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Positively Aware

@posaware.bsky.social
333 followers 408 following 173 posts

HIV treatment, prevention—and life. Published in Chicago by TPAN, a nonprofit HIV/AIDS services organization. LIVE LIFE POSITIVELY AWARE.

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Positively Aware @posaware.bsky.social · 17/09/2026
Five long-term survivors of #HIV —Alfredo Trejo III, PhD, Malcolm Reid, Pollux López, Stewart Nelson-Reid and Toi Washington-Reynolds—join Rick Guasco for #ThePAChat to talk about life after diagnosis, confronting stigma and advocating for themselves and their communities. youtu.be/P8TKHYIhnT8
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The PA Chat | Long term Survivor Roundtable
YouTube video by Positively Aware
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Positively Aware @posaware.bsky.social · 15/09/2026
“HIV treatment has moved forward. I’m asking my insurer to move with it.” After 20 years of living with #HIV, Morris Singletary seeks answers from @unitedhealtcare.bsky.social, his new insurer, about his medication approval. positivelyaware.com/dear-unitedhealthcare
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Reposted by Positively Aware
CHLP: Center for HIV Law & Policy @hivlawandpolicy.bsky.social · 04/09/2026
Join CHLP and our Team ATAC partners for Litigation for Liberation, an introductory webinar exploring how impact litigation can challenge surveillance, divestment, and criminalization. Monday, September 14 at 12 pm ET. Read more and register at www.hivlawandpolicy.org/events/litig...
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Positively Aware @posaware.bsky.social · 04/09/2026
The exact amount of federal funding defense officials are attempting to divert from NIH infectious disease research is unknown, but U.S. Rep. Rosa DeLauro says it’s in the billions. The agreement to transfer the funds has not been made public. positivelyaware.com/billions-diverted
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Positively Aware @posaware.bsky.social · 02/09/2026
Respondents to @glaad.bsky.social’s #HIV #stigma survey recognized that HIV stigma exists, but the report found that knowledge of HIV has stagnated or even declined, driven by a lack of reliable information and visibility of HIV in media. positivelyaware.com/glaad-stigma-report-2026
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Positively Aware @posaware.bsky.social · 31/08/2026
A few days before BIC-LEN was approved by the FDA, Julene Tripp Weaver talked with Positively Aware about her experience in a clinical trial that helped lead to what is now known as the new #HIV medication #Bixlenvo. youtu.be/8PWKwZbrdbE?...
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The PA Chat | Julene Tripp Weaver talks about her clinical trial experience on new HIV drug Bixlenvo
YouTube video by Positively Aware
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Positively Aware @posaware.bsky.social · 29/08/2026
Two clinical trial participants talk about their experience with the new FDA-approved HIV drug #Bixlenvo, a once-daily 2-drug pill for heavily treatment-experienced people whose #HIV is suppressed but on complex regimens. #ThePAchat www.youtube.com/watch?v=OimP...
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The PA Chat | Jeff Taylor and Michael talk about their experience with new HIV drug Bixlenvo
YouTube video by Positively Aware
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Positively Aware @posaware.bsky.social · 28/08/2026
“[Bixlenvo] represents another important step forward in the evolution of 2-drug regimens, offering heavily treatment-experienced people with HIV and those on complex ART regimens an opportunity to simplify to a potent two-drug regimen,” says one HIV specialist. positivelyaware.com/bixlenvo-approved
positivelyaware.com
FDA approves a new two-drug combo for people on complex HIV treatment
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Positively Aware @posaware.bsky.social · 21/08/2026
A new study from @glaad.bsky.social finds 31% of Gen Zers feel knowledgeable about #HIV. Ty Ballard says, “telling young people to just educate themselves means very little if we are not thinking seriously about where that education is coming from.” positivelyaware.com/understanding-has-to-catch-up
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Positively Aware @posaware.bsky.social · 20/08/2026
In time for Southern HIV/AIDS Awareness Day, Anthony L. Williams marks the 10th anniversary of his film, “Thicker Than Blood,” that weaves identity, queerness and HIV into his family drama. #SHAAD positivelyaware.com/thicker-than-blood-film
positivelyaware.com
Filmmaking as HIV activism
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Positively Aware @posaware.bsky.social · 18/08/2026
Many, if not all, people with HIV on expanded Medicaid are going to have to deal with the program’s new work requirement, which goes into effect Jan. 1, so it’s important to talk with an expert now about what you can expect and how to prepare for it. positivelyaware.com/work-rule-lawsuit
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Positively Aware @posaware.bsky.social · 18/08/2026
“People living with #HIV are not just attendees, volunteers or presenters. We are subject matter experts whose lived experience informs research, shapes policy, strengthens clinical practice and drives meaningful change,” write advocates Bee Velasquez and LaDawn Tate.
