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Taylor Coffman

@taylorcoffman.bsky.social
99 followers 60 following 171 posts

Writer/Patient Advocate- Rare Disease Girl Substack, Toddler-Mom, Creative, Actor-Silicon Valley/Life in Pieces/Feud/etc, Feat. in HuffPost, STAT, Today, Buzzfeed and more

PostsRepliesMedia
Taylor Coffman @taylorcoffman.bsky.social · 21/05/2026
So thrilled folks are responding to the show 🙏 thanks for the shout @katharinehayhoe.com 🫶
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Reposted by Taylor Coffman
Katharine Hayhoe @katharinehayhoe.com · 20/05/2026
I am loving this new California-based podcast featuring non-traditional climate voices and solutions. Check it out!
norcalpublicmedia.org
A Fighting Chance
If you care about our planet, following climate news can feel like a gut punch, every story darker than the last. But under the radar, people are winning,
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Taylor Coffman @taylorcoffman.bsky.social · 02/10/2025
The US, the country with the highest GDP, ranks last or near-last in overall health system performance and health outcomes compared to other high-income countries, despite spending more on healthcare than any other nation. Fixing this begins with affordable care and access. Not making it worse!!
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Taylor Coffman @taylorcoffman.bsky.social · 27/06/2025
Healthcare should not be a reward for wealth or a W-2 job.
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Taylor Coffman @taylorcoffman.bsky.social · 09/06/2025
Sending Marines to liberate us…? I went to a play and the pool today. Protestors shut down the 101 like twice a year. That’s not a riot. It’s inconvenient bc we have to take Pico.
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Taylor Coffman @taylorcoffman.bsky.social · 28/05/2025
In a world of rapidly developing AI, we really need a health system that isn’t tied to employment.
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Taylor Coffman @taylorcoffman.bsky.social · 28/05/2025
Maybe he’s old, but 20 years seems like not enough for hundreds of child victims. They will have a life sentence from his cruelty.
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Taylor Coffman @taylorcoffman.bsky.social · 27/05/2025
What’s the point of a massive defense budget when our government just lets us all die of diseases by reducing healthcare, disease information, and defunding disease research …? 🤔
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Taylor Coffman @taylorcoffman.bsky.social · 18/05/2025
Source: NY Times
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Taylor Coffman @taylorcoffman.bsky.social · 18/05/2025
Medicaid saves lives! “The most extensive research on Medicaid coverage to date found that it reduced the risk of death by 21 percent.” I am one of the 21% who needed life saving care.
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Taylor Coffman @taylorcoffman.bsky.social · 14/05/2025
Are bots starting to argue other bots now ?
media.tenor.com
a man wearing 3d glasses is holding a bag of popcorn
ALT: a man wearing 3d glasses is holding a bag of popcorn
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Taylor Coffman @taylorcoffman.bsky.social · 14/05/2025
Are bots starting to argue other bots now? 🤔
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Taylor Coffman @taylorcoffman.bsky.social · 14/05/2025
So many bots.
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Taylor Coffman @taylorcoffman.bsky.social · 13/05/2025
No. Look I’m as grumpy about what happened as the next person- but don’t take away people’s healthcare. My healthcare. I depend on these resources too.
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Taylor Coffman @taylorcoffman.bsky.social · 13/05/2025
Comment sections really have a way of showing us who would have been Nazis
media.tenor.com
a man with a beard is sitting at a table with his hand on his chin and the words `` sure '' written on his face .
ALT: a man with a beard is sitting at a table with his hand on his chin and the words `` sure '' written on his face .
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Taylor Coffman @taylorcoffman.bsky.social · 13/05/2025
Not/Troll farm vibes much. Thx for the engagement 🍿
media.tenor.com
a woman with glasses is eating popcorn from a box that says pop corn
ALT: a woman with glasses is eating popcorn from a box that says pop corn
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Taylor Coffman @taylorcoffman.bsky.social · 13/05/2025
www.newsweek.com/millions-fac...
newsweek.com
Millions face losing health insurance under Republican proposal
CBO documents reveal that if enacted, the proposed subsidy rollback would strip coverage from millions, particularly hitting low-income adults.
