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scottcapozza.bsky.social

@scottcapozza.bsky.social
76 followers 36 following 52 posts

Board certified In Oncology Physical Therapy; AYA cancer survivor & advocate; ascopubs.org/doi/10.1200/OP.23.00798

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scottcapozza.bsky.social @scottcapozza.bsky.social · 08/07/2026
We can always call them out and ask them what credibility they actually have; what degree do they have? What peer-reviewed evidence can they produce to back up their claims? We need to call them out at their own game. #ayacsm
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scottcapozza.bsky.social @scottcapozza.bsky.social · 08/07/2026
A3. Those of us that are credible sources of information need to directly call it out and back it up with the evidence. #ayacsm
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scottcapozza.bsky.social @scottcapozza.bsky.social · 08/07/2026
#ayacsm
static.klipy.com
Avengers Assemble with Thor
ALT: Avengers Assemble with Thor
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scottcapozza.bsky.social @scottcapozza.bsky.social · 08/07/2026
#ayacsm
static.klipy.com
Kramer Says That's True (Seinfeld)
ALT: Kramer Says That's True (Seinfeld)
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scottcapozza.bsky.social @scottcapozza.bsky.social · 08/07/2026
A2. Having enough qualified healthcare providers generating the real information. There are some good ones out there (Dr. Eleonora Teplinsky is great), but most providers are so busy and overworked that they don’t have time to creative credible content #ayacsm
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scottcapozza.bsky.social @scottcapozza.bsky.social · 08/07/2026
Right there with you #ayacsm
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scottcapozza.bsky.social @scottcapozza.bsky.social · 08/07/2026
…and AYAs are especially susceptible to this as this current generation of AYAs are digital natives; they consume all their info online…which opens up the door for misinformation #ayacsm
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scottcapozza.bsky.social @scottcapozza.bsky.social · 08/07/2026
I think the misinformation fills the void of fragmented cancer care, at least here in US. Oncologists aren’t trained and don’t have time to talk about nutrition, exercise and mental health, so survivors will seek this info out wherever they can find it #ayacsm
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scottcapozza.bsky.social @scottcapozza.bsky.social · 08/07/2026
A little late signing in… I’m Scott, I’m now officially an AARP AYA since I turned 50 (!!) in May. Long time testicular cancer survivor who also is an oncology physiotherapist in CT, USA . #ayacsm
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scottcapozza.bsky.social @scottcapozza.bsky.social · 08/07/2026
A1. Influencers trying to profit off the desperation of cancer survivors trying to live well; which is amplified by the lack of information they get from their oncology teams/lack of survivorship care #ayacsm
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scottcapozza.bsky.social @scottcapozza.bsky.social · 08/04/2026
You too Darcy! Hopefully soon our paths will cross IRL #ayacsm
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scottcapozza.bsky.social @scottcapozza.bsky.social · 08/04/2026
A4. That AYAs are not pediatric patients, and not older adults. The impact on our social, physical and financial development is significantly impacted by a cancer diagnosis. And we have to manage the physical and emotional toll of treatment for the the balance of our (hopefully long) lives #ayacsm
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scottcapozza.bsky.social @scottcapozza.bsky.social · 08/04/2026
A3. As stated a moment ago, there are lots of great orgs in the AYA space and each has found a niche within a niche population. We appreciate them all. Now, there needs to be a pooling of resources and energy from these orgs to collectively raise their voices/strive for change #ayacam
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scottcapozza.bsky.social @scottcapozza.bsky.social · 08/04/2026
Agreed. Lots of great orgs out there; need them tk come together to become the AYA Avengers #ayacsm
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scottcapozza.bsky.social @scottcapozza.bsky.social · 08/04/2026
The AYA population is growing, which means there will be an increased demand for their healthcare needs as we/they (hopefully) have decades of life ahead of us, which will result in an increased strain on healthcare resources; recognize the issues early on, save $$ later #ayacsm
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scottcapozza.bsky.social @scottcapozza.bsky.social · 08/04/2026
This is a great idea. Nurses and APPs are the ones who truly can connect with AYAs. #ayacsm
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scottcapozza.bsky.social @scottcapozza.bsky.social · 08/04/2026
Agreed. #ayacsm
