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Solve M.E.

@solveme.bsky.social
807 followers 266 following 400 posts

Solve M.E. is a non-profit organization that serves as a catalyst for critical research into diagnostics, treatments, and cures for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Long Covid, and other infection-associated chronic conditions.

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Solve M.E. @solveme.bsky.social · 10/10/2026
Researchers at FHCSD seek patients diagnosed or w/ symptoms of Long Covid for the LC-Revitalize treatment study. Participation spans 6 mos, w/8 visits (6 in-person @ a San Diego-based clinic). Contact researchers @ longcovid@fhcsd.org / (619) 324-8677 for more info or to join.
Flyer for a Long COVID clinical study by Family Health Centers of San Diego seeking adults with persistent symptoms for research participation.
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Solve M.E. @solveme.bsky.social · 09/10/2026
Join Solve M.E. leadership for our 2026 Community Address. We’ll discuss how we’re thinking about science and advocacy as we approach the midterms (and what comes after), and your role in what comes next. 🗓 Oct 20 · 1 PM PT / 4 PM ET Recorded + captioned Sign up👇 ow.ly/sshh50ZREFm
Webinar announcement for Solve M.E. 2026 Community Address on Oct 20, featuring four members of Solve's leadership team discussing research and advocacy.
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Solve M.E. @solveme.bsky.social · 08/10/2026
Sign up for our Nov. 10 webinar on the Renegade Research SIGNAL study. We’ll discuss how people with #MECFS and #LongCovid can join and borrow therapeutic devices for home use at no cost & contribute data to the BIC unhide® platform for research. Register: ow.ly/LGx250ZIvx7
Portraits of four Renegade Research reps who are panelists for the Nov. 10 Solve M.E. webinar on the SIGNAL study. The study lends therapeutic devices to people with ME/CFS and Long COVID at no cost for home use and collects their data for research.
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Solve M.E. @solveme.bsky.social · 06/10/2026
Solve’s Ramsay Research Grant Program is open for submissions! Visit our website for more information about the types and amounts of awards and how to apply by the November 13 deadline. solvecfs.org/research/ramsay-resear… Please share this news with your network!
Announcement for Solve M.E.'s Ramsay Research Grant Program open for submissions with a November 13 deadline.
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Solve M.E. @solveme.bsky.social · 05/10/2026
📣Big news from Solve’s research team re: an upcoming funding opportunity for researchers studying #MECFS, #LongCovid, and associated conditions! Stay tuned for more info on October 6 & click the link to learn more about our Ramsay Research Grant Program. ow.ly/WnOh50ZUEte
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Solve M.E. @solveme.bsky.social · 01/10/2026
Sign up for our Nov. 10 webinar on the Renegade Research SIGNAL study. We’ll discuss how people with #MECFS and #LongCovid can join and borrow therapeutic devices for home use at no cost & contribute data to the BIC unhide® platform for research. Register: ow.ly/LGx250ZIvx7
Portraits of four Renegade Research reps who are panelists for the Nov. 10 Solve M.E. webinar on the SIGNAL study. The study lends therapeutic devices to people with ME/CFS and Long COVID at no cost for home use and collects their data for research.
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Solve M.E. @solveme.bsky.social · 30/09/2026
Today, we're celebrating advocacy in action! Advocate & caregiver to her son, Gabe, Rebecca Groble secured an Illinois Senate Resolution acknowledging the prevalence & impact of ME/CFS across the state. Thanks, Rebecca, for your dedication to raising awareness! #MEAwarenessHour
Rebecca Groble secured an Illinois Senate Resolution acknowledging the prevalence & impact of ME/CFS
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Solve M.E. @solveme.bsky.social · 28/09/2026
Our IVO-21 webinar with Dr. Jay H. Chung was recently featured in Health Rising! Read the full article to learn more about the research supported through Solve's Catalyst Award: ow.ly/V4yE50ZSnHT Watch the webinar: ow.ly/WI3i50ZSnI1 #MECFS #ChronicFatigueSyndrome #IVO21
Dr. Jay H. Chung from NIH featured in Solve M.E. webinar on IVO-21 as a mitochondrial drug for ME/CFS, with 11K+ YouTube views and coverage in Health Rising.
