iiinova — where your digital self keeps evolving

Our member organisation FARPE recently hosted a webinar alongside FUNDALUCE: “Usher Syndrome: A Dialogue with Specialists”, bringing together specialists to discuss Usher syndrome. Full webinar: ow.ly/SQxr50ZTrRc Thank you to FARPE, FUNDALUCE and David Sánchez for organising this space.

[ID: Graphic announcing a webinar on Usher Syndrome, hosted by FARPE and Fundaluce, with the recording now available.]

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retina_int @retinaint.bsky.social · 11h

This Saturday, 3rd October, people living with IRDs will come together for the USHER Austria Patient Symposium 2026: “Where are we now: Updates on Inherited Retinal Diseases – RP, Usher and more.” RI CEO Avril Daly will be joining the programme. For more information: ow.ly/qvLe50ZTqwM

Graphic promoting the ERN-EYE Patient Symposium, “Where Are We Now?”, on inherited retinal diseases, taking place on 3 October 2026 in Vienna, with several featured speakers.

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retina_int @retinaint.bsky.social · 30/09/2026

Just a few days away from EURETINA Congress 2026! RI's Nabin Paudel will be presenting our abstract: "Anxiety, Depression and Suicidal Ideation among People Living with Inherited Retinal Degenerations: Results of a Multinational Survey". Date: 4th October 2026 Presentation Time: 13:33–13:39

[ID: Graphic promoting our presentation at EURETINA 2026 in Vienna, featuring the abstract title "Anxiety, Depression and Suicidal Ideation among People Living with Inherited Retinal Degenerations: Results of a Multinational Survey."]

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retina_int @retinaint.bsky.social · 29/09/2026

We were delighted to join the 2026 EFNA Conference in Dublin, celebrating 25 glorious years. It was a full day of thought-provoking conversations across lived experience, patient advocacy, research, innovation and meaningful patient involvement. Huge congratulations to the EFNA team! #EFNA2026

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retina_int @retinaint.bsky.social · 24/09/2026

On World Retina Day this Sunday, Spain lights up the retina! We are proud to support FARPE’s “Lights That Inspire” campaign! 📅 27 September #LightsThatInspire2026 #WorldRetinaDay #FARPE #RetinaInternational ➡️ Learn more: retina-international.org/2026-lights-...

Promotional graphic for “Lights That Inspire: Spain lights up the retina” on World Retina Day, September 27. The blue and green design features photographs of illuminated Spanish buildings, monuments and landmarks. Text highlights “+204 municipalities in 2025” and the hashtags #lucesqueinspiran and #inspiringlights. Logos for FARPE and Fundaluce appear below, alongside Spanish government and social-interest funding logos.

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retina_int @retinaint.bsky.social · 18/09/2026

RI & the University of Canberra are inviting adults living with TED in Europe (including the UK) or Australia to take part in a research study exploring their experiences, needs and priorities. Please contact kate.fankuncao@retina-international.org or info@retina-international.org.

Graphic calling for study participants: adults living with TED, with logos of Retina International and University of Canberra.

Details of the study and who to contact, included in the caption as well.

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retina_int @retinaint.bsky.social · 17/09/2026

#RIYC2026 - What’s on the agenda? 👀 Full agenda here - ow.ly/H9zQ50ZOMBZ 18 September 2026 | Online on Zoom Morning Session: 9 AM CET / 8 AM IST / 4:30 PM ACST / 7 PM NZST ow.ly/2p4V50ZOMBY Afternoon Session: 3 PM CET / 2 PM IST / 9 AM EDT / 10 AM Brazil ow.ly/r3RG50ZOMC1

1: Graphic for RIYC2026: what’s on the agenda with the date and time of the event mentioned.

2: RIYC2026 afternoon session agenda, featuring mental health, AI and assistive technology, a special talk by Jamie MacDonald, a panel discussion, and closing remarks.

3: RIYC2026 afternoon session details, including speakers Claire Sisk, Rishabh Gupta, Cory Rainford, Dr Kenisha Coon and Marina Leite.

