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rFSGS Initiative @rfsgsinitiative.bsky.social · 31/03/2025

As #KidneyMonth2025 ends, we want to hear from you all on what continues to inspire you and provide hope for a future where a cure for #rFSGS exists! Let us know your thoughts and experiences in the comments below. ⬇️ #rFSGSConference #KidneyTransplant #nephsky #medsky #skyneph

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rFSGS Initiative @rfsgsinitiative.bsky.social · 27/03/2025

Focal segmental glomerulosclerosis impacts the kidneys & is a major cause of kidney failure requiring dialysis or a #KidneyTransplant. When receiving a transplant, patients with FSGS experience recurrence of disease in up to 40% of cases—called recurrent FSGS. #KidneyMonth #rFSGS #rFSGSConference

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David Koch Jr. Glomerular Kidney Center @cuimcglomcenter.bsky.social · 13/03/2025

Happy Thursday! Less than a month left to register for the IgAN Diagnosis & Treatment Updates 2025 on April 4th. Feel free to register using the following link: www.eventleaf.com/e/...

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rFSGS Initiative @rfsgsinitiative.bsky.social · 23/03/2025

Once FSGS reoccurs after a #KidneyTransplant, there are limited treatment options & currently no definitive cure. Follow us to stay updated on the latest news about #rFSGS research & join our Facebook group: www.facebook.com/groups/57871... #KidneyMonth #rFSGSConference #nephsky #medsky #skyneph

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rFSGS Initiative @rfsgsinitiative.bsky.social · 17/03/2025

Building a biobank is key to finding new treatments for Recurrent Focal Segmental Glomerulosclerosis. If you or someone you know has #rFSGS and you want to learn how you can help by providing a biosample, email mb5150@cumc.columbia.edu. #KidneyMonth #KidneyTransplant #nephsky #medsky #skyneph

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rFSGS Initiative @rfsgsinitiative.bsky.social · 13/03/2025

It’s #WorldKidneyDay! We want to spread hope & encouragement to those impacted by #rFSGS. The rFSGS Initiative is connected to doctors all over the world who are uniting with the community to find a cure. #KidneyMonth #KidneyMonth2025 #rFSGSConference #KidneyTransplant #nephsky #medsky #skyneph

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rFSGS Initiative @rfsgsinitiative.bsky.social · 11/03/2025

Stay connected with attendees from the past #rFSGSConference, meet others who have been impacted by #rFSGS, and share your experiences in our Recurrent FSGS Community Facebook group: www.facebook.com/groups/57871... #KidneyMonth #KidneyMonth2025 #KidneyTransplant #nephsky #medsky #skyneph

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rFSGS Initiative @rfsgsinitiative.bsky.social · 06/03/2025

Flashback to our #rFSGSConference in December! We brought together patients, researchers, physicians, & representatives who share a common interest in fighting against #rFSGS. Stay tuned! #KidneyMonth #KidneyMonth2025 #KidneyTransplant #nephsky #medsky #skyneph @genetickidneydoc.bsky.social

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rFSGS Initiative @rfsgsinitiative.bsky.social · 04/03/2025

Happy National #KidneyMonth! We're shining a light on Recurrent Focal Segmental Glomerulosclerosis (rFSGS)—a #RareDisease that impacts the kidneys. If you or someone you know has #rFSGS, follow us for news & updates. #rFSGSConference #KidneyTransplant #KidneyMonth2025 #nephsky #medsky #skyneph

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rFSGS Initiative @rfsgsinitiative.bsky.social · 20/12/2024

Thank you for joining us for the wonderful #rFSGSConference last week in Washington, DC! We look forward to being in touch with you all soon! #rFSGS

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rFSGS Initiative @rfsgsinitiative.bsky.social · 09/12/2024

At today's #rFSGSConference, we're connecting patients, families, doctors, researchers, funders, & political leaders to raise awareness of #rFSGS. The engaging stories told by patients & caregivers have inspired hope for many attendees. 💙💚

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Matt Sampson @kidneyomicsamps.bsky.social · 09/12/2024

It’s wonderful that the @rfsgsinitiative.bsky.social conference has two sessions dedicated to stories from patients & families. We are so grateful to hear the perspectives of these courageous & generous individuals @genetickidneydoc.bsky.social @opeyemiolabisi.bsky.social @gbadegesinlab.bsky.social

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Matt Sampson @kidneyomicsamps.bsky.social · 09/12/2024

A clear and stirring mission statement for the @rfsgsinitiative.bsky.social from an inspiring video that opened the session @genetickidneydoc.bsky.social

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Matt Sampson @kidneyomicsamps.bsky.social · 09/12/2024

The epitome of a Physician-Scientist. @gbadegesinlab.bsky.social swoops in to DC this morning from being on call last night in North Carolina to moderate an early session here at @rfsgsinitiative.bsky.social

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rFSGS Initiative @rfsgsinitiative.bsky.social · 09/12/2024

We've kicked off the first-ever #rFSGSConference! We look forward to an impactful day by and for #rFSGS patients. #RareDisease #KidneyTransplant

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Matt Sampson @kidneyomicsamps.bsky.social · 09/12/2024

