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Rob Camp

@robcamp.bsky.social
18 followers 15 following 450 posts

patient advocacy, patient engagement, patient education, collaboration

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Rob Camp @robcamp.bsky.social · 29/09/2026
Talking about our paper recently published in Research Engagement and Involvement, is the first in hopefully many analysis papers on how we as patients can contribute to the medical research paradigm. Full paper at: link.springer.com/article/10.1...
link.springer.com
Evaluation of the methodology of independent Community Advisory Boards in health products research and development: a mixed-methods cross-sectional survey study - Research Involvement and Engagement
Background EUPATI Spain and EURORDIS have implemented a patient engagement model in health product research and development (R&D): international, independent Community Advisory Boards (CABs), where pa...
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Rob Camp @robcamp.bsky.social · 26/09/2026
A Shrinking Work Force Is Changing the C.D.C. www.nytimes.com/video/us/100...
nytimes.com
Video: A Shrinking Work Force Is Changing the C.D.C.
The Centers for Disease Control and Prevention has lost close to 30 percent of its staff in the past year, with big turnover in top leadership and entire teams effectively shut down. Our health report...
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Rob Camp @robcamp.bsky.social · 05/09/2026
These Generals Fought for Israel. Now They See ‘Jewish Terrorism’ as the Threat. www.nytimes.com/2026/08/31/w...
nytimes.com
These Generals Fought for Israel. Now They See ‘Jewish Terrorism’ as the Threat.
A growing number of former Israeli generals, intelligence officials and prime ministers are accusing settlers in the West Bank of committing ethnic cleansing with government support. “Once a society b...
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Rob Camp @robcamp.bsky.social · 04/09/2026
Dolly Parton dies aged 80 — researchers celebrate her contributions to science www.nature.com/articles/d41...
nature.com
Dolly Parton dies aged 80 — researchers celebrate her contributions to science
The country singer was an advocate for vaccines, public health, literacy and marginalized communities.
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Rob Camp @robcamp.bsky.social · 02/09/2026
Will Meta’s deal make social media safe for kids? Researchers are dubious www.nature.com/articles/d41...
nature.com
Will Meta’s deal make social media safe for kids? Researchers are dubious
Nature talks to specialists about the changes coming to Facebook and Instagram, and whether there’s evidence they will help.
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Rob Camp @robcamp.bsky.social · 13/08/2026
OK, so how many people may DOGE have hurt or worse? #thankselon www.thelancet.com/journals/lan...
thelancet.com
Evaluating the impact of two decades of USAID interventions and projecting the effects of defunding on mortality up to 2030: a retrospective impact evaluation and forecasting analysis
USAID funding has significantly contributed to the reduction in adult and child mortality across low-income and middle-income countries over the past two decades. Our estimates show that, unless the a...
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Rob Camp @robcamp.bsky.social · 10/08/2026
Holding Dr. Fauci In Contempt - A New Low For the Rule of Law - in the end, no one country did particularly better than any other and we all followed more or less the same rules. There's something vindictive in this anti-Fauci thing, maybe homophobic (AIDS successes) msmagazine.com/2026/08/07/f...
msmagazine.com
Holding Dr. Fauci In Contempt Is a New Low For the Rule of Law
Senate’s contempt vote against Anthony Fauci reflects a campaign of retaliation against scientists, public health officials and lessons of COVID-19.
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Rob Camp @robcamp.bsky.social · 07/08/2026
Can these 8 Republicans be held in contempt of science? #shameshameshame www.nytimes.com/2026/08/06/u...?
nytimes.com
Senate Panel Votes to Hold Fauci in Contempt of Congress
Dr. Anthony Fauci had refused to answer questions at a hearing last week, invoking the Fifth Amendment. Republicans argued he wasn’t entitled to that protection because he had a presidential pardon.
