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Penn FTD Center @pennftdc.bsky.social · 23h

In honor of FTD Awareness Week 2026, we are putting research participants in the spotlight! From the Research Staff at the Penn FTD Center, we thank all research participants for your willingness and dedication to FTD research. #spotlightFTD #endFTD

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Penn FTD Center @pennftdc.bsky.social · 29/09/2026

In honor of FTD Awareness Week 2026, we are putting clinical research staff in the spotlight! From our Assistant Director and Clinical Research Program and Operations Lead, Dahlia Kamel, MS, we want to thank all staff that work in the field of FTD research. #spotlightFTD #endFTD

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Penn FTD Center @pennftdc.bsky.social · 28/09/2026

In honor of FTD Awareness Week, we are putting patients in the spotlight. From our Co-Director David Irwin, MD, we want to acknowledge the determination and perseverance of patients and the inspiration you bring to providers to bring all closer to a cure. #spotlightFTD #endFTD

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Penn FTD Center @pennftdc.bsky.social · 25/09/2026

The Penn FTD Center is here for another FTD Fact Friday! And we are here to help! 📍 Check out our Support & Resources 📃 Read our monthly blog 🔎 Learn more about Observational Research or Clinical Trials Click the website link for more!

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Penn FTD Center @pennftdc.bsky.social · 23/09/2026

Penn and Miami researchers launch study to detect ALS and frontotemporal dementia before symptoms appear with $26 million NIH grant. Read more about the work from Co-Director Corey McMillan, PhD in the article below! www.pennmedicine.org/news/penn-an...

pennmedicine.org

Penn and Miami researchers launch study to detect ALS and frontotemporal dementia before symptoms appear with $26 million NIH grant

An effort is underway to identify biological changes that signal whether people carrying a genetic variant will develop ALS or frontotemporal dementia.

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Penn FTD Center @pennftdc.bsky.social · 18/09/2026

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Penn FTD Center @pennftdc.bsky.social · 16/09/2026

📰 Are you subscribed to the Penn FTD Center newsletter? Use the link in our bio to stay up to date on our latest updates, educational events, and research advancements!

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Penn FTD Center @pennftdc.bsky.social · 15/09/2026

Penn FTDC's Dahlia Kamel, MS collaborated on a paper to explore Clinical Research Coordinator's influence on the research participant experience, including training adequacy, job satisfaction, retention, and much more. Read the paper below! www.frontiersin.org/journals/neu...

frontiersin.org

Frontiers | Supporting frontline staff in frontotemporal degeneration research

IntroductionClinical Research Coordinators (CRCs) serve as the frontline staff for research participants in studies on frontotemporal degeneration (FTD), dir...

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Penn FTD Center @pennftdc.bsky.social · 11/09/2026

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Penn FTD Center @pennftdc.bsky.social · 09/09/2026

Caregivers are invited to join us for Caregivers Day at ISFTD 2026 on Friday, October 9 in Philadelphia. This one-day conference features expert-led sessions on FTD care, the latest research advances, symptom management, advocacy, and more. Register now at the link in our bio!

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Penn FTD Center @pennftdc.bsky.social · 02/09/2026

Penn FTD Center Staff Highlight 🌟 Mary Kate Merenich, B.S. is a Clinical Research Coordinator at the Penn FTD Center. “As a CRC, I really enjoy the breadth of responsibility I have across the entire research process.” 📍Read details on Mary Kate in our blog! Link in bio!

