iiinova — where your digital self keeps evolving

Robyn (Redd) @thredd.bsky.social · 15/06/2025

🚨Tell the Department of Energy not to change the Section 504 rules!🚨 Accessibility for disabled people is about to be REMOVED from new federal buildings unless we act by MON, JUNE 16!! Tell the gov't: If we build a new building, it MUST be fully accessible! 👇TAKE ACTION NOW!👇

Red flyer, black and white text. Header reads emergency action needed, large block text with exclamation points on both sides. Below, a call to action that reads

Accessibility for disabled people is about to be removed from federal buildings unless we act by Monday June sixteenth!

The US Department of Energy has issued a quote direct final rule end quote that would eliminate the long standing requirement that new buildings constructed with federal money must be accessible to people with disabilities!

They claim it’s unnecessary and burdensome.”But here’s what eliminating this rule really means

New federally funded buildings could be built without ramps, elevators, accessible bathrooms, or doors.

There would be no enforceable standards for accessibility in construction or major renovations.

It weakens the civil rights protections guaranteed by Section five oh four of the Rehabilitation Act.

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Robyn (Redd) @thredd.bsky.social · 27/04/2025

For those in #NYC or nearby - free rapid tests available. If you are part of an org/group or can help w/community distro…come grab a box and do your part! Individuals who need tests are welcome also! DM for pick up. Please share.

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Robyn (Redd) @thredd.bsky.social · 21/04/2025

42 cases of *unexpired* rapid antigen tests ⬇️ #CovidIsNotOver

Stacks of cardboard boxes filled with rapid antigen tests for covid 19 acquired from the government sit in a living room on hardwood floors in front of open windows with white curtains. A white air purifier is on the ground to the right of the boxes and a grey metal rolling cart with a green handle is to the left.

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Robyn (Redd) @thredd.bsky.social · 20/04/2025

Please help me find someone to lend a hand with this? Feel free to share on other platforms, dm to people, post in groups, etc. These tests will be made available (free) to the community!! If I refuse the delivery it goes back to HHS. Thank you!!📦😷 #NYC #MutualAid #CovidIsNotOver

A square flier with light purple abstract shapes and dark purple lettering. In the bottom right corner, three line drawn rapid tests. The flier has an ask for urgent volunteer help.

Help needed!

Mon April 21 in NYC, Harlem.

Help needed w/large delivery of Rapid Tests from Health and Human Services. They won’t deliver up to my apartment and I can’t physically lift the boxes.

Boxes will need to be moved from curbside (possibly lobby) up to my apartment.

Elevator building, will have a dolly slash cart available.

Please let me know if you can help!
(A mask is required and provided. You can take tests home with you!!)

Interested in distro?
Reach out!

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Robyn (Redd) @thredd.bsky.social · 06/04/2025

I spoke yesterday at an online #HandsOff event organized by @rubyslippahs.bsky.social. Here's my speech. Please keep talking about these important things, get involved in mutual aid efforts and community organizing, ask your neighbors how you can help, and know your rights.

I’m Robyn Saldino, I live in New York City, and I developed Long COVID after a COVID infection in December 2021. I’ve participated in advocacy across several orgs, I’m a RECOVER patient representative, I do resource distribution from my apartment, and I’m active in mutual aid efforts. I’ve also been fighting my own eviction for more than 18 months.

After multiple months of trying to convince legal aid orgs to proactively take my case, give me advice, or point me to resources before I lost my housing or was served with an eviction notice, I found out that a warning and eviction had both been filed only after I emailed my landlord about a separate issue and was told my concern was likely made up, due only to the fact that we were about to go to court. I had not received either one. I again began trying to find a legal aid group to help me, and could not get anyone to give me advice without a case number or without physically going to court first. I repeatedly explained that my disability would prevent me from physically traveling to the courthouse, but still received no help.

As a disabled person, it is extremely difficult for me to make last minute plans, and unlikely that I will be traveling to the courthouse in-person due to my disability. I need time to arrange for virtual accommodations, submit requests, and handle other paperwork that comes along with living in a world that is not designed for accessibility. The hardship that this causes is extraordinary, and knowing that no one has bothered to inform me is infuriating and disheartening.

Throughout the course of my case, I was never given a lawyer, though here in NYC we have Right to Counsel, and I am legally entitled to have one present.

I came into contact with more 50 people, lawyers, social workers, advocates, housing specialists, court workers, etc, and these contacts became my lifeline, but no one ever took on my case. I eventually was told to refer myself to Adult Protective Services.

APS asked the court assign me a Guardian ad Litem.

The case dragged on. My Landlord refused to accept a housing voucher.

My APS worker helped to finally sort out my SNAP, utility benefit, and health insurance, and allowed me to finally, after more than 2 1/2 years in this city, see a doctor.

My case took 18 months, and I won. Immediately after winning my case, my landlord filed for eviction again under a different pretense, and I successfully got that case dismissed, too.

Mutual aid kept me afloat, allowing me to make a single payment to my landlord and extend the case long enough to continue searching for housing that would accept a voucher.

