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SHORE-C

@shore-c.bsky.social
24 followers 21 following 26 posts

Sussex Health Outcomes Research and Education - Cancer. Part of BSMS (Brighton and Sussex Medical School), based on the University of Sussex campus. Our central aims are to evaluate the health outcomes of patients, especially those with cancer.

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SHORE-C @shore-c.bsky.social · 21/09/2026
Professor Fallowfield contributed to a new article that has been published titled 8th International Consensus Guidelines for the management of advanced breast cancer (ABC8 Guidelines). Read it here: doi.org/10.1016/j.breast.2026.104921
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SHORE-C @shore-c.bsky.social · 10/09/2026
A new article has been published by Niomie Wogan, Ruth Habibi, Lesley Fallowfield and Helena Harder from SHORE-C. The article is about the barriers for communication faced by d/Deaf people with cancer. Read it here: doi.org/10.1007/s005...
doi.org
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SHORE-C @shore-c.bsky.social · 23/07/2026
Researchers at SHORE-C have published a new article titled: Patient Understanding of Multiple Myeloma and Communication Experiences (PUMMaCE): Results From a UK Survey. Read it here: doi.org/10.1002/jha2...
doi.org
Patient Understanding of Multiple Myeloma and Communication Experiences (PUMMaCE): Results From a UK Survey
Introduction Multiple myeloma (MM) is a complex haematological cancer. The terminology used can make discussions more challenging. We designed an online patient survey to explore this area. Methods...
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SHORE-C @shore-c.bsky.social · 13/07/2026
A new article has been published at SHORE-C. Titled "Routine germline genetic testing in 3552 unselected NHS breast cancer patients: evidence informing testing criteria and implementation of a ‘BRCA-DIRECT’ mainstreaming pathway." Read it here: doi.org/10.1038/s415...
doi.org
Routine germline genetic testing in 3552 unselected NHS breast cancer patients: evidence informing testing criteria and implementation of a ‘BRCA-DIRECT’ mainstreaming pathway - npj Breast Cancer
npj Breast Cancer - Routine germline genetic testing in 3552 unselected NHS breast cancer patients: evidence informing testing criteria and implementation of a ‘BRCA-DIRECT’...
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SHORE-C @shore-c.bsky.social · 06/07/2026
A new article has been published by Dr. Sally Wheelwright. The article is a scoping review exploring prehabilitation in patients with low physical fitness undergoing colorectal cancer surgery. Read it here: doi.org/10.1016/j.bj...
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SHORE-C @shore-c.bsky.social · 17/06/2026
A new article has been published by Dr. Sally Wheelwright. The article is a scoping review exploring the acceptance of exercise prehabilitation in patients with colorectal cancer. You can read it here: doi.org/10.3390/anes...
doi.org
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SHORE-C @shore-c.bsky.social · 08/06/2026
A new article has been published by Dr.Sally Wheelwright. The article is a qualitative study on decision-making and information needs of patients and carers regarding nutrition in advanced cancer. You can read it here: doi.org/10.1371/jour...
doi.org
Parenteral nutrition in advanced cancer: A qualitative study on decision-making and information needs of patients and carers
Objectives To identify the information needs of people with advanced cancer, and their carers, to make an informed decision to commence or discontinue parenteral nutrition (PN). Methods Semi-structu...
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SHORE-C @shore-c.bsky.social · 26/05/2026
A new article has been published by members of SHORE-C: Professor Dame Lesley Fallowfield, Professor Valerie Jenkins and Dr. Helena Harder. The article covers the perceptions and experiences of abemaciclib and endocrine therapy for early breast cancer. You can read it here: doi.org/10.1080/1479...
doi.org
Perceptions and lived experiences with abemaciclib and endocrine therapy for early breast cancer: a rapid communication
This study explored perceptions and initial experiences of abemaciclib, a CDK4/6 inhibitor, plus endocrine therapy (ET) as adjuvant targeted therapy for early breast cancer with high risk of recurr...
