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📣Big news from Solve’s research team re: an upcoming funding opportunity for researchers studying #MECFS, #LongCovid, and associated conditions! Stay tuned for more info on October 6 & click the link to learn more about our Ramsay Research Grant Program. ow.ly/WnOh50ZUEte

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Solve M.E. @solveme.bsky.social · 01/10/2026

Sign up for our Nov. 10 webinar on the Renegade Research SIGNAL study. We’ll discuss how people with #MECFS and #LongCovid can join and borrow therapeutic devices for home use at no cost & contribute data to the BIC unhide® platform for research. Register: ow.ly/LGx250ZIvx7

Portraits of four Renegade Research reps who are panelists for the Nov. 10 Solve M.E. webinar on the SIGNAL study. The study lends therapeutic devices to people with ME/CFS and Long COVID at no cost for home use and collects their data for research.

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Solve M.E. @solveme.bsky.social · 30/09/2026

Today, we're celebrating advocacy in action! Advocate & caregiver to her son, Gabe, Rebecca Groble secured an Illinois Senate Resolution acknowledging the prevalence & impact of ME/CFS across the state. Thanks, Rebecca, for your dedication to raising awareness! #MEAwarenessHour

Rebecca Groble secured an Illinois Senate Resolution acknowledging the prevalence & impact of ME/CFS

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Solve M.E. @solveme.bsky.social · 28/09/2026

Our IVO-21 webinar with Dr. Jay H. Chung was recently featured in Health Rising! Read the full article to learn more about the research supported through Solve's Catalyst Award: ow.ly/V4yE50ZSnHT Watch the webinar: ow.ly/WI3i50ZSnI1 #MECFS #ChronicFatigueSyndrome #IVO21

Dr. Jay H. Chung from NIH featured in Solve M.E. webinar on IVO-21 as a mitochondrial drug for ME/CFS, with 11K+ YouTube views and coverage in Health Rising.

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Solve M.E. @solveme.bsky.social · 25/09/2026

Join Solve M.E. leadership for our 2026 Community Address. We’ll discuss how we’re thinking about science and advocacy as we approach the midterms (and what comes after), and your role in what comes next. 🗓 Oct 20 · 1 PM PT / 4 PM ET Recorded + captioned Sign up👇 ow.ly/sshh50ZREFm

Webinar announcement for Solve M.E. 2026 Community Address on Oct 20, featuring four members of Solve's leadership team discussing research and advocacy.

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Solve M.E. @solveme.bsky.social · 24/09/2026

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Solve M.E. @solveme.bsky.social · 22/09/2026

Today at 3 pm PT / 6 pm ET! Join us for a free webinar with Brain Inflammation Collaborative (BIC) to discuss how using the unhide® real-world data platform can help you recognize health patterns & trends to support conversations with healthcare providers. Register here: ow.ly/o1Iq50ZyLBO

Flyer for a Brain Inflammation Collaborative event on Sept 22 about using Unhide to visualize health trends with expert speakers.

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Solve M.E. @solveme.bsky.social · 21/09/2026

3/ Read our full statement 👉 ow.ly/pHk350ZPTLT Want to get involved? Use our toolkit to contact your Members of Congress and tell them to protect merit-based science at the NIH. Take action: ow.ly/izCt50ZPTLV

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Solve M.E. Statement on Proposed Political Review of NIH Grants - Solve ME/CFS Initiative

Solve M.E. responds to reports of a proposed political review of NIH grants and urges continued merit-based funding for biomedical research.

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Solve M.E. @solveme.bsky.social · 21/09/2026

2/ Giving political appointees that power risks new barriers and delays for people with ME/CFS, Long Covid & other chronic diseases, when they can least afford them. Fund the strongest science, on the merits. Patients have already waited long enough.

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Solve M.E. @solveme.bsky.social · 21/09/2026

1/ News reports say the administration is drafting an executive order to create a committee that could override expert scientific review of NIH grants, shifting funding decisions away from scientific merit.

Call to action from Solve M.E. urging protection of merit-based science amid new NIH grant review reports.

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Solve M.E. @solveme.bsky.social · 18/09/2026

Today is the last day to comment on a proposed reorganization by the National Inst. of Allergy & Infectious Diseases (NIAID) eliminating its Div. of Clinical Research--the infrastructure behind clinical trials. Learn how to share your own comments: ow.ly/GI7N50ZOWV0

Urgent alert about NIAID's plan to break up its Clinical Research Division, with a public comment deadline today, Sept 18.

