Sign in

Fibromyalgia - What I Know Is Real

@soisfibroreal.bsky.social
11K followers 9.9K following 2.2K posts

Beating #fibromyalgia one day at a time, taking my power & my life back. Join me! The- So Is Fibromyalgia Real? What I Know Is Real -Blog #Fighter Canadian #Resister #ElbowsUp #ClimateActivist soisfibromyalgiareal.com

PostsRepliesMedia
Reposted by Fibromyalgia - What I Know Is Real
DPA Weston PhD @drdpaweston.bsky.social · 10/07/2026
I’ve been dealing with Fibromyalgia for over 33 years. Flare ups happen. I still take meds to deal with pain and fatigue. Consuming lactose is a trigger! Over this time l was a teacher for 26 years and completed 4 university degrees! It’s reality in my life is palpable.
121
Fibromyalgia - What I Know Is Real @soisfibroreal.bsky.social · 29/04/2026
"I often remember how, years ago, I’d seen a close family member who was wheelchair bound from MS having family members move & exercise her body. I now understand why…because her body still needed the movement…so I get my stiff aching body up & I move."
soisfibromyalgiareal.com
”Different Things Work for Different People”…or DO They!? I Wonder… Fibromyalgia Big Picture | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
I hear this over and over again with respect to fibromyalgia treatments and every once in awhile I'm told...”different things work for different people”... but I keep wondering...do they? Do they REAL...
0101
Fibromyalgia - What I Know Is Real @soisfibroreal.bsky.social · 29/04/2026
"It feels callous, and it feels like my #fibromyalgia is not being taken seriously…I am usually looking for something more than being told, essentially, to have a little willpower, from my doctor!" #WhatIKnowIsReal
soisfibromyalgiareal.com
It’s An INCREDIBLY STRONG Mind Over EXCRUCIATINGLY DIFFICULT (REAL!) Matter!...Mind-set and Fibromyalgia V | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
So you have fibromyalgia and maybe you’ve been told, “It's mind over‎ matter". Well, I can’t deny that the power of my mind and my ability (and sheer will!) to think in certain ways and use that think...
031
Fibromyalgia - What I Know Is Real @soisfibroreal.bsky.social · 17/04/2026
#Fibromyalgia "tries to make me feel I am at its unrelenting mercy, a victim of its every whim...that I just have to helplessly react, constantly adjust my life to its random & ever-changing barrage of symptoms & utter exhaustion...like I have no control."
soisfibromyalgiareal.com
I Become What I Say...Mind-Set and Fibromyalgia IV | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
After fifteen years with fibromyalgia, I've learned that not only I AM what I think, but I BECOME what I say, and this helps my mind-set and fibromyalgia!
021
Fibromyalgia - What I Know Is Real @soisfibroreal.bsky.social · 17/04/2026
"I find #hope somewhere…ANYWHERE. Personally…I HAVE TO HAVE HOPE! I always want to have hope. I strive for it, every minute of every day." #WhatIKnowIsReal
soisfibromyalgiareal.com
A Fibromyalgia Diagnosis?…Hope Is the First Thing You Need | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
I’ve seen it often, someone that has just received a fibromyalgia diagnosis, apprehensive and rightfully so…asking others...WHAT SHOULD I DO? Having had it for over 16 years now, WHAT I’D REALLY LIKE ...
051
Fibromyalgia - What I Know Is Real @soisfibroreal.bsky.social · 13/04/2026
"Fibromyalgia lends itself to vicious circle after vicious circle; it often feels like there’s no rhyme or reason to any of it…”doing the opposite” has helped me to break those vicious circles and...to even avoid getting into them in the first place."
soisfibromyalgiareal.com
In Your Face, Fibromyalgia...I "Do the Opposite"! | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
It seems to me that fibromyalgia is a “do-the-opposite” illness. I mean, you kind of HAVE to be oppositional, even defiant, to tackle it! Yes, if you're oppositional, defiant...then maybe this is the ...
