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The Association For Frontotemporal Degeneration @theaftd.bsky.social · 14h

Connection, knowledge, & community were at the heart of Caregivers Day at #ISFTD2026. Together with the @pennftdc.bsky.social & ISFTD, AFTD was proud to support a day dedicated to the people & families navigating FTD, creating opportunities to learn & hear from experts & those with lived experience.

This image features a composite of two photos and a banner from the ISFTD 2026 conference in Philadelphia, focusing on frontotemporal dementia. The banner welcomes attendees to Caregivers Day, showcasing logos of supporting organizations like AFTD, Penn FTD Center, and ISFTD. The upper right photo shows a group near a sign that reads, "You don't have to take this journey alone." The lower right photo displays a group standing behind a table with a Penn Frontotemporal Degeneration Center banner.

This is a four-image collage from ISFTD 2026. The top left image shows attendees seated and viewing a presentation slide with descriptions of speakers. The top right image features two people smiling at the camera in a conference area. The bottom left image shows two people posing together, smiling. The bottom right image depicts a presenter at a podium delivering a talk to an audience.

Three people are standing indoors, smiling and posing for a photo. They are wearing business casual attire and have name tags. The setting appears to be a conference or event space with natural light coming through windows.

AFTD staff smiling and standing in front of a red display with the text "You don't have to take this journey alone." They are at an event with name badges and a table displaying brochures and a bowl of candy.

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The Association For Frontotemporal Degeneration @theaftd.bsky.social · 15h

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The Association For Frontotemporal Degeneration @theaftd.bsky.social · 08/10/2026

📢 Join us for “How the FTD Disorders Registry Benefits Participants” on Tuesday, Oct. 20, at 2 p.m. Learn how the Registry connects people impacted by FTD to research and how participant data support research. 🔴 Sponsored by AviadoBio. 👉 Register here: bit.ly/3TosgBh

This image is a promotional graphic for a webinar titled "How the FTD Disorders Registry Benefits Participants," happening on Tuesday, October 20, 2026, from 2:00-3:00 pm ET. Logos for AFTD, FTD Disorders Registry, and AviaDoBio are present. On the right, there's a photo of Carrie Millard, MS, CGC, CCRC, who is the Director of FTD Disorders Registry.

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The Association For Frontotemporal Degeneration @theaftd.bsky.social · 07/10/2026

Philadelphia, you showed up! ❤️ Nearly 300 walkers from 10+ states joined us October 4, raising $80,000+ for AFTD! 🚶 Thank you to everyone who walked, volunteered, fundraised, or cheered us on. We’re grateful for this community so close to home. Together, we’re moving toward a future free of FTD.

A group of people participating in a "Walk for FTD" event, moving along a paved path. They are dressed casually, some wearing event-themed shirts and holding umbrellas. An event archway in the background displays "AFTD Walk for FTD: A New Path." The surrounding area is lush with autumn foliage.

A group of people walking together in an outdoor fundraising event. One person holds a sign that says "Fast Track to an FTD Cure." The participants are wearing casual outdoor clothing and appear to be enjoying the event. Trees and a red sign are visible in the background.

Colorful, painted rocks arranged on gravel spell out "IM WALK RP" amidst grass and fallen leaves. Each rock features unique designs and patterns.

A group of four people stands together under a "Walk for FTD: A New Path" banner. They are wearing matching green "Team Hulk" shirts. Two Temple University flags are visible in the background. They are outdoors on a pathway lined with trees.

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The Association For Frontotemporal Degeneration @theaftd.bsky.social · 06/10/2026

Genetic FTD can shape a family’s story far beyond diagnosis. Kim Jenny, AFTD’s Manager of Genetic Initiatives, shares how genetic FTD affects families and how their stories can help guide better treatments. Learn more about FTD and genetics: bit.ly/4h6VvjU

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The Association For Frontotemporal Degeneration @theaftd.bsky.social · 05/10/2026

Did you know corticobasal syndrome (CBS) can affect movement, cognition, behavior, and language? CBS is an FTD disorder that often causes movement changes that begin on one side of the body and may eventually affect both sides. 🧠 Learn more: bit.ly/4huDcVN

Informational graphic titled '5 Things Everyone Should Know About Corticobasal Syndrome (CBS)' by The Association for Frontotemporal Degeneration, featuring a silhouette figure on the right.