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Solve M.E. @solveme.bsky.social · 18/09/2026

Join us on 9/22 for a free webinar with Brain Inflammation Collaborative (BIC) to discuss using the unhide® real-world data platform to recognize health patterns & trends to support conversations with healthcare providers. Register here: ow.ly/o1Iq50ZyLBO

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Solve M.E. @solveme.bsky.social · 17/09/2026

📣Tomorrow is the last day to publicly comment on a proposed reorganization by the Natl. Inst. of Allergy & Infectious Diseases (NIAID) eliminating its Division of Clinical Research — the infrastructure behind clinical trials. Learn how to share your own comments hree: ow.ly/1EnG50ZOWXS

Urgent call to comment by Friday on NIAID's plan to eliminate its Clinical Research Division, which would affect ME/CFS and Long COVID trials.

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Solve M.E. @solveme.bsky.social · 17/09/2026

Sign up for the CDC ME/CFS Stakeholder Engagement & Communication (SEC) Call - 'How Progress in Long COVID is helping us understand ME/CFS,' w/ Dr. Nancy Klimas + program updates from CDC's ME/CFS program staff & a Q&A. Fri., Sept. 18, 2026, 12-1:30 PM ET / 3-4:30 pm PT. ow.ly/jCMK50ZMVux

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Solve M.E. @solveme.bsky.social · 16/09/2026

4/ Add your comment in ~2 minutes by Sept 18: →Go to niaid.nih.gov/about/niaid-... → Scroll down, click “Leave a comment,” →Submit. For suggested wording + Solve’s full comment: ow.ly/v0no50ZO5Ve

niaid.nih.gov

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Solve M.E. @solveme.bsky.social · 16/09/2026

3/ The details went up only as the 5-day window opened. A change this consequential deserves real time for patients, families, researchers, and clinicians to actually review it.

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Solve M.E. @solveme.bsky.social · 16/09/2026

2/ That division keeps a trial’s core functions in one place: study design, biostatistics, safety monitoring. NIAID also leads RECOVER-TLC, the current round of NIH’s Long COVID treatment trials — which are only now beginning to enroll.

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Solve M.E. @solveme.bsky.social · 16/09/2026

1/ 🚨Take action by Friday! NIAID has proposed eliminating its Division of Clinical Research — the infrastructure behind its clinical trials — on a public comment window of just five days. #MECFS #LongCOVID

Solve M.E. action alert on a deep teal background. Headline: Take action by Friday. Text: NIAID has proposed eliminating its Division of Clinical Research, the infrastructure behind clinical trials, on a five-day comment window. Comment by Sept 18.

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Solve M.E. @solveme.bsky.social · 16/09/2026

Solve fought for the inclusion of Long Covid in the Congressionally Directed Medical Research Programs (CDMRP) that funded the trial, and assisted with trial recruitment.

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Solve M.E. @solveme.bsky.social · 16/09/2026

Big news! BioVie announced positive results from the ADDRESS-LC trial assessing the potential impact of the drug bezisterim on cognitive impairment/brain fog and fatigue in people with #LongCovid. 🧵

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Solve M.E. @solveme.bsky.social · 11/09/2026

Family Health Centers of San Diego (FHCSD) seeks patients diagnosed with or have signs & symptoms of #LongCovid to join the treatment study"LC-Revitalize." Participation spans 6 mo, with 8 visits (6 in-person @ a SD- based clinic). To join or learn more: longcovid@fhcsd.org or (619) 324-8677.

Informational flyer for a Long COVID clinical research study by Family Health Centers of San Diego seeking adults aged 18-65 with Long COVID symptoms for a 6-month study.

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Solve M.E. @solveme.bsky.social · 09/09/2026

ICYMI: Watch the recording of our webinar with Dr. Jay H. Chung re: his Catalyst Award-winning study of the mitochondrial stabilizer IVO-21 as a therapy for #MECFS. ow.ly/Hfp450ZLzT3 #MEAwarenessHour

Portrait of Dr. Jay H. Chung from NIH and Jessica Maya, PhD, VP at Solve M.E., promoting the recording of the Solve webinar re: IVO-21 study on ME/CFS treatment.

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Solve M.E. @solveme.bsky.social · 08/09/2026

Starts today at 3 pm PT / 6 pm ET! Join our webinar with Dr. Jay H. Chung (NIH), who will discuss his Solve ME/CFS Catalyst Award-winning study of a potential safe and accessible treatment for #MECFS. ow.ly/ONZA50YZ8jn

Promotional banner for a study on mitochondrial stabilizer IVO-21 treatment for ME/CFS featuring Dr. Jay H. Chung and Jessica Maya, PhD, with event date and time.