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Positively Aware @posaware.bsky.social · 11/08/2026
A conservative group wants TV Land to stop airing a PrEP awareness campaign. HIV prevention advocates are urging Paramount Global to keep the ads on the air and continue to make accurate HIV prevention information visible. positivelyaware.com/paramount-petition
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Positively Aware @posaware.bsky.social · 03/08/2026
Fashion and self-expression came together at #aids2026 to create a sense of freedom and community, advocates told @marksking.bsky.social for @posaware.bsky.social. positivelyaware.com/fashion-and-flair-aids-2026
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Positively Aware @posaware.bsky.social · 01/08/2026
@marksking.bsky.social talks with former #PEPFAR chief science officer Dr. Mike Reid at #AIDS2026: “The last 18 months has been awful for many people working in the U.S. government, people who gave their whole careers to serve on PEPFAR...” www.youtube.com/watch?v=fkKQ...
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The PA Chat | Mark S. King talks with former PEPFAR chief science officer Dr Mike Reid
YouTube video by Positively Aware
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Positively Aware @posaware.bsky.social · 29/07/2026
“We have the right to have health access, to access prevention, to access treatment, to access vaccines, and that those same treatments should not be used to criminalize us,” Mpact Global’s Andrew Spieldenner tells @marksking.bsky.social at #AIDS2026. www.youtube.com/watch?v=3Vpb...
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The PA Chat | MARK S KING interviews Mpact Executive Director Andrew Spieldenner
YouTube video by Positively Aware
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Positively Aware @posaware.bsky.social · 29/07/2026
“You cannot win the war with old means,” @iasociety.bsky.social president-elect Andriy Kelikov tells @marksking.bsky.social at #AIDS2026. “Outdated means the same in public health. We cannot end AIDS epidemic with old means.” bit.ly/the-pa-chat-andriy
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The PA Chat | MARK S KING interviews IAS President Elect Andriy Klepikov
The PA Chat | MARK S KING interviews IAS President Elect Andriy Klepikov
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Positively Aware @posaware.bsky.social · 28/07/2026
At #AIDS2026, activists interrupted a U.S. State Department pre-conference session to protest #PEPFAR cuts and the Trump administration’s “America First Global Health Strategy.” “We will not be erased!” activists said. positivelyaware.com/pepfar-protest-at-aids-2026
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Positively Aware @posaware.bsky.social · 28/07/2026
A steep decline in government support has put #HIV prevention and services under more strain than at any point in nearly a quarter century and threatens to stall or even reverse decades of progress, according to a report released by UNAIDS at #AIDS2026. www.positivelyaware.com/innovation-w...
