iiinova — where your digital self keeps evolving

Stuart Selby @stuartselby.bsky.social · 27/06/2026

My latest blog post, at oligostu.blogspot.com/2026/06/stab... shares my approach at reframing #scanxiety into scanticipation and being open to and ready for whatever outcome. For now, I'm Stable Until Proven Otherwise 😀 #braincancer #btsm

Stable Until Proven Otherwise, my latest blog post, with a background stylized sagittal image from a previous MRI.

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Stuart Selby @stuartselby.bsky.social · 08/12/2025

Not only did I find an amazing community in #BTSM (brain tumor social media), I was welcomed with open arms and remain energized even though our scheduled chats are done. Lets still use the hashtag to connect and share updates. Thank you to all who built our community.

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Stuart Selby @stuartselby.bsky.social · 24/10/2025

Today is Brain Cancer Awareness Day. Every day, 9 Canadians are told they have brain cancer. We need dedicated research to give doctors better tools to save lives. I stand with Brain Cancer Canada to drive research, to give more time, hope, & one day, the promise of a cure.

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Stuart Selby @stuartselby.bsky.social · 23/07/2025

...I'm both inspired by and profoundly thankful for the dedication, exceptional care, and guidance from Dr. M. D. Cusimano, @gliomadoc.bsky.social‬, and teams at St. Michael's / @unityhealthto.bsky.social ‬ and @sunnybrookhsc.bsky.social ‬who ensured I'm here to share this story. Thank you!!! #BTSM

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Stuart Selby @stuartselby.bsky.social · 22/07/2025

I was recently interviewed by Angelica Bottaro at Healthing.ca, who created this piece which shares my #braincancer story more widely. I'm mindful that this is published on #WorldBrainDay2025 , and glad to have had the chance to share with others! #BTSM www.healthing.ca/brain-cancer...

healthing.ca

Living with brain cancer: 'It’s given me more compassion for people and their own experiences'

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Stuart Selby @stuartselby.bsky.social · 24/06/2025

Thanks, @theabta.bsky.social and the incomparable @thelizarmy.bsky.social for today's engaging webinar on participating in research and the clear message that we can all participate! Liz, I love your reminder that we all have the capacity to be curious and become researchers as we explore! #BTSM

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Stuart Selby @stuartselby.bsky.social · 09/06/2025

I'll catch up on tonight's chat a little later, when I'm back at my computer and better able to take in the conversations, so don't be surprised if I chime in with a reply or more thoughts tomorrow or later in the week! #btsm

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Stuart Selby @stuartselby.bsky.social · 09/06/2025

A4. I'm energized by people I meet along the way. Living with #braincancer is a really tough way to meet the most amazing people, but it's worth it! I'm only about a year into my proper advocacy path but I keep learning and growing along the way; my advice is to keep at it and grow as we go #BTSM

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Stuart Selby @stuartselby.bsky.social · 09/06/2025

A3. We don't have a direct Canadian equivalent of @braintumor.org 's Head To The Hill but I think it's a great approach! There's much we can learn from different organizations where we grow ideas to fit our local needs while collaborating and sharing internationally. #BTSM

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Stuart Selby @stuartselby.bsky.social · 09/06/2025

A2 I see a gap in fundamental #braintumor and #braincancer research funding, where early research can find game-changing discoveries that will better tomorrow's outcomes. By advocating for funding, both public / government, and private, we can make a lasting impact for the future! #BTSM

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Stuart Selby @stuartselby.bsky.social · 09/06/2025

A1 ctd. As I become more active in volunteering and learn more about Health Economics and Health Equity topics, I'm driven to keep doing and learning more. When we work together, we can make much-needed progress! We build hope when we come together as a community! #BTSM

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Stuart Selby @stuartselby.bsky.social · 09/06/2025

A1. I volunteer with Brain Cancer Canada (www.braincancercanada.ca) on the Scientific Advisory Cttee as we fuel research through grant funding, and I participate wherever I can with Canada's Drug Agency ( @cda-amc.bsky.social ) to stay connected with health care delivery in Canada. #BTSM

braincancercanada.ca

Brain Cancer Canada - Accelerate | Advocate | Transform

Dedicated to funding research and neurosurgical technologies for pediatric and adult primary brain cancers.

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Stuart Selby @stuartselby.bsky.social · 09/06/2025

Hi, everyone! I'm Stuart, also joining by the orange bubble in the @btsmchat.bsky.social account, and introduced there. I'm here to join in the conversation, though I've scheduled my posts with @buffer.com while away from my computer, so I might not reply to any other comments for a while! #BTSM

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Stuart Selby @stuartselby.bsky.social · 08/04/2025

I hope everyone is having a good Rex Manning Day today 😃🎸 Happy RMD @ethanembry.bsky.social ! #RexManningDay

Ethan Embry, as Mark, in Empire Records.