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Solve M.E. @solveme.bsky.social · 25/09/2026
Join Solve M.E. leadership for our 2026 Community Address. We’ll discuss how we’re thinking about science and advocacy as we approach the midterms (and what comes after), and your role in what comes next. 🗓 Oct 20 · 1 PM PT / 4 PM ET Recorded + captioned Sign up👇 ow.ly/sshh50ZREFm
Webinar announcement for Solve M.E. 2026 Community Address on Oct 20, featuring four members of Solve's leadership team discussing research and advocacy.
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Solve M.E. @solveme.bsky.social · 24/09/2026
Sign up for our Nov. 10 webinar on the Renegade Research SIGNAL study. We’ll discuss how people with #MECFS and #LongCovid can join and borrow therapeutic devices for home use at no cost & contribute data to the BIC unhide® platform for research. Register: ow.ly/LGx250ZIvx7
Portraits of four Renegade Research reps who are panelists for the Nov. 10 Solve M.E. webinar on the SIGNAL study. The study lends therapeutic devices to people with ME/CFS and Long COVID at no cost for home use and collects their data for research.
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Solve M.E. @solveme.bsky.social · 22/09/2026
Today at 3 pm PT / 6 pm ET! Join us for a free webinar with Brain Inflammation Collaborative (BIC) to discuss how using the unhide® real-world data platform can help you recognize health patterns & trends to support conversations with healthcare providers. Register here: ow.ly/o1Iq50ZyLBO
Flyer for a Brain Inflammation Collaborative event on Sept 22 about using Unhide to visualize health trends with expert speakers.
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Solve M.E. @solveme.bsky.social · 21/09/2026
1/ News reports say the administration is drafting an executive order to create a committee that could override expert scientific review of NIH grants, shifting funding decisions away from scientific merit.
Call to action from Solve M.E. urging protection of merit-based science amid new NIH grant review reports.
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Solve M.E. @solveme.bsky.social · 18/09/2026
Today is the last day to comment on a proposed reorganization by the National Inst. of Allergy & Infectious Diseases (NIAID) eliminating its Div. of Clinical Research--the infrastructure behind clinical trials. Learn how to share your own comments: ow.ly/GI7N50ZOWV0
Urgent alert about NIAID's plan to break up its Clinical Research Division, with a public comment deadline today, Sept 18.
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Solve M.E. @solveme.bsky.social · 18/09/2026
Join us on 9/22 for a free webinar with Brain Inflammation Collaborative (BIC) to discuss using the unhide® real-world data platform to recognize health patterns & trends to support conversations with healthcare providers. Register here: ow.ly/o1Iq50ZyLBO
Flyer for a Brain Inflammation Collaborative event on Sept 22 about using Unhide to visualize health trends with expert speakers.
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Solve M.E. @solveme.bsky.social · 17/09/2026
📣Tomorrow is the last day to publicly comment on a proposed reorganization by the Natl. Inst. of Allergy & Infectious Diseases (NIAID) eliminating its Division of Clinical Research — the infrastructure behind clinical trials. Learn how to share your own comments hree: ow.ly/1EnG50ZOWXS
Urgent call to comment by Friday on NIAID's plan to eliminate its Clinical Research Division, which would affect ME/CFS and Long COVID trials.
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Solve M.E. @solveme.bsky.social · 16/09/2026
1/ 🚨Take action by Friday! NIAID has proposed eliminating its Division of Clinical Research — the infrastructure behind its clinical trials — on a public comment window of just five days. #MECFS #LongCOVID
Solve M.E. action alert on a deep teal background. Headline: Take action by Friday. Text: NIAID has proposed eliminating its Division of Clinical Research, the infrastructure behind clinical trials, on a five-day comment window. Comment by Sept 18.
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Solve M.E. @solveme.bsky.social · 11/09/2026
Family Health Centers of San Diego (FHCSD) seeks patients diagnosed with or have signs & symptoms of #LongCovid to join the treatment study"LC-Revitalize." Participation spans 6 mo, with 8 visits (6 in-person @ a SD- based clinic). To join or learn more: longcovid@fhcsd.org or (619) 324-8677.