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SHORE-C @shore-c.bsky.social · 13/05/2026
Researchers Lesley Fallowfield, Valerie Jenkins, Ivonne Solis-Trapala and Ruth Habibi have published a new article about communication workshops for HCPs working with breast cancer patients. You can read it here: doi.org/10.1016/j.br....
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SHORE-C @shore-c.bsky.social · 10/03/2026
SHORE-C’s Director Lesley Fallowfield is one of the authors of a new article on Biomarker recall and understanding among people living with metastatic breast cancer. You can read the full article at the link below: doi.org/10.1016/j.br...
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SHORE-C @shore-c.bsky.social · 06/03/2026
SHORE C is inviting women without a breast cancer diagnosis to join a focus group. The session will explore views on potential new treatments aimed at reducing future risk of developing breast and ovarian cancer. For more information, click the link shore-c.sussex.ac.uk/docs/PACIFiC...
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SHORE-C @shore-c.bsky.social · 22/01/2026
Research Assistant Niomie Wogan attended the UK Interdisciplinary Breast Cancer Symposium. She presented a poster on the workshop ‘HEARSAY’, for HCPs communicating with metastatic breast cancer patients. For more information, visit our website shore-c.sussex.ac.uk/posters/Hear...
Research Assistant Niomie Wogan poster presentation on communication workshop 'Have you ever said that?' which focuses on improving communication skills among healthcare professionals working with metastatic breast cancer patients.
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SHORE-C @shore-c.bsky.social · 15/09/2025
@sallywheelwright.bsky.social has a new article out in Cancer Medicine! Please read at the link below: doi.org/10.1002/cam4...
doi.org
Quality of Life in Adult Individuals Living With or at Risk of a Hereditary Cancer Predisposition Syndrome: A Scoping Review of the Qualitative Literature
Background The in-depth understanding of the impact of a hereditary cancer predisposition syndrome (HCPS) on the health-related quality of life (HRQOL) of individuals with a hereditary cancer burden.....
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SHORE-C @shore-c.bsky.social · 03/06/2025
SHORE-C researchers Sally Wheelwright, Val Shilling and Qi Ying Lean have published a new article in Discover Health Systems! You can read this article here: doi.org/10.1007/s442... @sallywheelwright.bsky.social
doi.org
The use of patient reported outcome measures in routine cancer clinical care: results from a freedom of information request - Discover Health Systems
Purpose Patient reported outcome measures (PROMs) are an effective method for monitoring cancer patients from diagnosis. We aimed to identify which NHS trusts in England are using PROMs in routine can...
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SHORE-C @shore-c.bsky.social · 12/05/2025
Principal Research Fellow Sally Wheelwright is a speaker and conference co-chair at the 6th EORTC Quality of Life in Cancer Clinical Trials Conference! She will be chairing and speaking at this Barcelona conference over the 12th and 13th May. Good luck to @sallywheelwright.bsky.social!
Researcher Sally Wheelwright presenting at the EORTC in Barcelona
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SHORE-C @shore-c.bsky.social · 28/04/2025
SHORE-C have two papers in the new edition of Springer's Supportive Care in Cancer journal! Congratulations to the authors @drhelenaharder.bsky.social, Rachel Starkings, @lfallowfield.bsky.social, Valerie Shilling and Shirley May. doi.org/10.1007/s005... doi.org/10.1007/s005...
doi.org
Incidence and management of diarrhoea associated with abemaciclib and endocrine therapy for hormone-receptor positive, HER2-negative metastatic breast cancer: the UK patients’ experiences - Supportive...
Purpose Addition of a CDK4/6 inhibitor to endocrine therapy (ET) prolongs survival in HR + /HER2-metastatic breast cancer (MBC). Gastrointestinal side effects, predominantly diarrhoea and abdominal pa...
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SHORE-C @shore-c.bsky.social · 28/04/2025
SHORE-C's director Prof Dame Lesley Fallowfield has provided video commentary for Medscape's "Transforming Treatment Pathways: Integrative Strategies in Palliative Care for Metastatic Breast Cancer" Please see the below link: www.medscape.com/viewarticle/...
medscape.com
Integrative Strategies in Palliative Care for MBC
The experts discuss integrative models in palliative care for MBC, highlighting the importance of multidisciplinary collaboration and personalized care strategies tailored to the individual’s needs.