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Stuart Selby @stuartselby.bsky.social · 08/04/2025

On April 2nd I spoke at an art auction hosted by McMaster University's Students Advancing Brain Cancer Research; I describe it and the importance of funding #braincancer research in a TikTok at vm.tiktok.com/ZMBCCXdce/ #btsm

vm.tiktok.com

TikTok - Make Your Day

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Stuart Selby @stuartselby.bsky.social · 31/03/2025

Thank you, for hosting this first chat over here. This was a useful and valuable topic, I've already added some good finds to my list for future reading and consideration. Thanks for the #btsm #skychat!

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Stuart Selby @stuartselby.bsky.social · 31/03/2025

That's a great insight - while I've seen AI sneak into other areas of my life, I hadn't thought of how it might impact trustworthiness of information I'll see in the future, it's another thing to consider and cross-check when we find future new resources! #btsm

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Stuart Selby @stuartselby.bsky.social · 31/03/2025

A4. Maintaining open access to updated information might be a challenge but I don't think it will be insurmountable. An easy thing we can all do is to share when we see new information or resources that can benefit our community. #BTSM

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Stuart Selby @stuartselby.bsky.social · 31/03/2025

I'm happy to have my posts cross-posted / shared without restriction, and I'll plan to join for the chat on X also :-) #BTSM

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Stuart Selby @stuartselby.bsky.social · 31/03/2025

A3 (4) The book Zero to Birth by W. A. Harris taught me much about how our brains develop and left me fascinated, while helping me better appreciate how brain tumors interfere with this organ where we form our whole existence. #BTSM

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Stuart Selby @stuartselby.bsky.social · 31/03/2025

A3 (3) I'm biased as a volunteer and Ambassador with Brain Cancer Canada but our newly updated site at braincancercanada.ca has great information, stories, and links to many Canadian resources for those with malignant brain tumours ( #braincancer ). #BTSM

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Stuart Selby @stuartselby.bsky.social · 31/03/2025

These are another two books I've not come across yet, but will add to my list! Thank you for sharing - I already feel drawn to Living Low Grade by the title alone, thank you! #btsm

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Stuart Selby @stuartselby.bsky.social · 31/03/2025

I've not come across these books yet, so I'm going to add them to my growing reading list, thanks for sharing them! #btsm

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Stuart Selby @stuartselby.bsky.social · 31/03/2025

A3 (2) For a non-clinical read, Sophie Kinsella's fictional autobiography "What Does It Feel Like" felt relatable, it gave me hope about my experiences being able to be understood by others, when I didn't want a science lesson. #BTSM

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Stuart Selby @stuartselby.bsky.social · 31/03/2025

A2.a) PubMed (pubmed.ncbi.nlm.nih.gov) and resources shared by experts I follow. @neuroonc.bsky.social and their podcast are great for science & clinical practice. b) Current peer-reviewed evidence tops my list. c) Checking references and disclosures, review numbers and statistics. #BTSM

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Stuart Selby @stuartselby.bsky.social · 31/03/2025

A1 for clinicians - I'm not a clinician myself, but as a patients, I've mostly received pointers to regional support groups and charitable organizations from my clinicians... It's been less about current science until I get talking with receptive care partners... #btsm

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Stuart Selby @stuartselby.bsky.social · 31/03/2025

A1. I'm interested in new research, looking to future hope, AND to best understand pros/cons of today's options and standard of care so I can make informed decisions for care both today and in the future #BTSM

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Stuart Selby @stuartselby.bsky.social · 31/03/2025

I'm Stuart, from Toronto, Canada, living with Grade 2 Oligodendroglioma since 2022, on Vora (post-surgery but no chemotherapy or radiation therapy, yet), here for the community! #BTSM

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Stuart Selby @stuartselby.bsky.social · 29/03/2025

It's a comprehensive list, without any others I know of to add.

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Stuart Selby @stuartselby.bsky.social · 28/03/2025

NEW SITE! www.braincancercanada.ca NEW! Researchers & Scientists: www.braincancercanada.ca/researchers-... NEW! Patient & Caregiver Resources www.braincancercanada.ca/patient-care... NEW! Projects Funded www.braincancercanada.ca/projects NEW! Community www.braincancercanada.ca/community

braincancercanada.ca

Brain Cancer Canada - Accelerate | Advocate | Transform

Dedicated to funding research and neurosurgical technologies for pediatric and adult primary brain cancers.

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Stuart Selby @stuartselby.bsky.social · 28/03/2025

Brain Cancer Canada launched something new this week - their redesigned web site. I may be biased, but I think it's spectacular. It's a great landing spot and resource for anyone with a connection to Brain Cancer. #BTSM #braincancer #braintumor #oncsky www.braincancercanada.ca

Announcing the launch of a new website for Brain Cancer Canada, this stylized image shows a brain and the headline "It's a No-Brainer".

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Reposted by Stuart Selby

Dr.rer.pol. Sabine Schwab @sabine-nj.bsky.social · 06/03/2025

Mark your calendars for the last Sunday of the first quarter of 2025! I'm honored to be the host/moderator for the inaugural #btsm #skychat. Infos on topic, date, and time below ⬇️

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Reposted by Stuart Selby

Brain Tumor Social Media Chat @btsmchat.bsky.social · 03/03/2025

Hi #Braintumor Patients, Care Partners, Clinicians, Researchers, Scientists, Friends, and Supporters! We're happy to report that our #BTSM chat starter pack is ready! In case we missed you, let us know and we'll add you to the list.