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scottcapozza.bsky.social @scottcapozza.bsky.social · 08/04/2026
A2. Get in front of the change makers — government officials, hospital leadership — because they are the ones that control the dollars/currency to make appreciable change #AYACSM
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scottcapozza.bsky.social @scottcapozza.bsky.social · 08/04/2026
Yes, and it’s exhausting not just for those of us in the field advocating for AYAs…it’s also exhausting for AYAs to have to keep advocating for themselves #AYACSM
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scottcapozza.bsky.social @scottcapozza.bsky.social · 08/04/2026
I was on the @teencanceramerica.bsky.social presentation today, and per their survey results: 62% of AYAs reported getting NO age appropriate resources. That’s a failure of the healthcare system, especially high up to make sure providers are trained to ask the ?s and refer as appropriate #ayacsm
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scottcapozza.bsky.social @scottcapozza.bsky.social · 08/04/2026
A1. The needs of AYAs are unique to this age group and highly complex; yet providers do it feel adequately trained to address these concerns, thus the need to elevate the call of awareness and specialized training to meet their needs #ayacsm
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scottcapozza.bsky.social @scottcapozza.bsky.social · 08/04/2026
I’m Scott, I’m an aging AYA (about to officially become an AARP AYA next month). I’m also an oncology physiotherapist, I worwith patients with cancer (esp. the AYA population) to regain their strength, endurance and confidence back in their bodies. #ayacsm
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Reposted by @scottcapozza.bsky.social
Dr. Emily Drake @emilydrake.ca · 04/03/2026
Mark your calendars! The next chat takes place on April 7th during GLOBAL #AYACSM week!!!! #AYACancerAwareness #BTSM #BCSM #LCSM #GYNCSM #ChildhoodCancer
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scottcapozza.bsky.social @scottcapozza.bsky.social · 04/03/2026
Also, I’m too old to try to learn a new SM platform 😆 #AYACSM
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scottcapozza.bsky.social @scottcapozza.bsky.social · 04/03/2026
A4. Finding our fellow advocates; I just connected with another AYA survivor on LinkedIn today who is doing great work specifically addressing sexuality and intimacy in cancer survivorship. The more we can connect and use our voices collectively and collaboratively, the stronger the message #AYACSM
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scottcapozza.bsky.social @scottcapozza.bsky.social · 04/03/2026
I see it #AYACSM
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scottcapozza.bsky.social @scottcapozza.bsky.social · 04/03/2026
A3. Guilty as charged as a GenXer here…what are social media tools? #AYACSM
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scottcapozza.bsky.social @scottcapozza.bsky.social · 04/03/2026
The other challenge is that, wearing both hats, I have this professional & personal responsibility to speak up against social injustices as well as the misinformation and flat-out lies my government is putting out there. I’m happy to do it; it’s necessary to do it; but it’s also exhausting #AYACSM
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scottcapozza.bsky.social @scottcapozza.bsky.social · 04/03/2026
And I agree with you @warriormegsie.bsky.social, I’m becoming more discouraged at my healthcare colleagues who don’t speak up against racism, bigotry, and hate that has also accompanied the massive cuts to cancer research. I’m sad, mad and disappointed in them. #AYACSM
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scottcapozza.bsky.social @scottcapozza.bsky.social · 04/03/2026
A2. Here in the US, healthcare has become increasingly a political issue and advocating for all cancer survivors, including the AYA population, runs the risk of being singled out as ‘woke’ and potentially putting a target on our backs for speaking up and speaking out #AYACSM
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scottcapozza.bsky.social @scottcapozza.bsky.social · 04/03/2026
A1. Instagram and LinkedIn. More of my social friends are on Instagram, whereas LinkedIn is more of my professional colleagues and connections. Gotta advocate for AYAs in both worlds. #AYACSM
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scottcapozza.bsky.social @scottcapozza.bsky.social · 04/03/2026
I’m Scott. I’m an AARP AYA (dx’d at 22, have since aged out of the 18-39 window but very much dealing w/ the late effects of tx). I’m a board certified oncology physiotherapist in CT where I help AYAs maintain/regain their strength back. #AYACSM
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scottcapozza.bsky.social @scottcapozza.bsky.social · 07/01/2026
Very true @warriormegsie.bsky.social. So maybe having a discussion about long term (10 years and beyond) survivorship is helpful. Oh, and welcome to the Double Digits of Survivorship Club! #AYACSM