The image is an informational graphic from the Association for Frontotemporal Degeneration. It discusses the difficulty of diagnosing Corticobasal Syndrome (CBS), which can resemble other disorders and start with movement, cognitive, or language changes. There's an icon of a clipboard with a magnifying glass.

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The Association For Frontotemporal Degeneration @theaftd.bsky.social · 04/10/2026

We’ve put a spotlight on FTD—and now, we’re passing it on. 🔦 We’re honoring voices raising awareness, advancing research, and sharing FTD experiences. Who will you pass the spotlight to? Tag someone making a difference and challenge them to share a message about FTD. ✨ 🔗 : bit.ly/4AjWeXx

A poster with the message "Pass the Spotlight." Below, it reads "This week, people around the world put a spotlight on FTD. Now we're passing it on." There is a ribbon with "#endFTD" written on it, and a spotlight graphic shines from the top-right corner.

A poster with a light blue background features a spotlight and text highlighting Emma Heming Willis for advocacy for people and families affected by FTD. The poster includes a megaphone icon and a ribbon with the hashtag #endFTD.

Spotlight poster highlighting the AFTD Persons with FTD Advisory Council. Includes the phrase, "For ensuring the voices and perspectives of people living with FTD help shape AFTD's work," and the hashtag #endFTD. Features icons of a spotlight, three individuals, and a ribbon.

Spotlight graphic highlighting "AFTD Volunteers and Ambassadors" for supporting the mission and aiding those affected by FTD. Includes heart and ribbon symbols with hashtag #endFTD.

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The Association For Frontotemporal Degeneration @theaftd.bsky.social · 03/10/2026

Advocacy takes many forms. ❤️ During World FTD Awareness Week, we’re putting advocacy in the spotlight and highlighting ways people raise awareness of FTD. For some, it means sharing their story. For others, it means meeting with lawmakers or securing proclamations. 🔗: bit.ly/46q2Ea2

The image is a poster titled "Spotlight on Advocacy," featuring a spotlight illustration. It lists activities such as sharing stories, meeting with lawmakers, securing proclamations, raising awareness online, and highlighting FTD. A light blue ribbon with "#endFTD" is at the bottom right, and there's a note saying, "Every action helps create change!"

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The Association For Frontotemporal Degeneration @theaftd.bsky.social · 02/10/2026

Research has the power to move us forward. 🔦 During World FTD Awareness Week, we’re shining a spotlight on research and how our community can help. The FTD Disorders Registry connects people with opportunities to participate in FTD research. Explore research opportunities: bit.ly/47hm0yl

Spotlight on Research poster featuring the FTD Disorders Registry. A dark ribbon at the bottom right has the hashtag #endFTD.

Spotlight graphic highlighting "Research Participation" for FTD research. Invitation to join the FTD Disorders Registry. Includes icons of a spotlight, magnifying glass with a book, and a ribbon with "#endFTD.

Promotional graphic with a spotlight effect highlighting the text: 'Spotlight on... Being Research Ready.' Below, it explains that FTD is rare and Registry participants are crucial for research. There’s a microscope illustration and a blue awareness ribbon with '#endFTD'.

Spotlight graphic highlighting FTD research. The text reads: "Spotlight on... NUMBERS HAVE POWER. With more than 2,940 people participating, the Registry helps turn individual experiences into insights that can support FTD research." A blue ribbon with "#endFTD" is displayed.