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Taylor Coffman @taylorcoffman.bsky.social · 13/05/2025
Oligarchy looks like getting a sky palace while you kick 13.7 million off health insurance. Let’s make this right!
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Taylor Coffman @taylorcoffman.bsky.social · 13/05/2025
Oligarchy looks like getting a sky palace while you kick 13.7 million off health insurance.
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Taylor Coffman @taylorcoffman.bsky.social · 12/05/2025
www.house.gov/representati...
house.gov
Find Your Representative | house.gov
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Taylor Coffman @taylorcoffman.bsky.social · 12/05/2025
I am one of those moms - when I was laid off 6 months after returning to work. At a time where the economy is unstable, pls don’t take away people’s healthcare. My healthcare. Pls fight for Medicaid!
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Taylor Coffman @taylorcoffman.bsky.social · 12/05/2025
House Republicans released a plan late on Sunday (ON MOTHERS DAY) that would cause millions of Americans to lose health coverage and millions more to pay higher fees when they go to the doctor. Half of all new moms in the US get their healthcare through Medicaid.
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Taylor Coffman @taylorcoffman.bsky.social · 11/05/2025
Call the moms in your life xo
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Taylor Coffman @taylorcoffman.bsky.social · 10/05/2025
ICE is making America a scarier place.
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Taylor Coffman @taylorcoffman.bsky.social · 08/05/2025
Reading “ICU team called for unresponsiveness and no brain reflex” in your chart will shake up a person. youtu.be/fl5VdO6R9uk
youtu.be
Taylor Coffman's Life After Near Death: A Journey of Healing and Transformation ✨
YouTube video by MAGIC IS REAL
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Taylor Coffman @taylorcoffman.bsky.social · 08/05/2025
Not-so-happy Mental Health Month, United Healthcare.
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Taylor Coffman @taylorcoffman.bsky.social · 07/05/2025
Love seeing prior authorizations taking center stage in the Reducing Medically Unnecessary Delays in Care Act of 2025! This is a bipartisan issue we can all agree on! I have advocated to end the Prior Authorization process as it exists. Delays & denials are fatal. It’s a step in the right direction!
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Taylor Coffman @taylorcoffman.bsky.social · 07/05/2025
Always appeal. They are banking on the fact that only 1% do.
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Taylor Coffman @taylorcoffman.bsky.social · 02/05/2025
Truly tragic. Peace be with her and her loved ones.
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Taylor Coffman @taylorcoffman.bsky.social · 01/05/2025
media.tenor.com
a woman is crying with the words you had me at hello above her
ALT: a woman is crying with the words you had me at hello above her
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Taylor Coffman @taylorcoffman.bsky.social · 01/05/2025
A f/u to my article in STAT- “Nearly 50% of clinical participants in the name change project saw patients as a barrier to its implementation because they are all reluctant to change.” But there’s no mention of the biggest obstacle to change: taylorcoffman.substack.com/p/obstacles-...
taylorcoffman.substack.com
Disappointment, Money, & Unanswered Emails.
STAT First Opinion Article Revisited
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Taylor Coffman @taylorcoffman.bsky.social · 30/04/2025
Throw the economy into a tailspin and take away our healthcare stability- 70 million Americans depend on these resources!
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Taylor Coffman @taylorcoffman.bsky.social · 30/04/2025
My family depends on these resources. I have a rare disease with incredibly expensive care. We need the support of these programs. Please fight for Medicaid!
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Taylor Coffman @taylorcoffman.bsky.social · 30/04/2025
70 million Americans are on Medicaid. But many have no idea they are on Medicaid because it’s rebranded often on the state level or they are enrolled in programs run by private insurance. I fear too many have no idea the Republicans are trying to take their health resources away.
