Sign in

The Migraine Trust

@themigrainetrust.bsky.social
351 followers 4 following 81 posts

The Migraine Trust is the national charity for migraine in the United Kingdom.

PostsRepliesMedia
Reposted by The Migraine Trust
NHS Grampian @nhsgrampian.bsky.social · 25/09/2025
🧠 It’s #MigraineAwarenessWeek! Did you know NHS Grampian was the first health board to sign @themigrainetrust.bsky.social's Workplace Pledge? www.nhsgrampian.org/news/2025/july/nhs-grampian-signs-the-migraine-trust-workplace-pledge #MigraineMeans #MigraineSupport #WorkplaceWellbeing #ProudToBeNHSG
542
The Migraine Trust @themigrainetrust.bsky.social · 22/09/2025
A huge thank you to everyone who worked on production of this campaign video, including those who shared their experiences of migraine to help shape the film 💙 Please share the film and help us spread awareness!
020
The Migraine Trust @themigrainetrust.bsky.social · 22/09/2025
Stigma associated with migraine extends to workplaces. Migraine means more than ‘just a headache’. This week, we'll be challenging what migraine means: join us, share your own experience using #MigraineMeans, and let’s smash the stigma.
123
The Migraine Trust @themigrainetrust.bsky.social · 22/09/2025
We are kicking off #MigraineAwarenessWeek with our brand-new campaign film which illustrates what #MigraineMeans for many of the one in seven people living with the condition. youtu.be/19x0y14g8iI
youtu.be
Migraine Means - The Migraine Trust 2025
YouTube video by The Migraine Trust
265
The Migraine Trust @themigrainetrust.bsky.social · 12/09/2025
💻 Join us for our Managing Your Migraine (in the workplace) session. Find out more and book your free place here: migrainetrust.org/events/manag...
000
The Migraine Trust @themigrainetrust.bsky.social · 12/09/2025
💬 Sharing your migraine experience and joining the conversation online and on social media using #MigraineMeans
100
The Migraine Trust @themigrainetrust.bsky.social · 12/09/2025
☕ Helping to tackle the isolation that is often a part of living with migraine, as well as raising vital funds, by hosting a #MigraineMeetUp. Sign up and download your fundraising pack here: migrainetrust.org/get-involved...
100
The Migraine Trust @themigrainetrust.bsky.social · 12/09/2025
🖊️ Write to your MP: pop your postcode into our handy online tool, and you’ll find a template letter that you can add to with the contact details of your local MP pre-filled and ready to go! migrainetrust.eaction.org.uk/migrainemeans
100
The Migraine Trust @themigrainetrust.bsky.social · 12/09/2025
📅 Join us from 22 to 28 September 2025 for #MigraineAwarenessWeek! Migraine means more than ‘just a headache’. This awareness week, we're sharing the reality of what migraine means for the 1 in 7 living with it. Help us change the perception of migraine, by getting involved:
Orange and white writing on a dark blue background reads ’22-28 September Migraine Awareness Week 2025 #MigraineAwarenessWeek #MigraineMeans with an arrow graphic that says ‘ways to get involved!’
133
The Migraine Trust @themigrainetrust.bsky.social · 27/08/2025
Sick of explaining that ‘migraine is not just a headache’? Most of us have people in our lives who -think- they know what #MigraineMeans but… don’t 👀. Share this post, join us this #MigraineAwarenessWeek (22-28 September) & let’s share what migraine really means.
010
The Migraine Trust @themigrainetrust.bsky.social · 20/08/2025
So, here’s to 60 years of The Migraine Trust!🎉 Check out these fantastic throwback photos (and yes, that is Bananarama in the 1983 picture!)
White text on blue background reads 'The Migraine Trust Symposium, 1969'. A black and white image shows an audience of men in suits as two people stand at the front, one being presented with an award.White text on blue background reads 'football fundraiser in aid of The Migraine Trust, 1983. A black and white image depicts several people wearing The Migraine Trust branded t shirts, posing with a football.White text on blue background reads 'The Migraine Trust International Symposium (MTIS), 2018', accompanied by an image of a speaker on a stage beside the MTIS logo and a presentation screen, with an audience looking on.White text on blue background reads 'Westminster parliamentary event, 2023' accompanied by an image of The Migraine Trust's Rob Music standing at a podium addressing an audience.