Informational flyer for a Long COVID clinical research study by Family Health Centers of San Diego seeking adults aged 18-65 with Long COVID symptoms for a 6-month study.
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Solve M.E. @solveme.bsky.social · 09/09/2026
ICYMI: Watch the recording of our webinar with Dr. Jay H. Chung re: his Catalyst Award-winning study of the mitochondrial stabilizer IVO-21 as a therapy for #MECFS. ow.ly/Hfp450ZLzT3 #MEAwarenessHour
Portrait of Dr. Jay H. Chung from NIH and Jessica Maya, PhD, VP at Solve M.E., promoting the  recording of the Solve webinar re:  IVO-21 study on ME/CFS treatment.
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Solve M.E. @solveme.bsky.social · 08/09/2026
Starts today at 3 pm PT / 6 pm ET! Join our webinar with Dr. Jay H. Chung (NIH), who will discuss his Solve ME/CFS Catalyst Award-winning study of a potential safe and accessible treatment for #MECFS. ow.ly/ONZA50YZ8jn
Promotional banner for a study on mitochondrial stabilizer IVO-21 treatment for ME/CFS featuring Dr. Jay H. Chung and Jessica Maya, PhD, with event date and time.
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Solve M.E. @solveme.bsky.social · 03/09/2026
Sign up for our Nov. 10 webinar on the Renegade Research SIGNAL study. We’ll discuss how people with #MECFS and #LongCovid can join and borrow therapeutic devices for home use at no cost & contribute data to the BIC unhide® platform for research. Register: ow.ly/LGx250ZIvx7
Portraits of four Renegade Research reps who are panelists for the Nov. 10 Solve M.E. webinar on the SIGNAL study. The study lends therapeutic devices to people with ME/CFS and Long COVID at no cost for home use and collects their data for research.
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Solve M.E. @solveme.bsky.social · 02/09/2026
Congress voted to delay through Dec. 11 a rule that lets political appointees cancel federal grants, incl. active clinical trials, overriding the peer review process. We fought for this delay, now ask Congress to end the rule permanently. Use our toolkit: ow.ly/xQtc50ZIrwH
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Solve M.E. @solveme.bsky.social · 28/08/2026
ICYMI: Solve recently joined host Bateman Horne Center and #MEAction Network, Open Medicine Foundation (OMF) & the WIMEL Writers for "Coffee with a Clinician" in honor of #SevereMEAwareness Month. Watch the replay here: ow.ly/x9Sy50ZGmU6 #UnitedForME
Portraits of six healthcare and research professionals, including Solve M.E. VP of Scientific Programs Dr. Jessica Maya, are featured in an ad for a Severe ME/CFS Awareness Month event titled 'Coffee with a Clinician'.
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Solve M.E. @solveme.bsky.social · 27/08/2026
Register for our Sept. 8 webinar with Dr. Jay H. Chung (NIH) discussing his Solve ME/CFS Catalyst Award-winning study of a potential safe and accessible treatment for #MECFS. ow.ly/ONZA50YZ8jn
Promotional banner for a study on mitochondrial stabilizer IVO-21 treatment for ME/CFS featuring Dr. Jay H. Chung and Jessica Maya, PhD, with event date and time.
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Solve M.E. @solveme.bsky.social · 26/08/2026
Join us on 9/22 for a free webinar with Brain Inflammation Collaborative (BIC) to discuss using the unhide® real-world data platform to recognize health patterns & trends to support conversations with healthcare providers. Register here: ow.ly/o1Iq50ZyLBO #MECFS #MEAwarenessHour
Flyer for a Brain Inflammation Collaborative event on Sept 22 about using Unhide to visualize health trends with expert speakers.
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Solve M.E. @solveme.bsky.social · 25/08/2026
Solve is a proud sponsor of the International Society for Long COVID and Post-Acute Infection Syndromes (ISLC-PAIS) Conference in Amsterdam, Aug. 26-29. Solve's Dr. Jessica Maya will attend, along with many of the leading experts in #MECFS and #LongCovid. islc-pais.org
Solve M.E. sponsors the ISLC PAIS Conference on Long COVID and post-infectious syndromes, featuring Jessica Maya, PhD, attending in Amsterdam.