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retina_int @retinaint.bsky.social · 15/09/2026

3 DAYS TO GO for #RIYC2026! 🌻 Date: 18 September 2026 Platform: Online via Zoom Morning Session: 9 AM CET / 8 AM IST / 4:30 PM ACST / 7 PM NZST ow.ly/Xqqe50ZO1Hm Afternoon Session: 3 PM CET / 2 PM IST / 9 AM EDT ow.ly/6P6W50ZO1Hl Full agenda & speakers - ow.ly/N7GT50ZO1Hk

[ID: Retina International Youth Council’s #RIYC2026 countdown: 3 days to go until the World Youth Conference on Friday, 18 September, at 9 AM and 3 PM CET, online via Zoom.]

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retina_int @retinaint.bsky.social · 10/09/2026

Meet the speakers for #RIYC26 morning session, which brings together an incredible mix of lived experience, advocacy, research, technology & community. 18 September | 9 AM CET | Online Registration is open: ow.ly/3hil50ZLOyi #YoungVoices #Accessibility #YouthEngagement #AssistiveTechnology

“Meet the Speaker” featuring Nidhi Goyal

“Meet the Speaker” featuring Dr Nabin Paudel

“Meet the Speaker” featuring Jess McQueen

“Meet the Speaker” featuring Daniel Lewis

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retina_int @retinaint.bsky.social · 09/09/2026

📍 We have a new registered address: Unit 1-4, Block 1, Northwood Court, Santry, Dublin 9, Co. Dublin, Ireland, D09 E438 Please update your records with our new registered address. We look forward to continuing our work with our members, partners, and the global retinal community.

graphic with the new registered address for Retina International: Unit 1-4, Block 1, Northwood Court, Santry, Dublin 9, D09 E438.

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retina_int @retinaint.bsky.social · 07/09/2026

Meet the speakers for our #RIYC26 afternoon session that brings together an incredible mix of lived experience, advocacy, research, technology and community. 18 September | 3 PM CET | Online (Zoom) Registration is open - ow.ly/vX4w50ZKpof #YoungVoices #YouthEngagement

“Meet the Speaker” featuring Claire Sisk, a digital creator, TV presenter and accessibility advocate, and her session on navigating life with a retinal condition.

Meet Jamie MacDonald, award-winning comedian, writer, actor and voice-over artist, speaking in a special session.

Meet Rishabh Gupta, author, speaker and entrepreneur, discussing navigating life with a retinal condition.

Meet Dr Kenisha Coon, TEDx speaker, disability advocate and behavioural scientist, discussing navigating life with a retinal condition.

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retina_int @retinaint.bsky.social · 03/09/2026

A new editorial explores the challenges of enriched trial designs and the need for research to deliver meaningful evidence and treatment options for all patients. Read the editorial: ow.ly/mJaM50ZIPbc #RetinalResearch #ClinicalTrials #PatientVoice #Ophthalmology

Graphic promoting a new editorial on enriched clinical trials, highlighting the need for more inclusive, patient-centred research in retinal care, with a QR code to read the editorial.

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retina_int @retinaint.bsky.social · 02/09/2026

Foundation Fighting Blindness is hosting a virtual session, bringing together experts to discuss the latest developments in TED care. 17 October | 12–1:30 PM ET | Online Register to attend - ow.ly/Nmlf50ZIfur #ThyroidEyeDisease #EyeHealth #Ophthalmology #RareDisease

[ID: Graphic for the FFB Quarterly Vision Webinar on Thyroid Eye Disease (TED), including the webinar date, time, and branding.]

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retina_int @retinaint.bsky.social · 31/08/2026

In a conversation with PharmaBoardroom, our CEO, Avril Daly, discusses what this means for rare and retinal diseases and why patient-led innovation and access to research matter more than ever. Read the full interview - ow.ly/iUZm50ZHmS6 #RareDiseases #ClinicalTrials #PatientVoice

[ID: Graphic featuring Avril Daly, CEO of Retina International, with a quote on patient-led innovation and measuring what matters, from a Pharma Boardroom interview.]