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The Association For Frontotemporal Degeneration @theaftd.bsky.social · 01/10/2026

California has established an FTD registry! 🎉 Governor Gavin Newsom signed SB 1047 into law, adding FTD to the state’s Neurodegenerative Disease Registry. Thank you to the advocates, families, and bipartisan lawmakers who made this possible. 👉 Read more: bit.ly/4rJ3YhV

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The Association For Frontotemporal Degeneration @theaftd.bsky.social · 01/10/2026

Support can come from many places. 🩵 During World FTD Awareness Week, we’re shining a spotlight on the people and resources that help families navigate FTD. From loved ones to healthcare professionals, no one has to face FTD alone. ✨ Find an FTD support group: bit.ly/4iuJN4T

A poster with the text "Support can come from many places." Below, a list includes: Family and friends, Support groups, Healthcare professionals, The AFTD HelpLine, Others who understand the journey. A blue awareness ribbon features the hashtag #endFTD, placed under a spotlight on a light blue background.

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The Association For Frontotemporal Degeneration @theaftd.bsky.social · 30/09/2026

Today, we’re putting the FTD community in the spotlight. 🩵 During World FTD Awareness Week, we’re celebrating everyone living with FTD, supporting a loved one, volunteering, advocating, and working to #endFTD. Tag someone who has made a difference in your FTD journey. 🔗: bit.ly/4AnPMyY

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The Association For Frontotemporal Degeneration @theaftd.bsky.social · 29/09/2026

Sharing your story can help put FTD in the spotlight. 🩵 Download the slide that reflects your connection to FTD, share it on social media, and tag AFTD during World FTD Awareness Week. Your voice helps others understand FTD. Learn more and access the Social Media Toolkit: bit.ly/3Tw5vLE

Poster with a spotlight effect on the text "Put a Spotlight on FTD". Below is a download icon with the text, "Download and share the slide that fits your connection to FTD," and a ribbon with "#endFTD".

A spotlight illuminates text reading "I AM LIVING WITH FTD." in large letters with "theaftd.org" below. There's a blue ribbon in the corner with "#endFTD" on it.

A poster with the text "I am an FTD care partner" illuminated by a spotlight. The bottom includes a blue awareness ribbon with the hashtag "#endFTD" and a website URL theaftd.org.

Poster featuring a large white circle with the text "I AM AN FTD RESEARCHER" in light blue. The website "theaftd.org" is at the bottom. A spotlight shines from the top right. A light blue ribbon at the bottom right features the hashtag "#endFTD.

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The Association For Frontotemporal Degeneration @theaftd.bsky.social · 28/09/2026

Day 1 of World FTD Awareness Week begins with a Spotlight on FTD. Frontotemporal degeneration is a group of brain disorders that affect behavior, communication, and movement. 🔦 Join us as we put FTD in the spotlight—and tag someone who should know about FTD. 🩵 Learn more: bit.ly/4cSCgZX

Blue poster with the text 'Spotlight on FTD'. Below, it reads 'Today we’re starting the conversation and shining a light on FTD.' A ribbon with '#endFTD' is at the bottom right. Three spotlights shine from above.

Image depicting information about Frontotemporal Degeneration (FTD). There is a silhouette of a head with a brain illustration. Text describes FTD as a group of brain disorders affecting behavior, communication, and movement. A blue awareness ribbon with the hashtag #endFTD is shown.

Infographic about Frontotemporal Dementia (FTD). Three sections show: most cases occur between ages 45-60, onset ranges from 21-80, and progression length varies from 2-20+ years. A statement notes FTD's substantial impact on work, family, and finances. A ribbon with "#endFTD" is displayed.

Blue poster featuring the phrase "Why awareness matters" followed by three points with icons: a megaphone for spreading knowledge, people for building community, and a heart for hope and cure. A ribbon with "#endFTD" is displayed at the bottom.