This guy, @genetickidneydoc.bsky.social, with a great help, has put together a wonderful program for the inaugural @rfsgsinitiative.bsky.social meeting. Looking for to tomorrow’s big day #kidneyomics #NephSky

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rFSGS Initiative @rfsgsinitiative.bsky.social · 09/12/2024

We look forward to seeing you tomorrow for the Recurrent Focal Segmental Glomerulosclerosis (#rFSGS) Conference! 🔹7:30 a.m.–5:30 p.m. 🔹Hyatt Regency Washington on Capitol Hill 🔹Washington, DC View our program to see what's in store: www.scgcorp.com/rFSGS2024/Ag... #rFSGSConference

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rFSGS Initiative @rfsgsinitiative.bsky.social · 05/12/2024

📣REGISTRATION DEADLINE EXTENDED📣 There's time to reserve your spot for the #rFSGSConference coming up on Monday, Dec. 9 in Washington, DC. We hope to see you there! Register today to participate in this #rFSGS event: www.scgcorp.com/rFSGS2024/Re... #KidneyTransplant #RareDisease #nephsky #skyneph

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rFSGS Initiative @rfsgsinitiative.bsky.social · 03/12/2024

🚨 #rFSGSConference registration closes today! 🚨 Don't miss out! If you want to take part in the first-ever conference on #rFSGS with patients, accomplished researchers, political leaders, and more, register now: www.scgcorp.com/rFSGS2024/Re... #KidneyTransplant #RareDisease

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rFSGS Initiative @rfsgsinitiative.bsky.social · 02/12/2024

We have 1⃣ WEEK until the Recurrent Focal Segmental Glomerulosclerosis (#rFSGS) Conference! Check out the latest #rFSGSConference program to see a day full of inspiring talks & groundbreaking research: www.scgcorp.com/rFSGS2024/Ag... ➡️Don't forget to register: www.scgcorp.com/rFSGS2024/Re...

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rFSGS Initiative @rfsgsinitiative.bsky.social · 02/12/2024

At the upcoming #rFSGSConference, you can meet 150+ attendees including patients, researchers, members of congress, senators, and more! 🤝 If you want to participate, check out more info on the first-ever conference all about #rFSGS! www.scgcorp.com/rFSGS2024/De... #RareDisease #KidneyTransplant

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rFSGS Initiative @rfsgsinitiative.bsky.social · 29/11/2024

You're in luck! It's not too late to register for the Recurrent Focal Segmental Glomerulosclerosis (rFSGS) Conference. Visit our website and submit your registration today to join us on Dec. 9: www.scgcorp.com/rFSGS2024/Re... #rFSGS #rFSGSConference

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rFSGS Initiative @rfsgsinitiative.bsky.social · 28/11/2024

Recurrent focal segmental glomerulosclerosis (rFSGS) is characterized by the reoccurrence of FSGS within the first few weeks after a #KidneyTransplant. If you've been impacted by #rFSGS, join patients, caregivers, & researchers at our #rFSGSConference: www.scgcorp.com/rFSGS2024/Re...

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rFSGS Initiative @rfsgsinitiative.bsky.social · 26/11/2024

Do you know someone with recurrent focal segmental glomerulosclerosis? If so, tell them about the first-ever #rFSGSConference coming to Washington, DC! This event will host patients, political leaders, and #rFSGS researchers. Register today: www.scgcorp.com/rFSGS2024/Re... #RareDisease

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rFSGS Initiative @rfsgsinitiative.bsky.social · 26/11/2024

🚨 We are officially two weeks out from the #rFSGSConference! 🚨 Reserve your spot so you can join us in Washington, DC to discuss #rFSGS research, funding, and treatments. Register today: www.scgcorp.com/rFSGS2024/Re...

You're invited to the recurrent focal segmental glomerulosclerosis (rFSGS) conference!

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rFSGS Initiative @rfsgsinitiative.bsky.social · 24/11/2024

The Recurrent Focal Segmental Glomerulosclerosis (#rFSGS) Conference is on Dec. 9 in Washington, DC! The #rFSGSConference program is led by groundbreaking researchers in the field & designed for patients & advocates, to learn from & connect with one another! Register: www.scgcorp.com/rFSGS2024/Re...

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rFSGS Initiative @rfsgsinitiative.bsky.social · 23/11/2024

The Recurrent Focal Segmental Glomerulosclerosis (rFSGS) Conference is approaching! If you want to join patients with #rFSGS or meet with rFSGS specialists, register today & we'll see you on Dec. 9, 2024, in Washington, DC! www.scgcorp.com/rFSGS2024/Re... #rFSGSConference #RareDisease #Kidney

Meet patients, caregivers & researchers at the rFSGS Conference! Dec 9. Washington DC.

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rFSGS Initiative @rfsgsinitiative.bsky.social · 22/11/2024

Register today for the Recurrent Focal Segmental Glomerulosclerosis Conference on Monday, Dec. 9, in DC! We're gathering patients, doctors, researchers, politicians, & funders to raise awareness of #rFSGS, share information, & facilitate funding. www.scgcorp.com/rFSGS2024/Re... #rFSGSConference

Help us raise awareness of rFSGS at the first ever rFSGS conference!

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