032
Fibromyalgia - What I Know Is Real @soisfibroreal.bsky.social · 13/04/2026
“Everything #fibromyalgia revolves around #sleep…got a bit…not enough…need more…need too much…can’t sleep…can’t stay awake…can’t wait to sleep…it’s never enough…” #WhatIKnowIsReal
soisfibromyalgiareal.com
To Sleep or Not to Sleep?...So Done with That Question!...Fibromyalgia and Sleep II | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
Because of my observations about fibromyalgia and sleep over the last fifteen years, I AM managing to get GOOD SLEEP, so I thought I should share them.
031
Fibromyalgia - What I Know Is Real @soisfibroreal.bsky.social · 13/04/2026
"At some point I ended up with some definite thoughts on what things I thought were key things I should be trying to do to have the best quality of life I could have (with #fibromyalgia)." #WhatIKnowIsReal
soisfibromyalgiareal.com
It Seems Like My Automatic Mode Switch Broke...My Brain and Fibromyalgia | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
After years with fibromyalgia I realized it SEEMED like my brain was not 'automatically resetting' each day and that I needed to work hard to 'reset' it myself.
031
Fibromyalgia - What I Know Is Real @soisfibroreal.bsky.social · 13/04/2026
“Try to be positive...is both RIDICULOUS advice and GREAT advice, all at once." #Fibromyalgia #WhatIKnowIsReal
soisfibromyalgiareal.com
Being Positive With Fibromyalgia...Ya, Right! | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
'Try to be positive' is both RIDICULOUS and GREAT advice, at least that’s what I’ve come to think after living with fibromyalgia for fifteen years now.
061
Fibromyalgia - What I Know Is Real @soisfibroreal.bsky.social · 12/04/2026
"You are not alone. I know what you’re going through. All of us with #fibromyalgia, and there are many of us(!), know what you’re going through." #WhatIKnowIsReal
soisfibromyalgiareal.com
Staying Afloat With Fibromyalgia…Come Aboard! | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
Struggling to stay afloat with fibromyalgia, feeling alone and pretty hopeless? Come aboard! Join me, there's no need for you to be down there alone.
092
Fibromyalgia - What I Know Is Real @soisfibroreal.bsky.social · 12/04/2026
"...when I started out on this path, like everyone with #fibromyalgia I would imagine, I was just trying to be able to function in my every day busy life, to keep my head above water when I felt like I was drowning in the vicious circles of fibromyalgia."
soisfibromyalgiareal.com
These Are Side Effects I Can Live With!...Making Fibromyalgia Work FOR Me | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
There is hands down absolutely no doubt that my fibromyalgia has been working AGAINST me, but I'm making it work FOR me as well, and I have the side effects to prove it!
1121
Fibromyalgia - What I Know Is Real @soisfibroreal.bsky.social · 12/04/2026
"…have I overdone it…lost control…pushed too far…can I “get back”? This is my #fibromyalgia…at it’s worst…the “flare up” that everyone dreads…a really bad flare up." #WhatIKnowIsReal
soisfibromyalgiareal.com
Fighting the Fibromyalgia Flare Up…Surprisingly, Same Old Same Old... | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
After fifteen years with fibromyalgia, when people ask me how I get through a fibromyalgia flare up, I'm always puzzled as to what to say, because, well, I get through them the same as everything else...
020
Fibromyalgia - What I Know Is Real @soisfibroreal.bsky.social · 12/04/2026
"Many things will knock you out and make you #sleep but sleep experts will tell you (as in the book THE SLEEP SOLUTION that I just featured in my last book share post) that “Sedation and sleep are not always the same thing.”" #WhatIKnowIsReal
soisfibromyalgiareal.com
Is Fibromyalgia (Truly) Different for Everyone? | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
Is fibromyalgia TRULY different for everyone? Or is everyone DOING DIFFERENT THINGS and thus MAKING THEIR FIBROMYALGIA JOURNEYS DIFFERENT?