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retina_int @retinaint.bsky.social · 27/08/2026

We’re delighted to be attending The European Federation of Neurological Associations (EFNA) Conference! Join us on 25–26 September as patients, organisations, researchers, clinicians, policymakers & industry come together to explore the future of neurology in Europe. If you’re there, come say hello!

[ID: Promotional graphic for the EFNA Conference Dublin 2026, featuring the September 25-26 dates, thematic areas covering patient empowerment, research and care, AI and digital innovation, equity and access, collaboration, and neurology policy.]

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retina_int @retinaint.bsky.social · 25/08/2026

The Retina International World Youth Conference is here! Participants from around the world will come together to talk about mental health, AI, assistive technology, everyday life and more. 📅 18 September | 💻 Online 🕘 2 session: 9 AM or 3 PM CET For registration - linktr.ee/retina_int

[ID: A promotional graphic for the RI Youth Council World Youth Conference, featuring the event date, two CET session times, and online Zoom format.]

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retina_int @retinaint.bsky.social · 20/08/2026

Join us for our joint with EURETINA, exploring how collaboration, patient-centred approaches and coordinated action can help drive retinal innovation in Europe. 3 October | 11:30 AM–12:30 PM CEST | Strauss 1, VIECON Featuring perspectives from across research, policy and patient advocacy

1: Graphic promoting the Retina International and Euretina joint session, “Fostering Retinal Innovation in Europe through Structured Collaboration,” at the 26th Euretina Congress in Vienna on 3 October 2026.

2: Graphic introducing the speakers and co-chairs of the Retina International–Euretina joint session, featuring photographs of Franz Badura, Prof. Nicole Eter, Dr. Nabin Paudel and Prof. Hélène Dollfus.

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retina_int @retinaint.bsky.social · 17/08/2026

🎥 The recording for EMA Workshop on GA endpoints is now available! We contributed patient perspectives to discussions on how treatment benefit can be measured. www.ema.europa.eu/en/events/europea…

Graphic featuring a video still from the European Medicines Regulatory Network workshop on Geographic Atrophy endpoints. Text below says “Recording Available Now.”

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retina_int @retinaint.bsky.social · 15/08/2026

Applications are open for the Foundation Fighting Blindness Clinical Research Fellowship Award (CRFA)! The 1-year, $65,000 award supports early-career clinician-scientists researching inherited retinal degenerations (IRDs). Deadline: 15 October 2026 #RetinalResearch #VisionResearch #ClinicalResearch

Graphic announcing the Foundation Fighting Blindness Clinical Research Fellowship Award (CRFA). It highlights a $65,000 one-year award supporting early-career clinician-scientists researching IRDs, with Proposer’s Day on 3 September 2026.

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retina_int @retinaint.bsky.social · 12/08/2026

The eclipse is here! 🌑☀️ Enjoy the spectacle safely and protect your retina. Use certified eclipse glasses, a safe viewing event, trusted livestream, or the pinhole method. Never look directly at the Sun or use ordinary sunglasses, phones, cameras, binoculars or telescopes. #Eclipse2026 #EyeSafety

1: Graphic titled “Solar Eclipse 2026: Enjoy the Spectacle, Protect Your Sight,” featuring a photograph of a total solar eclipse with a warning not to look directly at the Sun.

3: Graphic titled “What Not To Do?” with warnings: don’t look directly at the Sun with the naked eye or ordinary sunglasses; don’t look through a phone camera or take selfies; don’t use binoculars or telescopes without proper solar filters; and don’t use improvised filters such as smoked glass or stacked sunglasses.

4: Graphic titled “How To View It Safely?” with recommendations: use certified solar eclipse glasses, check them for damage, attend an organised viewing event where possible, watch a trusted livestream, or use a pinhole projection method.

