Sign in

The Migraine Trust

@themigrainetrust.bsky.social
356 followers 4 following 81 posts

The Migraine Trust is the national charity for migraine in the United Kingdom.

PostsRepliesMedia
The Migraine Trust @themigrainetrust.bsky.social · 12/09/2025
💻 Join us for our Managing Your Migraine (in the workplace) session. Find out more and book your free place here: migrainetrust.org/events/manag...
000
The Migraine Trust @themigrainetrust.bsky.social · 12/09/2025
💬 Sharing your migraine experience and joining the conversation online and on social media using #MigraineMeans
100
The Migraine Trust @themigrainetrust.bsky.social · 12/09/2025
☕ Helping to tackle the isolation that is often a part of living with migraine, as well as raising vital funds, by hosting a #MigraineMeetUp. Sign up and download your fundraising pack here: migrainetrust.org/get-involved...
100
The Migraine Trust @themigrainetrust.bsky.social · 12/09/2025
🖊️ Write to your MP: pop your postcode into our handy online tool, and you’ll find a template letter that you can add to with the contact details of your local MP pre-filled and ready to go! migrainetrust.eaction.org.uk/migrainemeans
100
The Migraine Trust @themigrainetrust.bsky.social · 12/09/2025
📅 Join us from 22 to 28 September 2025 for #MigraineAwarenessWeek! Migraine means more than ‘just a headache’. This awareness week, we're sharing the reality of what migraine means for the 1 in 7 living with it. Help us change the perception of migraine, by getting involved:
Orange and white writing on a dark blue background reads ’22-28 September Migraine Awareness Week 2025 #MigraineAwarenessWeek #MigraineMeans with an arrow graphic that says ‘ways to get involved!’
133
The Migraine Trust @themigrainetrust.bsky.social · 27/08/2025
Sick of explaining that ‘migraine is not just a headache’? Most of us have people in our lives who -think- they know what #MigraineMeans but… don’t 👀. Share this post, join us this #MigraineAwarenessWeek (22-28 September) & let’s share what migraine really means.
010
The Migraine Trust @themigrainetrust.bsky.social · 20/08/2025
So, here’s to 60 years of The Migraine Trust!🎉 Check out these fantastic throwback photos (and yes, that is Bananarama in the 1983 picture!)
White text on blue background reads 'The Migraine Trust Symposium, 1969'. A black and white image shows an audience of men in suits as two people stand at the front, one being presented with an award.White text on blue background reads 'football fundraiser in aid of The Migraine Trust, 1983. A black and white image depicts several people wearing The Migraine Trust branded t shirts, posing with a football.White text on blue background reads 'The Migraine Trust International Symposium (MTIS), 2018', accompanied by an image of a speaker on a stage beside the MTIS logo and a presentation screen, with an audience looking on.White text on blue background reads 'Westminster parliamentary event, 2023' accompanied by an image of The Migraine Trust's Rob Music standing at a podium addressing an audience.
020
The Migraine Trust @themigrainetrust.bsky.social · 20/08/2025
Since we were set up in 1965, we’ve been dedicated to helping people affected by migraine. Through awareness-raising, providing practical information & support & funding cutting-edge research, we've been & will continue driving positive change for the 1 in 7 people with migraine.
White text with blue background layered over The Migraine Trust's instagram grid reads 'months?!'
110
The Migraine Trust @themigrainetrust.bsky.social · 20/08/2025
White text with blue background layered over The Migraine Trust's instagram grid reads 'how many months have you been raising awareness of migraine?'
210
The Migraine Trust @themigrainetrust.bsky.social · 22/04/2025
Some devices should not be used by people with certain medical conditions, e.g. epilepsy or heart disease. It’s important to check with your doctor as to whether it is a suitable option for you & check the patient information on the manufacturer's own website before buying.
9.	White and orange text on dark blue background reads ‘what are the possible downsides? The devices are not currently available on the NHS for the treatment of migraine but you can buy them privately. Some may need a prescription from a headache specialist or consultant. Migraine devices are not suitable for everyone. Generally, people with implanted medical devices (e.g. pacemakers) are advised not to use them.
210
The Migraine Trust @themigrainetrust.bsky.social · 22/04/2025
8.	White and orange text on dark blue background reads ‘what are the benefits of migraine devices? Migraine devices can be used either instead of or alongside migraine medication, which opens up more options for treatment. The devices are all self-administered meaning you can operate them yourself without a healthcare professional. Most of the devices are easily portable, meaning you can access treatment on the go.