052
Reposted by Fibromyalgia - What I Know Is Real
Koda-Shreds @koda-boy.bsky.social · 11/04/2026
Well? @soisfibroreal.bsky.social @pamelaff.bsky.social @bluedotspecialfl.bsky.social @crankyoldcrackpot.bsky.social @chrisdownunder.bsky.social @metalmofo666.bsky.social @nicholehiltz.bsky.social @misskitty.art @justinjest.bsky.social @cappleroxy.newgrounds.com @crabbyhuskylady.bsky.social
youtube.com
Are You Gonna Be My Girl - Jet (Guitar Cover)
YouTube video by Sparky Guitar
1101
Reposted by Fibromyalgia - What I Know Is Real
Koda-Shreds @koda-boy.bsky.social · 09/04/2026
🎸 @soisfibroreal.bsky.social @isabelsoisson.bsky.social @metalmofo666.bsky.social @sahara-stevens.bsky.social @nicholehiltz.bsky.social @hippie-kay-yay.bsky.social @misskitty.art @missjoy1965.bsky.social @chrisdownunder.bsky.social @kaplanikids.bsky.social @bluesnowflake.bsky.social
youtube.com
Band on the Run - Paul McCartney & Wings (Guitar Cover #347)
YouTube video by Sparky Guitar
383
Fibromyalgia - What I Know Is Real @soisfibroreal.bsky.social · 02/04/2026
"And forget being excited about plans, about working on my life, the lofty plans and ideals are gone; I’m suddenly just pushing through life again…struggling to do the day-to-day minimum. Back to basics." #Fibromyalgia #Flare #WhatIKnowIsReal
soisfibromyalgiareal.com
Fibromyalgia…Pyramid of Resilience | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
Over the years, having fibromyalgia, I have been continually KNOCKED BACK DOWN to BASIC SURVIVAL MODE. Working on the most basic of needs.
062
Fibromyalgia - What I Know Is Real @soisfibroreal.bsky.social · 02/04/2026
"I pace myself…& I do listen to my body & heed the signals it is sending me…but I push it too. & I PUSH IT A LOT. After 15 years of trial & error living with fibromyalgia, I’ve found my fibromyalgia has some “give” to it & I take full advantage of it."
soisfibromyalgiareal.com
I’m Sick of Limitations!...A Place for "Pushing It" in Fighting Fibromyalgia | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
Sometimes I just get sick of living with limitations while fighting fibromyalgia, so I’m glad I’ve learned I don’t have to totally live like that!
0151
Fibromyalgia - What I Know Is Real @soisfibroreal.bsky.social · 31/03/2026
"Most nights I would be so exhausted, I would need to go through maybe a couple #sleep cycles on the couch, often around three hours, just to be able to get up and go to my own bed." #Fibromyalgia #WhatIKnowIsReal
soisfibromyalgiareal.com
To Sleep or Not to Sleep?...So Done with That Question!...Fibromyalgia and Sleep II | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
Because of my observations about fibromyalgia and sleep over the last fifteen years, I AM managing to get GOOD SLEEP, so I thought I should share them.
031
Fibromyalgia - What I Know Is Real @soisfibroreal.bsky.social · 31/03/2026
#ChronicFatigue "For many of the fifteen years I’ve lived with #fibromyalgia, especially the early years, this tiredness wasn’t alleviated by any amount of sleep and rest…not any amount I was able to get anyways." #WhatIKnowIsReal
soisfibromyalgiareal.com
I Change What I Think and It Changes My Reality...Mind-Set and Fibromyalgia III | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
After fifteen years with fibromyalgia, I've learned that we can change what we think and change our reality, and this helps my mind-set and fibromyalgia!
021
Fibromyalgia - What I Know Is Real @soisfibroreal.bsky.social · 30/03/2026
"I realized with every photo I looked back on from the past 20 years, with each memory that flooded back, part of each memory was a #fibromyalgia memory...when I look at the photo, PART OF THE MEMORY IS HOW I WAS EXPERIENCING MY FIBROMYALGIA THAT DAY."
soisfibromyalgiareal.com
Fibromyalgia Awareness…Oh Yes, I’m Aware! | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
Fibromyalgia Awareness Month is here. Yes, I know it’s to spread awareness to others but as I reflect on fibromyalgia awareness the first thought that comes to mind is, if you’ve got it, IT'S PRETTY H...