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The Association For Frontotemporal Degeneration @theaftd.bsky.social · 27/09/2026

Many ways to make a difference for FTD. ⛳ Deb Scharper has raised nearly $81,000 through her golf tournament since 2017. 🥾 Devyn Tobin walked 40 miles with a 40-lb. vest, raising $3,809 in memory of his father, Jim. Thank you for supporting our mission. Start a fundraiser: bit.ly/4roU2tX

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The Association For Frontotemporal Degeneration @theaftd.bsky.social · 26/09/2026

The Walk for FTD is more than a walk—it’s a movement fueled by community, connection, and purpose. ❤️ Join us as we come together to support AFTD’s mission and move toward a future without FTD. 📍 Philadelphia — October 4 📍 Austin — November 14 Learn more and register: bit.ly/4ycwoTS

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The Association For Frontotemporal Degeneration @theaftd.bsky.social · 25/09/2026

Across the country, the FTD community is coming together for Food for Thought! ❤️ Supporters are finding meaningful ways to connect, raise awareness, and support AFTD’s mission. Be part of the impact. Support Food for Thought with a donation today: bit.ly/4h8AtTa

Three people are joyfully posing together. The person in the center is holding a wine bottle. The image includes the text "FOOD FOR THOUGHT Across the Country" at the top and "See how our community is showing up for FTD." at the bottom.

A group of people smiling behind a bar with decorations and assorted items, featuring a sign for a "Cork Pull." Inset shows another group sitting at a table in a dining area, with a menu labeled "After School Food for Thought." The text highlights the versatility of hosting Food for Thought events, emphasizing community involvement.

A group of people are gathered in a room with several tables displaying gift baskets. The setting appears to be an event for AFTD's mission, with the slogan "Turning gatherings into impact" visible. Attendees are mingling, and the atmosphere is lively and engaged.

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The Association For Frontotemporal Degeneration @theaftd.bsky.social · 24/09/2026

The 2026 FTD Research Roundtable is in the books! Thank you to everyone who joined us to advance FTD research and treatment development. We look forward to turning these conversations into action. Together, we’re moving the field forward for families living with FTD.

A group of people stands in front of a table at the FTD Research Roundtable, with a banner behind them that reads "Lived Experience & Advocacy Representatives.

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The Association For Frontotemporal Degeneration @theaftd.bsky.social · 23/09/2026

What a day in Des Moines! ❤️ More than 500 walkers joined us for the first-ever Walk for FTD at Terra Park on September 19! Thank you to everyone who made it possible Together, we raised $90,000 to support AFTD’s mission! 🚶‍♂️ Thank you, Des Moines, for making our first Walk for FTD unforgettable! ❤️

A group of people participating in the "Walk for FTD" event, passing under an arch with the event name. One individual holds a framed photo. Participants wear teal shirts, and a few push strollers. The setting appears to be a park with trees in the background.

Two individuals are hugging at a Walk to End Alzheimer’s event. Both are wearing casual clothing and caps, and one has a ponytail. In the background, people are gathered, with some seated on benches. The area is outdoors with trees visible.

A group of people smiling and standing together outdoors wearing "Walk for FTD" t-shirts. A child is standing in front, holding a toy. The background features trees and a clear sky.

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The Association For Frontotemporal Degeneration @theaftd.bsky.social · 22/09/2026

📢 Join us next week for “Legal and Financial Planning After an FTD Diagnosis” on Tuesday, Sept. 29, at 1 p.m. Learn about legal planning considerations, protections under U.S. law, and steps to consider after an FTD diagnosis. Register now: bit.ly/3UK1pQg

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The Association For Frontotemporal Degeneration @theaftd.bsky.social · 22/09/2026

Thank you for helping bring attention to this important milestone, Randee! We’re grateful to everyone working to raise awareness of FTD. ❤️

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The Association For Frontotemporal Degeneration @theaftd.bsky.social · 21/09/2026

Did you know FTD is the most common dementia for people under age 60? Yet it remains widely unknown. ❤️ Food For Thought brings people together to raise awareness and support families affected by FTD. Donate to Food For Thought: bit.ly/4yyh1VK

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The Association For Frontotemporal Degeneration @theaftd.bsky.social · 20/09/2026