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Solve M.E. @solveme.bsky.social · 25/08/2026
Are you left holding the stuffed giraffe? Get your Caregiver Intensity Score from ARCHANGELS ow.ly/snYp50ZFn67 Get pointed to support that fits. Nearly 45% of folks in the Solve M.E. community who got their score have gone on to explore things that can help.
Text highlighting the unseen efforts of caregivers holding bags, drinks, and a stuffed giraffe while others enjoy a ferris wheel ride, encouraging caregivers to get their intensity score.
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Solve M.E. @solveme.bsky.social · 21/08/2026
Starting soon! Today @ 11 am PT / 2 pm ET, Solve VP of Scientific Programs Dr. Jessica Maya joins Renegade Research for the webinar "Vagus Nerve Stimulation (VNS) Informal Tracking Project for #MECFS & Long Covid.” Register here: ow.ly/4YSg50ZyhnC
A black and blue graphic with white text reads: Vagus Nerve Stimulation Informal Tracking Project for ME/CFS and Long Covid, Friday August 21, 2026, 11 am Pacific Time United States, 2 pm Eastern Time United States, 7 pm United Kingdom Time. Join us to learn about vagus nerve stimulation and the informal tracking project we just completed. Depicted are photos hosts and speakers of this event: Renegade Research Founder and CSO Tess Falor, PhD; Renegade Research Advisor Rivka Solomon, MS; electroCore CMO Dr. Peter Staats, MD; project participant Malcolm Brooks; University of Massachusetts immunologist Dr. Liisa Selin, MD, PhD; project participant Giovanni Clarke. The Renegade Research logo is depicted in the upper righthand corner with the website: www.renegade-research.org. A QR code is depicted in the upper lefthand corner with text that says "Register" and a registration link: tinyurl.com/renres-8-21-2026.
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Solve M.E. @solveme.bsky.social · 19/08/2026
On Fri., Aug. 21, 2026 @ 11 am PT / 2 pm ET, Solve VP of Scientific Programs Dr. Jessica Maya joins Renegade Research for the webinar "Vagus Nerve Stimulation (VNS) Informal Tracking Project for #MECFS & Long Covid.” Register here: ow.ly/4YSg50ZyhnC #MEAwarenessHour
Renegade Research event announcement for vagus nerve stimulation tracking project on Aug 21, 2026, featuring six experts and registration details.
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Solve M.E. @solveme.bsky.social · 15/08/2026
The Senate is listening to your calls to block implementation of the OMB federal grant rule threatening the integrity of the nation’s scientific research system--but we still need to keep calling House Representatives. Use our toolkit to take action: ow.ly/QhE250ZA79q
Solve M.E. announces nearly 500,000 public comments opposing a rule threatening ME/CFS and Long COVID research funding.
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Solve M.E. @solveme.bsky.social · 14/08/2026
Register for our Sept. 8 webinar with Dr. Jay H. Chung (NIH) discussing his Solve ME/CFS Catalyst Award-winning study of a potential safe and accessible treatment for #MECFS. ow.ly/ONZA50YZ8jn
Promotional banner for a study on mitochondrial stabilizer IVO-21 treatment for ME/CFS featuring Dr. Jay H. Chung and Jessica Maya, PhD, with event date and time.
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Solve M.E. @solveme.bsky.social · 12/08/2026
ICYMI: Watch all recordings from our four-part #SevereME webinar series co-produced with Bateman Horne Center. Experts in the field share information on caregiving, legal rights, medical care, and research. ow.ly/qTl550ZyLFN #SevereMEAwareness #UnitedForME #MEAwarenessHour
Collage of people with severe ME/CFS alongside text promoting a YouTube series on care, rights, and research for the illness.
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Solve M.E. @solveme.bsky.social · 12/08/2026
Join us on 9/22 for a free webinar with the Brain Inflammation Collaborative (BIC). Panelists will discuss using the unhide® real-world data platform to recognize health patterns & trends to support conversations with healthcare providers. Register here: ow.ly/o1Iq50ZyLBO #MECFS#LongCovid
Flyer for a Brain Inflammation Collaborative event on Sept 22 about using Unhide to visualize health trends with expert speakers.