5: Graphic titled “The Pinhole Method” explaining how to safely view an eclipse indirectly by projecting sunlight through a small hole in card or paper onto another surface. Never look through the pinhole at the Sun.

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retina_int @retinaint.bsky.social · 12/08/2026

Happy #InternationalYouthDay! 💙 Today, we’re celebrating the young people across our global retinal community who continue to inspire, advocate, and support one another. youtu.be/un-bdSPrn1M And this is only the beginning… 👀 More coming soon!

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retina_int @retinaint.bsky.social · 07/08/2026

What is #Act4RED? Act4RED is a global initiative uniting patients, clinicians, researchers, and advocates to improve outcomes for people living with rare eye diseases. Together, we're driving research, raising awareness, influencing policy, and ensuring patient voices shape the future of care.

Graphic introducing Act4RED, a global campaign to stop vision loss, jointly led by Retina International, ERN-EYE, Foundation Fighting Blindness, and the Ocular Diseases Forum.

Graphic explaining that millions of people live with rare eye diseases, many of whom remain underdiagnosed, underfunded, and without effective treatments.

Graphic listing examples of rare eye diseases, including Retinitis Pigmentosa, Stargardt Disease, Usher Syndrome, Leber Congenital Amaurosis, and Choroideremia.

Graphic highlighting Act4RED's goals: earlier diagnosis, better care, research and innovation, access to emerging therapies, and improved quality of life.

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retina_int @retinaint.bsky.social · 31/07/2026

We're excited to share that Retina International's Dr Nabin Paudel will present at #EURETINA2026 this October. The oral presentation will highlight findings from our multinational survey on the emotional and psychological impact of IRDs, helping strengthen the evidence on the lived experience.

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retina_int @retinaint.bsky.social · 24/07/2026

What does "value" really mean in therapy development? For people living with #IRDs, it's about far more than clinical outcomes. It's about independence, confidence, mental wellbeing, and quality of life. www.frontiersin.org/journals/medici…

Cover graphic titled "Why Patient Voice Matters in Therapy Development" with Retina International branding on a dark grey background and a highlighted yellow title panel.

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retina_int @retinaint.bsky.social · 20/07/2026

We're pleased to share that our research has been published in the #ARVO2026 Annual Meeting Abstract Issue. This study explores the relationship between vision and mental health, adding to the growing evidence on the wider impact of visual impairment on wellbeing. ow.ly/HiX850ZpYqj

[ID: Graphic announcing a newly published ARVO 2026 abstract titled Association Between Vision and Mental Health: Findings from Wave 3 of The Irish Longitudinal Study on Ageing (TILDA), with a QR code linking to the abstract.]

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retina_int @retinaint.bsky.social · 15/07/2026

We're pleased to share that our research has been published in the #ARVO2026 Annual Meeting Abstract Issue. The study explores the link between visual acuity and cognitive performance, contributing to a better understanding of vision health and healthy ageing. #VisionResearch #RetinaResearch

Graphic announcing a newly published ARVO 2026 abstract titled Association Between Visual Acuity and Cognitive Performance: Evidence from The Irish Longitudinal Study on Ageing (TILDA), with a QR code linking to the abstract.

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retina_int @retinaint.bsky.social · 10/07/2026

Happy Disability Pride Month! This month, we celebrate the diversity, resilience, and leadership of the disability community. We're proud to champion a future where people living with retinal conditions are empowered, included, and at the heart of research, advocacy, and decision-making.

Graphic featuring the Disability Pride Flag with the text: "July is Disability Pride Month."

Illustration of the Disability Pride Flag with each coloured stripe labelled: green for sensory disabilities (including blindness and low vision), blue for psychiatric disabilities, white for non-visible and undiagnosed disabilities, yellow for neurodiversity, and red for physical disabilities.

Text graphic highlighting that Disability Pride is personal and can mean identity, advocacy, accessibility, independence, community, or living life on your own terms. Decorative rainbow fingerprint illustrations appear in opposite corners.

Text graphic sharing Retina International's commitment to inclusion, accessibility, and ensuring patient voices drive progress, alongside a message wishing the community a Happy Disability Pride Month.