Tee time for Driving Hope in New York is almost here! ⛳ Thank you to Apollo Global Management, our Albatross Sponsor. Join us Monday, September 28, at Metropolis Golf Club in White Plains, NY. Hit the links with AFTD to raise awareness and support our mission: bit.ly/4zXZiZr

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The Association For Frontotemporal Degeneration @theaftd.bsky.social · 18/09/2026

FTD in 30 seconds ⏱️🧠 Frontotemporal degeneration (FTD) is a group of brain disorders caused by degeneration of the frontal and/or temporal lobes of the brain. FTD can look different from person to person. Click here for more information and resources: bit.ly/4AfVzqa

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The Association For Frontotemporal Degeneration @theaftd.bsky.social · 17/09/2026

Every step makes an impact. 👕 Register for the Walk for FTD 2026 and raise or donate $100 to receive your 2026 Walk for FTD T-shirt. Walk in Des Moines, Philadelphia, or Austin—or join virtually from wherever you are. Register here: bit.ly/4gSQ0Ff

A gray T-shirt is displayed against a background with red curtains. The T-shirt has the text "Walk for FTD 2026: A New Path" printed on it. Above the T-shirt, a message reads, "Every step makes an impact. Get the 2026 Walk for FTD T-shirt.

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The Association For Frontotemporal Degeneration @theaftd.bsky.social · 17/09/2026

📢 Join us for “Legal and Financial Planning After an FTD Diagnosis” on Tuesday, Sept. 29, at 1 p.m. Learn about legal and financial planning after an FTD diagnosis, including decision-making, legal protections, and steps to consider. 🔗 bit.ly/3UK1pQg

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The Association For Frontotemporal Degeneration @theaftd.bsky.social · 15/09/2026

Clinical trials offer hope for new FTD treatments, but the field must be ready to move promising therapies forward. Learn how AFTD is working to lower barriers to clinical trials, creating opportunities to find effective treatments and support faster, more efficient trials. bit.ly/4i0SyU1

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The Association For Frontotemporal Degeneration @theaftd.bsky.social · 14/09/2026

Did you know progressive supranuclear palsy (PSP) primarily affects movement? PSP is a form of frontotemporal degeneration that can affect balance, walking, eye movement, speech, and swallowing. 🧠 Learn more: bit.ly/3SYgZqS

This image is an informative graphic about Progressive Supranuclear Palsy (PSP) created by The Association for Frontotemporal Degeneration. The left section, labeled "1," states that PSP primarily affects movement, including balance, walking, and coordination. The right section, labeled "2," indicates that frequent falls and balance problems are common early signs, with symptoms often including stiffness, poor balance, and frequent falls.

This image is an informational graphic from AFTD about Progressive Supranuclear Palsy (PSP). Panel 3 illustrates that PSP can affect eye movement, making it difficult to look up or down, blink, or close eyes. Panel 4 explains that PSP can affect speech and swallowing, causing slowed or slurred speech, gagging, or choking. Simple eye and mouth line drawings accompany the text.

The image is a slide titled "PSP is associated with tau." It includes logos for AFTD and Cure PSP and features a large DNA double helix symbol in the center. The text explains that PSP is connected with tau protein buildup in the brain, especially the 4R tau form. The background is white with a red design element at the bottom.

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The Association For Frontotemporal Degeneration @theaftd.bsky.social · 13/09/2026

Kevin Rhodes is living with FTD—and he’s using his voice to share what that experience feels like. In his powerful poem, “This Damn FTD,” Kevin puts words to the frustration, challenges, and emotions that can come with living with FTD. 🧠 Learn more about FTD: bit.ly/4qNTbCQ

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The Association For Frontotemporal Degeneration @theaftd.bsky.social · 11/09/2026

World FTD Awareness Week is almost here! From September 28–October 4, help put a spotlight on FTD by sharing your story or posting a photo or video. Every action helps raise awareness. Download the social media toolkit and join us in spreading awareness.🩵: bit.ly/4yhwqJX

The image is a promotional graphic for World FTD Awareness Week, which is from September 28 to October 4, 2026. It includes the text "World FTD Awareness Week is almost here" and features a blue awareness ribbon with the hashtag #endFTD. The design includes blue wave-like patterns.

