.

Help needed w/large delivery of Rapid Tests from Health and Human Services. They won’t deliver up to my apartment and I can’t physically lift the boxes.

Boxes will need to be moved from curbside (possibly lobby) up to my apartment.

Elevator building, will have a dolly slash cart available.

Please let me know if you can help!
(A mask is required and provided. You can take tests home with you!!)

Interested in distro?
Reach out!

165

Robyn (Redd) @thredd.bsky.social · 18/04/2025

🚨HELP NEEDED MONDAY 4/21 IN NYC (HARLEM)🚨 Rapid test delivery being done curbside, they refuse to do it to my door and I can’t physically lift the boxes. I have an elevator and can make a dolly available. Please lmk if you can help! Anyone interested in distro also lmk!

000

Reposted by Robyn (Redd)

COVID Long-Haulers Against Fascism @guerillaadvocacy.bsky.social · 08/04/2025

Join us on April 19 at 2:00 pm EDT for Guerilla Advocacy Round 2, a #50501 event. This is a virtual rally with captions. If there are other accessibility requests, we will do our best to provide! Speakers TBA. Limited space; overflow streamed to YouTube. Sign up👇 events.pol-rev.com/events/afc50...

Soft blue background with a little boy and a dog drawing. Text says yes I did it. No I'm not sorry. Yes, I'd do it again.

02219

Robyn (Redd) @thredd.bsky.social · 06/04/2025

Here's an article about this and other online events. Thank you, Mother Jones, for covering it. www.motherjones.com/politics/202...

motherjones.com

For some disabled protestors, “Hands Off” went virtual

"We know we have to teach everyone how to include us."

000

Robyn (Redd) @thredd.bsky.social · 06/04/2025

I spoke yesterday at an online #HandsOff event organized by @rubyslippahs.bsky.social. Here's my speech. Please keep talking about these important things, get involved in mutual aid efforts and community organizing, ask your neighbors how you can help, and know your rights.

I’m Robyn Saldino, I live in New York City, and I developed Long COVID after a COVID infection in December 2021. I’ve participated in advocacy across several orgs, I’m a RECOVER patient representative, I do resource distribution from my apartment, and I’m active in mutual aid efforts. I’ve also been fighting my own eviction for more than 18 months.

After multiple months of trying to convince legal aid orgs to proactively take my case, give me advice, or point me to resources before I lost my housing or was served with an eviction notice, I found out that a warning and eviction had both been filed only after I emailed my landlord about a separate issue and was told my concern was likely made up, due only to the fact that we were about to go to court. I had not received either one. I again began trying to find a legal aid group to help me, and could not get anyone to give me advice without a case number or without physically going to court first. I repeatedly explained that my disability would prevent me from physically traveling to the courthouse, but still received no help.

As a disabled person, it is extremely difficult for me to make last minute plans, and unlikely that I will be traveling to the courthouse in-person due to my disability. I need time to arrange for virtual accommodations, submit requests, and handle other paperwork that comes along with living in a world that is not designed for accessibility. The hardship that this causes is extraordinary, and knowing that no one has bothered to inform me is infuriating and disheartening.

Throughout the course of my case, I was never given a lawyer, though here in NYC we have Right to Counsel, and I am legally entitled to have one present.

I came into contact with more 50 people, lawyers, social workers, advocates, housing specialists, court workers, etc, and these contacts became my lifeline, but no one ever took on my case. I eventually was told to refer myself to Adult Protective Services.

APS asked the court assign me a Guardian ad Litem.

The case dragged on. My Landlord refused to accept a housing voucher.

My APS worker helped to finally sort out my SNAP, utility benefit, and health insurance, and allowed me to finally, after more than 2 1/2 years in this city, see a doctor.

My case took 18 months, and I won. Immediately after winning my case, my landlord filed for eviction again under a different pretense, and I successfully got that case dismissed, too.

Mutual aid kept me afloat, allowing me to make a single payment to my landlord and extend the case long enough to continue searching for housing that would accept a voucher.

It kept me fed when I didn’t have SNAP. It got me to a doctor and got me meds when I needed them. It got me to clinical trial appointments for a Long COVID trial I was enrolled in. It has allowed me to distribute thousands of covid tests and masks, to lend out my air purifiers, and even to give direct aid to long haulers in need of support.