0204
Fibromyalgia - What I Know Is Real @soisfibroreal.bsky.social · 30/03/2026
#Fibromyalgia "...like the athlete running the marathon, my mental game, my incredibly strong mind, IS getting me somewhere. And I won’t be quitting." #WhatIKnowIsReal
soisfibromyalgiareal.com
It’s An INCREDIBLY STRONG Mind Over EXCRUCIATINGLY DIFFICULT (REAL!) Matter!...Mind-set and Fibromyalgia V | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
So you have fibromyalgia and maybe you’ve been told, “It's mind over‎ matter". Well, I can’t deny that the power of my mind and my ability (and sheer will!) to think in certain ways and use that think...
010
Fibromyalgia - What I Know Is Real @soisfibroreal.bsky.social · 30/03/2026
"You know how you occasionally hear it reported..some celebrity who suffers from exhaustion goes to some facility to rest & relax & rehabilitate their body for about a month or two? Well I remember thinking, that's exactly what it felt like I needed to do"
soisfibromyalgiareal.com
I’m Sick of Limitations!...A Place for "Pushing It" in Fighting Fibromyalgia | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
Sometimes I just get sick of living with limitations while fighting fibromyalgia, so I’m glad I’ve learned I don’t have to totally live like that!
020
Fibromyalgia - What I Know Is Real @soisfibroreal.bsky.social · 28/03/2026
#Triggers "I know them well. & I‘ve learned to live in a way to avoid them as much as possible & minimize them as much as possible, so much so that flares are pretty much a thing of the past by now; I can’t remember the last time I had a significant one."
soisfibromyalgiareal.com
”Different Things Work for Different People”…or DO They!? I Wonder…Managing Fibromyalgia Symptoms | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
Managing fibromyalgia symptoms…DO different things work for different people? Or are these different things that work for us really, in essence, THE SAME THING?
021
Fibromyalgia - What I Know Is Real @soisfibroreal.bsky.social · 28/03/2026
"If I am controlling my #fibromyalgia symptoms through my own lifestyle choices, it can’t be taken away from me." #WhatIKnowIsReal
soisfibromyalgiareal.com
Fifteen Years and Still Managing Without Meds...Fibromyalgia and Medication - The - So Is Fibromyalgia Real? What I Know Is Real - Blog | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
I’ve had fibromyalgia for going on fifteen years and I still don't know anything about fibromyalgia medications! I haven’t needed to know...I haven’t taken any.
031
Fibromyalgia - What I Know Is Real @soisfibroreal.bsky.social · 27/03/2026
"I wouldn’t have chosen to have #fibromyalgia, but I can’t deny I have a resolute RESILIENCE and a mental CLARITY, with which to stare down anything in life I need to, that I feel GRATEFUL for." #WhatIKnowIsReal
soisfibromyalgiareal.com
Fibromyalgia…Pyramid of Resilience | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
Over the years, having fibromyalgia, I have been continually KNOCKED BACK DOWN to BASIC SURVIVAL MODE. Working on the most basic of needs.
020
Fibromyalgia - What I Know Is Real @soisfibroreal.bsky.social · 27/03/2026
"It seems so simple...it SHOULD be simple...your body hurts, hmm, what do you do? I have #fibromyalgia…I work on #stress.” #WhatIKnowIsReal
soisfibromyalgiareal.com
I Have Fibromyalgia…I Work on Stress…The Fibromyalgia and Stress Connection | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
Apparently all illnesses are affected by stress but from having fibromyalgia for over fifteen years, I can say the fibromyalgia and stress connection is clear, fibromyalgia seems to be SUPER affected ...
020
Fibromyalgia - What I Know Is Real @soisfibroreal.bsky.social · 25/03/2026
"Yes, after over fifteen years of living with #fibromyalgia and no matter how many times a “bad” #flare up happens to me, I get jarringly worried at first…upset and unnerved as seriously scary symptoms set in." #WhatIKnowIsReal
soisfibromyalgiareal.com
Fighting the Fibromyalgia Flare Up…Surprisingly, Same Old Same Old... | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
After fifteen years with fibromyalgia, when people ask me how I get through a fibromyalgia flare up, I'm always puzzled as to what to say, because, well, I get through them the same as everything else...