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Penn FTD Center @pennftdc.bsky.social · 28/08/2026

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Penn FTD Center @pennftdc.bsky.social · 27/08/2026

Neuropsychologist & Assistant Professor at the Penn FTD Center Emma Rhodes was featured in an article with AlzForum to highlight her AAIC 2026 poster. Check out the article below! www.alzforum.org/news/confere...

alzforum.org

Better Never Than LATE: TDP-43 Pathology in Alzheimer's Disease | ALZFORUM

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Penn FTD Center @pennftdc.bsky.social · 25/08/2026

Co-Director David Irwin, MD and Genetic Counselor Laynie Dratch, ScM, CGC examined how collaborative neurologist-genetic counselor partnerships enhance comprehensive patient evaluation and care in a webinar with @theaftd.bsky.social View the video below! www.theaftd.org/webinars/aft...

theaftd.org

AFTD Webinar: CME: Neurologists and Genetic Counselors Partnering to Enhance Patient Care | AFTD

https://youtu.be/RVRk6zUWA0g

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Penn FTD Center @pennftdc.bsky.social · 21/08/2026

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Penn FTD Center @pennftdc.bsky.social · 19/08/2026

Our Assistant Director Dahlia Kamel and was invited to give the keynote speech for the 2026 Clinical Research Expertise and Advancement Through Excellence Awards, here at the University of Pennsylvania Perelman School of Medicine. Read her keynote now at the link in our bio!

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Penn FTD Center @pennftdc.bsky.social · 11/08/2026

📢Looking for the latest news from the Penn FTD Center? Want to stay up-to-date on research and trials? Make sure you are following the Penn FTD Center on all your social platforms. 📍All of our social media accounts can be found at the link in our bio!

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Penn FTD Center @pennftdc.bsky.social · 07/08/2026

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Penn FTD Center @pennftdc.bsky.social · 05/08/2026

Penn FTDC Staff Highlight 🌟 Riya is a CRC at the Penn FTD Center. “I will always value the lived experiences of patients and their care team as I contribute to first-in-disease clinical trials and research that improve care and advance treatments for FTD.” 📍Read now in the blog linked in bio!

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Penn FTD Center @pennftdc.bsky.social · 03/08/2026

We understand that care management can be tough. This August, we are sharing tips to beat the heat! 📍Check out our website for more information on Support & Resources

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Penn FTD Center @pennftdc.bsky.social · 24/07/2026

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Penn FTD Center @pennftdc.bsky.social · 20/07/2026

Dancing In The Face Of Death by Susan L. Koen, Ph.D. is out now! Through the lens of caregiving, this story offers empathic insights into the hardships of dealing with anticipatory grief, personal agency, and much more. Susan provided an exclusive highlight for our center. Read at the link in bio!

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Penn FTD Center @pennftdc.bsky.social · 15/07/2026

Dr. Allison Snyder presents a poster on frequent and worsening sleep problems for those with FTD as compared to those with Alzheimer's disease. Check out Dr. Snyder's poster today at #AAIC2026 #PennatAAIC26

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Penn FTD Center @pennftdc.bsky.social · 14/07/2026

Today at #AAIC26 researchers and clinicians share poster presentations on genetic variants related to C9orf72 and a dual proteomic platform approach to biomarker discovery. If you are onsite, be sure to check out the work from the Penn FTDC! #PennatAAIC26

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Penn FTD Center @pennftdc.bsky.social · 13/07/2026

Day 2 of #AAIC26 is here! Postdoctoral fellows and graduate students from the Penn FTD Center present their research and findings. Be sure to check out their posters today! #pennataaic26 @pennmemorycenter.bsky.social

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Penn FTD Center @pennftdc.bsky.social · 12/07/2026

The Penn FTD Center staff and researchers are gearing up for #AAIC26 in London! Today, several of our researchers and staffers will be providing poster presentations. For those in attendance, be sure to check out these posters! #PennatAAIC26

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Penn FTD Center @pennftdc.bsky.social · 10/07/2026

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Penn FTD Center @pennftdc.bsky.social · 07/07/2026

Penn FTD Center Staff Highlight 🌟 Carmen Gonzalez-Recober is a Senior Clinical Research Coordinator at the Penn FTD Center. 📍Read more details on Carmen in our blog post! Link in bio!

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Penn FTD Center @pennftdc.bsky.social · 30/06/2026

The Penn FTD Center is delighted to be working with ISFTD to host Caregivers Day, a one-day conference for family members and professional caregivers to learn more about advances in research and approaches to care. Use the link in our bio to get more information and register today!