100
The Migraine Trust @themigrainetrust.bsky.social · 22/04/2025
7.	White and orange text on dark blue background reads ‘Other devices, including TENS (transcutaneous electrical nerve stimulation) machines for migraine. There are other devices available that some people find useful for migraine, including TENS machines. These are usually applied to the forehead. There is less published evidence on how well these devices work.’
100
The Migraine Trust @themigrainetrust.bsky.social · 22/04/2025
6.	White and orange text on dark blue background reads ‘Remote electrical neuromodulation (Nerivio). A device that you wear on your upper arm. You control it through an app on your smartphone. The device delivers electrical pulses to the nerves in your arm. This triggers a natural pain response by your brain, which can help with migraine. Nerivio may help to both treat and prevent migraine attacks.’
100
The Migraine Trust @themigrainetrust.bsky.social · 22/04/2025
5.	White and orange text on dark blue background reads ‘Single pulse transcranial magnetic stimulation (STMS mini). A device that you place at the back of your head to deliver a brief magnetic pulse to your brain. This is believed to interrupt the brain activity linked to migraine. You can use STMS mini to help treat migraine attacks when they occur. It may also help prevent migraine attacks if you use it daily.’
100
The Migraine Trust @themigrainetrust.bsky.social · 22/04/2025
4.	White and orange text on dark blue background reads ‘Non-invasive vagus nerve stimulation (gammaCore). A handheld device that you apply to either side of your neck. It delivers a mild electrical stimulation to activate the vagus nerve in your neck. This blocks pain signals.’
100
The Migraine Trust @themigrainetrust.bsky.social · 22/04/2025
3.	White and orange text on dark blue background reads ‘External trigeminal nerve stimulation (Cefaly). A device that you apply to your forehead to treat or prevent migraine. It produces tiny electrical impulses, which stimulate a nerve that runs above your eyes. This is called the trigeminal nerve. This can help to reduce head pain associated with migraine.’ Cefaly may help to reduce migraine symptoms if you use it during an attack. It may also help to prevent migraine attacks if you use it daily.’
100
The Migraine Trust @themigrainetrust.bsky.social · 22/04/2025
Devices for migraine act on the nervous system to try and block the pain signals transmitted by nerves during a migraine attack. There are a few different types available in the UK that work in slightly different ways. Check out our graphics for more on the different devices 🧵
2.	White and orange text on dark blue background reads ‘What are migraine devices, how do they work? Migraine devices are instruments or appliances that you use to help treat or prevent migraine. They act on the nervous system to try and block the pain signals transmitted by nerves during a migraine attack. There are a few different types available in the UK that work in slightly different ways.’ An orange graphic with an arrow that reads ‘learn more’.
100
The Migraine Trust @themigrainetrust.bsky.social · 22/04/2025
Today, we're shining the spotlight on migraine devices (sometimes called ‘neuromodulation devices’), that can be used to help treat or prevent migraine. Brand names for devices are included for information purposes & does not mean The Migraine Trust endorses a particular product.
1.	White and orange text on dark blue background with illustrated spotlight graphic reads ‘spotlight on…migraine devices’.
320
The Migraine Trust @themigrainetrust.bsky.social · 16/04/2025
The final counts are in and the grand total raised during last month’s March for Migraine challenge is… 🥁 £26,192! Here’s Head of Fundraising, Channon, with a special message for everyone who got involved! #MarchForMigraine #TeamMigraine
000
The Migraine Trust @themigrainetrust.bsky.social · 10/04/2025
1/3 Lily’s life was totally upended when she developed chronic migraine as a teenager. Experiencing almost daily migraine attacks, which lasted 10-12 hours each day, she noticed the impact this was having on her education and her mental health
White writing on blue background reads: ‘Managing migraine at that young age and the stage of life I was in was very challenging. It was a very low period for me. I remember on one occasion crying for eight hours on and off because of how much emotional pain and physical pain I was in.” An image of Lily in an orange border looking at the camera.
100
The Migraine Trust @themigrainetrust.bsky.social · 02/04/2025
You may feel a tingling or aching sensation when the needles are inserted, but it shouldn’t be painful. It's important to talk to your doctor before having acupuncture for migraine. They can advise if it’s suitable for you.
4.	White and orange text on blue background reads ‘What are the downsides? Some people can feel faint or dizzy after acupuncture. You may have some minor bruising or bleeding where the needles have punctured the skin. Acupuncture is not widely available on the NHS. Most people pay for treatment privately.
100
The Migraine Trust @themigrainetrust.bsky.social · 02/04/2025
As well as a possible direct effect on migraine, acupuncture may help you to relax or feel less stressed. As stress is a common trigger for migraine, this may then help to reduce triggers for an attack. It is also generally considered safe in pregnancy.