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retina_int @retinaint.bsky.social · 07/07/2026

In the latest Retina SA newsletter, our Vice Chair, Manny Moodley, reflects on #UnitedInVision2026, highlighting the power of collaboration, #PatientAdvocacy, & ensuring scientific progress translates into meaningful improvements in people's lives. 1 message shines through: we're stronger together.

ID: Manny Moodley, Vice Chair of Retina International and CEO of Retina South Africa, alongside his quote: “If I had to capture United in Vision 2026 in a single idea, it would be togetherness.”

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retina_int @retinaint.bsky.social · 03/07/2026

RI Board Member David Sanchez presented at the Rare Diseases International (RDI) 2026 Annual Membership Meeting in Nairobi, sharing insights on communications and accessibility for the global rare disease community. Thank you to RDI for bringing everyone together! #RareDiseases #Accessibility

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retina_int @retinaint.bsky.social · 01/07/2026

The RI Summer Newsletter is out now! Catch up on highlights from United in Vision 2026, ARVO, ECRD, our Education Hub, research updates, member news, and much more from across our global retinal community. Sign up to receive future editions: mailchi.mp/retina-international/new…

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retina_int @retinaint.bsky.social · 29/06/2026

Congratulations to Prof. José-Alain Sahel, Chair of Retina International's Scientific & Medical Advisory Board, on receiving the 2024 Wolf Prize in Medicine alongside Prof. Botond Roska for their pioneering work in optogenetics and vision restoration. #WolfPrize #RetinaResearch #VisionResearch

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retina_int @retinaint.bsky.social · 23/06/2026

How do we measure what truly matters to people living with IRDs? Join upcoming #ARVO SIG session on the role of Patient-Reported Outcome Measures (PROMs) in IRDs and their potential as clinical trial endpoints. 25 June | 8:00–9:30 AM ET www.arvo.org/meetings-events/specia…

[ID: Promotional graphic for an ARVO SIG virtual session titled “What Matters Most to Patients? Patient-Reported Outcome Measures (PROMs) in Inherited Retinal Degenerations.” The graphic features speaker headshots of Avril Daly, Konrad Pesudovs, and Nabin Paudel (Organizer), along with event details: 25 June 2026, 8:00–9:30 AM ET, Virtual.]

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retina_int @retinaint.bsky.social · 22/06/2026

At #UnitedInVision2026, Manny Moodley, CEO of Retina South Africa and Vice Chair of Retina International, spoke with H. Eric Hartman of the Choroideremia Research Foundation about patient advocacy, community engagement, and progress in inherited retinal diseases. #PatientVoice #VisionResearch

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retina_int @retinaint.bsky.social · 17/06/2026

What a week at #UnitedInVision2026! Thank you to everyone who joined us and to Foundation Fighting Blindness for an inspiring few days. We're leaving with new ideas, renewed energy, and a stronger commitment to keeping patient voices at the heart of retinal research and innovation.

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retina_int @retinaint.bsky.social · 15/06/2026

Join us on 25 June for an #ARVO SIG session exploring the role of Patient-Reported Outcome Measures (PROMs) in IRDs and their potential as clinical trial endpoints. Featuring perspectives from patients, researchers, clinicians, and regulators, including RI CEO Avril Daly and Prof. Konrad Pesudovs.

ID: Promotional graphic for an #ARVOSIG virtual session titled “Patient-Reported Outcome Measures (PROMs) in Inherited Retinal Degenerations: Potential for Clinical Trial Endpoints.” The graphic includes the session details: June 25, 2026, 8:00–9:30 AM ET, with Retina International branding and registration information.

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retina_int @retinaint.bsky.social · 12/06/2026

A special way to begin Day 1 of #UnitedInVision2026 Our CEO Avril Daly and Head of Communications Claire Duggan pictured with Christina Fasser, former RI President and a pioneering force in global retinal advocacy. Delighted to have the retina community gathered in Fort Worth this week.