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Solve M.E. @solveme.bsky.social · 12/08/2026
Today! Join Solve's Dr. Jessica Maya & Bateman Horne Center, #MEAction Network, Open Medicine Foundation (OMF) & the WIMEL Writers for "Coffee with a Clinician" in honor of #SevereMEAwareness Month. Wed. Aug. 12  |  @9:00 am PT / 12 pm ET. Register: ow.ly/j1AR50ZvWcK #UnitedForME
Portraits of six healthcare and research professionals, including Solve M.E. VP of Scientific Programs Dr. Jessica Maya, are featured in an ad for a Severe ME/CFS Awareness Month event titled 'Coffee with a Clinician'.
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Solve M.E. @solveme.bsky.social · 11/08/2026
Created from her experience of living with chronic illness, Hannah's Beyond Your Baseline site includes free resources to support people living with chronic illness, disability, and energy-limiting conditions. Learn more: payhip.com/beyondyourbaseline #SevereMEAwarenessMonth #SevereME #pacing
Traffic light style chart explaining ME status with green for low fatigue, amber for struggling, and red for very unwell, including mobility aids and communication tips.
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Solve M.E. @solveme.bsky.social · 10/08/2026
On Fri., Aug. 21, 2026 @ 11 am PT / 2 pm ET, Solve VP of Scientific Programs Dr. Jessica Maya joins Renegade Research for the webinar "Vagus Nerve Stimulation (VNS) Informal Tracking Project for #MECFS & #LongCovid.” Register here: ow.ly/4YSg50ZyhnC
Renegade Research event announcement for vagus nerve stimulation tracking project on Aug 21, 2026, featuring six experts and registration details.
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Solve M.E. @solveme.bsky.social · 10/08/2026
Join Solve's Emily Taylor & reps from Bateman Horne Center, #MEAction Network, Open Medicine Foundation (OMF) & the WIMEL Writers for "Coffee with a Clinician" in recognition of #SevereMEAwareness Month. Wed. Aug. 12  |  @9:00 am PT / 12 pm ET. Register: ow.ly/j1AR50ZvWcK #UnitedForME
Portraits of six healthcare and research professionals, including Solve M.E. President and CEO Emily Taylor, are featured in an ad for a Severe ME/CFS Awareness Month event titled 'Coffee with a Clinician'.
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Solve M.E. @solveme.bsky.social · 08/08/2026
If you have a loved one with severe ME, let them know you are thinking of them today. We recognize and honor the work and dedication of caregivers and families — your ability to help improve the lives of your loved ones cannot be overstated.
Man's profile in shadow on black background. Severe ME can last for decades. Logos for Solve ME and the World ME Alliance #SevereMEDay  August 8th
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Solve M.E. @solveme.bsky.social · 08/08/2026
To those who are suffering from severe ME/CFS, please know that you are not alone. We recognize and stand with you. We see you, we see your suffering, and we are fighting every day to help you get your life back.
Picture of a woman with her eyes closed on a black background. Severe ME menas being unable to process thoughts. Logos for Solve M.E. and the World ME Alliance.  #SevereMEDay August 8th
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Solve M.E. @solveme.bsky.social · 08/08/2026
Their symptoms can worsen from light, sound, and movement, and some need 24-hour care.
Black graphic with man's face in partial shadow. "Severe ME means noise and light are intolerable." logos for Solve M.E. and the World ME Alliance. #SevereMEDay August 8th
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Solve M.E. @solveme.bsky.social · 08/08/2026
They are often unable to perform everyday tasks, like eating, showering, and even standing without assistance.
Black graphic with man's face in partial shadow. Severe ME means constant pain. Logos for Solve M.E. and World ME Alliance #SevereMEDay August 8th.
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Solve M.E. @solveme.bsky.social · 08/08/2026
About 25% of people living with ME/CFS are severely ill, with the majority of them being housebound or bedbound at some point during their illness.
Black graphic with a woman's face in partial shadow. Reads "Severe ME means I am hidden from society. #SevereMEDay August 8th. Logos for Solve M.E. and the World ME Alliance.
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Solve M.E. @solveme.bsky.social · 08/08/2026
August 8th is Severe ME Awareness Day–a time to reflect on the toll this disease takes on those suffering from severe ME/CFS symptoms and advocate for better research, support, and treatment.