The image features a blue background with the text "This year's theme: Put a Spotlight on FTD." A spotlight illustration shines on the text. There's a blue ribbon with the hashtag "#endFTD."

Infographic titled "Anyone can participate." It lists groups: People living with FTD, Healthcare professionals, Care partners, Advocates, Families, and Researchers. Includes a blue awareness ribbon with "#endFTD.

A blue poster features the text "Help put FTD in the spotlight" under a spotlight graphic. It encourages downloading a free Social Media Toolkit and includes a pale blue awareness ribbon with "#endFTD.

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The Association For Frontotemporal Degeneration @theaftd.bsky.social · 10/09/2026

Melissa Jacobson and her son, Jaden, recently joined WHO13’s Hello Iowa to talk about Walk for FTD. ❤️ Join us this fall in Des Moines, Philadelphia, Austin, or virtually. Every step supports families, funds breakthroughs, and raises awareness of FTD. Register today: bit.ly/45YVY2s

Three people are standing together indoors on the set of "Hello Iowa." They are smiling and dressed casually. The set features bright lights and a display screen with the show's name.

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The Association For Frontotemporal Degeneration @theaftd.bsky.social · 09/09/2026

Research moves forward when people work together. In two weeks, AFTD will bring together FTD researchers, clinicians, drug developers, regulators, advocates, and others to advance treatment development. 🔗 Learn more: bit.ly/4yie2R9

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The Association For Frontotemporal Degeneration @theaftd.bsky.social · 08/09/2026

📢 Join us tomorrow at 1 p.m. for a conversation with AFTD’s new Chief Executive Officer, Rachel Biblow. Hear Rachel share what inspired her to join AFTD, her vision, and her hopes for the future of FTD awareness, support, advocacy, and research. Register now: bit.ly/3UtzsvS

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The Association For Frontotemporal Degeneration @theaftd.bsky.social · 04/09/2026

Corticobasal syndrome (CBS) is an FTD disorder that primarily affects movement. While some symptoms can resemble those seen in Parkinson’s disease, CBS is a distinct FTD disorder. 🧠 Learn more about CBS: bit.ly/4xYkRaa

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The Association For Frontotemporal Degeneration @theaftd.bsky.social · 03/09/2026

Every runner has a reason they lace up. ❤️ For the AFTD-Team, running is a way to honor the people they love and raise awareness of FTD. 👉 Swipe to hear why they run. 🏃 Want to participate for someone you love? Learn more about joining the AFTD-Team and upcoming races: bit.ly/4cbp16q

A person smiling and holding a child in a framed photo. Text above shares a fond memory about exercising and participating in outdoor activities, including running the Boston Marathon. The bottom text mentions "Isabel Britton" and the "Honolulu Marathon AFTD-Team.

A person shares excitement about running the NYC Marathon for AFTD, mentioning their family's experience with FTD and paying tribute to family members. A quote about support is included next to an image of five people smiling outdoors. The text at the bottom includes the name Caroline Adams, TCS NYC Marathon AFTD-Team.

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The Association For Frontotemporal Degeneration @theaftd.bsky.social · 02/09/2026

AFTD Ambassador Dawn O’Gara shares why educating legislators about FTD matters—and how even small steps toward raising awareness can make a meaningful impact. 📣 Learn how you can advocate for FTD: bit.ly/4gmHeQR

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The Association For Frontotemporal Degeneration @theaftd.bsky.social · 01/09/2026

📢 Have you registered for our upcoming conversation with AFTD CEO Rachel Biblow? Join us Wednesday, Sept. 9, at 1 p.m. to hear Rachel share her vision for AFTD, learn more about her background and leadership, and ask questions about the future of FTD. Register: bit.ly/3UtzsvS

