iiinova — where your digital self keeps evolving

Rare Cancer Research Foundation + Pattern.org @rarecancerrf.bsky.social · 22/04/2025

📣 NEW BLOG POST: Dr. Pavlos Msaouel and his team at @mdanderson.bsky.social have identified the protein CA-125 as the first clinically relevant biomarker for renal medullary carcinoma. Read more at the link in our bio or under our 'News and Updates' tab on our website at rarecancer.org 💙💚

010

Rare Cancer Research Foundation + Pattern.org @rarecancerrf.bsky.social · 19/03/2025

📣NEW BLOG POST: Genomic Sequencing is Essential for Rare Cancer Patients rarecancer.org/news-updates...

010

Rare Cancer Research Foundation + Pattern.org @rarecancerrf.bsky.social · 06/03/2025

As a #RareCancer patient, your #TissueDonation could be the missing puzzle piece researchers need to make progress toward better therapies and cures. Visit Pattern.org and consent to give today!

010

Rare Cancer Research Foundation + Pattern.org @rarecancerrf.bsky.social · 28/02/2025

Today is #RareDiseaseDay! RCRF is dedicated to rare cancer patients across the U.S. Visit the link in our bio to learn more. 💚💙

010

Rare Cancer Research Foundation + Pattern.org @rarecancerrf.bsky.social · 27/01/2025

Wondering where we will be this year? Check out our latest list of events and email us at info@rarecancer.org to schedule a meeting! 🗓️

000

Rare Cancer Research Foundation + Pattern.org @rarecancerrf.bsky.social · 22/01/2025

Visit rarecancer.org to watch the full video and learn more! 💚💙

010

Rare Cancer Research Foundation + Pattern.org @rarecancerrf.bsky.social · 03/01/2025

It may be a #NewYear, but our resolution remains the same: through our fiercely patient-centric approach, we are still working tirelessly to create greatly needed research infrastructure to improve the outcomes and care for #RareCancer patients. 💙💚

011

Rare Cancer Research Foundation + Pattern.org @rarecancerrf.bsky.social · 27/12/2024

Collaboration finds cures! 👉 rarecancer.org/donate-2024

010

Rare Cancer Research Foundation + Pattern.org @rarecancerrf.bsky.social · 17/12/2024

Diversity in data is key to making progress in the development of vital #RareCancer treatments. Representation in research leads to better health outcomes for everyone! 🤝 Here at RCRF, we’re working to achieve better health equity for ALL rare cancer patients. Join us today. #TomorrowCantWait 💙💚

000

Rare Cancer Research Foundation + Pattern.org @rarecancerrf.bsky.social · 12/12/2024

According to our partner the Chondrosarcoma Foundation, only ~19% of #RareCancer patients receive genomic sequencing. Here at RCRF, we're working to change that. We believe that every patient should have access to this increasingly important information. 💙💚

000

Rare Cancer Research Foundation + Pattern.org @rarecancerrf.bsky.social · 10/12/2024

Tissue donated through Pattern.org has helped to create over 58 rare cancer research models and counting! As Jane says, it’s a game changer. 🤝

Quote about the power of Pattern.org, primarily that it allows patients to free their samples from institutions that may not have used them for research.

000

Rare Cancer Research Foundation + Pattern.org @rarecancerrf.bsky.social · 06/12/2024

Pattern.org is an initiative of RCRF and serves as a powerful patient engagement platform. 🤝 At RCRF, we’re working to eliminate barriers in current research environments and create a better future for all #RareCancer patients. Join us today. #TomorrowCantWait

020

Rare Cancer Research Foundation + Pattern.org @rarecancerrf.bsky.social · 03/12/2024

Today is #GivingTuesday, and we hope you will consider us in your donation plans as we work to improve outcomes for #RareCancer patients. Learn more about RCRF + Pattern.org and give today at the link in our bio! 💙💚

011