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PKD Foundation

@pkdfoundation.bsky.social
131 followers 69 following 255 posts

Dedicated to finding treatments and a cure for polycystic kidney disease (PKD). www.pkdcure.org

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PKD Foundation @pkdfoundation.bsky.social · 02/10/2026
Want to receive updates like this in your inbox? Sign up for the PKD News: go.pkdcure.org/l/886163/202...
go.pkdcure.org
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PKD Foundation @pkdfoundation.bsky.social · 02/10/2026
By recreating genetic mutations in worms, researchers can study their effects, which could ultimately inform the development of more targeted treatments. Read more 👉 www.rutgers.edu/news/tiny-wo...
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PKD Foundation @pkdfoundation.bsky.social · 02/10/2026
Research by Dr. Juan Wang, an associate research professor in the Department of Genetics in the Rutgers School of Arts and Sciences, could help researchers better understand which mutations contribute to disease.
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PKD Foundation @pkdfoundation.bsky.social · 02/10/2026
One goal of personalized medicine is to develop therapies specific to the genetic mutations that cause disease. In PKD, hundreds of mutations have been identified, but it is not always clear which ones cause disease.
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PKD Foundation @pkdfoundation.bsky.social · 30/09/2026
Want to receive updates like this in your inbox? Sign up for the PKD News: go.pkdcure.org/l/886163/202...
go.pkdcure.org
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PKD Foundation @pkdfoundation.bsky.social · 30/09/2026
His team will use lab-grown kidney tissue to better understand ARPKD and test potential new treatments, with the goal of improving care for families affected. You may have seen Dr. Li featured in our most recent research spotlight!
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PKD Foundation @pkdfoundation.bsky.social · 30/09/2026
The PKD Foundation has awarded a $240,000 grant to USC researcher Zhongwei Li , Ph.D. to study autosomal recessive polycystic kidney disease (ARPKD). 👉https://stemcell.keck.usc.edu/pkd-foundation-provides-support-for-kidney-disease-research-by-zhongwei-li/
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PKD Foundation @pkdfoundation.bsky.social · 04/09/2026
When research data can work together, every study can contribute to a larger body of knowledge, helping accelerate discoveries and the development of new treatments. This is the kind of research infrastructure that can help turn today’s investments into tomorrow’s breakthroughs.
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PKD Foundation @pkdfoundation.bsky.social · 04/09/2026
By creating a common framework for how PKD research data is collected and organized, the updated standard will make it easier for researchers around the world to share, compare, and reuse data. It will also expand to include ARPKD for the first time.
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PKD Foundation @pkdfoundation.bsky.social · 04/09/2026
We're helping build the foundation for the next generation of PKD breakthroughs by expanding our collaboration with @CPathInstitute and @CDISC to develop Version 2.0 of the Therapeutic Area User Guide for Polycystic Kidney Disease (TAUG-PKD). youtu.be/eFWos4sUXYs
youtu.be
Therapeutic Area User Guide for Polycystic Kidney Disease (TAUG-PKD) 2.0
YouTube video by PKDFoundation
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PKD Foundation @pkdfoundation.bsky.social · 04/09/2026
Every person who learns about PKD is one more person who can support quickly developing research, advocate for change, or stand beside a family affected by the disease.
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PKD Foundation @pkdfoundation.bsky.social · 04/09/2026
Today is PKD Awareness Day. Awareness doesn’t happen on its own. It happens because people are willing to share their stories, invite others to events, and start conversations. Learn how to get involved at pkdcure.org/awarenessday
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Reposted by PKD Foundation
ISNkidneycare @theisn.org · 03/09/2026
🏆 Lillian Jean Kaplan Prize for PKD: Feng Qian. Learn more: bit.ly/4gAospo “I am deeply honored and humbled to receive the Lillian Jean Kaplan International Prize.” Prof. Qian @pkdfoundation.bsky.social
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PKD Foundation @pkdfoundation.bsky.social · 31/08/2026
Mark your calendars for September 4 ➡️ pkdcure.org/awarenessday
pkdcure.org
PKD Awareness Day 2026 - Polycystic kidney disease | PKD treatment research | PKD Foundation
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PKD Foundation @pkdfoundation.bsky.social · 31/08/2026
ADPKD is estimated to affect more than 500,000 Americans (pre- and post-kidney transplant) and 12.4 million people worldwide. PKD Awareness Day is just around the corner. Let's make sure more people know what PKD is, who it affects, and why awareness matters.