3.	White and orange text on blue background reads ‘What are the benefits of acupuncture for migraine? For some people, acupuncture can be just as effective as medicines in reducing number of migraine days. Acupuncture may also help by reducing stress for some people, which can be a common migraine trigger. You can have acupuncture alongside migraine medications or on its own.
100
The Migraine Trust @themigrainetrust.bsky.social · 02/04/2025
Acupuncture needles stimulate nerves under your skin. This leads to the release of painkilling substances called endorphins. There is some evidence to show that acupuncture can help reduce the number of migraine attacks in some people.
2.	White and orange text on blue background reads ‘What is acupuncture for migraine, how does it work? Acupuncture is a treatment that uses fine needles inserted into the body, leading to the release of painkilling substances called endorphins. Acupuncture may help prevent migraine attacks in some people. For migraine, the needles may be inserted into several areas of the body, including points on your head, arms, hands, legs and feet. They may be left in place for 10 to 20 minutes.
100
The Migraine Trust @themigrainetrust.bsky.social · 02/04/2025
Today we’re shining the spotlight on acupuncture, a treatment that uses fine needles inserted into the body that may help some people with preventing migraine attacks. In modern medicine, acupuncture is believed to have a direct effect on biological processes in your body.
Spotlight illustrations highlight the words ‘spotlight on… acupuncture for migraine’, written in orange text on a dark blue background.
100
The Migraine Trust @themigrainetrust.bsky.social · 31/03/2025
This month, we’ve been looking at some of the different ways that hormonal changes can impact migraine, including during menstruation and menopause. Today, on #TransDayOfVisibility, we’re focusing on some of the challenges that trans people may face when it comes to living with migraine.
White text on a dark blue background reads 'living with migraine as a trans person', below is an illustration of three people, looking toward the distance, one wearing a pink shirt, one a white shirt and one a blue shirt with long hair.
120
The Migraine Trust @themigrainetrust.bsky.social · 25/03/2025
“Between ages 12 - 16 I would get migraine attacks often. After the age of about 16, I stopped experiencing them & thought I was in the clear! Then at 56 and going through menopause, the familiar zigzag of the visual aura reappeared, & regular attacks became my norm again.”
White text on dark blue background reads 'while going through menopause, out of the blue the visual aura started. Suddenly regular attacks became the norm, sometimes every other day. They can be very disabling and after I can experience depression. Louise'. An image of a woman with short light blonde hair alongside orange, green and dark orange sphere graphics.
100
The Migraine Trust @themigrainetrust.bsky.social · 24/03/2025
There has been a lot of discussion in the last week about the government’s proposals to change disability benefits. We know that there are people with migraine who rely on benefits and who are understandably very worried about these proposed changes.
A large sign on a black van being driven in Westminster reads 'Dear Chancellor, We fear the cost of cuts to disability benefits is too great.' The sign has the Scope logo on it.
131
The Migraine Trust @themigrainetrust.bsky.social · 18/03/2025
1/3 On #NeurodiversityCelebrationWeek, Seamus shares his experience of living with both migraine and Autism Spectrum Disorder (ASD): “I have been living with migraine with aura since I was in my teens. Bright lights, noise and anxiety are all triggers for me.”
White text on green background reads: ‘Living with ASD as well as migraine is challenging and I often find that sensory overload brings on a migraine attack’ – Seamus. An image of a man with long purple coloured hair and glasses alongside orange, dark blue and light orange circle graphics.
100
The Migraine Trust @themigrainetrust.bsky.social · 13/03/2025
7/8 As with any treatment approach to migraine, supplements may not be suitable for everyone. There is some risk of side effects. A healthcare professional can check whether they're safe for you. They can also check whether there is any risk of interactions with any medicines you are taking.
Orange and white text on a dark blue background reads ‘What are the downsides? Supplements may not be suitable for everyone (for example co-enzyme Q10 is currently not recommend during pregnancy). Any supplement may come with side effects for example magnesium supplements may cause diarrhoea and stomach pain in some people. Make sure to source your supplements from a reputable place and always check with your GP, pharmacist or specialist before starting a new supplement for migraine.’
100
The Migraine Trust @themigrainetrust.bsky.social · 13/03/2025
6/8 Supplements alongside migraine medicines may help more than medicines alone. For those who can't/don't want to take medicines, supplements may offer an alternative. They may also have broader health benefits. Speak to a healthcare professional before stopping/changing migraine medications.
Orange and white text on a dark blue background reads ‘What are the benefits of supplements for migraine? taking supplements alongside migraine medicines may help more than medicines alone. supplements can sometimes provide an alternative to medicines if you can't or don't want to take medicines.’