020
The Migraine Trust @themigrainetrust.bsky.social · 20/08/2025
Since we were set up in 1965, we’ve been dedicated to helping people affected by migraine. Through awareness-raising, providing practical information & support & funding cutting-edge research, we've been & will continue driving positive change for the 1 in 7 people with migraine.
White text with blue background layered over The Migraine Trust's instagram grid reads 'months?!'
110
The Migraine Trust @themigrainetrust.bsky.social · 20/08/2025
White text with blue background layered over The Migraine Trust's instagram grid reads 'how many months have you been raising awareness of migraine?'
210
The Migraine Trust @themigrainetrust.bsky.social · 12/05/2025
Access to health information you can trust is so important. We're delighted to have our information page on migraine and menopause featured in Patient Information Forum (PIF)'s women's health resource collection! You can check out our page here: migrainetrust.org/live-with-mi...
migrainetrust.org
Migraine and menopause - The Migraine Trust
We look at how perimenopause and menopause can affect migraine, as well as how to manage migraine during menopause.
131
The Migraine Trust @themigrainetrust.bsky.social · 08/05/2025
Join us as Professor Fayyaz Ahmed covers complex migraine, the symptoms, treatment and management of these. This event will cover the rarer forms of migraines such as hemiplegic migraine and more! Book you free place here: migrainetrust.org/events/manag...
migrainetrust.org
Managing Your Migraine (Complex migraine) - The Migraine Trust
000
The Migraine Trust @themigrainetrust.bsky.social · 22/04/2025
You can find out more about medical devices for migraine on our information page: migrainetrust.org/live-with-mi... Have you used any of these devices to help manage migraine? Let us know in the comments!
migrainetrust.org
Migraine devices - The Migraine Trust
There are a range of devices available in the UK that can help with migraine. Migraine devices are instruments or appliances that you use to help treat or prevent migraine.
010
The Migraine Trust @themigrainetrust.bsky.social · 22/04/2025
Some devices should not be used by people with certain medical conditions, e.g. epilepsy or heart disease. It’s important to check with your doctor as to whether it is a suitable option for you & check the patient information on the manufacturer's own website before buying.
9.	White and orange text on dark blue background reads ‘what are the possible downsides? The devices are not currently available on the NHS for the treatment of migraine but you can buy them privately. Some may need a prescription from a headache specialist or consultant. Migraine devices are not suitable for everyone. Generally, people with implanted medical devices (e.g. pacemakers) are advised not to use them.
210
The Migraine Trust @themigrainetrust.bsky.social · 22/04/2025
8.	White and orange text on dark blue background reads ‘what are the benefits of migraine devices? Migraine devices can be used either instead of or alongside migraine medication, which opens up more options for treatment. The devices are all self-administered meaning you can operate them yourself without a healthcare professional. Most of the devices are easily portable, meaning you can access treatment on the go.
100
The Migraine Trust @themigrainetrust.bsky.social · 22/04/2025
7.	White and orange text on dark blue background reads ‘Other devices, including TENS (transcutaneous electrical nerve stimulation) machines for migraine. There are other devices available that some people find useful for migraine, including TENS machines. These are usually applied to the forehead. There is less published evidence on how well these devices work.’
100
The Migraine Trust @themigrainetrust.bsky.social · 22/04/2025
6.	White and orange text on dark blue background reads ‘Remote electrical neuromodulation (Nerivio). A device that you wear on your upper arm. You control it through an app on your smartphone. The device delivers electrical pulses to the nerves in your arm. This triggers a natural pain response by your brain, which can help with migraine. Nerivio may help to both treat and prevent migraine attacks.’
100
The Migraine Trust @themigrainetrust.bsky.social · 22/04/2025
5.	White and orange text on dark blue background reads ‘Single pulse transcranial magnetic stimulation (STMS mini). A device that you place at the back of your head to deliver a brief magnetic pulse to your brain. This is believed to interrupt the brain activity linked to migraine. You can use STMS mini to help treat migraine attacks when they occur. It may also help prevent migraine attacks if you use it daily.’
100
The Migraine Trust @themigrainetrust.bsky.social · 22/04/2025
4.	White and orange text on dark blue background reads ‘Non-invasive vagus nerve stimulation (gammaCore). A handheld device that you apply to either side of your neck. It delivers a mild electrical stimulation to activate the vagus nerve in your neck. This blocks pain signals.’