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scottcapozza.bsky.social @scottcapozza.bsky.social · 07/01/2026
A4. - return to work/school (could address disability here) - how to become an AYA advocate - exercise and rehab (😉) #AYACSM
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scottcapozza.bsky.social @scottcapozza.bsky.social · 07/01/2026
I dream big. #ayacsm
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scottcapozza.bsky.social @scottcapozza.bsky.social · 07/01/2026
A3. - ⬆️’d access to clinical trials - ⬆️’d access to services for rural and others who are nowhere close to the cancer center they were treated at - integrating AYA education (as in, the who/what/why of AYAs) into social work and other health care education programs at the university level #ayacsm
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scottcapozza.bsky.social @scottcapozza.bsky.social · 07/01/2026
Yup. 2 years ago I went & presented a poster on behalf of our breast center. Last year I went b/c I was the patient perspective on a panel. Wearing both hats ⬆️’s my ability to advocate for AYAs in different capacities…but sometimes I forget which hat I’m supposed to be wearing for an event #ayacsm
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scottcapozza.bsky.social @scottcapozza.bsky.social · 07/01/2026
Agreed #ayacsm
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scottcapozza.bsky.social @scottcapozza.bsky.social · 07/01/2026
A2. Debating if I should go to #ASCO26 specifically as a patient advocate. I’ve kind of gone 2x already in that role, and @ascocancer.bsky.social has put together an AYA workgroup that I attended last year. Hard when I’m balancing both the personal and professional aspects of advocacy. #ayacsm
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scottcapozza.bsky.social @scottcapozza.bsky.social · 07/01/2026
Hi Megsie! Congrats on your poster! #ayacsm
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scottcapozza.bsky.social @scottcapozza.bsky.social · 07/01/2026
A1: to make sure that fellow cancer survivors (and the general public as well) get credible, evidence based information amongst all the misinformation that’s out there. Oh, and travel more as well 😁 #ayacsm
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scottcapozza.bsky.social @scottcapozza.bsky.social · 07/01/2026
I’m Scott, I am now an AARP AYA (have since aged out of the 18-39 age bracket); was dx’d at 22 y/o w/ testicular cancer; now work as an oncology physiotherapist and AYA/rehab/survivorship advocate. #ayacsm
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Reposted by @scottcapozza.bsky.social
Lauren Ghazal, PhD, FNP-BC @lghazal.bsky.social · 24/02/2025
Any supervisors of cancer survivors on here? We’re in a final push for recruiting supervisors and HR professionals for this study. #ayacsm
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scottcapozza.bsky.social @scottcapozza.bsky.social · 14/02/2025
Had a bit of a fanboy moment meeting @fumikochino.bsky.social tonight. Thanks for meeting me and introducing me to Vietnamese food!
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scottcapozza.bsky.social @scottcapozza.bsky.social · 05/02/2025
No, that was me being distracted changing my flight for a conference next week 🤣. #ayacsm
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scottcapozza.bsky.social @scottcapozza.bsky.social · 05/02/2025
A2. Like the rest of the world, it’s ever evolving. Don’t know how many AYA patients & their caregivers are on this platform yet. TikTok died, now it’s back (I think?!). Might have to get a new qualitative study out there to see where they’re at and where they are getting their info. #ayacsm
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scottcapozza.bsky.social @scottcapozza.bsky.social · 05/02/2025
I think, regardless of the medium we use to reach them, that we as the advocates/researchers/clinicians are real and authentic in presenting information. They don’t want a bunch of BS; talk with them, not at them. #ayacsm
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scottcapozza.bsky.social @scottcapozza.bsky.social · 05/02/2025
media.tenor.com
snoop dogg is wearing a top hat and bow tie and says fo shizzle
ALT: snoop dogg is wearing a top hat and bow tie and says fo shizzle
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scottcapozza.bsky.social @scottcapozza.bsky.social · 05/02/2025
A1. In no particular order: - knowing where to get credible news & research updates; - continuing to advocate for our AYAs; - find the balance between being informed & being overwhelmed #ayacsm
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scottcapozza.bsky.social @scottcapozza.bsky.social · 05/02/2025
Ok, here goes… I’m Scott, I’m an AARP AYA (I’m now north of 40, but have the late effects that so many AYAs deal with). I’m also an oncology certified physiotherapist who works with AYAs (and anyone going through cancer treatment). Thanks Emily for getting this going here! #ayacsm
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