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SHORE-C @shore-c.bsky.social · 09/04/2025
Today is the inaugural World Psycho-Oncology Day! Researchers from SHORE-C have been working in Psycho-Oncology since the 1980s and we hope this international recognition will lead to greater awareness of the need for psychosocial support in cancer care and the progress made in the last 40 years.
World psycho-oncology day logo
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SHORE-C @shore-c.bsky.social · 07/04/2025
@sallywheelwright.bsky.social has a new article out today! You can read "Flexibility in patient-reported outcome and health-related quality of life measurement: The EORTC Quality of Life Group measurement strategy" at the link below: doi.org/10.1016/j.ej...
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SHORE-C @shore-c.bsky.social · 03/04/2025
Researchers Dr Valerie Shilling and Rachel Starkings attended the BPOS 2025 Annual Conference this March. They presented a poster on their pilot study "Navigating Angry Conversations". For more information please see our website at shore-c.sussex.ac.uk/news.php
Dr Valerie Shilling presenting her poster at the BPOS conference
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SHORE-C @shore-c.bsky.social · 31/03/2025
SHORE-C's Principal Research Fellow Sally Wheelwright attended the EORTC Quality of Life Group meeting in Rotterdam 27th-28th March along with over 200 colleagues from across the globe. She presented findings from her EORTC-funded project to develop a curriculum for quality of life in oncology.
SHORE-C Researcher Sally Wheelwright at the EORTC 2025 Spring Meeting in Rotterdam
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SHORE-C @shore-c.bsky.social · 26/03/2025
SHORE-C's research team are busy this week presenting at both the EORTC Quality of Life Group Spring Meeting 2025 and the British Psychosocial Oncology Society annual conference! Wishing safe travels for Dr Sally Wheelwright (@sallywheelwright.bsky.social), Dr Valerie Shilling and Rachel Starkings!
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SHORE-C @shore-c.bsky.social · 26/03/2025
SHORE-C's Deputy Director Val Jenkins is one of the authors on this new paper: Sexual dysfunction in prostate cancer patients according to disease stage and treatment modality. You can read this at the link below! doi.org/10.1016/j.cl...
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SHORE-C @shore-c.bsky.social · 25/03/2025
Director Lesley Fallowfield has a new article available to read on JMG now! Titled: Uptake, utility and resource requirements of a genetic counselling telephone helpline within the BRCA-DIRECT digital pathway for mainstreamed BRCA testing in patients with breast cancer: jmg.bmj.com/content/earl...
jmg.bmj.com
Uptake, utility and resource requirements of a genetic counselling telephone helpline within the BRCA-DIRECT digital pathway for mainstreamed BRCA testing in patients with breast cancer
Background We trialled the first digital pathway (BRCA-DIRECT) aiming to improve capacity for mainstreamed BRCA testing within UK breast oncology services. Patients received standardised digital prete...
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SHORE-C @shore-c.bsky.social · 25/03/2025
SHORE-C has published a new article! Improving patient understanding of GEP test results (IMPARTER4): an RCT, can be found online at this link: bmjoncology.bmj.com/content/4/1/...
bmjoncology.bmj.com
Improving patient understanding of GEP test results (IMPARTER4): an RCT
Objective Explaining gene expression profiling (GEP) test results to patients can be challenging. We examined the utility of two 8 min films about Oncotype DX and Prosigna to aid the knowledge and dec...
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Reposted by SHORE-C
Sally Wheelwright @sallywheelwright.bsky.social · 13/03/2025
Read our new article about why ePROMs should be in England's National Cancer Plan authors.elsevier.com/a/1klhP7tJED... You have until the end of April to respond to the call for evidence www.gov.uk/government/c...
authors.elsevier.com
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SHORE-C @shore-c.bsky.social · 05/02/2025
SHORE-C is happy to join BlueSky. For more information about us and our research, see our website - shore-c.sussex.ac.uk
shore-c.sussex.ac.uk
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