iiinova — where your digital self keeps evolving

Sue Poncin @sueponcin.com · 22/09/2026

I am so tired of being judged in public places about my dynamic disability because of people like Mitch McConnell that I created a shirt. dynamically-disabled.printify.me

Me wearing a pink Dynamically Disabled by Long Covid tshirt with a red hat, gray scarf, and peach mask.

The back of each Dynamically Disabled tee
Stop the Stigma
of Chromic Illness

“They” need to try harder
“They” are faking
“They” want a handout

“They” is “ME”

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Sue Poncin @sueponcin.com · 22/09/2026

Feeling grateful anytime my book is picked up by someone new. If I can help one person feel less alone after being ripped out of their life. #BookSky a.co/d/00fS2OB8

Cover of my memoir In The Space Between - Finding Rays of Hope Through Long Covid is a photograph of the Tucson desert of rainbow with saguaros my brother in law took in his yard with the title written in black in front of the clouds at the top.

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Sue Poncin @sueponcin.com · 17/09/2026

Hope looks like reading a book to feel less alone 🌈 Madelleine Muller sums up how I feel living with Long Covid: “If healthy person jumped into my body, they would have an immediate panic attack and believe they were about to die because that’s what it feels like.”

Cover of the book
What is Myalgic Encephalomyelitis Like?
Patient & Caregiver Perspectives

The cover art looks like blue, green, and yellow water flowing together with the title in white print on a dark blue rectangular strip near the top.

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Sue Poncin @sueponcin.com · 01/09/2026

Two of my other favorite quotes:

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Sue Poncin @sueponcin.com · 31/08/2026

As a person who has donated bio samples to the Reverse-LC trial, I couldn’t not be more thrilled about the sharing of resources. Hope looks like more researchers, more ideas, quicker solutions 🌈

The bio sample tray sent to the lab with my cerebrospinal fluid. On top of a hospital rolling table is a female hands holding a two inch long tube with a white tray under it with rows of small tubes with green tops.

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Sue Poncin @sueponcin.com · 28/08/2026

“There’s always something missing-that’s the deepest truth in my life.” One covid infection ripped me out of my life over five years ago. I’ve worked to grieve what I’ve lost but I still have this persistent ache. Kate Bowler gets it. I had to get my highlighter and pen out reading Joyful Anyway.

The cover of Joyful Anyway by Kate Bowler. “Joyful” is hot pink metallic balloons and “Anyway” is gold metallic balloons that are falling across the page with the an and y deflating.

Page 74 of the book with a pink highlighter and black pen laid in the middle. I highlighted the top paragraph writing in pink “all of this” and then highlighted the bottom paragraph as well.

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Sue Poncin @sueponcin.com · 26/08/2026

One again, grief and Long Covid go hand in hand. “It’s not a problem that can be solved, it’s a condition in which you have to find a way to endure.” And you never know how you’ll feel day to day, sometimes hour to hour. An excerpt from All There Is with Anderson Cooper.

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Sue Poncin @sueponcin.com · 19/08/2026

A good reminder! If you or someone you know has faced a life altering event, I hope my Long Covid experience can help. a.co/d/0ayBbPeB

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Sue Poncin @sueponcin.com · 19/08/2026

⬇️ applies to chronic illness & disabled people as well. So much so that I made a tshirt to spread awareness. dynamically-disabled.printify.me

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Sue Poncin @sueponcin.com · 15/08/2026

One infection = 5 1/2 years disabled Long Covid ➡️ chronic illness

In purple bubble letters: 5 Chronic Illness Facts
In five separate purple bubbles with black writing

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Sue Poncin @sueponcin.com · 15/08/2026

This is Long Covid. Before and after. Today. My one year testing for Reverse-LC trial at the University of Minnesota - From ready to put on the air flow mask and ride the stationary bike to crashed in my hotel bed after taking an Uber two blocks from the hospital.

Me with a smile in a sports bra in a medical office with a heart monitor hooked up with two patches in either clavicle, one center collarbones, and two below.

Me in my hotel bed with a soft gray blanket around my head with my head propped on a maroon and white blanket.