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Penn FTD Center @pennftdc.bsky.social · 29/06/2026

In our latest Research Roundup, Research Assistant Professor Katheryn Cousins, PhD’s paper seeks to understand the accuracy of biomarkers in diverse datasets. Read now at the link in our bio or on our website.

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Penn FTD Center @pennftdc.bsky.social · 26/06/2026

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Penn FTD Center @pennftdc.bsky.social · 25/06/2026

Penn FTD Center's Dr. David Irwin participated in a webinar on 'Improving the FTD Diagnostic Journey' that is now available for healthcare professionals with CME or CEC credit. Use the link below to access more information. www.theaftd.org/for-health-p...

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Penn FTD Center @pennftdc.bsky.social · 23/06/2026

The objective of observational research is to observe participants naturally, without any interventions or treatments. Penn FTD Center Senior Clinical Research Coordinator Ashlyn O'Halloran writes about observational research in our blog post! Read now at the link in our bio or on our website!

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Penn FTD Center @pennftdc.bsky.social · 16/06/2026

🎉 Congrats to the Penn FTD Center's Genetic Counselor Laynie Dratch on her recent award as an Outstanding Supervisor with the Genetic Counselor Educators Association (GCEA)! Thank you for all your hard work, Laynie!

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Penn FTD Center @pennftdc.bsky.social · 15/06/2026

The Penn FTD Center was happy to join the Penn & Philly 250 Community Day this past Saturday at the Penn Museum! 📍 Check out our Support & Resources tab for helpful tools and links. 📰 Read our monthly blog in the Latest News tab. 📱 Follow up on all social platforms to stay up to date.

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Penn FTD Center @pennftdc.bsky.social · 12/06/2026

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Penn FTD Center @pennftdc.bsky.social · 09/06/2026

📰 Are you subscribed to the Penn FTD Center newsletter? Use the link in our bio to stay up to date on our latest updates, educational events, and research advancements!

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Penn FTD Center @pennftdc.bsky.social · 08/06/2026

In our June blog, Penn FTD Center Senior Clinical Research Coordinator Ashlyn O’Halloran interviews Mary Lou Falcone to discuss caregiving, perseverance, and love. Our latest blog post can be found at our website or by clicking the link in our bio!

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Penn FTD Center @pennftdc.bsky.social · 05/06/2026

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Penn FTD Center @pennftdc.bsky.social · 03/06/2026

Penn FTD Center Staff Highlight 🌟 Gillian Bradley, MSN, CRNP is a nurse practitioner and has been in this current role since the beginning of 2025, but first joined the FTD Center in 2018 as a clinical research coordinator. 📍Read more details on Gillian at the link in bio!

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Penn FTD Center @pennftdc.bsky.social · 01/06/2026

We understand that care management can be tough. This June, we are sharing tips for taking vacations. 📍Check out our website for more information on Support & Resources 💌 Check out the AFTD for Awareness Cards at the link in our bio to print and take on any trips!

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Penn FTD Center @pennftdc.bsky.social · 29/05/2026

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Penn FTD Center @pennftdc.bsky.social · 22/05/2026

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Penn FTD Center @pennftdc.bsky.social · 18/05/2026

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Penn FTD Center @pennftdc.bsky.social · 15/05/2026

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Penn FTD Center @pennftdc.bsky.social · 13/05/2026

What are Nurse Practitioners (NPs) and how can they best support you? Read in our blog post available now at the link in our bio!

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Penn FTD Center @pennftdc.bsky.social · 11/05/2026

We understand that care management can be tough. In May, we are providing details on available support groups & resources. 📍Check out our website for more information on Support & Resources

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Penn FTD Center @pennftdc.bsky.social · 07/05/2026

Penn FTD Center Staff Highlight 🌟 Allison Snyder, MD is an Assistant Professor at the Penn FTD Center. Dr. Snyder sees clinic patients, clinical research participants, and studies the biology of TDP-C in her lab. 📍Read more details on Dr. Snyder in our blog post! Link in bio!

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