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Solve M.E. @solveme.bsky.social · 03/09/2026

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Solve M.E. @solveme.bsky.social · 02/09/2026

Congress voted to delay through Dec. 11 a rule that lets political appointees cancel federal grants, incl. active clinical trials, overriding the peer review process. We fought for this delay, now ask Congress to end the rule permanently. Use our toolkit: ow.ly/xQtc50ZIrwH

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Solve M.E. @solveme.bsky.social · 02/09/2026

We’re saddened by the passing of Dr. Jo Cambridge, a valued member of Solve’s research network and a 2016 Ramsay Research Grant recipient whose work advanced our understanding of ME/CFS. Read more about Dr. Cambridge and her work: ow.ly/MgKi50ZI0Uc

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Solve M.E. @solveme.bsky.social · 28/08/2026

ICYMI: Solve recently joined host Bateman Horne Center and #MEAction Network, Open Medicine Foundation (OMF) & the WIMEL Writers for "Coffee with a Clinician" in honor of #SevereMEAwareness Month. Watch the replay here: ow.ly/x9Sy50ZGmU6 #UnitedForME

Portraits of six healthcare and research professionals, including Solve M.E. VP of Scientific Programs Dr. Jessica Maya, are featured in an ad for a Severe ME/CFS Awareness Month event titled 'Coffee with a Clinician'.

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Solve M.E. @solveme.bsky.social · 27/08/2026

Register for our Sept. 8 webinar with Dr. Jay H. Chung (NIH) discussing his Solve ME/CFS Catalyst Award-winning study of a potential safe and accessible treatment for #MECFS. ow.ly/ONZA50YZ8jn

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Solve M.E. @solveme.bsky.social · 26/08/2026

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Solve M.E. @solveme.bsky.social · 25/08/2026

Solve is a proud sponsor of the International Society for Long COVID and Post-Acute Infection Syndromes (ISLC-PAIS) Conference in Amsterdam, Aug. 26-29. Solve's Dr. Jessica Maya will attend, along with many of the leading experts in #MECFS and #LongCovid. islc-pais.org

Solve M.E. sponsors the ISLC PAIS Conference on Long COVID and post-infectious syndromes, featuring Jessica Maya, PhD, attending in Amsterdam.

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Solve M.E. @solveme.bsky.social · 25/08/2026

Are you left holding the stuffed giraffe? Get your Caregiver Intensity Score from ARCHANGELS ow.ly/snYp50ZFn67 Get pointed to support that fits. Nearly 45% of folks in the Solve M.E. community who got their score have gone on to explore things that can help.

Text highlighting the unseen efforts of caregivers holding bags, drinks, and a stuffed giraffe while others enjoy a ferris wheel ride, encouraging caregivers to get their intensity score.

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Solve M.E. @solveme.bsky.social · 21/08/2026

Starting soon! Today @ 11 am PT / 2 pm ET, Solve VP of Scientific Programs Dr. Jessica Maya joins Renegade Research for the webinar "Vagus Nerve Stimulation (VNS) Informal Tracking Project for #MECFS & Long Covid.” Register here: ow.ly/4YSg50ZyhnC

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Solve M.E. @solveme.bsky.social · 19/08/2026

On Fri., Aug. 21, 2026 @ 11 am PT / 2 pm ET, Solve VP of Scientific Programs Dr. Jessica Maya joins Renegade Research for the webinar "Vagus Nerve Stimulation (VNS) Informal Tracking Project for #MECFS & Long Covid.” Register here: ow.ly/4YSg50ZyhnC #MEAwarenessHour

Renegade Research event announcement for vagus nerve stimulation tracking project on Aug 21, 2026, featuring six experts and registration details.

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Solve M.E. @solveme.bsky.social · 15/08/2026

The Senate is listening to your calls to block implementation of the OMB federal grant rule threatening the integrity of the nation’s scientific research system--but we still need to keep calling House Representatives. Use our toolkit to take action: ow.ly/QhE250ZA79q

Solve M.E. announces nearly 500,000 public comments opposing a rule threatening ME/CFS and Long COVID research funding.

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Solve M.E. @solveme.bsky.social · 14/08/2026

Register for our Sept. 8 webinar with Dr. Jay H. Chung (NIH) discussing his Solve ME/CFS Catalyst Award-winning study of a potential safe and accessible treatment for #MECFS. ow.ly/ONZA50YZ8jn

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Solve M.E. @solveme.bsky.social · 12/08/2026

ICYMI: Watch all recordings from our four-part #SevereME webinar series co-produced with Bateman Horne Center. Experts in the field share information on caregiving, legal rights, medical care, and research. ow.ly/qTl550ZyLFN #SevereMEAwareness #UnitedForME #MEAwarenessHour

Collage of people with severe ME/CFS alongside text promoting a YouTube series on care, rights, and research for the illness.