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Sue Poncin @sueponcin.com · 15/08/2026

I was asked recently “Are people still getting Long Covid?” Yes. Unfortunately yes. (A post today on a Facebook Long Covid group’s page)

Bold heading: Covid-19 Longhauler Advo…..
Posted by Joey and I blacked out his last name.
Text he posted:
Hi! I’m new to this group. I recently joined because I’m dealing with every symptom of long COVID. I got sick in May I’m taking forever to get better. I just did some bloodwork. I’m sure there will be more. This is terrible.

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Sue Poncin @sueponcin.com · 13/08/2026

Hope looks like Long Covid research 🌈🌈 At the University of Minnesota for the Reverse-LC trial. To date there are 319 enrolled out of 550. When I started a year ago, I was #17.

Me wearing a pink Dynamically Disabled by Long Covid tshirt and a coral mask sitting in a wheelchair waiting g for my Southwest flight to Minneapolis.

A metallic sculpture of a human head in the lobby of the MRI center at University of Minnesota. The sculpture is made of varying sizes of metallic pieces that move with wind.

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Sue Poncin @sueponcin.com · 01/08/2026

When someone asks about Long Covid….

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Sue Poncin @sueponcin.com · 07/07/2026

Flight delay calls for drastic measures. Any true Diet Coke drinker knows that I mean.

Screenshot of text thread with my husband with a flight delay notice followed by him asking How you doing? My response: Jm drinking a Diet Coke on a plastic bottle.

From candidly a ranking of Diet Coke vessels.

My mostly empty plastic Diet Coke in the airport window with an empty Southwest gate behind it.

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Sue Poncin @sueponcin.com · 01/07/2026

From Griffin University “We found a significant TRPM3-calcium pathway dysfunction in ME/CFS, resulting in impaired calcium entry into mitochondria” Science is catching up to what my acupuncturist suspected years ago. I wrote about in my Long Covid memoir….In The Space Between (link in bio)

Page 169 from my memoir where I highlighted “Ronica focuses on my muscles, believing they do not have enough….”
Continued in next picture

A continued sentence from the previous picture that I highlighted….
“calcium. She uses a pressure cuff on my calf, and I could only tolerate it to 130, and normal is 200-230.

A screenshot from the article linked in notes.

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Sue Poncin @sueponcin.com · 22/06/2026

Jonathan Toews tried with all he had to comeback after Long Covid. So did I. He made it through one season. I’ve made it to ten hours/week. He earned 29 points, down from the high 50’s-low 60’s I am a math interventionist instead of an AP Calculus teacher Link to the book of my story in bio.

Excerpt from NYT when Toews left the Blackhawks in 2023: https://www.nytimes.com/athletic/4409052/2023/04/13/jonathan-toews-chicago-blackhawks-nhl/?unlocked_article_code=1.rFA.PrSd.lXg3SyMc9518&smid=ta-android-share

Screenshot from NHL announcing:
https://www.nhl.com/news/jonathan-toews-retires-after-16-nhl-seasons

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Sue Poncin @sueponcin.com · 21/06/2026

Tucson Writers Alliance book showcase purchases from yesterday. Writers supporting writers. Check out my Long Covid memoir - link in bio. @saralafontain.bsky.social #booksky

The Accidental Life of MF Ascher by Ivy H. Booker cover with four empty Adirondack chairs on an old wooden dock looking out over a cloudy purplish day in a lake.

Unskilled by A. Skoda cover. An opened box of a dozen gourmet donuts with bacon, m&ms, crushed candy bars, etc. and on the open cover “See ya on the flip side!!! I Quit!” Is written in black Sharpie.

Tourist Trapped by J.B. Velasquez cover. A blue sky with clouds in the background with a white coffee cup with green liquid and steam in front. The steam has the shapes of what looks like a male and female ghost-like figure.

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Sue Poncin @sueponcin.com · 16/06/2026

An accurate picture of Long Covid too….