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Rob Camp @robcamp.bsky.social · 06/08/2026
In case you need more ammunition (terrible analogy!) Thanks, CIDRAP! www.cidrap.umn.edu/childhood-va...
cidrap.umn.edu
No link between MMR vaccination before age 2 and autism, large US study suggests
The findings reinforce existing evidence of the safety of MMR vaccination, the authors say.
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Rob Camp @robcamp.bsky.social · 06/08/2026
Can I re-direct to LinkedIn? The UN on AI. An important and SIMPLE first step. www.linkedin.com/pulse/its-ti...
linkedin.com
“It’s time to come clean.” UN Secretary-General outlines risks and opportunities of a future with AI
United Nations Secretary-General António Guterres has urged world leaders, technology companies, and others to work together to ensure the safe use of Artificial Intelligence. The Secretary-General wa...
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Daniel Dvorkin @danielmedic.bsky.social · 06/08/2026
Because of course they did. ⚕️🧪🧵
reuters.com
US Senate panel votes to hold Fauci in contempt of Congress
A U.S. Senate committee voted on Thursday to hold Dr. Anthony Fauci in contempt of Congress after the former top U.S. infectious ​disease official refused to answer questions about his handling of the...
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Rob Camp @robcamp.bsky.social · 06/08/2026
The other shoe drops! That's why we are trying to excoriate Fauci again. Don't they get tired of all this nonsense? www.politico.com/news/2026/08...
politico.com
A lab-leak proponent is in line for Fauci’s old job
Steven Quay is in final vetting to run the National Institute of Allergy and Infectious Diseases.
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Rob Camp @robcamp.bsky.social · 06/08/2026
Whatever the reason(s) for the Ceuta situation last week, Europe needs to support its partners, not like von der Leyen. Her party, the PP, is part of the problem and hooks its fate to the far right whenever possible. www.theguardian.com/world/2026/a...?
theguardian.com
Spain’s Pedro Sánchez is a progressive outlier in Europe – and over Ceuta, he is being made to pay for it | Eoghan Gilmartin
The Spanish PM has been one of few European leaders to stand up to Trump. He now faces coercive diplomacy and an emboldened far right at home, says journalist Eoghan Gilmartin
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Rob Camp @robcamp.bsky.social · 04/08/2026
Do I believe it? We went through this with Abbott (when Abbvie was Abbott) 30 years ago, and they gave us all the right sounds (patients first, blah blah blah), and here we are again. Should I have hope that this time they (ALL PHARMA) mean it? www.clinicalleader.com/doc/patients...?
clinicalleader.com
Patients Should Shape Trials Before Protocols Are Finalized
Leida Bowen explains how patient councils and early community input can inform protocol design, reduce burden, and ensure trials reflect patient needs before study execution begins.
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ladactilografa.bsky.social @ladactilografa.bsky.social · 30/07/2026
Un muro de arena y miles de nuevos asesinatos en Gaza evidencian el fracaso del plan de paz de Trump www.publico.es/internaciona...
publico.es
Un muro de arena y miles de nuevos asesinatos en Gaza evidencian el fracaso del plan de paz de Trump
La falta de compromiso de Benjamín Netanyahu con el proyecto político e inmobiliario del presidente de EEUU para el enclave palestino ha hecho encallar el plan en su fase 2.
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Rob Camp @robcamp.bsky.social · 30/07/2026
The AIDS conference is on now, maybe some of this sh!t gets answered! Also, a bit of an aside, but why so few men in this fight? #menstandingup www.science.org/content/arti...?
science.org
This drug could help end the HIV epidemic. Its rollout has hit speed bumps
One shot of lenacapavir can protect for 6 months—but aid cuts and uncertain demand mean little drug has reached the countries that most need it
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Rob Camp @robcamp.bsky.social · 30/07/2026
Are you surprised? Not mois! #shame www.reuters.com/world/africa...
reuters.com
US government map of Africa mislabels every country at global conference
A U.S. government map of Africa mislabeled every country during a State Department presentation at ‌a global conference taking place in Brazil this week, causing a stir among attendees who took screen...
