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Prunos spinosa

@spinosaprunus.bsky.social
13 followers 18 following 18 posts

Mom and caretaker of two kids with severe damage from COVID. One kid with #severeMEcfs / #longCovid and one that got diabetes 1 from COVID Social worker, Trying to raise awareness and sharing what helps us in the hope it might help others

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Prunos spinosa @spinosaprunus.bsky.social · 21/05/2026
we had completely renovated Out hous before moving in.Still our Doc found mold toxins in our #mecfs kid's urin. We couldn’t find mold in our house. We just had a specially trained dog here &she found whete it’s coming from. Now we know what wall to open.
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Prunos spinosa @spinosaprunus.bsky.social · 24/12/2025
My #mecfs kid designed #Xmas cards for a fundraiser for the MECFSResearchfoundation We were able to sell 135 cards and raised 305€. Unfortunately she spends another #Xmas In a major crash. #MerryChristmas & hopefully a healthy #newyear to you all. #longCovidKids 🎄🎄🎄⛄❄️🎅🤶🎄🦌
The proof of the money sent to the mecfs research foundation 5 Christmas cards designed by a sick kid
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Prunos spinosa @spinosaprunus.bsky.social · 30/09/2025
2 weeks after the 15th Help apheresis & 1.5 weeks after the 6th #ivig : My #mecfs kid has been taking part digitally with avatar in 3 school lessons daily from 9.45 on since Thursday & after a break been able to do some homework in the afternoon. This was unthinkable before..
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Prunos spinosa @spinosaprunus.bsky.social · 24/06/2025
Now with Englisch subtitles wrote this song for my kid with ##mecfs with her quotes & she sang it & drew for all the sick #longcovidkids #spn inspired: „where is my hunter? Who‘ll rescue me?“ Please support the #lemonchallengemecfs help to safe our kids #spnfamily youtu.be/8Xd6NaCrPnw?...
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Prunos spinosa @spinosaprunus.bsky.social · 27/05/2025
@lisaberrylive.bsky.social Please support this good cause
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Prunos spinosa @spinosaprunus.bsky.social · 27/05/2025
@sadiewit.bsky.social
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Prunos spinosa @spinosaprunus.bsky.social · 26/05/2025
Dear #spnfamily my #kid with #mecfs designed with @idlingintheimpala.bsky.social a cool bag to raise awareness fo fans with #longCovid #mecfs profits go to #lemonchallengemecfs to fund research for a cure. 🙏 buy a bag & #GiveHope #supernatural idlingintheimpala.com/en-eur/produ...
idlingintheimpala.com
Fighting The Reaper Tote - ME/CFS Awareness
The official website and shop of Idling In The Impala Podcast. Find the latest content, buy merch, and support your favorite creator.
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Prunos spinosa @spinosaprunus.bsky.social · 01/03/2025
Here is the English translation of our song. Sung byy kid with #mecfs #longcovid for all the kids with long COVID. Hope you'll enjoy it. youtu.be/8Xd6NaCrPnw?...
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Prunos spinosa @spinosaprunus.bsky.social · 26/02/2025
wrote this song for my #mecfs #kid & all the sick kids out there. My Kid sang &did the drawings. Hope your kids like it. 🙏 Share to help spread awareness for #longCovid kids #millionsmissing youtu.be/8Xd6NaCrPnw?...
youtu.be
Der Wolf
YouTube video by Hans-Carl Oberdalhoff
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Prunos spinosa @spinosaprunus.bsky.social · 16/02/2025
Watched this for my sleep disorder. But this nurologist is discribing so many symptoms my #mecfs Kid has & what to do in detail. Great Interview. Worth listening to for all with #mecfs #longcovid We're doing her rightsleep program now #nichtgenesen youtube.com/watch?v=g-Do...
youtube.com
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Prunos spinosa @spinosaprunus.bsky.social · 16/02/2025
youtube.com/watch?v=V4aG... My daughter’s #art #nichtgenesenenkids #nichtgenesen #mecfskids #mecfs #longcovid #longcovidkids #millionsmissing
youtube.com
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Prunos spinosa @spinosaprunus.bsky.social · 16/02/2025
This it what it feels like, when your child is severely ill. #art by 13 year old Rebecca, who is severely ill with ##longcovid #mecfs. For over a year misdiagnosed #frauenticket #youngartist #kidswithmecfs #nichtgenesen
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