110
The Migraine Trust @themigrainetrust.bsky.social · 13/03/2025
5/8 Co-enzyme Q10 – a natural antioxidant that may help to reduce frequency, severity and duration of migraine attacks.
Orange and white text on a dark blue background reads ‘Co-enzyme Q10 is a natural antioxidant that may help to reduce frequency, severity and duration of migraine attacks. The dose of co-enzyme Q10 that might improve migraine is thought to be at least 100 mg a day but more research is needed.
100
The Migraine Trust @themigrainetrust.bsky.social · 13/03/2025
4/8 Magnesium – a mineral that may reduce frequency and severity of migraine attacks for some people. It may also help certain migraine medicines work better.
Orange and white text on a dark blue background reads ‘Magnesium is a mineral that may reduce frequency and severity of migraine attacks. It may also help certain migraine medicines work better. There are several different forms of magnesium supplements including: magnesium oxide
•	magnesium citrate
•	magnesium glycinate
•	magnesium hydroxide.
Guidelines usually recommend 400 mg to 600 mg magnesium per day to help with migraine.
100
The Migraine Trust @themigrainetrust.bsky.social · 13/03/2025
3/8 Riboflavin (vitamin B2) – a vitamin that when taken daily for at least three months may help prevent migraine attacks
Orange and white text on a dark blue background reads ‘Riboflavin (vitamin B2). Riboflavin is a vitamin that when taken daily for at least three months may help prevent migraine attacks. It’s been shown to reduce the frequency of migraine attacks and how severe they are for some people. Clinical guidelines in the UK for managing headache include riboflavin (400 mg a day) as a potential treatment for migraine.’
100
The Migraine Trust @themigrainetrust.bsky.social · 13/03/2025
2/8 Dietary supplements include nutrients such as vitamins and minerals that are often taken to supplement or help improve general health. Here we look at some of the supplements that are thought to be helpful for migraine (though evidence on exactly how helpful they are is often limited).
Orange and white text on a dark blue background reads ‘What are supplements for migraine and how do they work? Dietary supplements include nutrients such as vitamins and minerals usually taken to help improve general health. Some are thought to be helpful for migraine (though evidence is limited). These include: Riboflavin (vitamin B2), Magnesium, Co-enzyme Q10.’
100
The Migraine Trust @themigrainetrust.bsky.social · 13/03/2025
1/8 Our ‘spotlight on…’ series is back! This time we’re focusing on non-drug treatment approaches to migraine management. Some people may opt for non-drug treatments either instead of, or as well as, using medications for migraine. Here, we shine the spotlight on supplements for migraine.
Orange text on a dark blue background reads ‘spotlight on…supplements for migraine’, with a graphic of spotlights shining onto the text.
220
The Migraine Trust @themigrainetrust.bsky.social · 06/03/2025
Each day from March 20-27, four 30 minute expert Migraine Summit interviews will be free and online. Register today & plan your calendar around which topics you cannot miss. www.migraineworldsummit.com?afmc=hs
020
The Migraine Trust @themigrainetrust.bsky.social · 28/02/2025
Today is the first day of Ramadan, the ninth month in the Islamic calendar that for many people across the world is marked by fasting during daylight hours. Here, Rhianna shares her experience of managing fasting during Ramadhan while living with chronic migraine:
White text on dark blue background reads 'managing my migraine during Ramadhan can be hard. I fast from sunrise to sunset and the change in routine can be a challenge. - Rhianna. An image of a woman with long dark hair looking toward the camera.
100
The Migraine Trust @themigrainetrust.bsky.social · 20/02/2025
Thinking about signing up for this year's #MarchForMigraine challenge? There's still time! Find out more and take the first step: migrainetrust.org/get-involved...
Orange and white text reads 'March for Migraine. Walk, jog, cycle, wheel or even dance 100 miles in March, and aim to raise £100 to support people living with migraine.
000
The Migraine Trust @themigrainetrust.bsky.social · 14/02/2025
Whether you're celebrating with your partner, the gals, your pals, or just showing yourself some love today, wishing you all a happy #ValentinesDay! 💙
A pink heart on a teal background with the words 'roses are red, violets are blue, if you think migraine's 'just an excuse' I've got news for you!', with an illustrated graphic of a person holding two thumbs down.A pink heart on a teal background with the words 'roses are red, violets are blue, I manage migraine with support from my crew', with an illustrated graphic of four friends with their arms around each other.A pink heart on a teal background with the words 'roses are red, violets are blue, we live with migraine but we'll make it through', with an illustrated graphic of two hands making a heart shape.
