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Taylor Coffman

@taylorcoffman.bsky.social
99 followers 60 following 171 posts

Writer/Patient Advocate- Rare Disease Girl Substack, Toddler-Mom, Creative, Actor-Silicon Valley/Life in Pieces/Feud/etc, Feat. in HuffPost, STAT, Today, Buzzfeed and more

PostsRepliesMedia
Taylor Coffman @taylorcoffman.bsky.social · 21/05/2026
So thrilled folks are responding to the show 🙏 thanks for the shout @katharinehayhoe.com 🫶
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Katharine Hayhoe @katharinehayhoe.com · 20/05/2026
I am loving this new California-based podcast featuring non-traditional climate voices and solutions. Check it out!
norcalpublicmedia.org
A Fighting Chance
If you care about our planet, following climate news can feel like a gut punch, every story darker than the last. But under the radar, people are winning,
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Taylor Coffman @taylorcoffman.bsky.social · 02/10/2025
The US, the country with the highest GDP, ranks last or near-last in overall health system performance and health outcomes compared to other high-income countries, despite spending more on healthcare than any other nation. Fixing this begins with affordable care and access. Not making it worse!!
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Taylor Coffman @taylorcoffman.bsky.social · 27/06/2025
Healthcare should not be a reward for wealth or a W-2 job.
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Taylor Coffman @taylorcoffman.bsky.social · 09/06/2025
Sending Marines to liberate us…? I went to a play and the pool today. Protestors shut down the 101 like twice a year. That’s not a riot. It’s inconvenient bc we have to take Pico.
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Taylor Coffman @taylorcoffman.bsky.social · 28/05/2025
In a world of rapidly developing AI, we really need a health system that isn’t tied to employment.
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Taylor Coffman @taylorcoffman.bsky.social · 27/05/2025
What’s the point of a massive defense budget when our government just lets us all die of diseases by reducing healthcare, disease information, and defunding disease research …? 🤔
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Taylor Coffman @taylorcoffman.bsky.social · 18/05/2025
Medicaid saves lives! “The most extensive research on Medicaid coverage to date found that it reduced the risk of death by 21 percent.” I am one of the 21% who needed life saving care.
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Taylor Coffman @taylorcoffman.bsky.social · 14/05/2025
Are bots starting to argue other bots now ?
media.tenor.com
a man wearing 3d glasses is holding a bag of popcorn
ALT: a man wearing 3d glasses is holding a bag of popcorn
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Taylor Coffman @taylorcoffman.bsky.social · 13/05/2025
Oligarchy looks like getting a sky palace while you kick 13.7 million off health insurance.
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Taylor Coffman @taylorcoffman.bsky.social · 12/05/2025
House Republicans released a plan late on Sunday (ON MOTHERS DAY) that would cause millions of Americans to lose health coverage and millions more to pay higher fees when they go to the doctor. Half of all new moms in the US get their healthcare through Medicaid.
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Taylor Coffman @taylorcoffman.bsky.social · 11/05/2025
Call the moms in your life xo
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Taylor Coffman @taylorcoffman.bsky.social · 10/05/2025
ICE is making America a scarier place.
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Taylor Coffman @taylorcoffman.bsky.social · 08/05/2025
Reading “ICU team called for unresponsiveness and no brain reflex” in your chart will shake up a person. youtu.be/fl5VdO6R9uk
youtu.be
Taylor Coffman's Life After Near Death: A Journey of Healing and Transformation ✨
YouTube video by MAGIC IS REAL
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Taylor Coffman @taylorcoffman.bsky.social · 08/05/2025
Not-so-happy Mental Health Month, United Healthcare.
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Taylor Coffman @taylorcoffman.bsky.social · 07/05/2025
Love seeing prior authorizations taking center stage in the Reducing Medically Unnecessary Delays in Care Act of 2025! This is a bipartisan issue we can all agree on! I have advocated to end the Prior Authorization process as it exists. Delays & denials are fatal. It’s a step in the right direction!
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Taylor Coffman @taylorcoffman.bsky.social · 07/05/2025
Always appeal. They are banking on the fact that only 1% do.
