iiinova — where your digital self keeps evolving

Some similarities in this and a recent webinar I co-hosted on communicating with kids with developmental epilepsies! Watch the Listening Out Loud Webinar here… lnkd.in/gyNna7Ub

lnkd.in

This link will take you to a page that’s not on LinkedIn

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Nicole Frankenstein @stevielicks.bsky.social · 30/09/2026

He’s personally losing a war with Iran.

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Nicole Frankenstein @stevielicks.bsky.social · 29/09/2026

More importantly, Schmitt accused him of perjury!

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Nicole Frankenstein @stevielicks.bsky.social · 29/09/2026

Go Gophers! 😂 Ludicrously inept. Nevermind he also concludes Smith perjured himself…

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Nicole Frankenstein @stevielicks.bsky.social · 27/09/2026

So MAHA is all like…people who used to be involved in risky drug behaviors?

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Nicole Frankenstein @stevielicks.bsky.social · 25/09/2026

Clearly this is not an interview. No iced coffee

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Nicole Frankenstein @stevielicks.bsky.social · 25/09/2026

“Go to the farmers market,” the enemy whispered, “and buy 5 peaches at $4 a pound.”

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Nicole Frankenstein @stevielicks.bsky.social · 25/09/2026

I hate insurance companies, but they should drop people who don’t vaccinate. If they can’t do step one to take care of themselves, they likely aren’t doing a lot of other things too. That’s a financial liability.

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Nicole Frankenstein @stevielicks.bsky.social · 25/09/2026

More of this. Remember when Kiley introduced legislation around “Confucius classrooms” but there were none in our district? Or anywhere really…

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Nicole Frankenstein @stevielicks.bsky.social · 24/09/2026

This week, CVS Specialty prevented my kids from getting their seizure meds on time. They survived this time. To see they pay NEGATIVE taxes is sickening.

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Nicole Frankenstein @stevielicks.bsky.social · 24/09/2026

This work is incredibly important. Physical health is mental health and not just in some ephemeral way.

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Nicole Frankenstein @stevielicks.bsky.social · 23/09/2026

Was considering changing my voter registration to Independent. However I will now wait until I can vote for any other presidential primary candidate other than @gavinnewsom.bsky.social He is crapping the bed in this final stretch and not even Camille’s trolling can save him.

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Nicole Frankenstein @stevielicks.bsky.social · 22/09/2026

That’s a person that needs to fart.

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Nicole Frankenstein @stevielicks.bsky.social · 19/09/2026

I demand this happens. All he wants is attention. STOP platforming him until he bends the knee to WE THE PEOPLE

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Nicole Frankenstein @stevielicks.bsky.social · 19/09/2026

This is their one job now. De-platform him until he remembers he works for us and the press is his daily performance review.

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Nicole Frankenstein @stevielicks.bsky.social · 18/09/2026

I sure hope so. I bet my MAGA brother $1000 he would.

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Nicole Frankenstein @stevielicks.bsky.social · 18/09/2026

Solidarity! Sending good thoughts for your daughter to steer clear of any and all pathogens.

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Nicole Frankenstein @stevielicks.bsky.social · 18/09/2026

So many families of kids with rare disease and medical complexities use these hospitals because they are outstanding. I hope their immune systems are strong today and every day during this MAHA outbreak.

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Nicole Frankenstein @stevielicks.bsky.social · 18/09/2026

The sharks are going to get him either way.

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Nicole Frankenstein @stevielicks.bsky.social · 16/09/2026

Gap? Several years ago I bought a tissue-weight turtleneck there and because it’s so light, I hardly feel it at all.

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Nicole Frankenstein @stevielicks.bsky.social · 15/09/2026

But their mamas will 👋 And I gotta be honest: I’ll slap a bitch too

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Nicole Frankenstein @stevielicks.bsky.social · 15/09/2026

JFC. Welp this would make it easier (and less safe) to get our gene therapy through. But he’s just throwing around terms he heard in a meeting without understanding (as usual).

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Nicole Frankenstein @stevielicks.bsky.social · 14/09/2026

I was an invited speaker at this year’s CCP Phenogenomics Conference in Prague. My talk title was “Decoding patient voice when patients cannot speak: The caregiver role in therapeutic development for ADSL Deficiency”. #ccpphenogenomics

A white woman in pale blue top and tape trousers presses her hands together while answering an audience question at a conference lectern. Out of focus behind her are a group of people listening.

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Nicole Frankenstein @stevielicks.bsky.social · 12/09/2026

The CCP Phenogenomics Conference was a wonderful time of learning and collaborating. I am very glad to have met so many brilliant scientists doing this important work in genomics, mouse modeling, and rare disease. Looking forward to next time!

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Reposted by Nicole Frankenstein

Czech Centre for Phenogenomics (CCP) @czphenogenomics.bsky.social · 12/09/2026

💙 #CCPConference2026 closed with a powerful patient-research session: SPATA5, Angelman syndrome & ADSL deficiency, bringing families, foundations & scientists together. The conference concluded with Kiran Musunuru on therapeutic gene editing. 🧬

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Nicole Frankenstein @stevielicks.bsky.social · 12/09/2026

Thank you so much for hearing our voices! It was an honor to spend this time learning together.

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Nicole Frankenstein @stevielicks.bsky.social · 08/09/2026

I’m in my ancestral homeland for the first time: the airport in Frankfurt. A tiny, gorgeous mouse was in the ladies restroom in terminal A. I am home.

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Nicole Frankenstein @stevielicks.bsky.social · 08/09/2026

I had wondered about this ever since learning about this child. I do believe now it’s a single case, but I appreciate the sentiment that one in a billion happens 7 times!

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Nicole Frankenstein @stevielicks.bsky.social · 07/09/2026

They are not published. The patient(s) are in Brazil, and to be honest I can’t remember if it’s a double-affected sibling pair, so it may be an isolated one-off. I’ll have to do some digging.

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Nicole Frankenstein @stevielicks.bsky.social · 07/09/2026

We have some patients with ADSL Deficiency that also have a diagnosis of Phelan-McDermid. It’s my opinion that one is enough.

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Nicole Frankenstein @stevielicks.bsky.social · 06/09/2026

If disability was ‘cool’ then my disabled kids would be invited to the birthday parties of normie kids. They are not.

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Nicole Frankenstein @stevielicks.bsky.social · 05/09/2026

Yeah, none of them can keep or maintain a boner when making love to a woman. (Can with men, cue Grindr crash)

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Nicole Frankenstein @stevielicks.bsky.social · 05/09/2026

Not enough boys are thinking about the sun these days. Not enough thinking about her golden glance.

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