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Stuart Selby @stuartselby.bsky.social · 24/02/2025

These are awesome, Ethan! I sew only for alterations and repairs for longevity. Your post makes me think I could do much more. I imagine it feels great to see your finished work being so well enjoyed! 👏👏🤓

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Reposted by Stuart Selby

Dr.rer.pol. Sabine Schwab @sabine-nj.bsky.social · 06/02/2025

@shawncarey42.bsky.social @mcintose.bsky.social, @stuartselby.bsky.social, Guy Lipof & I met tonight discussing the 2025 version of #btsm chats. The 1st Bluesky #Btsm chat will take place on 3/30..! Follow @btsmchat.bsky.social for updates, details, and more

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Stuart Selby @stuartselby.bsky.social · 04/02/2025

My second #WorldCancerDay TikTok talks about getting access to new cancer drugs after a clinical trial, about getting financial support for new approved drugs, and how donating to fund cancer research can build a brighter future. #BTSM #BrainCancer That TikTok is at www.tiktok.com/@oligo_stu/v...

tiktok.com

In my second #worldcancerday post, I talk about accessing new drugs after clinical trials and seeing financial support for costly therapy. #braincancer #hope

TikTok video by Stuart

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Stuart Selby @stuartselby.bsky.social · 04/02/2025

On #WorldCancerDay I've shared two TikToks at oligo_stu, taking about the hope brought by new cancer drugs and how to access them. The first post, at www.tiktok.com/@oligo_stu/v... starts by talking about early access through clinical trials. #BTSM #BrainCancer

tiktok.com

On February 4, 2025, World Cancrr Day, I talk about getting access to new cancer drugs and the hope they can bring. #braincancer #worldcancerday #hope

TikTok video by Stuart

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Stuart Selby @stuartselby.bsky.social · 17/01/2025

As far as superheroes go, there's the Green Lantern, why not the Red Hose? (or something similarly creepy 🧐)

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Stuart Selby @stuartselby.bsky.social · 13/01/2025

VORANIGO coverage on @ctvyourmorning.bsky.social today as Servier works with @cda-amc.bsky.social and other groups to give access to Canadians. So thankful for @gliomadoc.bsky.social 's tireless work! Next: we need expanded access to grade 3+ and payer-aligned launch. youtu.be/VkLibpSOOB4?...

youtu.be

New Brain Cancer Drug | Your Morning

YouTube video by CTV Your Morning

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Stuart Selby @stuartselby.bsky.social · 09/01/2025

Jan 5th was the first Twitter / X Brain Tumor Social Media Chat (#BTSM Chat) of 2025 and we spoke about future direction and platform(s) for these grassroots chats. If you are interested in future discussions, please share your feedback on T1-T4 feedback with @btsmchat.bsky.social #braintumor

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Stuart Selby @stuartselby.bsky.social · 06/01/2025

If you are/were interested in the Jan 5th Brain Tumor Social Media Chat but missed it, see this post and accompanying thread for the 4 guiding discussion questions - you can still join the conversation! #BTSM #braintumor #braincancer

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Stuart Selby @stuartselby.bsky.social · 05/01/2025

One more reminder, the Brain Tumor Social Media chat (BTSM Chat) is tonight, now less than six hours away 🤓🥳 It's over on Twitter / X today, so please join there if you still use X and are interested in joining the discussion. #BTSM

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Reposted by Stuart Selby

Brain Tumor Social Media Chat @btsmchat.bsky.social · 03/01/2025

Hi #BTSM friends! While we’re working on a first chat topic to launch in Q1 on Blue Sky, join us this Sunday over at X for the 1st 2025 #BTSM chat of the year.

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Stuart Selby @stuartselby.bsky.social · 03/01/2025

I grabbed three, as a small departure from instructions... I enjoy the whimsical combination 🥳

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Stuart Selby @stuartselby.bsky.social · 31/12/2024

As New Year 2025 approaches, I reflect on the importance of support networks. At www.tiktok.com/@oligo_stu/v..., I speak about support and a wonderful grassroots group in Brain Tumor Social Media Chat x.com/btsmchat. If you've not found them, take a look! #BTSM #BrainTumour #BrainCancer

tiktok.com

As we prepare for the 2025 New Year, I reflect on support groups and talk about a great grassroots brain tumor social media chat, #BTSM #braintumor #braincancer

TikTok video by Stuart

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Stuart Selby @stuartselby.bsky.social · 27/12/2024

Ethan, your drive to build a better future is amazing. It came through in your posts on 'the other site' by sharing what you saw in the world, and I admire that you look to yourself now for things to improve for a better future. Kudos to you for your courage when looking deep into the mirror. 👏🫂

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Stuart Selby @stuartselby.bsky.social · 23/12/2024

Together, we will remain steadfast and resolute throughout our journey, and we will never lose hope.” Angela Scalisi Chair, Brain Cancer Canada #12DaysofHope #ascalisi

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