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Taylor Coffman @taylorcoffman.bsky.social · 01/05/2025
A f/u to my article in STAT- “Nearly 50% of clinical participants in the name change project saw patients as a barrier to its implementation because they are all reluctant to change.” But there’s no mention of the biggest obstacle to change: taylorcoffman.substack.com/p/obstacles-...
taylorcoffman.substack.com
Disappointment, Money, & Unanswered Emails.
STAT First Opinion Article Revisited
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Taylor Coffman @taylorcoffman.bsky.social · 30/04/2025
70 million Americans are on Medicaid. But many have no idea they are on Medicaid because it’s rebranded often on the state level or they are enrolled in programs run by private insurance. I fear too many have no idea the Republicans are trying to take their health resources away.
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Taylor Coffman @taylorcoffman.bsky.social · 27/04/2025
I looked into which common supplements are actually worth it, so you don’t have to! See the winners and losers. taylorcoffman.substack.com/p/supplement...
taylorcoffman.substack.com
Supplements worth the money
In an industry full of promises, what actually delivers.
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Senator Chris Van Hollen @vanhollen.senate.gov · 25/04/2025
This is what fascism looks like: Attorney General Bondi threatening judges she claims are not cooperating with Trump immigration policies and saying “we will come after you and we will prosecute you. We will find you.”
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Taylor Coffman @taylorcoffman.bsky.social · 23/04/2025
Thanks @kffhealthnews.org for putting my STAT article about the naming of my rare kidney disease in your morning brief! kffhealthnews.org/morning-brea...
kffhealthnews.org
Viewpoints: Cutting NIH Research Grants Is A Huge Waste; RFK Jr.’s Vaccine Hypocrisy Is Unsustainable - KFF Health News
Opinion writers discuss these public health issues.
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The Associated Press @apnews.com · 20/04/2025
Raising a child in America has never been cheap. But tariffs will make it many times more expensive for new parents.
bit.ly
Strollers and other baby products will get more expensive – and harder to find – with tariffs
Raising a child in America has never been cheap. In the first year alone, it costs an average of $20,384, according to parenting website Baby Center.
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Taylor Coffman @taylorcoffman.bsky.social · 19/04/2025
It’s pretty cool they let a theater major do an article in First Opinion where they tout the “smartest thinkers in life sciences.” I’ll be writing more in my Substack soon about some deeper aspects that matter a lot to me that didn’t fit in the word count including the role of money in this process.
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Taylor Coffman @taylorcoffman.bsky.social · 18/04/2025
What's a patient to do when they feel unheard?? They write an article in @statnews ! I was deeply frustrated that patients with my disease were not granted a requested listening session during or after a three year project to propose a new name. So I wrote a piece: www.statnews.com/2025/04/18/r...
statnews.com
I don’t know what I’m supposed to call my rare kidney disease
My rare disease has an effective treatment — but no clear name. That confusion has consequences.
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Taylor Coffman @taylorcoffman.bsky.social · 17/04/2025
Maybe RFK Jr. should also be worried about autistic kids getting measles too.
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Taylor Coffman @taylorcoffman.bsky.social · 16/04/2025
How much of our tax dollars are being spent to imprison people without due process??
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Taylor Coffman @taylorcoffman.bsky.social · 15/04/2025
If the conservative Supreme Court says to send this poor man home and the Executive branch says nope- what happens now??
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Acyn @acyn.bsky.social · 15/04/2025
AOC: When he talks about rapists and criminals, he should look in the mirror
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Taylor Coffman @taylorcoffman.bsky.social · 12/04/2025
A new study says pregnancy-related deaths in the U.S. increased 27.7% in a recent five-year period with study authors highlighting it as an "urgent public health priority."
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Susannah Fox @susannahrfox.bsky.social · 10/04/2025
Here's an advance directive I hadn't thought about before @taylorcoffman.bsky.social wrote this: taylorcoffman.substack.com/p/illness-an...
taylorcoffman.substack.com
How to create social media guidelines before emergencies occur
A cautionary tale for families and loved ones.