Lit candles on black background. Severe ME takes lives. Today, we remember those we have lost. Logos for Solve M.E. and the World ME Alliance. #SevereMEDay August 8th
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Solve M.E. @solveme.bsky.social · 08/08/2026
As part of Solve's EmPOWER ME 2025 event "Pacing: Power in Slowing Down," Solve M.E. Lived Experience Taskforce (LET) member Hollis Mickey shared her personal experience with #pacing and Severe M.E. Watch: ow.ly/aBRz50Zxfle #SevereMEDay #SevereMEAwareness
Portrait of Hollis Mickey, a person with severe ME/CFS,  lying down. The graphic promotes her video on pacing with severe ME.
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Solve M.E. @solveme.bsky.social · 08/08/2026
Join Solve's Emily Taylor & reps from Bateman Horne Center, #MEAction Network, Open Medicine Foundation (OMF) & the WIMEL Writers for "Coffee" with a Clinician in recognition of #SevereMEAwareness Month. Wed. Aug. 12  |  @ 9:00 am PT / 12 pm ET. ow.ly/j1AR50ZvWcK #UnitedForME
Portraits of six healthcare and research professionals, including Solve M.E. President and CEO Emily Taylor, are featured in an ad for a Severe ME/CFS Awareness Month event titled 'Coffee with a Clinician'.
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Solve M.E. @solveme.bsky.social · 05/08/2026
ICYMI: Solve & Bateman Horne Center co-hosted a series on Severe ME. Webinar #1 focused on navigating health systems, role changes, daily care, caregiver mental health, & maintaining healthy relationships. ow.ly/5tWQ50ZwKRj #SevereME #MEAwarenessHour #SevereMEAwarenessMonth
Portraits of four experts featured in a Severe ME/CFs caregiving event.
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Solve M.E. @solveme.bsky.social · 04/08/2026
Join Solve's Emily Taylor & reps from Bateman Horne Center, #MEAction Network, Open Medicine Foundation (OMF) & the WIMEL Writers for "Coffee with a Clinician" in recognition of #SevereMEAwareness Month. Wed. Aug. 12  |  @9:00 am PT / 12 pm ET. Register: ow.ly/j1AR50ZvWcK #UnitedForME
Portraits of six healthcare and research professionals, including Solve M.E. President and CEO Emily Taylor, are featured in an ad for a Severe ME/CFS Awareness Month event titled 'Coffee with a Clinician'.
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Solve M.E. @solveme.bsky.social · 31/07/2026
📢Check out our latest Research 1st Roundup! Read our easy-to-understand highlights of the latest research on the biological mechanisms of ME/CFS and Long Covid here: ow.ly/fYGq50ZuS5M
Logo of Solve M.E. featuring a stylized DNA strand with a human figure, emphasizing recent ME/CFS and Long Covid research highlights.
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Solve M.E. @solveme.bsky.social · 29/07/2026
On Aug. 12 @ 9 am PT / 12 pm ET, Solve will join @openmedf.bsky.social, @meactnet.bsky.social, WIMEL writers, & hosting org @meactnet.bsky.social for a special "Coffee with a Clinician" in honor of #SevereMEAwareness Month. Sign up: ow.ly/M6GU50Zo1qG #UnitedForME #MEAwarenessHour
Save the date for the Coffee with a Clinician event on August 12, recognizing Severe ME/CFS Awareness Month. Features logos for Solve M.E., OMF, Bateman Horne Center, and #MEAction.
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Solve M.E. @solveme.bsky.social · 27/07/2026
1/3 🚨 The comment period on OMB's proposed research grant rule has closed with nearly 500,000 comments, overwhelmingly opposed, in just 45 days. The public has spoken. Now it's Congress's turn. Take 2 min 👉solvecfs.quorum.us/campaign/166932
Call to protect merit-based research for treatments benefiting 3.3 million Americans by opposing OMB's proposed rule.
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Solve M.E. @solveme.bsky.social · 24/07/2026
It's halfway through the year…what are you carrying? What could make it feel like less? Get your Caregiver Intensity Score. It takes two minutes and helps answer both. archangelscii.me/4wkc5CM
Message encouraging caregivers to assess their intensity and find free helpful resources from Archangels and Solve M.E.
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