A graphic from The Pots Life of seven vertical spoons each with a different amount of liquid colored in turquoise with one word under each spoon: MY BEST ISNT THE SAME EVERY DAY

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Sue Poncin @sueponcin.com · 14/06/2026

Hope looks like 🌈🌈🌈🌈

A green background with a basketball net in front with the quote:
Last time the Knicks won the championship, the president in resigned in disgrace shortly after here’s hoping history repeats.

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Sue Poncin @sueponcin.com · 07/06/2026

The two sides of being dynamically disabled by Long Covid.

Me in a blue life jacket hugging a dolphin.

Me in a wheelchair at the airport on our way home wearing a mask, neck pillow, AirPods, with clenched hands and locked together knees

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Sue Poncin @sueponcin.com · 05/06/2026

All my Long Covid sufferers who’ve been gifted Celiac’s disease as a bonus know what this bear knows! (The TikTok video then pans to a pile of demolished trash)

A screenshot from TikTok user lakenmay5 of a bag to gluten free bread untouched in the grass with the words “when even the bear who attacked my garbage won’t eat the gluten free bread.”

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Sue Poncin @sueponcin.com · 02/06/2026

Long Covid…… you can’t leave home without it. At least there is a nice view from my bed.

The blue sky and mountains above the marina in PV as seen from my bed,

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Sue Poncin @sueponcin.com · 26/05/2026

Just the tip of the iceberg….. Long Covid has directly wrecked many lives already. How many more will be impacted once the billion $ crash happens? Thanks @seekingboston.bsky.social for the perfect image!

A painting like picture of a Titanic like steamer labeled US Economy headed towards an iceberg. The iceberg labeled Covid is Over above the water and Long Covid, Disability, Economic Ruin, Apathy, Ruined Lives below water.

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Sue Poncin @sueponcin.com · 31/03/2026

May I suggest a lovely memoir:

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Sue Poncin @sueponcin.com · 26/03/2026

Of the 1.6K reactions, 1.3K are laughing? I’d like to think it was because of the name “Cicada” but my gut says it’s not. An example why Long Covid Awareness is necessary. One infection = 5 years disabled.

A screen shot from FB of the Today Show page with a headline: the heavily mutated new BA.3.2 covid variant, a.k.a. “cicada “is spreading in the least 25 United States the CDC said what to know about it spread and symptoms.
Featuring a woman walking wearing a mask.
Under I include the reactions in the screenshot. 1.3K laughing, 137 thumbs up, 45 sad, 33 wow, and the angry face is cut off.

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Sue Poncin @sueponcin.com · 19/03/2026

Fascinating that Long Covid mimics neurodivergence. Marian Schembari’s description of noise, light, touch & food sensitivities, along with the “thousand steps involved in showering and personal hygiene” has me nodding along. Her narration of the audiobook is 👍 Highly recommend!

Cover of A Litlle Less Broken: title is in bold white letters over a pink cracked vase holding flowers on a blue background.

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Sue Poncin @sueponcin.com · 18/03/2026

To my fellow Long Covid & dynamically disabled people: @chronicillness.bsky.social

Thoughts of Dog 2026 daily calendar says: it’s okay to have no thoughts, sometimes, there is absolutely nothing going on up there. With a picture of a cartoon dog and a blank thought bubble.

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Sue Poncin @sueponcin.com · 18/03/2026

If you think you might have Covid, please test. If you are one of the unlucky like me who ended up with Long Covid, some clinical trials require positive test evidence. From Reverse-LC:

Screenshot from Reverse-LC study on clinical trials .org stating “Documented SARS-CoV-2 infection, six or more months prior to screening, confirmed with acceptable documentation.

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Sue Poncin @sueponcin.com · 15/03/2026

In Honor of Long Covid Awareness my local paper shared my Reverse-LC trial story: www.facebook.com/share/p/1CNM...

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Sue Poncin @sueponcin.com · 15/03/2026

Long Covid Awareness Day Sharing my story in hopes others who have been ripped out of their lives feel less alone. In The Space Between: Finding Rays of Hope Through Long Covid a.co/d/082SmYbA

Cover of my book. Title is written in the clouds above a picture of a rainbow in the Sonoran desert in Tucson AZ that my brother in law took

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Sue Poncin @sueponcin.com · 15/03/2026

Happy Pi Day from NYT Strands!