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Taylor Coffman @taylorcoffman.bsky.social · 10/04/2025
One secret insurance companies don’t want you to know- over 80% of denials are overturned on appeal. But only 18% of doctors always appeal. Why and what patients can do, in my latest article: taylorcoffman.substack.com/p/one-secret...
taylorcoffman.substack.com
One Secret Insurance Companies Don't Want You To Know
A Visit To The Prior Authorization Hellscape That Is My Life Now
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Taylor Coffman @taylorcoffman.bsky.social · 07/04/2025
Studies show kindness might be the real anti-aging serum. Being kind is good for everyone but especially ourselves. taylorcoffman.substack.com/p/jerks-dont...
taylorcoffman.substack.com
The Science of Kindness (Spoiler, It's A Superpower)
Goodbye, Jerks! Kindness is associated longer, healthier, happier lives.
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Taylor Coffman @taylorcoffman.bsky.social · 24/03/2025
Hegseth’s own mom suggested he not be confirmed. Shoulda listened to his mom.
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Taylor Coffman @taylorcoffman.bsky.social · 17/03/2025
Don’t forget despite life’s challenges, we are powerful generators of good luck for ourselves and others.
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Taylor Coffman @taylorcoffman.bsky.social · 07/03/2025
I have a lot of words I’d use to describe the US government right now… and NONE of them include the word “EFFICIENT”
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Taylor Coffman @taylorcoffman.bsky.social · 01/03/2025
I’m really not in the mood to pay federal taxes this year.
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Taylor Coffman @taylorcoffman.bsky.social · 28/02/2025
Calling all Zebras! Looking for folks in the rare disease community- give a shout in my comments or on this post. If you’re on IG , drop a follow and tag me in a rare disease day post and I’ll repost you in my stories. Let’s support awareness today! I want to elevate our voices on Rare Disease day!
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Taylor Coffman @taylorcoffman.bsky.social · 24/02/2025
You are more powerful than you know. (Unless you’re a billionaire, then this doesn’t apply to you). Happy Monday.
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Taylor Coffman @taylorcoffman.bsky.social · 21/02/2025
How about we don’t encourage the far right Germans bc that has NEVER GONE WELL.
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Taylor Coffman @taylorcoffman.bsky.social · 20/02/2025
Two-thirds of Americans have an unfavorable view of Mark Zuckerberg. This includes 26% who are very unfavorable toward him according to a Pew survey of more than 5,000 Americans of varying ages who identify with various political parties. And you can absolutely fact check me!
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Taylor Coffman @taylorcoffman.bsky.social · 20/02/2025
For the president and the people in the back: RUSSIA invaded Ukraine unprovoked killing hundreds of thousands. Just wanted to clear up any confusion.
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ProPublica @propublica.org · 20/02/2025
NEW: Pregnancy became far more dangerous in Texas after the state banned abortion, according to ProPublica’s first-of-its-kind analysis, which found the sepsis rate for women hospitalized as they miscarried in the 2nd trimester shot up by more than 50%. propub.li/43487Tj
propub.li
Texas Banned Abortion. Then Sepsis Rates Soared.
ProPublica’s first-of-its-kind analysis is the most detailed look yet into a rise in life-threatening complications for women experiencing pregnancy loss under Texas’ abortion ban.
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Taylor Coffman @taylorcoffman.bsky.social · 20/02/2025
It’s revolutionary to hold tight to our humanity. Don’t let them make you hate. Don’t let them dehumanize others. We must remember to take care of each other.
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Taylor Coffman @taylorcoffman.bsky.social · 18/02/2025
Can we Make Air Travel Great Again???
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Taylor Coffman @taylorcoffman.bsky.social · 18/02/2025
Nolite Te Bastardes Carborundorum 🫶💪
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Taylor Coffman @taylorcoffman.bsky.social · 16/02/2025
Happy Sunday + three day weekend 🫶
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Taylor Coffman @taylorcoffman.bsky.social · 15/02/2025
This season of Silicon Valley set in DC is hard to watch.
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Taylor Coffman @taylorcoffman.bsky.social · 14/02/2025
Free speech and hate speech ARE NOT THE SAME.
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Taylor Coffman @taylorcoffman.bsky.social · 13/02/2025
May all the ghosts of those dead animals haunt him.
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