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Taylor Coffman @taylorcoffman.bsky.social · 27/04/2025
I looked into which common supplements are actually worth it, so you don’t have to! See the winners and losers. taylorcoffman.substack.com/p/supplement...
taylorcoffman.substack.com
Supplements worth the money
In an industry full of promises, what actually delivers.
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Reposted by Taylor Coffman
Senator Chris Van Hollen @vanhollen.senate.gov · 25/04/2025
This is what fascism looks like: Attorney General Bondi threatening judges she claims are not cooperating with Trump immigration policies and saying “we will come after you and we will prosecute you. We will find you.”
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Taylor Coffman @taylorcoffman.bsky.social · 24/04/2025
Maybe don’t do Nazi salutes and tank federal programs that help people all for personal gain.
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Taylor Coffman @taylorcoffman.bsky.social · 23/04/2025
Thanks @kffhealthnews.org for putting my STAT article about the naming of my rare kidney disease in your morning brief! kffhealthnews.org/morning-brea...
kffhealthnews.org
Viewpoints: Cutting NIH Research Grants Is A Huge Waste; RFK Jr.’s Vaccine Hypocrisy Is Unsustainable - KFF Health News
Opinion writers discuss these public health issues.
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Taylor Coffman @taylorcoffman.bsky.social · 23/04/2025
Love a Marriott even more now.
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Taylor Coffman @taylorcoffman.bsky.social · 23/04/2025
Oh and the online groups are the only reason I’m on Facebook much anymore. 🫶 (wish there were more options for platforms but it’s were so many have landed).
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Taylor Coffman @taylorcoffman.bsky.social · 23/04/2025
This is a great article. Hits so many points- I have on my Liston RDG to write about how we share JJ and it’s a similar reality. I’m the one with the disease in this case, but I’m so open about my life, I know it inspires others to see motherhood in a new light maybe… the challenges and the joy.
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The Associated Press @apnews.com · 20/04/2025
Raising a child in America has never been cheap. But tariffs will make it many times more expensive for new parents.
bit.ly
Strollers and other baby products will get more expensive – and harder to find – with tariffs
Raising a child in America has never been cheap. In the first year alone, it costs an average of $20,384, according to parenting website Baby Center.
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Taylor Coffman @taylorcoffman.bsky.social · 20/04/2025
👏👏👏👏👏👏👏
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Taylor Coffman @taylorcoffman.bsky.social · 20/04/2025
People with expensive chronic diseases between jobs are sure thinking about it!
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Taylor Coffman @taylorcoffman.bsky.social · 19/04/2025
Hi. I’d love to get your take on the points outlined in the article. I’ve never been attached to aHUS and agree change is needed. I wish the listening session we requested could’ve happened. Patient perspectives have a ton of value especially for practical use. Thanks!
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Taylor Coffman @taylorcoffman.bsky.social · 19/04/2025
It’s pretty cool they let a theater major do an article in First Opinion where they tout the “smartest thinkers in life sciences.” I’ll be writing more in my Substack soon about some deeper aspects that matter a lot to me that didn’t fit in the word count including the role of money in this process.
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Taylor Coffman @taylorcoffman.bsky.social · 18/04/2025
What's a patient to do when they feel unheard?? They write an article in @statnews ! I was deeply frustrated that patients with my disease were not granted a requested listening session during or after a three year project to propose a new name. So I wrote a piece: www.statnews.com/2025/04/18/r...
statnews.com
I don’t know what I’m supposed to call my rare kidney disease
My rare disease has an effective treatment — but no clear name. That confusion has consequences.
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Taylor Coffman @taylorcoffman.bsky.social · 18/04/2025
Thank you.
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Taylor Coffman @taylorcoffman.bsky.social · 17/04/2025
Maybe RFK Jr. should also be worried about autistic kids getting measles too.
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Taylor Coffman @taylorcoffman.bsky.social · 16/04/2025
How much of our tax dollars are being spent to imprison people without due process?? Thank you for doing this!
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