100
The Migraine Trust @themigrainetrust.bsky.social · 22/04/2025
3.	White and orange text on dark blue background reads ‘External trigeminal nerve stimulation (Cefaly). A device that you apply to your forehead to treat or prevent migraine. It produces tiny electrical impulses, which stimulate a nerve that runs above your eyes. This is called the trigeminal nerve. This can help to reduce head pain associated with migraine.’ Cefaly may help to reduce migraine symptoms if you use it during an attack. It may also help to prevent migraine attacks if you use it daily.’
100
The Migraine Trust @themigrainetrust.bsky.social · 22/04/2025
Devices for migraine act on the nervous system to try and block the pain signals transmitted by nerves during a migraine attack. There are a few different types available in the UK that work in slightly different ways. Check out our graphics for more on the different devices 🧵
2.	White and orange text on dark blue background reads ‘What are migraine devices, how do they work? Migraine devices are instruments or appliances that you use to help treat or prevent migraine. They act on the nervous system to try and block the pain signals transmitted by nerves during a migraine attack. There are a few different types available in the UK that work in slightly different ways.’ An orange graphic with an arrow that reads ‘learn more’.
100
The Migraine Trust @themigrainetrust.bsky.social · 22/04/2025
Today, we're shining the spotlight on migraine devices (sometimes called ‘neuromodulation devices’), that can be used to help treat or prevent migraine. Brand names for devices are included for information purposes & does not mean The Migraine Trust endorses a particular product.
1.	White and orange text on dark blue background with illustrated spotlight graphic reads ‘spotlight on…migraine devices’.
320
The Migraine Trust @themigrainetrust.bsky.social · 16/04/2025
The final counts are in and the grand total raised during last month’s March for Migraine challenge is… 🥁 £26,192! Here’s Head of Fundraising, Channon, with a special message for everyone who got involved! #MarchForMigraine #TeamMigraine
000
The Migraine Trust @themigrainetrust.bsky.social · 15/04/2025
Join us on 15 May for our next Managing Your Migraine event where we will be looking at current drug treatments and upcoming treatments. We will be joined by Dr Shazia Afridi, a consultant neurologist at Guy’s and St Thomas’ NHS Foundation Trust. Book a place here migrainetrust.org/events/manag...
migrainetrust.org
Managing Your Migraine (Current drug treatments and upcoming treatments) - The Migraine Trust
000
The Migraine Trust @themigrainetrust.bsky.social · 10/04/2025
3/3 "Though it took me extra time to get here, I am so grateful. To other young people struggling with migraine I'd say: academic results don’t define you & sometimes taking a different approach can lead you to the same end goal” Check out Lily's story: migrainetrust.org/news/my-atte...
migrainetrust.org
"My attendance and grades at school plummeted because of migraine but I'm glad I didn't give up" - The Migraine Trust
Lily shares her story of migraine interrupting her education and career ambitions.
000
The Migraine Trust @themigrainetrust.bsky.social · 10/04/2025
2/3 "My attendance and grades plummeted. There was that anxiety about needing to get good grades." Lily ended up taking a different route toward her career goals than she had planned and is now slowly getting her life back:
100
The Migraine Trust @themigrainetrust.bsky.social · 10/04/2025
1/3 Lily’s life was totally upended when she developed chronic migraine as a teenager. Experiencing almost daily migraine attacks, which lasted 10-12 hours each day, she noticed the impact this was having on her education and her mental health
White writing on blue background reads: ‘Managing migraine at that young age and the stage of life I was in was very challenging. It was a very low period for me. I remember on one occasion crying for eight hours on and off because of how much emotional pain and physical pain I was in.” An image of Lily in an orange border looking at the camera.
100
The Migraine Trust @themigrainetrust.bsky.social · 02/04/2025
You can find out more about acupuncture for migraine on our information page: migrainetrust.org/live-with-mi... Have you tried acupuncture for migraine? Did you find it helpful?
migrainetrust.org
Acupuncture for migraine - The Migraine Trust
Acupuncture is a treatment that uses fine needles inserted into the body. It may help some people with preventing migraine.