I live in a medically underserved community— a FEMA-designated, medically underserved community. My neighborhood has one of the highest eviction rates in the city. There is no Long COVID clinic in my community. We’re losing funding, care, homes, rights, and lives.

Prior to the global outbreak of SARS-CoV-2, approximately 1 in 10 households were being threatened with evictions in formal court filings each year. By September 2020, that number was 1 in 6. 1 in 6 households were behind on rent and at risk of eviction. Renters were 2 to 6 times more likely to report housing insecurity than homeowners. Many of the filings were unresolved pre-pandemic cases, filed before the eviction moratorium was put into place in 2020, which means we were playing catch-up. When the moratorium ended in 2021, eviction filings increased 78.6% over the next year.

Even if a tenant is able to win their case or gain access to a housing voucher, the housing crisis persists.

Finding accessible housing is it’s own unique challenge.

There is an extreme lack of accessible housing. Less than 5% of housing is accessible for people with moderate mobility needs. Less than 1% of housing is fully accessible for wheelchair users. The cost of living in the United States, and the average rent already exceeds the maximum monthly supplemental security income a person is able to receive. When people with disabilities apply for affordable housing, widespread discrimination coupled with a lack of available accessible housing, creates additional barriers that are more likely to lead to homelessness and institutionalization.

I’m not having it. I’m saying hands off. Hands off our community, hands off our long haulers. We can do better. Thank you for being here.

171

Robyn (Redd) @thredd.bsky.social · 28/03/2025

Thank you so much! I can’t even tell you how much that means coming from you! 🫂

110

Robyn (Redd) @thredd.bsky.social · 28/03/2025

Disabled and chronically ill DV survivor struggling trying to balance things, get bills paid, make it to appts, take care of myself, etc. Recent tests worse than previous ones. New rx and new docs. Finally won eviction case. Trying to stay afloat. Any help makes a difference. TYSM 🫶

000

Robyn (Redd) @thredd.bsky.social · 28/03/2025

Help w/emergency needs: 💸PP: PayPal.me/RobynthRedd Help me stay independent and safe: 👑WL: throne.com/robynthredd

000

Robyn (Redd) @thredd.bsky.social · 04/07/2024

Disabled DV survivor at risk of losing utilities/apt due to $20k+ arrears. Fees are stacking, landlord is harassing me. Court again 7/29. 🏘️: $442/$2900 (June/July only, DUE 7/5 W/LATE FEE) 🔌: $285/$887 (FINAL NOTICE) gofund.me/8991e474 PyPl/Vnmo: RobynthRedd #MutualAid #Crowdfund #HousingCrisis

Disabled & chronically ill DV survivor w/o medical care for 4.5 yrs, no income/SSI. Dealing with worsening #LongCOVID symptoms and am now ~90% bedbound.

Fighting ongoing eviction after kicking out abusive ex. Funds go toward $20k+ rent arrears.

Next court date 7/29. Anything helps!!

gofund.me/8991e474
paypal.me/RobynthRedd
venmo.com/u/RobynthRedd

APS is involved now and I’ve made some progress toward getting help (rent voucher, home care, medical care, etc), but I still have to pay rent/utilities in the meantime, assistance won’t cover everything, and I have considerable other expenses.

I think I finally have SNAP! I should be getting home care started soon.

It was recommended that I get a Rollator and a few small items to my living space to make it more accessible as soon as possible. For the time being/until I can see a doctor in person, these are my two biggest expenses:

$2900 - Rent (June + July)
$887 - ConEd (Final turnoff notice)

gofund.me/8991e474
paypal.me/RobynthRedd
venmo.com/u/RobynthRedd

011

Robyn (Redd) @thredd.bsky.social · 05/02/2024

Have until tmro (5th) to make a payment before court!! I still owe more than $7000 to stop the eviction. Legal aid won’t talk to me about housing or DV stuff. Please 🎁💬🔄❤️ GoFundMe.com/f/RobynThRedd-emergency PayPal/Venmo: @RobynThRedd #MutualAidRequest #LongCovid #Crowdfund