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retina_int @retinaint.bsky.social · 12/06/2026

Thank you to everyone who joined our CEP at #UnitedInVision2026 yesterday. Inspiring discussions on Patient Experience Data reinforced a key message: research is stronger when patients are involved from the start. Looking forward to more conversations over the next two days! #PatientVoice

Jason Menzo, CEO of the Foundation Fighting Blindness, leads an interactive discussion during the RI CEP at United in Vision 2026.

CEP participants engage in discussion and knowledge-sharing during the Q&A session led by Jason Menzo, CEO of the Foundation Fighting Blindness.

Dr Daniel Chung from Beacon Therapeutics presents on the importance of co-designing meaningful clinical trial endpoints with patients during the CEP.

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retina_int @retinaint.bsky.social · 08/06/2026

Just 2 days for #UnitedInVision2026! We're looking forward to joining the global retinal community in Dallas for learning, collaboration, and connection. RI will also host its Continuous Education Programme (CEP) on 11 June, exploring the role of patient experience in research and innovation.See ya!

[ID: Countdown graphic for Retina International’s United in Vision 2026 conference, highlighting that there are 2 days to go until the event. The graphic includes the conference dates, 11–13 June, the location, Omni Fort Worth, Dallas, Texas, and Retina International branding.]

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retina_int @retinaint.bsky.social · 06/06/2026

The fifth Retina International Education Hub has come to a close. Over 6 months, advocates, researchers, clinicians, & experts from around the world came together to learn, connect, and collaborate. Thank you to everyone who made this year's programme such a success. Applications reopen this autumn.

Participants join Retina International’s final Education Hub session of the 2025/26 programme, taking part in a virtual feedback and knowledge-sharing discussion focused on future learning, research, and community priorities.

Opening slide from Retina International’s final Education Hub session of the 2025/26 programme, introducing the feedback and knowledge-sharing session held on 29 May 2026, alongside participant video thumbnails.

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retina_int @retinaint.bsky.social · 05/06/2026

A proud moment at #ECRD2026 Our team member, Claire Duggan, shared preliminary findings from Retina International’s multinational survey on the emotional and psychological impact of IRDs. Turning lived experience into evidence to drive better research, policy, and care. #PatientVoice #RareDiseases

Claire Duggan, Head of Communications at Retina International, delivers a poster pitch presentation at ECRD 2026 on findings from a multinational survey exploring the emotional and psychological wellbeing of people living with inherited retinal degenerations (IRDs).

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retina_int @retinaint.bsky.social · 04/06/2026

A great first day at #ECRD2026! Our poster on the emotional and psychological wellbeing of people living with IRDs reinforced the importance of keeping patient voices at the centre of rare disease policy, research, and care. Today, Claire Duggan presents our poster findings. More updates to come!

Claire Duggan, Head of Communications at Retina International, stands beside Retina International’s research poster at ECRD 2026. The poster presents findings from a multinational survey on the emotional and psychological wellbeing of people living with inherited retinal degenerations (IRDs).

Avril Daly addresses attendees during the opening session of ECRD 2026 in her role as President of EURORDIS. A large screen behind the stage displays her name and conference branding as delegates gather in the auditorium.

Conference delegates view and discuss Retina International’s poster on the emotional and psychological wellbeing of people living with inherited retinal degenerations during the ECRD 2026 poster exhibition.

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retina_int @retinaint.bsky.social · 03/06/2026

At #ECRD2026, Avril Daly and Claire Duggan joined discussions on the European Blueprint for Rare Diseases, helping shape conversations on data, research, and innovation. What stood out: patient voices must remain at the centre of decisions that affect our communities. #RareDiseases #PatientVoice

Left to right: Claire Duggan, Head of Communications at Retina International, Avril Daly, CEO of Retina International, and Vicky McGrath of Rare Diseases Ireland pose together at the European Conference on Rare Diseases (ECRD) 2026. They are standing in the conference hall following a session.