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Sue Poncin @sueponcin.com · 15/03/2026

“Living with invisible illness can be isolating. Physical symptoms are hard enough; the doubt and dismissal can be even harder. No one should have to battle their disease and the system meant to help them. Women deserve better.” Stop the Stigma of Chronic Illness dynamically-disabled.printify.me

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Sue Poncin @sueponcin.com · 14/03/2026

Celebrate and take the pictures because you never know………. From my last Pi Day as a teacher before Long Covid ripped me out of my life five years ago. #PiDay

A pie one I’m my students made - I ❤️ Mrs. Poncin with Pi symbol written on it with smarties showing the circumference.

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Sue Poncin @sueponcin.com · 13/03/2026

Labeled “Satire” But more like real life. I can look like this walking into a place and use a cane to lie in the backseat of my car on the way out. One infection = dynamically disabled for 5 years. Stop the stigma of chronic illness.

“Satire” in red at the top followed by
“Women with invisible illness accidentally looks too happy in public, loses credibility” as a headline above a picture of a professionally dressed woman smiling on a cell phone in front of an office building.

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Sue Poncin @sueponcin.com · 04/02/2026

Sharing images and videos of our Long Covid experiences help make our world a reality for others and spreads awareness. Some of my favorites:

My daughter’s recognition night - she’s in a red cap and gown hugging me in my wheel chair.

My daughter’s gymnastics meet - she’s in a black and blue Leo hugging me in sitting in my zero gravity chair propped up with a blanket under my arm and pillow behind my head

Me reclined in the passenger seat with a clenched fist after a cheer competition.

Me lying in the backseat of the car with my head propped on a blanket, scarf over my eyes, and hands clenched on our way home from a gymnastics meet

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Sue Poncin @sueponcin.com · 26/01/2026

Reverse-LC clinical trial for Long Covid is expanding to more enrollment sites! Per the interest form, you have 17 options, up from the original 5. Great news for those not well enough to travel. redcap.vumc.org/surveys/?s=3...

Screenshot of the interest form listing enrollment sites.

Two purple pills from the trial in my hand.

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Sue Poncin @sueponcin.com · 25/01/2026

One infection = 5 yrs of brain damage Being dynamically disabled by Long Covid looks like……

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Sue Poncin @sueponcin.com · 19/01/2026

In honor of my five year Long Covid anniversary, please help spread awareness by sharing my story far and wide. Too many people still don’t know about Long Covid and dynamic disabilities. Book: a.co/d/5Gr1mGS Blog: www.sueponcin.com T-shirt: dynamically-disabled.printify.me

My book - In the Space Between: finding rays of hope through long covid
The title is written at the top of picture my brother in law took in his backyard of a double rainbow in the Sonoran desert.

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Sue Poncin @sueponcin.com · 15/01/2026

Perhaps I should add “clock drawing” to my Long Covid therapy to track my long term neurocognitive demise.

A screenshot of three clocks - one drawn by a healthy patient, Alzheimer’s patient, and Parkinson’s patient.

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Sue Poncin @sueponcin.com · 07/01/2026

Dynamically disabled by Long Covid: “Many disabilities are not predictable in their specific impact on mobility from day to day. And the airport experience itself is not predictable in mobility barriers or obstacles” I spread awareness as I travel: dynamically-disabled.printify.me/category/all/1

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Sue Poncin @sueponcin.com · 04/01/2026

Spread awareness about Dynamic Disabilities and help Stop the Stigma of Chronic Illness one tee at a time: dynamically-disabled.printify.me

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Sue Poncin @sueponcin.com · 04/01/2026

Long Covid brain damage: “My brain works at half the speed. It’s like you’re not you. Everyone sees the same you on the outside but something’s missing inside. No, worse than missing, it’s gone and you don’t recognize yourself. Everything’s wrong and I’m just less.” Yep. New Amsterdam S4, E8

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