100
The Migraine Trust @themigrainetrust.bsky.social · 02/04/2025
You may feel a tingling or aching sensation when the needles are inserted, but it shouldn’t be painful. It's important to talk to your doctor before having acupuncture for migraine. They can advise if it’s suitable for you.
4.	White and orange text on blue background reads ‘What are the downsides? Some people can feel faint or dizzy after acupuncture. You may have some minor bruising or bleeding where the needles have punctured the skin. Acupuncture is not widely available on the NHS. Most people pay for treatment privately.
100
The Migraine Trust @themigrainetrust.bsky.social · 02/04/2025
As well as a possible direct effect on migraine, acupuncture may help you to relax or feel less stressed. As stress is a common trigger for migraine, this may then help to reduce triggers for an attack. It is also generally considered safe in pregnancy.
3.	White and orange text on blue background reads ‘What are the benefits of acupuncture for migraine? For some people, acupuncture can be just as effective as medicines in reducing number of migraine days. Acupuncture may also help by reducing stress for some people, which can be a common migraine trigger. You can have acupuncture alongside migraine medications or on its own.
100
The Migraine Trust @themigrainetrust.bsky.social · 02/04/2025
Acupuncture needles stimulate nerves under your skin. This leads to the release of painkilling substances called endorphins. There is some evidence to show that acupuncture can help reduce the number of migraine attacks in some people.
2.	White and orange text on blue background reads ‘What is acupuncture for migraine, how does it work? Acupuncture is a treatment that uses fine needles inserted into the body, leading to the release of painkilling substances called endorphins. Acupuncture may help prevent migraine attacks in some people. For migraine, the needles may be inserted into several areas of the body, including points on your head, arms, hands, legs and feet. They may be left in place for 10 to 20 minutes.
100
The Migraine Trust @themigrainetrust.bsky.social · 02/04/2025
Today we’re shining the spotlight on acupuncture, a treatment that uses fine needles inserted into the body that may help some people with preventing migraine attacks. In modern medicine, acupuncture is believed to have a direct effect on biological processes in your body.
Spotlight illustrations highlight the words ‘spotlight on… acupuncture for migraine’, written in orange text on a dark blue background.
100
The Migraine Trust @themigrainetrust.bsky.social · 31/03/2025
Our helpline is also there for you: we offer free, confidential information and support for everyone affected by migraine. You can get in touch with us on 0808 802 0066 between 10am and 4pm, Monday to Friday, and you can also get in touch with us online here: migrainetrust.org/get-support/
000
The Migraine Trust @themigrainetrust.bsky.social · 31/03/2025
Our latest blog looks at changes to your migraine that you might experience if taking hormone therapy or having surgery. Check out the blog here: migrainetrust.org/news/living-...
migrainetrust.org
Living with migraine as a trans person - The Migraine Trust
This blog looks at some of the key challenges involved in living with migraine as a trans person.
100
The Migraine Trust @themigrainetrust.bsky.social · 31/03/2025
This month, we’ve been looking at some of the different ways that hormonal changes can impact migraine, including during menstruation and menopause. Today, on #TransDayOfVisibility, we’re focusing on some of the challenges that trans people may face when it comes to living with migraine.
White text on a dark blue background reads 'living with migraine as a trans person', below is an illustration of three people, looking toward the distance, one wearing a pink shirt, one a white shirt and one a blue shirt with long hair.
120
The Migraine Trust @themigrainetrust.bsky.social · 28/03/2025
Our latest Managing Your Migraine event on migraine, headache and hormones is now on our YouTube channel! Watch as Prof. Gisela Terwindt explores what the impact of hormones is, what can help manage hormones and migraine and treatments that can support this. www.youtube.com/watch?v=8uZf...
youtube.com
Managing your migraine- migraine, headache and hormones
YouTube video by The Migraine Trust
000
The Migraine Trust @themigrainetrust.bsky.social · 25/03/2025
This month, we’ve been looking at the role of hormones in migraine. If you’ve noticed a change in your migraine attacks after menopause, check out our info page, it explains more about the hormones involved & different treatment approaches that might help: migrainetrust.org/live-with-mi...
migrainetrust.org
Migraine and menopause - The Migraine Trust
We look at how perimenopause and menopause can affect migraine, as well as how to manage migraine during menopause.