010
The Migraine Trust @themigrainetrust.bsky.social · 05/02/2025
If you'd like to share your story of managing migraine during Ramadan, we'd be delighted to hear from you! You can submit your story here: migrainetrust.org/your-migrain...
An orange graphic of hanging lanterns and stars against a dark blue background with white text that reads 'managing migraine during Ramadan. Do you have experience of managing migraine during Ramadan? If you'd like to share your story, or any tips for fasting during Ramadan, we'd love to hear from you!
000
The Migraine Trust @themigrainetrust.bsky.social · 04/02/2025
We all know migraine is not ‘just a headache’. But from yawning to speech mix-ups, there are lots of weird & wonderful symptoms connected to migraine. Check out our blog for some of the more surprising ones: migrainetrust.org/news/runny-n... Do you experience any of these? Let us know!
Dark blue text on an orange background reads ‘runny noses, mind blacks and tummy troubles: symptoms you may not have realised were linked to migraine’. Teal coloured icons depict a sore stomach, a person sneezing and a person with a thought bubble containing a confused squiggle.
162
The Migraine Trust @themigrainetrust.bsky.social · 28/01/2025
March for Migraine, our annual fundraising challenge, is open for registrations! Aim to take on 100 miles this March wherever, and however you like, and raise £100 for our vital work with every step. Find out more & register here: buff.ly/3UN27tW #MarchForMigraine 💙
White and orange text on a dark blue background reads 'March for Migraine. Walk, jog, cycle, wheel or even dance 100 miles in March, and aim to raise £100 to support people living with migraine. #TeamMigraine.' Illustration of two people walking with a dog with a background of blue and green coloured shapes.
010
The Migraine Trust @themigrainetrust.bsky.social · 20/01/2025
January can be a difficult month. You might be bombarded by messages today about #BlueMonday (the third Monday in January, alleged to be the ‘most depressing day of the year’) & find yourself thinking that there can be a lot of blue days when it comes to living with migraine.

Orange text on white background reads 'if you're finding January tough, you're not alone. We're here for you'. A dark blue hear graphic is in the centre of the image.
120
The Migraine Trust @themigrainetrust.bsky.social · 08/01/2025
“When you live with migraine it can feel like the onus is always on you. You’re ‘eating the wrong things’ or ‘exercising the wrong amount’, you’re ‘too stressed’ or ‘on screens too much’. I spent ages internalising the blame."
A woman with blonde hair holding a kitten against a white background with green, orange and teal coloured circles. Text reads 'when I'd been ill with migraine, someone commented that I must have 'partied too hard'' - Sophie
110
The Migraine Trust @themigrainetrust.bsky.social · 02/01/2025
🎇It's a brand new year!🎇 Here are some of the things we'd like to do more of this year (and a few things we'd like to leave in 2024!) Is there anything else you'd add to our '2025 migraine ins and outs' list?
A white notes-app style text box against a dark blue background reads: 'In: keeping a migraine diary, making the most of symptom free or low symptom moments, looking after our mental health. Out: criticising others for how they manage their migraine, being hard on ourselves for things we can't control, comparing our migraine journey to others', pushing through migraine symptoms because we feel we should
010
The Migraine Trust @themigrainetrust.bsky.social · 05/12/2024
Migraine hurts in many ways. You can help us to be there for anyone hurt by migraine. This week, donations that you make to The Migraine Trust through the Big Give Christmas Challenge will be doubled! You can double the difference your donation makes here: donate.biggive.org/campaign/a05...
000
The Migraine Trust @themigrainetrust.bsky.social · 29/11/2024
Sarah shares why she wants to see as many MPs as possible attend our drop in the Houses of Parliament in London on 4 December. You can use our letter writing tool to ask your MP to come migrainetrust.eaction.org.uk/ask-your-mp-...
000
The Migraine Trust @themigrainetrust.bsky.social · 26/11/2024
Want to have your donations to The Migraine Trust doubled this Christmas? ⭐⭐ We’re joining @biggive.bsky.social's #ChristmasChallenge! That means from 3 to 10 December, you can make double the difference with one donation. Save the date now! migrainetrust.org/get-involved...
010
The Migraine Trust @themigrainetrust.bsky.social · 19/11/2024
On #InternationalMensDay, four men, Thomas, Dom, Ray and Haider, share with us their experience of migraine, and the impact it has had on their careers, relationships, families and social lives. “I think men need to lose this stigma of hiding pain,” says Thomas.
Images of four men, each facing the camera. Text reads 'Men's experience of migraine'.
110