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The Association For Frontotemporal Degeneration @theaftd.bsky.social · 28/08/2026

Did you know?💡 Some people with FTD can also develop symptoms of ALS. FTD and ALS can occur in the same person, a clinical subtype known as FTD-ALS. Researchers have identified a variant in the C9orf72 gene as the most common genetic cause of both FTD and ALS. 🔗 Learn more: bit.ly/4zul1I0

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The Association For Frontotemporal Degeneration @theaftd.bsky.social · 27/08/2026

Kelsey Cook’s Netflix special, Happy Hour, shares her mom’s experience with FTD. As Kelsey says, even in the hardest moments, there can be space for humor and lightness. We’re grateful to Kelsey for sharing her story and bringing visibility to FTD. ❤️ Watch Happy Hour on Netflix.

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The Association For Frontotemporal Degeneration @theaftd.bsky.social · 27/08/2026

📢 Join us for a conversation with AFTD’s new Chief Executive Officer, Rachel Biblow, on Wednesday, Sept. 9, at 1 p.m. Hear more about Rachel’s background, what inspired her to join AFTD, and her vision. Register and submit your questions in advance: bit.ly/3UtzsvS

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The Association For Frontotemporal Degeneration @theaftd.bsky.social · 25/08/2026

Three friends. One unforgettable road trip. ❤️ Aidan Castellanet, Colin Sawhill, and Luke Smiley traveled West, honoring Luke’s father, Reid, who passed away in 2023. Their journey raised $4,592 for AFTD to support families affected by FTD. Host an Independent Event: bit.ly/4qsELYG

Three individuals are standing with hiking poles in a mountainous landscape, featuring a lake and forest. The text below highlights their achievements: 16 days, 7 national parks, over 8,000 miles. They raised $4,592 for AFTD. The image thanks Aidan, Colin, and Luke.

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The Association For Frontotemporal Degeneration @theaftd.bsky.social · 24/08/2026

The 2027 AFTD Well-Being in FTD Pilot Grant Program is now open! This $110,000 one-year grant supports research to improve the well-being of people with FTD, their families, and care partners. Applications are due October 30, 2026, at 8 p.m. ET. Learn more and apply: bit.ly/4qmuFbq

The image is a promotional graphic for the "2027 Well-Being in FTD Pilot Grant Program" by The Association for Frontotemporal Degeneration. It includes the "Now Open" status with graphics of a megaphone, heart, and financial symbols. The text explains the grants' purpose in supporting research for improving diagnosis and care for those affected by FTD. Funding details are $110,000 for one year, with an application deadline of October 30, 2026, at 8 P.M. ET.

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The Association For Frontotemporal Degeneration @theaftd.bsky.social · 22/08/2026

Primary progressive apraxia of speech (PPAOS) is a clinical syndrome within the FTD umbrella characterized by a progressive impairment in the accuracy and speed of planning and programming the motor movements required for speech. Read the full article: bit.ly/4wxAuo6

The image is a promotional banner for an event by Partners in FTD Care and The Association for Frontotemporal Degeneration. It announces a presentation titled "Primary Progressive Apraxia of Speech: An FTD Subtype" by Rene L. Utianski and Hugo Botha. There is a simple graphic of three individuals in red and line drawing style.

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The Association For Frontotemporal Degeneration @theaftd.bsky.social · 21/08/2026

Change starts with being heard. ❤️ When people affected by FTD speak up, they help bring FTD to decision-makers and advocate for policies that support people living with FTD and their families. Your voice matters. Ready to take action? Become an advocate: bit.ly/45HR8X8

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The Association For Frontotemporal Degeneration @theaftd.bsky.social · 21/08/2026

Jason Resendez of the National Alliance for Caregiving shares how advocacy helped make paid family and medical leave a reality in 14 states and D.C., giving families more time to care for a loved one. There is still more work to support care partners. ▶️ Watch the full video: bit.ly/4g3DtON