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PKD Foundation @pkdfoundation.bsky.social · 24/08/2026
In a new article, our Director of Research, Dr. Chris Chen, Ph.D., explores the growing pipeline of potential ADPKD therapies and why there is reason to be hopeful about the future of treatment. Read more ⬇️ lifesciencedaily.news/adpkd-therap...
lifesciencedaily.news
ADPKD Therapies Beyond Tolvaptan | Life Science Daily News
ADPKD therapies are moving beyond tolvaptan. Explore the gene-directed, metabolic and PAPP-A drugs now in clinical trials.
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PKD Foundation @pkdfoundation.bsky.social · 17/08/2026
As we celebrate our 46th anniversary on August 20, we’re grateful for everyone who has helped advance our mission and bring us closer to a world without PKD. Learn more about our organization and how you can get involved at pkdcure.org
pkdcure.org
Home Page - Polycystic kidney disease | PKD treatment research | PKD Foundation
Polycystic kidney disease (PKD) is a genetic disorder characterized by the growth of cysts in the kidneys. These cysts can enlarge the kidneys and impair their function over time, leading to symptoms ...
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PKD Foundation @pkdfoundation.bsky.social · 17/08/2026
From a time when there were no known treatments for PKD to today’s golden age of research and discovery, we’ve seen how far the PKD community can go when we work toward a shared vision.
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PKD Foundation @pkdfoundation.bsky.social · 17/08/2026
Today is National Nonprofit Day! For nearly five decades, the PKD Foundation has worked to improve the lives of everyone affected by PKD through research, education, advocacy, support, and community.
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PKD Foundation @pkdfoundation.bsky.social · 21/07/2026
Learn more about these groundbreaking research studies and how they could transform the lives of those living with PKD. go.pkdcure.org/Social2026Gr...
go.pkdcure.org
Funded Grants - Polycystic kidney disease | PKD treatment research | PKD Foundation
Current funded research The goal of the Research Grant and Fellowship Programs will fund critical research to increase understanding of the genetic and pathological processes involved in PKD and to ac...
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PKD Foundation @pkdfoundation.bsky.social · 21/07/2026
This investment reflects the extraordinary promise of today’s science and the urgent need to advance new treatments for the more than 12.4 million people living with PKD worldwide.
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PKD Foundation @pkdfoundation.bsky.social · 21/07/2026
We're proud to announce our 2026 research grant and fellowship recipients and with it, a 50% increase in our funding. Thanks to the generosity of our supporters, we’ve increased the size of each two-year research grant from $160,000 to $240,000.
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PKD Foundation @pkdfoundation.bsky.social · 07/07/2026
A global Phase 2 clinical research study for adults with autosomal dominant polycystic kidney disease (ADPKD) is currently enrolling participants.
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PKD Foundation @pkdfoundation.bsky.social · 07/07/2026
Disclaimer: This research opportunity is being conducted by Calico. The PKD Foundation is sharing this information for awareness purposes only and does not endorse any specific company, product, or clinical trial. Participation is voluntary.
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PKD Foundation @pkdfoundation.bsky.social · 07/07/2026
This investigational treatment has not been approved by the FDA or any other regulatory authority and its safety and efficacy have not been established. Learn more about eligibility and study locations: anchoradpkd.com
anchoradpkd.com
ADPKD Clinical Research Study
Explore options for autosomal dominant polycystic kidney disease (ADPKD) through clinical research.