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Rob Camp @robcamp.bsky.social · 25/07/2026
Why do they say at the end that Spain has never engendered someone like Messi? Sure, maybe wherever he landed he would have done what he did, but it was Barcelona who helped him do it, ie, the Spanish system (also, Atlético). Maybe two different articles!? www.theguardian.com/football/202...?
theguardian.com
Spain’s system subdues a team built on the irrational magic of Messi’s lone genius | Barney Ronay
The route to this World Cup victory involved beating the other 2022 finalist and then suffocating Argentina as they dried out in the sun
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Rob Camp @robcamp.bsky.social · 23/07/2026
Thanks again to the heinous horse manure machine that is #rfkjr #whathaveyoudoneforyourcountrytoday
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Richard Kadrey @richardkadrey.bsky.social · 23/07/2026
There are always options
Colman Domingo: I have a message for everyone who is upset about diversity in The Odyssey. If you want to see a film with a cast of all white people who are cursed by the gods, the Melania movie is currently streaming.
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Rob Camp @robcamp.bsky.social · 23/07/2026
Oh, I misunderstood! I thought Pete would personally test each erection to see if it needed T. My bad... #kegsbreath www.lawdork.com/p/reyes-hegs...?
lawdork.com
Federal judge questions Hegseth's "High-T" military plan in light of Trump's anti-trans ban
Judge Ana Reyes wants to know "the Department’s basis for treating trans men and other service members differently."
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Rob Camp @robcamp.bsky.social · 23/07/2026
Sorry, another delivery of horse manure... no pun intended #thanksrfk www.nytimes.com/2026/07/21/w...?
nytimes.com
Cyclospora Cases in the U.S. Hit Record High
Federal health officials have confirmed another 2,500 cases of the parasitic infection.
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Rob Camp @robcamp.bsky.social · 23/07/2026
Where can I drop off this load of horse manure? #wuhandidnotdoit kffhealthnews.org/public-healt...?
kffhealthnews.org
American Scientists See Prosecutions as Part of Federal Campaign Against Them - KFF Health News
Federal officials charged two virologists they stopped en route from an African disease outbreak with violating import rules. But scientists tell KFF Health News the inactivated samples they carried p...
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Rob Camp @robcamp.bsky.social · 20/07/2026
Wow! Turning from Lassie to a rabid mongrel was easy! www.science.org/content/arti...?
science.org
U.K. government details plan for dramatic aid cuts to African nations
Some countries face reductions of more than 90%, new report reveals, raising fears of devastating impacts on global health and education
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Rob Camp @robcamp.bsky.social · 16/07/2026
Tourists go home. Tipping point reached... #invasionofthecitysnatchers
barcelona.cat
Barometer 2026: most people in the city agree with getting rid of licences for tourist lets
The latest Barcelona Barometer shows ample support among the people of Barcelona for the measure to reduce tourist pressure given the housing crisis. Conducted by Department of Opinion Studies at the ...
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Rob Camp @robcamp.bsky.social · 26/06/2026
Let's go, Europe! www.nature.com/articles/d41...?
nature.com
Europe must seize the moment to lead on free and open science
An under-appreciated research powerhouse, Europe has a responsibility to champion democratic science that is accessible to all the world’s research talent.
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Rob Camp @robcamp.bsky.social · 26/06/2026
Sad story repeated time and again because (return on investment for) stockholders is the ONLY stakeholder pharma cares about. #breakingthebank #pricemanagement #humanepricing theconversation.com/friday-essay...?
theconversation.com
Friday essay: I had to crowdfund my cancer treatment in Australia’s ‘universal’ health-care system
Too many Australians affected by cancer are being financially ruined or receiving sub-optimal (or no) care, due to cost or distance – and it’s everyone’s problem.