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Positively Aware @posaware.bsky.social · 26/07/2026
MPact Global’s Andrew Spieldenner warns of cuts to #HIV funding. At #AIDS2026, @unaids.org and @kff.org will release reports examining the impact of those cuts. Also at the conference, MPact will stage a “kiss-in” demonstration. positivelyaware.com/mpact-20-years
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Positively Aware @posaware.bsky.social · 25/07/2026
Ahead of #AIDS2026, researchers report that a once-weekly oral combination of islatravir/lenacapavir maintained viral suppression through 48 weeks, was well tolerated and performed as well as standard daily #HIV treatment in two phase 3 studies. positivelyaware.com/islend-phase-3-results
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Positively Aware @posaware.bsky.social · 24/07/2026
Ahead of #AIDS2026, new findings show over 1,700 clinic closures, staffing losses and reductions in HIV prevention services; a separate analysis found 77,000 fewer children receiving PEPFAR-supported HIV treatment in 2025 than the year before. positivelyaware.com/pepfar-cuts-threaten-global-response
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Positively Aware @posaware.bsky.social · 16/07/2026
“If surveillance is not built on the core principles of informed consent, bodily autonomy and sufficient privacy protections, it increases the risk that people’s private information will be publicly exposed or used against them,” says HIV BASIC. positivelyaware.com/hiv-basic-collective
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Positively Aware @posaware.bsky.social · 11/07/2026
“HIV has too often been framed as somebody else’s issue,” writes social worker Ebony C. Barney, MPH, MSW, LSW, CPH. positivelyaware.com/black-social-workers-and-hiv
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Positively Aware @posaware.bsky.social · 07/07/2026
Aging and HIV service organizations must build the knowledge, policies and partnerships needed to ensure older adults living with HIV feel seen, understood and supported, writes HIV advocate Jax Kelly. positivelyaware.com/a-referral-is-not-a-strategy
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Positively Aware @posaware.bsky.social · 06/07/2026
Could people with HIV lose Medicaid coverage because of new work requirements? Advocates say a new federal rule could make it harder for people living with HIV to qualify for exemptions Congress intended for those who are “medically frail.” positivelyaware.com/interim-final-rule
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Positively Aware @posaware.bsky.social · 27/06/2026
New governing rules for the CDC’s vaccines committee could undermine the panel’s authority and make it vulnerable to politics, says a statement by a group of medical organizations, led by @idsainfo.bsky.social. positivelyaware.com/new-acip-charter
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Positively Aware @posaware.bsky.social · 27/06/2026
Ahead of #NationalHIVTestingDay—Saturday, June 27—a new report from AIDSVu finds a record 644,170 people were on PrEP in the U.S. last year. But the growth 2024–2025 was the slowest in the past 5 years and access and uptake are still far too uneven. positivelyaware.com/new-prepvu-data
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Positively Aware @posaware.bsky.social · 25/06/2026
In a new First Person commentary for the magazine, #HIV health equity advocate Von Biggs argues that addressing social influences of health requires integrated care, community leadership and a willingness to share power. positivelyaware.com/social-influences-of-health
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Social influences of health
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Positively Aware @posaware.bsky.social · 23/06/2026
The FDA could decide by early February whether to approve the first once-weekly pill for HIV prevention. It could offer an alternative to daily PrEP pills and long-acting injections that come with their own logistical and clinical considerations. positivelyaware.com/weekly-prep-pill
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Positively Aware @posaware.bsky.social · 22/06/2026
Lenacapavir, the twice-yearly injectable for HIV prevention, is being rolled out across low-income countries at unprecedented speed. But are supply, funding and transparency keeping pace with demand? @timmurphynycwriter.bsky.social reports for PA. positivelyaware.com/LEN-access-and-accountability
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Positively Aware @posaware.bsky.social · 03/06/2026
Said one of the protesters released after his arrest: “We wanted to have Rubio hear that people are still thinking about PEPFAR—and that people overseas are dying” because of the Trump administration’s dismantling of U.S. global health programs. positivelyaware.com/10-activists-arrested
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Positively Aware @posaware.bsky.social · 02/06/2026
Advocates are concerned that even though HIV meds are not impacted, the cuts could undermine adherence for Missourians with HIV. And with the state legislature adjourned for the year, a legislative solution is unlikely for now. positivelyaware.com/missouri-suspends-ryan-white-part-b
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Positively Aware @posaware.bsky.social · 02/06/2026
The budget provides $75 million for ADAP, maintains income eligibility at 400% of FPL and restores Biktarvy to the formulary, but no assistance for premium. Gov. Ron DeSantis is expected to sign the budget bill into law. positivelyaware.com/new-florida-budget
