Sign in

iiinova is part of the Atmosphere — an open, public network where you own your identity.

SurvivorshipIT

@survivorshipit.medsky.social
871 followers 1.1K following 381 posts

Health info, medical informatics, exercise physiology. #PatientEngagement, #HealthLiteracy, #cancer survivorship, #RuralHealth, #HealthPolicy, data stewardship, #Medsky. Posts mine, reposting≠endorsement.

PostsRepliesMedia
SurvivorshipIT @survivorshipit.medsky.social · 19/10/2026
The tool leverages European Patient Identity Services for Privacy-Preserving Record Linkage for pseudonymized integration of clinical, bio & imaging data for #AI model development for #pediatric #oncology research. www.thieme-connect.com/products/ejo... #MedSky #PedSky #OncSky #CanSky #AYACan #EUPID
013 3
SurvivorshipIT @survivorshipit.medsky.social · 17/10/2026
#Equity influences every stage of #LearningHealthSystems. The value of informatics efforts can't be judged by tech performance alone, but by whether they build #inclusive, accountable, & equitable learning cycles for their populations www.thieme-connect.de/products/ejo... #MedSky #PatientExperience
021 2
SurvivorshipIT @survivorshipit.medsky.social · 10/10/2026
Integrated patient platforms show promise in aiding patient-reported outcomes completion, but continued efforts to demonstrate #data safety, security, and utility are merited. academic.oup.com/jamiaopen/ar... #MedSky #OncSky #RadOnc #CanSky #PatientExperience #PROs #DigitalHealth #HealthOutcomes
011 1
SurvivorshipIT @survivorshipit.medsky.social · 01/10/2026
#Caregivers emphasized four core value domains for a smart helper: reducing routine workload, providing continuous and reliable monitoring, offering emotional reassurance, and delivering clinically informed guidance journals.sagepub.com/doi/10.1177/... #MedSky #HealthIT #DigitalHealth #HealthEquity
011 1
SurvivorshipIT @survivorshipit.medsky.social · 15/09/2026
Overall, #mHealth holds promise as a tool to reduce #healthdisparities in wheelchair users by improving access to & motivation for physical activity. But the current evidence base is limited & heterogeneous www.sciencedirect.com/science/arti... #MedSky #disability #PatientExperience #PublicHealth
022 2
SurvivorshipIT @survivorshipit.medsky.social · 09/09/2026
During 2015-2022, traditional #Medicare had less power #wheelchair vendor participation & sales, rentals, and repairs, w/larger decline in repairs in #rural areas. #Healthpolicy should consider access & maintenance in rural areas www.sciencedirect.com/science/arti... #PatientExperience #HealthEquity
011 1
SurvivorshipIT @survivorshipit.medsky.social · 07/09/2026
Professionals constituted 62.1% of study populations while only 8.7% examined #patients requesting or receiving #MAiD. People denied MAiD, families & caregivers, and structurally marginalized groups were largely unstudied www.sciencedirect.com/science/arti... #MedSky #PatientExperience #HealthPolicy
012 2
SurvivorshipIT @survivorshipit.medsky.social · 28/08/2026
"... #patient navigation reduced waiting time between diagnosis and radiotherapy initiation by approximately 10 days relative to the comparison group, while effects on surgery and chemotherapy were limited." academic.oup.com/heapol/advan... #MedSky #OncSky #CanSky #PatientExperience #BreastCancer
000 0
SurvivorshipIT @survivorshipit.medsky.social · 23/08/2026
This tutorial, based on experience w/large #clinicaltrials using consumer #wearables, outlines the market across varying factors and manufacturers, and the data management products supporting wearable use. ascpt.onlinelibrary.wiley.com/doi/pdfdirec... #MedSky #DigitalHealth #HealthIT #PGHD #eHealth
001 1
SurvivorshipIT @survivorshipit.medsky.social · 04/08/2026
We need to harmonise #DPIA requirements across #EU / #EEA for effective implementation of #GDPR, to improve alignment w/ #AIAct to facilitate sharing of risk assessment info earlier in the AI value chain for responsible innovation. www.sciencedirect.com/science/arti... #MedSky #HealthPolicy #LawSky
041 4
SurvivorshipIT @survivorshipit.medsky.social · 27/07/2026
"...some general themes did emerge suggesting that governments delegate control to an augmented meso-level function that works with suppliers, standards bodies, and representatives of #patients, professions and academia." www.sciencedirect.com/science/arti... #MedSky #HealthIT #interoperability
A screen capture of the top of the first page of the manuscript "Middle-out health IT programs: A scoping review of international experience" showing the authors and relevant metadata
011 1
SurvivorshipIT @survivorshipit.medsky.social · 26/07/2026
Though #GDPR remains an appropriate baseline, challenges posed by #agentic #AI require an approach combining #data protection w/fundamental rights impact assessments, #governance & #accountability w/meaningful human oversight www.sciencedirect.com/science/arti... #MedSky #HealthLaw #privacy #LawSky
A snapshot of the article title "Data protection in the era of agentic artificial intelligence" from the first page of the article, which is published in volume 61, July 2026, of "Computer Law and Security Review" journal
031 3
SurvivorshipIT @survivorshipit.medsky.social · 19/07/2026
#Altruism and perceived benefit drive willingness to share health data, while #privacy concerns and patient activation may reduce it, emphasizing the need for #patient-centered, transparent #consent models. academic.oup.com/jamia/articl... #MedSky #DataGovernance #DigitalHealth #PatientExperience
021 2
SurvivorshipIT @survivorshipit.medsky.social · 08/07/2026
Public concern about law enforcement access to health-related data about non-suspects exceeds that for most other data types. Policies governing access to medical & #genetic info should account for this concern. www.sciencedirect.com/science/arti... #MedSky #PublicHealth #privacy #DigitalHealth
021 2
SurvivorshipIT @survivorshipit.medsky.social · 30/06/2026
Patient-facing online information about #AI in #cancer care is limited, low in quality, difficult to read, & frequently omits safety concepts, highlighting an urgent need for #accessible, high-quality resources. ascopubs.org/doi/pdfdirec... #MedSky #OncSky #CanSky #PatientExperience #PublicHealth
011 1
SurvivorshipIT @survivorshipit.medsky.social · 16/05/2026
Most edits are 1 of 5 types: revise factual discrepancies; add medical specialty-specific details; express diagnostic certainties; convert patient expressions to objective assessments medical terms; reorganize or condense content academic.oup.com/jamia/advanc... #MedSky #HealthIT #PatientExperience
Snapshot of journal article title "What do clinicians edit in ambient AI-drafted clinical documentation? A qualitative content analysis"
011 1
SurvivorshipIT @survivorshipit.medsky.social · 14/05/2026
Preventing, promoting and protecting #publichealth is an inherently political act, and our educational systems must reflect this reality by preparing a generation of leaders who are courageous activists and advocates for #healthequity. ajph.aphapublications.org/doi/10.2105/... #MedSky #HealthPolicy
012 2
SurvivorshipIT @survivorshipit.medsky.social · 21/04/2026
By extracting problem summaries & categorising them into an accepted taxonomy, [LLMs] can expose previously unidentified trends & provide visibility into system-level risks. #LLMs could augment & expedite manual reviews of safety events... qualitysafety.bmj.com/content/earl... #MedSky #PatientSafety
031 3