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Rob Camp @robcamp.bsky.social · 26/06/2026
The power of vaccines! www.newscientist.com/article/2530...?
newscientist.com
Cervical cancer deaths have plummeted thanks to HPV vaccine
We already know the vaccine against human papillomavirus, or HPV, greatly reduces infections and cases of cervical cancer, and now we have the first evidence it prevents deaths too
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Rob Camp @robcamp.bsky.social · 22/06/2026
Once again! 👍 www.bbc.com/news/article...?
bbc.com
HPV vaccine means young women now have 'close to zero' risk of cervical cancer death
A new study finds that hundreds of lives have been saved since school-age girls were offered the HPV jab in 2008.
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Rob Camp @robcamp.bsky.social · 18/06/2026
This isn't exactly science, better said it's anti-science thehill.com/policy/healt...
thehill.com
Trump admin paying thousands of dollars per month to store ruined USAID contraceptives
Millions of dollars’ worth of contraceptives meant to be distributed to low-income nations in Africa have expired, but the Trump administration is paying tens of thousands of dollars a month …
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Rob Camp @robcamp.bsky.social · 18/06/2026
Can you wait 18 months til your next safe sex? www.independent.ie/irish-news/h...
independent.ie
Delays of up to 18 months for HIV prevention drug PrEP in some areas
Urgent referrals are provided with an appointment within three months, but nearly half of public providers are not meeting standards for self-referrals
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Rob Camp @robcamp.bsky.social · 18/06/2026
Where's the problem? Do it already, Gilead! prezly.msf.org.uk/msf-game-cha...
prezly.msf.org.uk
MSF: Game-changing HIV prevention medicine must be available for USD40 per year, everywhere
17 June 2026 - Médecins Sans Frontières/Doctors Without Borders (MSF) launched a campaign today demanding that the US-based pharmaceutical...
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Rob Camp @robcamp.bsky.social · 18/06/2026
If you counted all the non-legal workers also, wow! I am one of the 26%, and I had no idea! www.barcelona.cat/internationa...?
barcelona.cat
Barcelona, among the top five start-up hubs in the European Union
The capital of Catalonia ranks fifth in Europe in the international StartupBlink ranking for the third year in a row, cementing its position as one of the leading entrepreneurial and tech ecosystems o...
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Rob Camp @robcamp.bsky.social · 17/06/2026
Un artículo "alarmante" sin detalles útiles (¿qué es exactamente "cambiar la ruta" de las infecciones sexuales, sin ir más allá?) espanol.medscape.com/viewarticle/...
espanol.medscape.com
España en el radar: infecciones de transmisión sexual, cambio climático y alzhéimer
El Ministerio de Sanidad ha publicado una hoja de ruta para frenar el aumento de infecciones de transimisión sexual y Cataluña lidera una investigación para tratar el azlhéimer mediante derivación lin...
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Rob Camp @robcamp.bsky.social · 10/06/2026
Another foot in the mouth by another medical society. What gives? Diabetes Association in uproar after members expelled from annual meeting over protest of NIH cuts www.statnews.com/2026/06/09/a... via @statnews.com
statnews.com
Diabetes Association in uproar after members expelled from annual meeting over protest of NIH cuts
The condemnations keep coming after five diabetes experts were escorted out of an ADA meeting for handing out copies of an editorial criticizing federal research cuts.
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Rob Camp @robcamp.bsky.social · 07/06/2026
That's a wrap! Another successful year of patient education at Open Academy! #eurordis #openacademy #erdera erdera.org/news/open-ac...
erdera.org
Open Academy x ERDERA Schools in Barcelona strengthen practical links between patient advocacy and rare disease research - ERDERA
The 2026 Open Academy x ERDERA Schools in Barcelona brought patient advocates and early-career researchers together for practical training on medicines development, translational research and meaningf...