034

Robyn (Redd) @thredd.bsky.social · 23/11/2023

HRA denied my SNAP/Medicare/CA almost 2 wks ago and didn't notify me. Was denied an emerg. grant bc of a computer error. Requested a Fair Hearing. Was told I'd get a FH date by 12/8. Only have until 12/1 to pay arrears. If you can help - 🎁💬❤️🔁 GFM: gofund.me/0d098f40 Venmo/PayPal: @RobynThRedd

gofund.me

Help me remain stably housed, organized by Robyn Saldino

(Updated 11/20) In 2021, a pair of eucalytpus trees fell on the condo I shared with my mo… Robyn Saldino needs your support for Help me remain stably housed

110

Robyn (Redd) @thredd.bsky.social · 18/11/2023

🫂 Thank you. Genuinely, so much.

010

Robyn (Redd) @thredd.bsky.social · 18/11/2023

I waited longer than I should've to do this, and I'm sorry for asking. My abuser left ~$10k in arrears/utilities are gonna be cut off/I'm facing eviction. Grateful for support of any kind! #MutualAid #LongCovid GFM: gofund.me/f97dabce Venmo/Paypal: @RobynthRedd

gofund.me

Help me remain stably housed, organized by Robyn Saldino

In 2021, a pair of eucalytpus trees fell on the condo I shared with my mom. I was forced t… Robyn Saldino needs your support for Help me remain stably housed

132

Robyn (Redd) @thredd.bsky.social · 11/11/2023

Agreed. Have tried to set aside small bits of change all year for things I know will be much less expensive. They’ve already started going on sale. Personal air purifiers, elastomerics, filters, C02 monitors, etc are all great options imho if one is looking :)

020

Robyn (Redd) @thredd.bsky.social · 10/11/2023

I'm curious too, and now I'm going to have to create a test survey to try to figure it out. 😅 And thank you! Hopefully we get some useful info to help support our community!

010

Robyn (Redd) @thredd.bsky.social · 10/11/2023

Survey is updated. First name is requested, or initial/nickname if preferred. If someone wants to use an alias, that's fine. The field is not required.

A screenshot from a survey that reads "Preferred Name? (First name REQUESTED, or you may use an initial or nickname)"

110

Robyn (Redd) @thredd.bsky.social · 10/11/2023

But I try not to live in the land of “should” too much. It’s possible also that I just missed a setting or don’t have a setting on my desktop that other users have bc they have a different operating system (Mac vs PC vs android etc).

000

Robyn (Redd) @thredd.bsky.social · 10/11/2023

device or acct for submission/repeat submission makes sense to me. But I’m going to update the form and clarify the field as well as make it optional so that the form is more accessible to everyone, and if it means I end up double checking the spreadsheet for a while then that’s fine.

100

Robyn (Redd) @thredd.bsky.social · 10/11/2023

I created the form and spreadsheet, or bc I wasn’t (secretly) collecting email addresses from respondents, or bc I allowed multiple submissions. I will likely still allow multiple submissions bc using a gmail acct allows someone to auto save their progress and not everyone has gmail, so sharing a 2/

100

Robyn (Redd) @thredd.bsky.social · 10/11/2023

It’s possible that bc I only tested it using my own account, it messed with the spreadsheet (meaning there were several submissions from the same email account) and I had allowed that previously in case anyone had multiple family members on the same account. I don’t know if it was because 1/

100

Robyn (Redd) @thredd.bsky.social · 10/11/2023

Sorry, I wasn’t clear. Just not very awake yet. I’ll make it optional AND add a clarification if it’s a problem. It will just be in a little bit :)

010

Robyn (Redd) @thredd.bsky.social · 10/11/2023

I’m not fighting you on this one. I’m asking you to please just give me a little time to take care of it, and in the mean time those are my alternative offers if anyone wants to use them. I will get to it in a bit, and I’ll also clarify that it can be a nickname, initial, or made up name.

100

Robyn (Redd) @thredd.bsky.social · 10/11/2023

It’s there so that the spreadsheet communicates easily with the survey. I didn’t require email addresses and I’m not collecting email addresses when people log in to complete the survey (which is standard). And because I just woke up and my computer is dead, and I’m late for a Zoom 🤦🏼‍♀️

100

Robyn (Redd) @thredd.bsky.social · 10/11/2023

Feel free to make up a name, enter only a single initial/letter, or use a nickname. I will add this info in a bit next to the name field. Thanks for letting me know it’s a problem!