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PKD Foundation @pkdfoundation.bsky.social · 07/07/2026
The ANCHOR ADPKD study, sponsored by Calico Life Sciences, is evaluating an investigational treatment to determine its effects on ADPKD disease progression. Participation includes study-related care at no cost and may include travel reimbursement.
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PKD Foundation @pkdfoundation.bsky.social · 07/07/2026
A global Phase 2 clinical research study for adults with autosomal dominant polycystic kidney disease (ADPKD) is currently enrolling participants.
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PKD Foundation @pkdfoundation.bsky.social · 25/06/2026
The following tribute was written in partnership by Dr. Stephen Parnell, Dr. Robin Maser, Brenda Magenheimer, and Dr. Darren Wallace. pkdcure.org/blog/in-memo...
pkdcure.org
In Memoriam of Dr. James Calvet - Polycystic kidney disease | PKD treatment research | PKD Foundation
On June 11th, 2026, the PKD community lost a friend, advocate, and scientific pioneer with the passing of Dr. James Calvet, Professor Emeritus of the University of Kansas Medical Center. Jim entered t...
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PKD Foundation @pkdfoundation.bsky.social · 25/06/2026
The following tribute was written in partnership by Dr. Steve Parnell, Dr. Robin Maser, Dr. Brenda Magenheimer, and Dr. Darren Wallace. pkdcure.org/blog/in-memo...
pkdcure.org
In Memoriam of Dr. James Calvet - Polycystic kidney disease | PKD treatment research | PKD Foundation
On June 11th, 2026, the PKD community lost a friend, advocate, and scientific pioneer with the passing of Dr. James Calvet, Professor Emeritus of the University of Kansas Medical Center. Jim entered t...
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PKD Foundation @pkdfoundation.bsky.social · 25/06/2026
His contributions to the field, commitment to mentorship, and dedication to advancing PKD research have left a lasting impact on our community and on countless lives around the world.
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PKD Foundation @pkdfoundation.bsky.social · 25/06/2026
The PKD Foundation is deeply saddened by the passing of Dr. James Calvet, a pioneering researcher whose work helped shape our understanding of PKD and inspired generations of scientists.
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Reposted by PKD Foundation
PKD Foundation @pkdfoundation.bsky.social · 09/06/2026
A global Phase 2 clinical research study for adults with autosomal dominant polycystic kidney disease (ADPKD) is currently enrolling participants.
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PKD Foundation @pkdfoundation.bsky.social · 18/06/2026
Learn more about the bill, and join us in advocating for its passage. pkdcure.org/CuresAct
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PKD Foundation @pkdfoundation.bsky.social · 18/06/2026
The PKD Foundation proudly played a key role in developing and advancing the PKD Cures Act alongside congressional champions, researchers, clinicians, patients, and advocates who all believe families affected by PKD deserve better treatment options and a path toward a cure.
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PKD Foundation @pkdfoundation.bsky.social · 18/06/2026
We're excited to see national news coverage highlighting the historic introduction of the first bill ever introduced in Congress specifically focused on polycystic kidney disease. www.nbcchicago.com/news/local/n...
nbcchicago.com
Proposed federal law would direct efforts to find cure for common kidney ailment
There’s hope that new federal legislation could one day help find a cure for polycystic kidney disease (PKD), one of the most common genetic disorders.
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PKD Foundation @pkdfoundation.bsky.social · 09/06/2026
Disclaimer: This research opportunity is being conducted by Calico. The PKD Foundation is sharing this information for awareness purposes only and does not endorse any specific company, product, or clinical trial. Participation is voluntary.