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Solve M.E. @solveme.bsky.social · 12/08/2026

Join us on 9/22 for a free webinar with the Brain Inflammation Collaborative (BIC). Panelists will discuss using the unhide® real-world data platform to recognize health patterns & trends to support conversations with healthcare providers. Register here: ow.ly/o1Iq50ZyLBO #MECFS#LongCovid

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Solve M.E. @solveme.bsky.social · 12/08/2026

Today! Join Solve's Dr. Jessica Maya & Bateman Horne Center, #MEAction Network, Open Medicine Foundation (OMF) & the WIMEL Writers for "Coffee with a Clinician" in honor of #SevereMEAwareness Month. Wed. Aug. 12  |  @9:00 am PT / 12 pm ET. Register: ow.ly/j1AR50ZvWcK #UnitedForME

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Solve M.E. @solveme.bsky.social · 11/08/2026

Created from her experience of living with chronic illness, Hannah's Beyond Your Baseline site includes free resources to support people living with chronic illness, disability, and energy-limiting conditions. Learn more: payhip.com/beyondyourbaseline #SevereMEAwarenessMonth #SevereME #pacing

Traffic light style chart explaining ME status with green for low fatigue, amber for struggling, and red for very unwell, including mobility aids and communication tips.

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Solve M.E. @solveme.bsky.social · 10/08/2026

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Solve M.E. @solveme.bsky.social · 10/08/2026

Join Solve's Emily Taylor & reps from Bateman Horne Center, #MEAction Network, Open Medicine Foundation (OMF) & the WIMEL Writers for "Coffee with a Clinician" in recognition of #SevereMEAwareness Month. Wed. Aug. 12  |  @9:00 am PT / 12 pm ET. Register: ow.ly/j1AR50ZvWcK #UnitedForME

Portraits of six healthcare and research professionals, including Solve M.E. President and CEO Emily Taylor, are featured in an ad for a Severe ME/CFS Awareness Month event titled 'Coffee with a Clinician'.

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Solve M.E. @solveme.bsky.social · 08/08/2026

If you have a loved one with severe ME, let them know you are thinking of them today. We recognize and honor the work and dedication of caregivers and families — your ability to help improve the lives of your loved ones cannot be overstated.

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Solve M.E. @solveme.bsky.social · 08/08/2026

To those who are suffering from severe ME/CFS, please know that you are not alone. We recognize and stand with you. We see you, we see your suffering, and we are fighting every day to help you get your life back.

Picture of a woman with her eyes closed on a black background. Severe ME menas being unable to process thoughts. Logos for Solve M.E. and the World ME Alliance. #SevereMEDay August 8th

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Solve M.E. @solveme.bsky.social · 08/08/2026

Their symptoms can worsen from light, sound, and movement, and some need 24-hour care.

Black graphic with man's face in partial shadow. "Severe ME means noise and light are intolerable." logos for Solve M.E. and the World ME Alliance. #SevereMEDay August 8th

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Solve M.E. @solveme.bsky.social · 08/08/2026

They are often unable to perform everyday tasks, like eating, showering, and even standing without assistance.

Black graphic with man's face in partial shadow. Severe ME means constant pain. Logos for Solve M.E. and World ME Alliance #SevereMEDay August 8th.

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Solve M.E. @solveme.bsky.social · 08/08/2026

About 25% of people living with ME/CFS are severely ill, with the majority of them being housebound or bedbound at some point during their illness.

Black graphic with a woman's face in partial shadow. Reads "Severe ME means I am hidden from society. #SevereMEDay August 8th. Logos for Solve M.E. and the World ME Alliance.

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Solve M.E. @solveme.bsky.social · 08/08/2026

August 8th is Severe ME Awareness Day–a time to reflect on the toll this disease takes on those suffering from severe ME/CFS symptoms and advocate for better research, support, and treatment.

Lit candles on black background. Severe ME takes lives. Today, we remember those we have lost. Logos for Solve M.E. and the World ME Alliance. #SevereMEDay August 8th

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Solve M.E. @solveme.bsky.social · 08/08/2026

As part of Solve's EmPOWER ME 2025 event "Pacing: Power in Slowing Down," Solve M.E. Lived Experience Taskforce (LET) member Hollis Mickey shared her personal experience with #pacing and Severe M.E. Watch: ow.ly/aBRz50Zxfle #SevereMEDay #SevereMEAwareness

Portrait of Hollis Mickey, a person with severe ME/CFS, lying down. The graphic promotes her video on pacing with severe ME.

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