Prunos spinosa @spinosaprunus.bsky.social · 21/05/2026And not only can theres dogs find the mold, they are so dam cute. What a great experience. Much more fun for our kid, than the necessary apheresis / bloodwashing and all other therapeutic parts of recovery were 010
Prunos spinosa @spinosaprunus.bsky.social · 21/05/2026I am so not looking forward to another construction in our house. But one wall between the kid‘s room and bathroom seems to have a problem. I hope the upcoming renovation helps our kid heal. #mecfs #longcovod #mold 100
Prunos spinosa @spinosaprunus.bsky.social · 21/05/2026Tipp: check urin for mold toxthere are specially trained dogs that can sniff it out for you. #mecfs #longCovid #longCobidkids #mold #toxins #dogs 100
Prunos spinosa @spinosaprunus.bsky.social · 21/05/2026we had completely renovated Out hous before moving in.Still our Doc found mold toxins in our #mecfs kid's urin. We couldn’t find mold in our house. We just had a specially trained dog here &she found whete it’s coming from. Now we know what wall to open. 100
Prunos spinosa @spinosaprunus.bsky.social · 24/12/2025My #mecfs kid designed #Xmas cards for a fundraiser for the MECFSResearchfoundation We were able to sell 135 cards and raised 305€. Unfortunately she spends another #Xmas In a major crash. #MerryChristmas & hopefully a healthy #newyear to you all. #longCovidKids 🎄🎄🎄⛄❄️🎅🤶🎄🦌 021
Prunos spinosa @spinosaprunus.bsky.social · 30/09/20252 weeks after the 15th Help apheresis & 1.5 weeks after the 6th #ivig : My #mecfs kid has been taking part digitally with avatar in 3 school lessons daily from 9.45 on since Thursday & after a break been able to do some homework in the afternoon. This was unthinkable before.. 151
Prunos spinosa @spinosaprunus.bsky.social · 24/06/2025Now with Englisch subtitles wrote this song for my kid with ##mecfs with her quotes & she sang it & drew for all the sick #longcovidkids #spn inspired: „where is my hunter? Who‘ll rescue me?“ Please support the #lemonchallengemecfs help to safe our kids #spnfamily youtu.be/8Xd6NaCrPnw?... 020
Prunos spinosa @spinosaprunus.bsky.social · 27/05/2025@lisaberrylive.bsky.social Please support this good cause 010
Prunos spinosa @spinosaprunus.bsky.social · 26/05/2025Dear #spnfamily my #kid with #mecfs designed with @idlingintheimpala.bsky.social a cool bag to raise awareness fo fans with #longCovid #mecfs profits go to #lemonchallengemecfs to fund research for a cure. 🙏 buy a bag & #GiveHope #supernatural idlingintheimpala.com/en-eur/produ...idlingintheimpala.comFighting The Reaper Tote - ME/CFS AwarenessThe official website and shop of Idling In The Impala Podcast. Find the latest content, buy merch, and support your favorite creator. 031
Prunos spinosa @spinosaprunus.bsky.social · 01/03/2025Here is the English translation of our song. Sung byy kid with #mecfs #longcovid for all the kids with long COVID. Hope you'll enjoy it. youtu.be/8Xd6NaCrPnw?... 000
Prunos spinosa @spinosaprunus.bsky.social · 26/02/2025wrote this song for my #mecfs #kid & all the sick kids out there. My Kid sang &did the drawings. Hope your kids like it. 🙏 Share to help spread awareness for #longCovid kids #millionsmissing youtu.be/8Xd6NaCrPnw?...youtu.beDer WolfYouTube video by Hans-Carl Oberdalhoff 072
Prunos spinosa @spinosaprunus.bsky.social · 16/02/2025And here is another argument for Vit. D. For pations with #longCOVID youtu.be/ha2mLz-Xdpg?...youtu.beVitamin D and COVID 19: The Evidence for Prevention and Treatment of Coronavirus (SARS CoV 2)YouTube video by MedCram - Medical Lectures Explained CLEARLY 000
Prunos spinosa @spinosaprunus.bsky.social · 16/02/2025And this study I found now, really supports Dr. Gominacs approach that says that a lack of vit. D causes many of the #longCovid #mecta symptoms and that B vitamins and Vit D are much more important than many knew. pubmed.ncbi.nlm.nih.gov/39072958/pubmed.ncbi.nlm.nih.govEffects of an 8-week high-dose vitamin D supplementation on fatigue and neuropsychiatric manifestations in post-COVID syndrome: A randomized controlled trial - PubMedHigh-dose vitamin D supplementation may benefit patients with post-COVID syndrome by reducing fatigue, alleviating anxiety, and improving cognitive symptoms, with minimal side effects. 100
Prunos spinosa @spinosaprunus.bsky.social · 16/02/2025Watched this for my sleep disorder. But this nurologist is discribing so many symptoms my #mecfs Kid has & what to do in detail. Great Interview. Worth listening to for all with #mecfs #longcovid We're doing her rightsleep program now #nichtgenesen youtube.com/watch?v=g-Do...youtube.com 100
Prunos spinosa @spinosaprunus.bsky.social · 16/02/2025youtube.com/watch?v=V4aG... My daughter’s #art #nichtgenesenenkids #nichtgenesen #mecfskids #mecfs #longcovid #longcovidkids #millionsmissingyoutube.com 010
Prunos spinosa @spinosaprunus.bsky.social · 16/02/2025This it what it feels like, when your child is severely ill. #art by 13 year old Rebecca, who is severely ill with ##longcovid #mecfs. For over a year misdiagnosed #frauenticket #youngartist #kidswithmecfs #nichtgenesen 020