041
Fibromyalgia - What I Know Is Real @soisfibroreal.bsky.social · 25/03/2026
"I pace myself…& I do listen to my body & heed the signals it is sending me…but I push it too. & I PUSH IT A LOT. After 15 years of trial & error living with fibromyalgia, I’ve found my fibromyalgia has some “give” to it & I take full advantage of it."
soisfibromyalgiareal.com
I’m Sick of Limitations!...A Place for "Pushing It" in Fighting Fibromyalgia | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
Sometimes I just get sick of living with limitations while fighting fibromyalgia, so I’m glad I’ve learned I don’t have to totally live like that!
010
Fibromyalgia - What I Know Is Real @soisfibroreal.bsky.social · 25/03/2026
"Throughout my whole adult life, pretty much, working out has been my medication of choice. I haven’t needed to read the literature on it, nor look up the science behind it…I can just tell what it does for me.” #Depression #WhatIKnowIsReal
soisfibromyalgiareal.com
Never Worked So Hard To NOT Be Something…Fibromyalgia and Depression | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
Fibromyalgia and depression...having fibromyalgia for over fifteen years now, I don’t know if I’ve ever worked so hard to NOT be something before!
020
Fibromyalgia - What I Know Is Real @soisfibroreal.bsky.social · 25/03/2026
"In fact, having #fibromyalgia and having SOMEONE ELSE tell ME to be positive would pretty much elicit the exact opposite...I’m pretty sure I’d be far from positive in my response to them!" #WhatIKnowIsReal
soisfibromyalgiareal.com
Being Positive With Fibromyalgia...Ya, Right! | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
'Try to be positive' is both RIDICULOUS and GREAT advice, at least that’s what I’ve come to think after living with fibromyalgia for fifteen years now.
040
Reposted by Fibromyalgia - What I Know Is Real
Monica @softtail65.bsky.social · 25/03/2026
.
68432
Fibromyalgia - What I Know Is Real @soisfibroreal.bsky.social · 23/03/2026
"And yes, #fibromyalgia certainly likes to (try to) keep slapping us back down again and “keep us in our place” when we step off our fibromyalgia “tightrope”…but we can’t let that place be nonexistent." #WhatIKnowIsReal
soisfibromyalgiareal.com
In Your Face, Fibromyalgia...I "Do the Opposite"! | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
It seems to me that fibromyalgia is a “do-the-opposite” illness. I mean, you kind of HAVE to be oppositional, even defiant, to tackle it! Yes, if you're oppositional, defiant...then maybe this is the ...
030
Fibromyalgia - What I Know Is Real @soisfibroreal.bsky.social · 23/03/2026
"For all of us with #fibromyalgia, it seems to me that it’s all about doing or thinking whatever it takes to get up and get doing the things we have to do in life and hopefully, before our energy runs out each day…getting to some things we like to do."
soisfibromyalgiareal.com
I Live In Deliberate Denial and It Helps!...Mind-Set and Fibromyalgia | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
I am surviving, thriving and even steadily, gradually and unmistakably improving; I live in 'deliberate denial' and it helps my mind-set and fibromyalgia!
040
Fibromyalgia - What I Know Is Real @soisfibroreal.bsky.social · 22/03/2026
"I just couldn’t do what I used to do with such limited available “good” time and energy each day…remember, a certain amount of time when you have #fibromyalgia is just “survival”, trying to feel okay enough to function at the most basic level."
soisfibromyalgiareal.com
Fibromyalgia…Pyramid of Resilience | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
Over the years, having fibromyalgia, I have been continually KNOCKED BACK DOWN to BASIC SURVIVAL MODE. Working on the most basic of needs.
050
Fibromyalgia - What I Know Is Real @soisfibroreal.bsky.social · 22/03/2026
#Fibromyalgia "…at a minimum, just feeling that I’m doing something that may make a difference, that I can exert some influence & control for myself…or that someone else is helping, perhaps my doctor…that help is on the way…always lowers my stress."
soisfibromyalgiareal.com
”Different Things Work for Different People”…or DO They!? I Wonder…Managing Fibromyalgia Symptoms | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
Managing fibromyalgia symptoms…DO different things work for different people? Or are these different things that work for us really, in essence, THE SAME THING?