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PKD Foundation @pkdfoundation.bsky.social · 09/06/2026
This investigational treatment has not been approved by the FDA or any other regulatory authority and its safety and efficacy have not been established. Learn more about eligibility and study locations: anchoradpkd.com
anchoradpkd.com
ADPKD Clinical Research Study
Explore options for autosomal dominant polycystic kidney disease (ADPKD) through clinical research.
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PKD Foundation @pkdfoundation.bsky.social · 09/06/2026
The ANCHOR ADPKD study, sponsored by Calico Life Sciences, is evaluating an investigational treatment to determine its effects on ADPKD disease progression. Participation includes study-related care at no cost and may include travel reimbursement.
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PKD Foundation @pkdfoundation.bsky.social · 09/06/2026
A global Phase 2 clinical research study for adults with autosomal dominant polycystic kidney disease (ADPKD) is currently enrolling participants.
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PKD Foundation @pkdfoundation.bsky.social · 05/06/2026
It directs the NIH to expand and intensify PKD research across basic, translational, and clinical science, and establishes a working group to develop a comprehensive roadmap for the future of PKD research and innovation. Read our full press release: pkdcure.org/CuresAct
pkdcure.org
PKD Foundation Applauds Ground-Breaking Introduction of the PKD Cures Act in Congress - Polycystic kidney disease | PKD treatment research | PKD Foundation
First-ever PKD-specific federal legislation aims to advance the path toward new treatments and a cure for more than 500,000 Americans Kansas City, MO (6/5/2026) — The PKD Foundation applauds the intro...
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PKD Foundation @pkdfoundation.bsky.social · 05/06/2026
The PKD Cures Act, is a bipartisan bill led by Representatives Debbie Wasserman Schultz, along with her colleagues Carol Miller, Emanuel Cleaver, and Don Bacon – all longtime supporters of the PKD community.
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PKD Foundation @pkdfoundation.bsky.social · 05/06/2026
Today is a landmark moment for the PKD community: for the first time ever, Congress has introduced PKD-specific legislation.
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PKD Foundation @pkdfoundation.bsky.social · 28/05/2026
Disclaimer: This research opportunity is being conducted by Calico. The PKD Foundation is sharing this information for awareness purposes only and does not endorse any specific company, product, or clinical trial. Participation is voluntary.
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Reposted by PKD Foundation
PKD Foundation @pkdfoundation.bsky.social · 20/05/2026
A global Phase 2 clinical research study for adults with autosomal dominant polycystic kidney disease (ADPKD) is currently enrolling participants.
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PKD Foundation @pkdfoundation.bsky.social · 26/05/2026
And the most exciting part? PKD research is accelerating at a faster rate than ever before. Donate today to help fuel a future without PKD. Thanks to a few generous donors, all gifts will be MATCHED up to $30,000. pkdcure.org/endPKDnow
pkdcure.org
Donate to Fiscal Year End 2026 - FYE266
This is a pivotal moment in PKD research, and your generosity will help accelerate new breakthroughs and discoveries. Donate today and your gift will be doubled. https://support.pkdcure.org/campaign/...
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PKD Foundation @pkdfoundation.bsky.social · 26/05/2026
💙Grow our patient-powered ADPKD Registry to advance discovery
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PKD Foundation @pkdfoundation.bsky.social · 26/05/2026
💙 Protect critical federal research funding
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PKD Foundation @pkdfoundation.bsky.social · 26/05/2026
💙 Expand our Centers of Excellence network to 81 clinics nationwide
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PKD Foundation @pkdfoundation.bsky.social · 26/05/2026
Make a gift today that will have TWICE the impact! In the last year, our incredible donor community has helped PKD Foundation... 💙 Invest more than $2 million in innovative PKD research
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PKD Foundation @pkdfoundation.bsky.social · 22/05/2026
Dr. Wathen is a counselor educator, tenured associate professor at Palo Alto University, whose work is deeply shaped by her lived experience with chronic illness. As a kidney and liver transplant recipient, she offers a unique perspective on the realities of navigating PKD.
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