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The Association For Frontotemporal Degeneration @theaftd.bsky.social · 20/08/2026

💡 Did you know? There are currently no FDA-approved disease-modifying treatments for FTD. Researchers are working to understand FTD and develop treatments that can change its course. 🔎 Learn how you can participate in FTD research: bit.ly/4xi8qpK

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The Association For Frontotemporal Degeneration @theaftd.bsky.social · 18/08/2026

📢 Join us tomorrow! AFTD’s CME webinar, “Neurologists and Genetic Counselors Partnering to Enhance Patient Care,” is tomorrow at 3 pm ET. Join David Irwin, MD and Laynie Dratch, ScM, CGC, to learn how collaboration can support FTD diagnosis and care. 🔗 Register: bit.ly/4hahVCi

This image is a promotional flyer for an AFTD healthcare professional webinar titled "Neurologists and Genetic Counselors Partnering to Enhance Patient Care" scheduled for Wednesday, August 19, 2026, from 3 pm to 4 pm ET. It features headshots of two speakers, David Irwin, MD, and Laynie Dratch, ScM, CGC, along with their titles and affiliations. A note mentions that CME credit is available for viewing.

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The Association For Frontotemporal Degeneration @theaftd.bsky.social · 17/08/2026

Did you know primary progressive aphasia (PPA) affects communication and language? PPA is a form of FTD that impacts speaking, understanding, reading, and writing. There are different types of PPA, each affecting communication in different ways. 🧠 Learn more: bit.ly/3TP71Zd

The image is an informational graphic from The Association for Frontotemporal Degeneration. It is divided into two sections. The first section explains that primary progressive aphasia (PPA) primarily affects communication, with illustrations of speech bubbles. The second section describes how PPA may begin with subtle language changes, depicted by crossword-style letters forming the word "WORD.

The image is a two-part informational graphic from The Association for Frontotemporal Degeneration. On the left, it describes three different types of Primary Progressive Aphasia (PPA): Nonfluent/Agrammatic, Semantic, and Logopenic variants. Each type affects communication differently. On the right, it highlights that communication strategies, including speech-language therapy, can support those with PPA in maintaining skills and improving quality of life. Illustrations of a brain and lips accompany the text.

A slide from The Association for Frontotemporal Degeneration (AFTD) features a line drawing of two hands shaking. The text reads, "Communication is a two-way process." A note below says, "Care partners can support communication by giving extra time, using multiple ways to communicate, and focusing on connection—not perfection." The slide number is five.

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The Association For Frontotemporal Degeneration @theaftd.bsky.social · 15/08/2026

Caring for someone living with FTD can be challenging, and young caregivers deserve support, too. ❤️ AFTD's Young Caregivers Respite Comstock Grants provide caregivers aged 40 and under with up to $500 to help cover respite care, mental health support, or self-care. 🔗 : bit.ly/45TJWHl

A flyer for AFTD's Comstock Respite Grants featuring two people embracing. Text highlights that support is available for caregivers aged 40 and under, with grants up to $500. Uses include respite care, mental health support, and self-care. A note mentions that over $330,000 was provided in grants in the 2026 fiscal year.

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The Association For Frontotemporal Degeneration @theaftd.bsky.social · 14/08/2026

On July 9, Seth Stern, who is living with FTD and is a member of AFTD’s Persons with FTD Advisory Council, stood outside the Today Show plaza to help educate others about frontotemporal degeneration. ❤️ Learn more about FTD: bit.ly/4z4X0ao

Person standing outside the NBC Today Show studio holding a sign that reads "Cure FTD.

Person standing outside the NBC Today Show studio with a woman holding a sign that reads "Cure FTD.

A person stands behind a barrier holding a bright yellow sign reading "I HAVE FTD." They wear a USA-themed top and a medal around their neck. Other signs are partially visible nearby, with one mentioning “TODAY” and “3.” The scene appears to be outside a building.

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