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Rei

@reialexandrayyc.bsky.social
745 followers 298 following 39 posts

Unapologetically Disabled. Film Lover. Creative Dabbler. They/Them. NO unsolicited advice. 14 Years Severe #MECFS #PWME #YYC

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Rei @reialexandrayyc.bsky.social · 19/06/2026
Might I suggest anyone who doesn’t need their 100 Dani dollars can donate them to people she’s kicked off AISH. The stress, uncertainty, impossible expectations, and endless hoop jumping is literally killing us. 100 may be nothing to you, that could make all the difference in a month for us.
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Rei @reialexandrayyc.bsky.social · 11/06/2026
[CN: Suicide] An update. I’m fairly sure this is the same incident/individual. But we’re scared it won’t be the last time this happens. This person deserved so much better. And my only hope is this kicks people into gear to stand up for disabled Albertans. 1/2
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Rei @reialexandrayyc.bsky.social · 09/06/2026
[CN: Suicide] . I don’t have capacity to add alt text sorry. Crying for someone I don’t know the name of tonight. My disabled peers are dying. We warned everyone this would happen. I doubt it’ll be the last. If people won’t fight for our right to live, will they at least speak up about our deaths?
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Rei @reialexandrayyc.bsky.social · 04/06/2026
It’s official. I’ve been kicked off AISH onto the new ADAP work program. I haven’t been able to work in 14 years. These days I’m stuck in bed 99% of the time. Barely managing to take care of myself. The government thinks I can find meaningful employment to make up the $200/month drop in income. 1/3
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alex @dremenec.bsky.social · 28/10/2024
Generally we think of alt-text as the domain of those with accessibility needs. However alt-text is useful for many reasons, which benefit your viewers, as well as you, the creator!
An infographic. There are six panels.

1. "Slow internet. Alt text is shown in place of unloaded images." a drawing shows a phone with poor signal, and alt text is visible where the image should have loaded.

2. "Findabillity. Alt text helps to search content." A drawing shows someone searching 'dog with banana' and a post is shown underneath without the words 'dog' or 'banana'. It is implied to be part of the alt text.

3. "Screen readers. Alt is read out to people using text-to-speech software". There is a drawing of the output a screen-reader would show when viewing an image with alt text on bluesky.

4. "Translation. Alt text can be translated". A drawing shows a post being translated. The alt text is also translated into german.

5. "Readability. Text in images can be made legible" There is a drawing of some truly awful handwriting inside a speech bubble. The alt text clarifies what the text is supposed to say.

6. "Disambiguation. Description helps clarify intent." There is a drawing of a post with a picture of a creature. This is styled after the famous optical illusion of a rabbit and a duck. The alt text clarifies that the animal is a rabbit. It definitely looks more like a duck.
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Eb @ebthen.bsky.social · 23/01/2025
If you are serious about supporting your neighbors and the vulnerable members of your community, you will need to ask them about their unmet needs and take them seriously when they tell you what they are. You will need to learn not to say sentences starting with "Well can't you just...?"
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Eb @ebthen.bsky.social · 23/01/2025
If you are serious about supporting your neighbors and the vulnerable members of your community, this absolutely and by definition means intentionally acknowledging and addressing some basic inclinations, like the one that says to abandon people who aren't always able to be there when you want them.
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Eb @ebthen.bsky.social · 23/01/2025
This is not something that can be put on the people who have been abandoned and isolated to correct. It cannot be made their responsibility to connect or re-connect with those who previously decided it was, for one reason or another, easier not to try.
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Eb @ebthen.bsky.social · 23/01/2025
So when it comes to "grow community locally" stuff, here's something non-Disabled folks especially have to figure out how to counter. There is a long-standing pattern where chronically ill people, even those who previously had extensive support networks and community, are abandoned and isolated.
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Rei @reialexandrayyc.bsky.social · 31/12/2024
[TW: Pet Death] . . Finally sharing. Cheerio’s health really took a downturn over the holidays & after consulting with the vet, I made the hardest decision I’ve ever had to make and opted for at home euthanasia. As of this morning, my best friend of 17.5 years is gone.
An orange tabby cat curled up on a folded grey blanket on a bed with a throw pillow behind her that has a black and white image of a lion on it. She has her front paws slightly stretched out in front of her. Sleeping peacefully.
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Rei @reialexandrayyc.bsky.social · 29/11/2024
A couple extra hours waiting & upright without my upper body well-supported. And it's wrecked me. Can barely read anything on here. Can barely listen to anything. Can barely move to take care of us. Severe pain. Days later. That's where I'm at now.😞That's how little it takes. #PwME #MECFS
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Rei @reialexandrayyc.bsky.social · 17/11/2024
I don’t know what the current culture here is, but I’m going to reiterate my no unsolicited advice rule. And I do mean it. Not just medical/health advice but no unsolicited advice on anything. If people want advice, they’ll generally ask for it.
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Kamilah Taylor @kamilah.dev · 17/07/2023
you have to have a team that cares about the culture they’re cultivating on the site, otherwise, you get what you get, which is what we’re seeing unfolding
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