010
Fibromyalgia - What I Know Is Real @soisfibroreal.bsky.social · 20/03/2026
#FibroFatigue .."It felt like such a deep & complete exhaustion had come over me that ONLY two or even three months of totally unplugging from everything in my life & just getting a time-out from life somewhere to simply sleep, deeply, would do the trick."
soisfibromyalgiareal.com
I’m Sick of Limitations!...A Place for "Pushing It" in Fighting Fibromyalgia | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
Sometimes I just get sick of living with limitations while fighting fibromyalgia, so I’m glad I’ve learned I don’t have to totally live like that!
150
Fibromyalgia - What I Know Is Real @soisfibroreal.bsky.social · 20/03/2026
"If I am controlling my #fibromyalgia symptoms through my own lifestyle choices, it can’t be taken away from me." #WhatIKnowIsReal
soisfibromyalgiareal.com
Fifteen Years and Still Managing Without Meds...Fibromyalgia and Medication - The - So Is Fibromyalgia Real? What I Know Is Real - Blog | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
I’ve had fibromyalgia for going on fifteen years and I still don't know anything about fibromyalgia medications! I haven’t needed to know...I haven’t taken any.
030
Fibromyalgia - What I Know Is Real @soisfibroreal.bsky.social · 20/03/2026
"When aches start to set in and my body gets stiff…I move more. The achier and stiffer I get, the more I move. Yes, experience (of living with #fibromyalgia for over seventeen years now) has taught me to be very conscious of moving in my everyday life."
soisfibromyalgiareal.com
In Your Face, Fibromyalgia...I "Do the Opposite"! | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
It seems to me that fibromyalgia is a “do-the-opposite” illness. I mean, you kind of HAVE to be oppositional, even defiant, to tackle it! Yes, if you're oppositional, defiant...then maybe this is the ...
020
Fibromyalgia - What I Know Is Real @soisfibroreal.bsky.social · 20/03/2026
"Yes, if it’s not #competence…to have the ability to keep getting up…and dragging myself through pretty much everything…day after day, year after year, even decade after decade…while walking this #fibromyalgia tightrope wire...I don’t know what it is.”
soisfibromyalgiareal.com
I Have Fibromyalgia…And I’m More Competent Than Ever! | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
It seems there’s a stigma attached to fibromyalgia; it seems the question 'Is fibromyalgia real?' hangs over me (and everyone else suffering from it) questioning my competence, and honestly, it just g...
020
Fibromyalgia - What I Know Is Real @soisfibroreal.bsky.social · 19/03/2026
"...alongside every memory for the last 20 years...there is a #fibromyalgia memory for me. A quiet memory that I mostly keep to myself, almost like a dual life I lead I guess. Always there, an intricate part of my life, intertwined with everything I do."
soisfibromyalgiareal.com
Fibromyalgia Awareness…Oh Yes, I’m Aware! | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
Fibromyalgia Awareness Month is here. Yes, I know it’s to spread awareness to others but as I reflect on fibromyalgia awareness the first thought that comes to mind is, if you’ve got it, IT'S PRETTY H...
120
Fibromyalgia - What I Know Is Real @soisfibroreal.bsky.social · 19/03/2026
"It suddenly struck me that it seems like some things that are automatically regulated in other people’s brains each day don’t happen automatically in MY brain…it’s like my “automatic mode switch” got broken so I have to ”manually reset” it every day."
soisfibromyalgiareal.com
It Seems Like My Automatic Mode Switch Broke...My Brain and Fibromyalgia | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
After years with fibromyalgia I realized it SEEMED like my brain was not 'automatically resetting' each day and that I needed to work hard to 'reset' it myself.
072
Fibromyalgia - What I Know Is Real @soisfibroreal.bsky.social · 17/03/2026
"As the pandemic dragged on, I heard the “regular” people bemoaning things they couldn't do now, going out, seeing friends...distraught & depressed because their life had been largely confined to their homes...I realized I'd lost all they grieved long ago"
soisfibromyalgiareal.com
Fibromyalgia…Pyramid of Resilience | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
Over the years, having fibromyalgia, I have been continually KNOCKED BACK DOWN to BASIC SURVIVAL MODE. Working on the most basic of needs.
