Reposted by Tamar Burton
“I hate the way that disabled lives recede out of view because other people are too squeamish to talk about them, and I want to confront that tendency. Mostly, though, I think Max is already a thousand times more interesting than anyone I’ve ever met, and I want to tell you about him.”
theguardian.com
The boy who came back: the near-death, and changed life, of my son Max
It was, we were told, a case of sudden infant death syndrome interrupted. What followed would transform my understanding of parenting, disability and the breadth of what makes a meaningful life