A speaker presents to attendees at ECRD 2026 from a podium in a conference auditorium. Behind them, a large screen displays the quote, “A goal without a plan is just a wish,” attributed to Antoine de Saint-Exupéry, alongside EURORDIS branding.

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retina_int @retinaint.bsky.social · 02/06/2026

Join an upcoming ARVO SIG session on Outcome Measures for Very Low Vision. This discussion will bring together experts in retinal research & clinical trials to explore emerging therapies and the future of patient-centred outcome measures. 9 June 2026 | 6-7:30 PM ET www.arvo.org/meetings-eve...

[ID: Promotional graphic for an #ARVOSIG virtual session titled “Outcome measures for very low vision – HOVER 2.0.” The graphic includes the session details: June 9, 2026, 6:00–7:30 PM ET, with Retina International branding and a prompt to register via the link below.]

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retina_int @retinaint.bsky.social · 31/05/2026

Getting ready for #ECRD2026! RI's, Claire Duggan presented her poster pitch to the team ahead of ECRD. The research explores the emotional and psychological wellbeing of people living with IRDs, highlighting the impact of vision loss beyond sight alone. 📍 4 June | 11:35 CET | Room B2+3

[ID: Claire Duggan, Head of Communications at Retina International, presenting her ECRD poster pitch to the RI team in the office ahead of the conference. Team members are seated around the room listening to the presentation.]

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retina_int @retinaint.bsky.social · 28/05/2026

Researchers at the University of Melbourne are seeking participants for an online survey. The study is open to adults with or without vision loss and aims to better understand the influence of vision loss on musical activities. q.surveys.unimelb.edu.au/jfe/form/SV_... #PatientVoice

q.surveys.unimelb.edu.au

The influence of vision loss on musical activities

This survey consists of questions related to musical activities and is designed for adults with healthy vision and for adults with vision loss.

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retina_int @retinaint.bsky.social · 25/05/2026

We're looking forward to presenting at #ECRD2026 in Prague! Our poster explores the emotional and psychological impact of living with IRDs and will be our Head of Communications, Claire Duggan. 4 June | 11:35 CET | Room B2+3 See you there! EURORDIS-Rare Diseases Europe #RareDiseases #MentalHealth

[ID: Promotional graphic for #ECRD2026 highlighting a poster presentation titled “Emotional and Psychological Wellbeing in People Living with Inherited Retinal Degenerations (IRDs): Results of a Multinational Survey.” The graphic includes the poster pitch session details: 4 June 2026, 11:35 CET, Room B2+3, with Retina International branding and the message “See You There!”]

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retina_int @retinaint.bsky.social · 23/05/2026

As we're currently building a more accessible, user-friendly, and community-focused website, we would love you to take part in our Retina International website redevelopment survey: ow.ly/Zyan50Z2FbT Thank you to everyone who has already shared feedback with us so far!

ID: A reminder graphic with a megaphone icon above the headline “Gentle Reminder.” Large text asks viewers to help improve the organisation’s website, followed by a call to action encouraging people to check the link in the caption and complete a short survey.

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retina_int @retinaint.bsky.social · 22/05/2026

Kudos to Claire Wilmington, a PhD student at University College Cork and a member of the RETORNA group, who is also currently undertaking a short placement with RI, for delivering a fascinating presentation on her PhD research exploring patient preferences around gene therapy for retinal diseases!

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retina_int @retinaint.bsky.social · 21/05/2026

Another inspiring session of the Education Hub! A huge thank you to Dr Kapil Bharti and Dr Joe Carroll for sharing insights into some of the latest developments shaping the future of retinal research and care. See you at our next one on May 29th from 12:30 PM to 2:00 PM CET!

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retina_int @retinaint.bsky.social · 20/05/2026

Check out our dedicated Clinical Trials Resources page featuring registries, expert-curated databases, and trusted global resources for the inherited retinal disease community. retina-international.org/clinical-tri... #RareDiseases #ClinicalTrials #RetinaResearch #InheritedRetinalDiseases

retina-international.org

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