It kept me fed when I didn’t have SNAP. It got me to a doctor and got me meds when I needed them. It got me to clinical trial appointments for a Long COVID trial I was enrolled in. It has allowed me to distribute thousands of covid tests and masks, to lend out my air purifiers, and even to give direct aid to long haulers in need of support.

I live in a medically underserved community— a FEMA-designated, medically underserved community. My neighborhood has one of the highest eviction rates in the city. There is no Long COVID clinic in my community. We’re losing funding, care, homes, rights, and lives.

Prior to the global outbreak of SARS-CoV-2, approximately 1 in 10 households were being threatened with evictions in formal court filings each year. By September 2020, that number was 1 in 6. 1 in 6 households were behind on rent and at risk of eviction. Renters were 2 to 6 times more likely to report housing insecurity than homeowners. Many of the filings were unresolved pre-pandemic cases, filed before the eviction moratorium was put into place in 2020, which means we were playing catch-up. When the moratorium ended in 2021, eviction filings increased 78.6% over the next year.

Even if a tenant is able to win their case or gain access to a housing voucher, the housing crisis persists.

Finding accessible housing is it’s own unique challenge.

There is an extreme lack of accessible housing. Less than 5% of housing is accessible for people with moderate mobility needs. Less than 1% of housing is fully accessible for wheelchair users. The cost of living in the United States, and the average rent already exceeds the maximum monthly supplemental security income a person is able to receive. When people with disabilities apply for affordable housing, widespread discrimination coupled with a lack of available accessible housing, creates additional barriers that are more likely to lead to homelessness and institutionalization.

I’m not having it. I’m saying hands off. Hands off our community, hands off our long haulers. We can do better. Thank you for being here.

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Robyn (Redd) @thredd.bsky.social · 04/07/2024

Disabled DV survivor at risk of losing utilities/apt due to $20k+ arrears. Fees are stacking, landlord is harassing me. Court again 7/29. 🏘️: $442/$2900 (June/July only, DUE 7/5 W/LATE FEE) 🔌: $285/$887 (FINAL NOTICE) gofund.me/8991e474 PyPl/Vnmo: RobynthRedd #MutualAid #Crowdfund #HousingCrisis

Disabled & chronically ill DV survivor w/o medical care for 4.5 yrs, no income/SSI. Dealing with worsening #LongCOVID symptoms and am now ~90% bedbound.

Fighting ongoing eviction after kicking out abusive ex. Funds go toward $20k+ rent arrears.

Next court date 7/29. Anything helps!!

gofund.me/8991e474
paypal.me/RobynthRedd
venmo.com/u/RobynthRedd

APS is involved now and I’ve made some progress toward getting help (rent voucher, home care, medical care, etc), but I still have to pay rent/utilities in the meantime, assistance won’t cover everything, and I have considerable other expenses.

I think I finally have SNAP! I should be getting home care started soon.

It was recommended that I get a Rollator and a few small items to my living space to make it more accessible as soon as possible. For the time being/until I can see a doctor in person, these are my two biggest expenses:

$2900 - Rent (June + July)
$887 - ConEd (Final turnoff notice)

gofund.me/8991e474
paypal.me/RobynthRedd
venmo.com/u/RobynthRedd

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Robyn (Redd) @thredd.bsky.social · 10/11/2023

Survey is updated. First name is requested, or initial/nickname if preferred. If someone wants to use an alias, that's fine. The field is not required.

A screenshot from a survey that reads "Preferred Name? (First name REQUESTED, or you may use an initial or nickname)"

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Robyn (Redd) @thredd.bsky.social · 29/10/2023

I forgot to post this here. I got Novavax on Thursday. Took me two weeks to find a CVS that had it but I argued with the pharmacist and they finally gave it to me for free under Bridge Access. Here’s my vaccine selfie @luckytran.bsky.social

A woman takes a selfie wearing a black tank top with silver letters that says “Stronger Than I Look.” She recently got vaccinated.

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Robyn (Redd) @thredd.bsky.social · 06/10/2023

Updates on Novavax shots getting ready to ship from pharmacies in NJ and WA. The plan is to have access at pharmacies every 5 miles (or so we’re hearing). Walgreens won’t be carrying Novavax. 5 shots per vial, so take friends. Any unused shots can be returned by the pharmacy for a refund!

“Hallelujah! God’s Grace. Stacy is a Vaccine Account Manager at Novavax in NJ. I received a message from her a few minutes ago.

Stacey - 8:24pm
Hi! He emailed me at my personal email. The vaccine will start shopping early next week and will be available at CVS, Acme, Costco, Wegmans, and more. It won’t be available at Walgreens.

Our local Novavax rep in Washington state and our McKesson local rep also contacted us today about our order getting ready to ship.

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Robyn (Redd) @thredd.bsky.social · 27/09/2023

"Wearing a well-fitting mask or respirator consistently and correctly reduces the risk of spreading the virus that causes COVID." "Schools/ECE programs should consider flexible, non-punitive policies and practices to support ind. who choose to wear masks regardless of the COVID hosp. adm. level."