010
Fibromyalgia - What I Know Is Real @soisfibroreal.bsky.social · 17/03/2026
“Everything #fibromyalgia revolves around #sleep…got a bit…not enough…need more…need too much…can’t sleep…can’t stay awake…can’t wait to sleep…it’s never enough…” #WhatIKnowIsReal
soisfibromyalgiareal.com
To Sleep or Not to Sleep?...So Done with That Question!...Fibromyalgia and Sleep II | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
Because of my observations about fibromyalgia and sleep over the last fifteen years, I AM managing to get GOOD SLEEP, so I thought I should share them.
020
Fibromyalgia - What I Know Is Real @soisfibroreal.bsky.social · 15/03/2026
“So I didn’t know many things about fibromyalgia when I was first diagnosed…AND I’M GLAD.” #WhatIKnowIsReal
soisfibromyalgiareal.com
Ten Things I’m Glad I DIDN’T Know About Fibromyalgia When I Was First Diagnosed…Fibromyalgia and Hope | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
I've had fibromyalgia for over fifteen years now and I have to say I’m kind of glad I DIDN’T know many things about fibromyalgia when I was first diagnosed. I've charted my own path. And I’m not only ...
000
Fibromyalgia - What I Know Is Real @soisfibroreal.bsky.social · 15/03/2026
#FibroFog "And speaking of old age, as I watch my eighty-six and ninety-year-old parents struggle with memory problems, it occurs to me that I’ve had a lot more in common with them in that department, than my own peers..." #WhatIKnowIsReal
soisfibromyalgiareal.com
Fibro Fog...Frustrating, Frightening…But, Yeah, Just Another Fibromyalgia Symptom | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
As uneasy as I’ve felt about my frustrating and worrisome fibro fog these past sixteen years, I’m starting to feel LESS UNEASY and MORE POSITIVE about this unsettling fibromyalgia symptom NOW more tha...
021
Fibromyalgia - What I Know Is Real @soisfibroreal.bsky.social · 15/03/2026
"I don’t know about anyone else, but I need to feel this…that I can do something that makes a difference! So. I have #fibromyalgia. I work on #stress." #WhatIKnowIsReal
soisfibromyalgiareal.com
I Have Fibromyalgia…I Work on Stress…The Fibromyalgia and Stress Connection | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
Apparently all illnesses are affected by stress but from having fibromyalgia for over fifteen years, I can say the fibromyalgia and stress connection is clear, fibromyalgia seems to be SUPER affected ...
010
Fibromyalgia - What I Know Is Real @soisfibroreal.bsky.social · 15/03/2026
“If I could go back and tell my early #fibromyalgia self to work on just one thing...work on getting restorative sleep." #WhatIKnowIsReal
soisfibromyalgiareal.com
To Sleep or Not to Sleep?...So Done with That Question!...Fibromyalgia and Sleep II | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
Because of my observations about fibromyalgia and sleep over the last fifteen years, I AM managing to get GOOD SLEEP, so I thought I should share them.
070
Fibromyalgia - What I Know Is Real @soisfibroreal.bsky.social · 14/03/2026
"The pain, cramping and symptoms were bizarre for awhile...#IBS setting off #fibromyalgia pain setting off IBS pain. But my healthy diet enabled me to get right on top of that...quickly...and my IBS was largely controlled (fairly easily)...and still is."
soisfibromyalgiareal.com
Fibromyalgia and Diet...Taking Every Inch I Can Get! | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
Fibromyalgia and diet...after my trial and error living with fibromyalgia for over fifteen years now, a healthy diet is a no-brainer for me!
010
Fibromyalgia - What I Know Is Real @soisfibroreal.bsky.social · 14/03/2026
”I’m trying to NOT focus on it…in fact, I try to focus on everything but it…my gaze is outward on life around me and not inward on my #fibromyalgia.” #WhatIKnowIsReal
soisfibromyalgiareal.com
I Live In Deliberate Denial and It Helps!...Mind-Set and Fibromyalgia | The - So Is Fibromyalgia Real? What I Know Is Real - Blog
I am surviving, thriving and even steadily, gradually and unmistakably improving; I live in 'deliberate denial' and it helps my mind-set and fibromyalgia!
000
Fibromyalgia - What I Know Is Real @soisfibroreal.bsky.social · 13/03/2026
So many people with #fibromyalgia tell me this, that they are so affected by the weather.
122