000
The Migraine Trust @themigrainetrust.bsky.social · 25/03/2025
“Between ages 12 - 16 I would get migraine attacks often. After the age of about 16, I stopped experiencing them & thought I was in the clear! Then at 56 and going through menopause, the familiar zigzag of the visual aura reappeared, & regular attacks became my norm again.”
White text on dark blue background reads 'while going through menopause, out of the blue the visual aura started. Suddenly regular attacks became the norm, sometimes every other day. They can be very disabling and after I can experience depression. Louise'. An image of a woman with short light blonde hair alongside orange, green and dark orange sphere graphics.
100
The Migraine Trust @themigrainetrust.bsky.social · 24/03/2025
If you need support, remember that our helpline is here for you. You can get in touch with us on 0808 802 0066 or online here: migrainetrust.org/get-support/
migrainetrust.org
Get support - The Migraine Trust
We know that living with migraine is difficult, that's why we offer free, confidential information and support for everyone affected by migraine. No matter your question or migraine history, we are he...
010
The Migraine Trust @themigrainetrust.bsky.social · 24/03/2025
The Migraine Trust, along with over 100 other charities, has signed Scope's open letter to the chancellor, calling for the government to rethink these cuts and consider the impact on those with disabilities and long-term health conditions.
140
The Migraine Trust @themigrainetrust.bsky.social · 24/03/2025
There has been a lot of discussion in the last week about the government’s proposals to change disability benefits. We know that there are people with migraine who rely on benefits and who are understandably very worried about these proposed changes.
A large sign on a black van being driven in Westminster reads 'Dear Chancellor, We fear the cost of cuts to disability benefits is too great.' The sign has the Scope logo on it.
131
The Migraine Trust @themigrainetrust.bsky.social · 18/03/2025
3/3 The more we talk about migraine & other conditions, the more we can support people in the best way. Our helpline is here for you – if you need information or support on any aspect of migraine, you can give us a call on 0808 802 0066 or get in touch online: migrainetrust.org/get-support/
migrainetrust.org
Get support - The Migraine Trust
We know that living with migraine is difficult, that's why we offer free, confidential information and support for everyone affected by migraine. No matter your question or migraine history, we are he...
000
The Migraine Trust @themigrainetrust.bsky.social · 18/03/2025
2/3 Stress and routine changes are common migraine triggers, as well as aspects that can be challenging for neurodivergent people. If this is also your experience, Seamus suggests finding a way to address stress that works for you: “You could try taking up yoga or going for a walk.”
100
The Migraine Trust @themigrainetrust.bsky.social · 18/03/2025
1/3 On #NeurodiversityCelebrationWeek, Seamus shares his experience of living with both migraine and Autism Spectrum Disorder (ASD): “I have been living with migraine with aura since I was in my teens. Bright lights, noise and anxiety are all triggers for me.”
White text on green background reads: ‘Living with ASD as well as migraine is challenging and I often find that sensory overload brings on a migraine attack’ – Seamus. An image of a man with long purple coloured hair and glasses alongside orange, dark blue and light orange circle graphics.
100
The Migraine Trust @themigrainetrust.bsky.social · 18/03/2025
Incredible, @acraftyjellyfish.bsky.social! Thank you so much for your support! 💙
010
The Migraine Trust @themigrainetrust.bsky.social · 13/03/2025
8/8 For more about supplements for migraine, check out our treatment information page: migrainetrust.org/live-with-mi...
migrainetrust.org
Supplements for migraine - The Migraine Trust
Supplements for migraine include riboflavin, magnesium and co-enzyme Q10. Some people find supplements helpful for managing their migraine.
020
The Migraine Trust @themigrainetrust.bsky.social · 13/03/2025
7/8 As with any treatment approach to migraine, supplements may not be suitable for everyone. There is some risk of side effects. A healthcare professional can check whether they're safe for you. They can also check whether there is any risk of interactions with any medicines you are taking.
Orange and white text on a dark blue background reads ‘What are the downsides? Supplements may not be suitable for everyone (for example co-enzyme Q10 is currently not recommend during pregnancy). Any supplement may come with side effects for example magnesium supplements may cause diarrhoea and stomach pain in some people. Make sure to source your supplements from a reputable place and always check with your GP, pharmacist or specialist before starting a new supplement for migraine.’
100