A screenshot of the CDC's masking guidelines, pulled from Operational Guidance for K-12 Schools and Early Care and Education Programs to Support Safe In-Person Learning

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Robyn (Redd) @thredd.bsky.social · 25/09/2023

I will mask, we both use CPC mouthwash and nasal spray already, have air purifiers in both rooms, will keep windows open in bedroom, living room and bathroom. 🤞 I truly believe that most people are reasonable, IF you are willing to be also. There is middle ground here, even if it isn’t 100%.

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Robyn (Redd) @thredd.bsky.social · 25/09/2023

If you haven’t ever used this product, I highly recommend it. Has no scent, doesn’t leave a greasy residue (I think it makes my hands feel like the dust jacket of an expensive hardback book - so…15/10), and keeps hands from bleeding as the weather gets colder. Runs ~$5, this has lasted 2 yrs so far.

Product pictured is Vaseline Clinical Care hand sanitizer lotion, 2-in-1, skin moisturization and germ kill

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Robyn (Redd) @thredd.bsky.social · 25/09/2023

Well…that went well. Just for clarification, I love this man with my whole heart and then some. There was a time when he was N95’d and testing everyday - his company required daily testing much longer than most and I was so grateful for that. I don’t know how we got here, but I have my suspicions.

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Robyn (Redd) @thredd.bsky.social · 24/09/2023

CDC, EPA, ASHRAE - wrote clear guidelines for schools/ECE programs regarding ventilation. Covid relief $ could've funded upgrades. States chose not to. "...optimize ventilation and maintain improvements to indoor air quality to reduce the risk of germs and contaminants spreading through the air."

A screenshot of CDC guidelines for ventilation in school settings. The full text can be found here https://www.cdc.gov/coronavirus/2019-ncov/community/schools-childcare/k-12-childcare-guidance.html

A data map of the United States showing Elementary and Secondary School Emergency Relief funds spent to date, by state.

A data map of the United States showing Governor's Emergency Education Relief funds spent to date, by state.

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Robyn (Redd) @thredd.bsky.social · 24/09/2023

"...studies have shown masks to be effective in mitigating COVID-19-assoc. cases in schools... must start planning...and build an effective school infrastructure, including upgrading ventilation..." - Kevin Kavanaugh, MD www.infectioncontroltoday.com/view/70-covi... www.science.org/doi/10.1126/...

Pima County, AZ: Schools w/o mask req's were 3.5x more likely to have outbreaks.
Another Pima County study found that with masks: 16.32 per 100,000 residents. W/o masks: 34.85 per 100,000 residents.
Study in NE Journal of Medicine: Greater Boston Area School District led to an addt'l 44.9 cases per 1000 students. 11,901 in total, 29.4% of cases at the time.
CDC reported that vaccinations cut adolescent hospitalizations by 90%.
Swedish school-based study showed masks reduced detected Covid aerosols by 69% and air cleaners decreased detected aerosols by 39%.

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Robyn (Redd) @thredd.bsky.social · 24/09/2023

"It's not uncommon to see somebody get COVID in Jan, then in Apr, and again in Sept. We often see that by that 2nd or 3rd infection, they develop long COVID. That, for me, is very concerning." -Amy Edwards, MD, (Assoc Med Dir. for Infection Control at Univ Hospitals Rainbow Babies & Children's Hosp)

70% of cases are transmitted by kids.

Kids under 8 are more likely to transmit than kids 9-17.

75% of non-healthcare outbreaks start in schools/daycares

Teachers of young children are 67% more likely to get Covid than an average occupation

24% of kids hospitalized have symptoms past 5 mos

60% have subclinical systolic cardiac impairment 5 mos after an asymptomatic or mildly symptomatic infection

Type I Diabetes ~doubled in kids with Covid

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Robyn (Redd) @thredd.bsky.social · 22/09/2023

We know that Covid leads to cognitive impairment. Why are we doing this to ourselves, our children, and our communities? Starting a Covid-related learning-loss thread here: V V V

1. A tweet from Alix Burack reads: "I'm seeing DRAMATIC loss of reading comprehension skills at the community college level. After recently providing a class with instructions for a writing exercise comprising a mere 3 sentences, students messaged me in a panic asking me to explain the instructions. Heart-breaking."

2. A tweet from revival.care reads: "Repeated SARS2 infection is leading to significant cognitive impairments among children and youth.

Grade 7s: can’t write a sentence, can’t read, math achievement between grade 1-4, can’t identify own state.

We are destroying a generation of young minds. And for what?"

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Robyn (Redd) @thredd.bsky.social · 22/09/2023

I put a mask on her smug face and personally, I think we should start doing this to all pictures posted by public health figures. Post a picture unmasked? We’ll fix that for you.

A picture of Mandy Cohen sitting at a desk. A well-fitting KN95 mask has been photoshopped onto her face.

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Robyn (Redd) @thredd.bsky.social · 20/09/2023

This showed up today. THANK YOU test2treat and NIH 💜

A cardboard box containing packages labeled Covid-19 eMed Test to Treat Kit.

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