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Positively Aware @posaware.bsky.social · 19/05/2026
The FDA has approved Idvynso, which combines two drugs made by Merck—doravirine (which has been available for several years under the brand name Pifeltro) + islatravir, the first of a new drug class, nucleoside reverse transcriptase translocation inhibitors. positivelyaware.com/fda-approves-idvynso
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Positively Aware @posaware.bsky.social · 15/05/2026
Immigration raids, funding cuts and fear are disrupting #HIV care for Latina/o communities. In a commentary for PA, Carlos Saldana Ochoa, MD, describes how missed appointments, detention and research instability threaten decades of HIV progress. www.positivelyaware.com/when-fear-disrupts-hiv-care
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Positively Aware @posaware.bsky.social · 07/05/2026
When we dismiss tools like PrEP or DoxyPEP because they don’t align with our personal beliefs, we’re not protecting anyone, writes public health advocate Jason Watler. Too often people disguise their antagonism to some sexual health interventions as morality. positivelyaware.com/in-prep-we-trust
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Positively Aware @posaware.bsky.social · 06/05/2026
An op-ed by PrEP4All’s Jeremiah Johnson as California’s state supreme court hears oral arguments in a lawsuit by 24,000 people living HIV, charging that Gilead Sciences delayed development of a safer version of tenofovir in order to protect profits. positivelyaware.com/tenofovir-lawsuit-arguments
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Positively Aware @posaware.bsky.social · 22/04/2026
Single-tablet regimens simplify HIV treatment, improve adherence and help prevent resistance and transmission. In a First Person commentary, policy advocate Scott Bertani notes that some cost-cutting efforts fail to take into accounts these benefits. www.positivelyaware.com/the-case-for-STRs
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Positively Aware @posaware.bsky.social · 07/04/2026
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Positively Aware @posaware.bsky.social · 31/03/2026
To see someone as the person they are is the beginning of respect. To see someone as the person they are is the beginning of compassion. To see someone as the person they are is the beginning. International Transgender Day of Visibility
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Positively Aware @posaware.bsky.social · 29/03/2026
“I knew how I wanted my hair, nails, outfit, coffin & what funeral home I wanted it to be at,” writes Kim Canady. “I have to remember that I’m here for a reason. I’m in a constant fight with myself to not just be alive but to actually live!” positivelyaware.com/first-person-kim-canady
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Positively Aware @posaware.bsky.social · 26/03/2026
After April 1, the U.S. post office will no longer ship bulk copies of magazines in bundles, so PA is switching to UPS. Now’s the time to update your shipping info—address, quantities and contact info. Or place your new order! Contact us: distribution@positivelyaware.com.
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Positively Aware @posaware.bsky.social · 26/03/2026
This is a stopgap measure in effect through June 30 as lawmakers work toward a new state budget for the 2026–27 fiscal year. positivelyaware.com/florida-adap-temporary-funding
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Positively Aware @posaware.bsky.social · 20/03/2026
The federal government no longer recognizes National HIV/AIDS Awareness Days. That’s why we the people need to stand up and call out how HIV impacts our communities. #NHAAD
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Positively Aware @posaware.bsky.social · 20/03/2026
The funding bill was presented to Gov. DeSantis on March 18; lawmakers expect it to be signed possibly within days, though no timeline has been confirmed. Gaps remind. Biktarvy is still off the #ADAP formulary; Descovy is subject to restricted use. positivelyaware.com/florida-adap-funding-bill
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Positively Aware @posaware.bsky.social · 13/03/2026
Watch actor-performer Keiynan Lonsdale talk with Positively Aware special correspondent Tony Morrison about exploring his sexuality and identity through creativity—and about being on PrEP. youtube.com/watch?v=weJjRYEx6ZU
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Positively Aware @posaware.bsky.social · 13/03/2026
“Talking about #HIV and prevention can feel uncomfortable,” says actor-performer Keiynan Lonsdale. “...I get tested to know my status. I understand my prevention options. And I’m choosing to speak up so others can too.” positivelyaware.com/keiynan-lonsdale-is-done-hiding
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Positively Aware @posaware.bsky.social · 10/03/2026
National Women and Girls HIV/AIDS Awareness Day is a reminder that HIV uniquely affects women—every day. #NWGHAAD
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Positively Aware @posaware.bsky.social · 06/03/2026
Siloed leadership among HIV organizations is limiting collaboration and sidelining grassroots groups closest to communities most in need, says activist Von Biggs in a new First Person op-ed for Positively Aware. Read more here: positivelyaware.com/first-person-building-community
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