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Rob Camp @robcamp.bsky.social · 04/05/2026
Patients Leading the Way: How Community Advisory Boards Are Changing Medical Research Full paper at: lnkd.in/ehHxqAFC CABs are independent and measure success transparently. The result? Better treatments, faster access, and a system that works for everyone. link.springer.com
lnkd.in
LinkedIn
This link will take you to a page that’s not on LinkedIn
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Rob Camp @robcamp.bsky.social · 30/04/2026
Patient involvement in research. Tomorrow’s a holiday, you have ALL weekend to read it! Enjoy! 👉 measuring something rarely quantified in patient engagement: who participates, and how meaningfully. 📄 link.springer.com/article/10.1... #PatientEngagement #ClinicalResearch #EUPATIEspaña #EURORDIS
link.springer.com
Evaluation of the methodology of independent Community Advisory Boards in health products research and development: a mixed-methods cross-sectional survey study - Research Involvement and Engagement
Research Involvement and Engagement - EUPATI Spain and EURORDIS have implemented a patient engagement model in health product research and development (R&D): international, independent...
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Félix Bolaños @felixbolanosg.bsky.social · 23/04/2026
La amnesia colectiva del PP: no se acuerdan de la Operación Kitchen ni de lo que es la prioridad nacional, que la han pactado hace tres días. Pero no, no olvidamos que usaron el Ministerio del Interior para tapar los delitos que ellos mismos cometían.
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Ess Creek 🌻🌻🌈🏳️‍🌈💙 @esscreek.bsky.social · 23/04/2026
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The Mouthy Renegade Writer @mouthyrenegade.bsky.social · 22/04/2026
HAHAHA! That response killed me. And it's so damn true.
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Dennis @jedclampett.bsky.social · 23/04/2026
Things were so normal before he was allowed into politics…..
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POLITICO Europe @politico.eu · 23/04/2026
A small municipality in Albania’s capital city has welcomed its newest resident: former New York City Mayor Eric Adams, who has also become a fully fledged citizen. But a central question remains: Why? 🔗 www.politico.eu/article/behi...
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Rob Camp @robcamp.bsky.social · 23/04/2026
WTFF? #resist theintercept.com/2026/04/06/a...?
theintercept.com
An American Company Drilled for Oil in Kenya — and Left Behind Soaring Cancer Rates
Amoco, now part of BP, never cleaned up after its failed oil prospecting mission. Rural Kenyans are suing for a right to a clean environment.
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Aaron Rupar @atrupar.com · 20/04/2026
Ossoff: "How does American politics really work? It's coin operated. Money goes in, favors come out. It's been running on secret money, corporate money, billionaire money ... all of this gave rise to a depraved president who exploits this rot to empower and enrich himself"
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Diario Público @publico.es · 20/04/2026
❗Luis Bárcenas confirma que Mariano Rajoy estaba al tanto de la 'caja b' del PP
diario.publico.es
Bárcenas confirma que Mariano Rajoy estaba al tanto de la 'caja b' del PP
El extesorero del Partido Popular declara en el juicio por la 'operación Kitchen' como perjudicado.
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Phil Lewis @phillewis.bsky.social · 20/04/2026
"The average taxpayer in 2025 paid: $4,049 for weapons and war, vs. $2,492 for Medicaid, which provided health insurance to 68.5 million Americans in 2025 — about one in five Americans."
ips-dc.org
Tax Day 2026: The Average Taxpayer Paid $4,049 for War and Weapons - Institute for Policy Studies
Tax Day 2026: The Average Taxpayer Paid $4,049 for War and Weapons
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Pam🫘🧶💙🏳️‍🌈🐸 #NoKings🚫👑 @pmmcdaniel.bsky.social · 19/04/2026
The real heroes of the Epstein story
open.substack.com
The real heroes of the Epstein story
The four women who were the first to go public
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therealdipor @dipor.bsky.social · 19/04/2026
Cojones como pianos The Strokes, que acabaron así su actuación en el segundo fin de semana de Coachella
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Nina Antonia @ninaantonia13.bsky.social · 19/04/2026
Happy 80th birthday to the fab Tim Curry, pictured with Rocky Horror creator, Richard O'Brien as Riff Raff & Patricia Quinn as Magenta. I once interviewed O'Brien who said that Frank n' Furter was a reflection of his own diverse sexuality. For moderns who like absolutes -sometimes there aren't any.
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