110

Robyn (Redd) @thredd.bsky.social · 29/10/2023

Yay! Excited to hear how it goes! I’m going to be doing independent data collection for Novavax / Long Covid soon, so I’ll post here on Bsky when everything is up and running if you want to contribute to the project :)

110

Robyn (Redd) @thredd.bsky.social · 29/10/2023

I forgot to post this here. I got Novavax on Thursday. Took me two weeks to find a CVS that had it but I argued with the pharmacist and they finally gave it to me for free under Bridge Access. Here’s my vaccine selfie @luckytran.bsky.social

A woman takes a selfie wearing a black tank top with silver letters that says “Stronger Than I Look.” She recently got vaccinated.

170

Robyn (Redd) @thredd.bsky.social · 28/10/2023

Currently working on putting together a spreadsheet so we can track our #Novavax data and use it to see how it really looks for those of us with #LongCovid. I’m hoping to have it ready by Monday, but I’ll keep you all posted. If you’re interested in helping, please let me know.

0104

Robyn (Redd) @thredd.bsky.social · 22/10/2023

Sawyer, I’m so sorry for your loss.

020

Robyn (Redd) @thredd.bsky.social · 21/10/2023

I completely understand, it’s so overwhelming. We’ll wait :) take your time, and take care of you!

000

Robyn (Redd) @thredd.bsky.social · 21/10/2023

I didn’t realize I wasn’t following you here, but I’m so happy to see you!

110

Robyn (Redd) @thredd.bsky.social · 12/10/2023

🥴 we need to create some sort of reporting system for this stuff. Just so we have an ongoing database.

010

Robyn (Redd) @thredd.bsky.social · 11/10/2023

Redefining “toxic work environment” in real time

110

Robyn (Redd) @thredd.bsky.social · 10/10/2023

In the time that I’ve lived here, they’ve renovated: -the apt across (with all windows open) -the apt above -the apt next door (with the door open) -the apt under Mine was a recent remodel and my oven doesn’t work, and my bdrm light is f’d up from the remodel above. Rent has gone up 11%. 😐

000

Reposted by Robyn (Redd)

Cat on a bike @catonabike.bsky.social · 07/10/2023

I need help. Can't look after myself any more. I have a recovery plan in mind but I can't make anything happen. I'm in Brixton, London #cfs #me #cfsme

364

Robyn (Redd) @thredd.bsky.social · 06/10/2023

But it should be noted that we are waiting on final approval from the CDC, so while this all feels very hopeful, they could just be trying to gauge how many pharmacies are actually going to carry it, or they’re priming shipments. The CDC will…CDC?

000

Robyn (Redd) @thredd.bsky.social · 06/10/2023

@Friesein on twitter has superb info regarding logistics of the NVX rollout, and it’s being coordinated on the OBT Discord as well, but I’ll continue to post quick updates here as well.

000

Robyn (Redd) @thredd.bsky.social · 06/10/2023

Updates on Novavax shots getting ready to ship from pharmacies in NJ and WA. The plan is to have access at pharmacies every 5 miles (or so we’re hearing). Walgreens won’t be carrying Novavax. 5 shots per vial, so take friends. Any unused shots can be returned by the pharmacy for a refund!

“Hallelujah! God’s Grace. Stacy is a Vaccine Account Manager at Novavax in NJ. I received a message from her a few minutes ago.

Stacey - 8:24pm
Hi! He emailed me at my personal email. The vaccine will start shopping early next week and will be available at CVS, Acme, Costco, Wegmans, and more. It won’t be available at Walgreens.

Our local Novavax rep in Washington state and our McKesson local rep also contacted us today about our order getting ready to ship.

210

Robyn (Redd) @thredd.bsky.social · 06/10/2023

The NVX shipments should be going out next week, according to people in touch with pharmacies that will be carrying the shot! I’m gonna post rn. Don’t listen if they tell you to go to the pharmacy today, Matthew is right. If you do use twitter, user @Friesein is posting updates as they come in.

000