PKD Foundation @pkdfoundation.bsky.social · 02/10/2026Want to receive updates like this in your inbox? Sign up for the PKD News: go.pkdcure.org/l/886163/202...go.pkdcure.org 000
PKD Foundation @pkdfoundation.bsky.social · 02/10/2026By recreating genetic mutations in worms, researchers can study their effects, which could ultimately inform the development of more targeted treatments. Read more 👉 www.rutgers.edu/news/tiny-wo... 100
PKD Foundation @pkdfoundation.bsky.social · 02/10/2026Research by Dr. Juan Wang, an associate research professor in the Department of Genetics in the Rutgers School of Arts and Sciences, could help researchers better understand which mutations contribute to disease. 110
PKD Foundation @pkdfoundation.bsky.social · 02/10/2026One goal of personalized medicine is to develop therapies specific to the genetic mutations that cause disease. In PKD, hundreds of mutations have been identified, but it is not always clear which ones cause disease. 101
PKD Foundation @pkdfoundation.bsky.social · 30/09/2026Want to receive updates like this in your inbox? Sign up for the PKD News: go.pkdcure.org/l/886163/202...go.pkdcure.org 000
PKD Foundation @pkdfoundation.bsky.social · 30/09/2026His team will use lab-grown kidney tissue to better understand ARPKD and test potential new treatments, with the goal of improving care for families affected. You may have seen Dr. Li featured in our most recent research spotlight! 100
PKD Foundation @pkdfoundation.bsky.social · 30/09/2026The PKD Foundation has awarded a $240,000 grant to USC researcher Zhongwei Li , Ph.D. to study autosomal recessive polycystic kidney disease (ARPKD). 👉https://stemcell.keck.usc.edu/pkd-foundation-provides-support-for-kidney-disease-research-by-zhongwei-li/ 100
PKD Foundation @pkdfoundation.bsky.social · 04/09/2026When research data can work together, every study can contribute to a larger body of knowledge, helping accelerate discoveries and the development of new treatments. This is the kind of research infrastructure that can help turn today’s investments into tomorrow’s breakthroughs. 000
PKD Foundation @pkdfoundation.bsky.social · 04/09/2026By creating a common framework for how PKD research data is collected and organized, the updated standard will make it easier for researchers around the world to share, compare, and reuse data. It will also expand to include ARPKD for the first time. 100
PKD Foundation @pkdfoundation.bsky.social · 04/09/2026We're helping build the foundation for the next generation of PKD breakthroughs by expanding our collaboration with @CPathInstitute and @CDISC to develop Version 2.0 of the Therapeutic Area User Guide for Polycystic Kidney Disease (TAUG-PKD). youtu.be/eFWos4sUXYsyoutu.beTherapeutic Area User Guide for Polycystic Kidney Disease (TAUG-PKD) 2.0YouTube video by PKDFoundation 100
PKD Foundation @pkdfoundation.bsky.social · 04/09/2026Every person who learns about PKD is one more person who can support quickly developing research, advocate for change, or stand beside a family affected by the disease. 000
PKD Foundation @pkdfoundation.bsky.social · 04/09/2026Today is PKD Awareness Day. Awareness doesn’t happen on its own. It happens because people are willing to share their stories, invite others to events, and start conversations. Learn how to get involved at pkdcure.org/awarenessday 101
Reposted by PKD FoundationISNkidneycare @theisn.org · 03/09/2026🏆 Lillian Jean Kaplan Prize for PKD: Feng Qian. Learn more: bit.ly/4gAospo “I am deeply honored and humbled to receive the Lillian Jean Kaplan International Prize.” Prof. Qian @pkdfoundation.bsky.social 112
PKD Foundation @pkdfoundation.bsky.social · 31/08/2026Mark your calendars for September 4 ➡️ pkdcure.org/awarenessdaypkdcure.orgPKD Awareness Day 2026 - Polycystic kidney disease | PKD treatment research | PKD Foundation 000
PKD Foundation @pkdfoundation.bsky.social · 31/08/2026ADPKD is estimated to affect more than 500,000 Americans (pre- and post-kidney transplant) and 12.4 million people worldwide. PKD Awareness Day is just around the corner. Let's make sure more people know what PKD is, who it affects, and why awareness matters. 100
PKD Foundation @pkdfoundation.bsky.social · 24/08/2026In a new article, our Director of Research, Dr. Chris Chen, Ph.D., explores the growing pipeline of potential ADPKD therapies and why there is reason to be hopeful about the future of treatment. Read more ⬇️ lifesciencedaily.news/adpkd-therap...lifesciencedaily.newsADPKD Therapies Beyond Tolvaptan | Life Science Daily NewsADPKD therapies are moving beyond tolvaptan. Explore the gene-directed, metabolic and PAPP-A drugs now in clinical trials. 000
PKD Foundation @pkdfoundation.bsky.social · 17/08/2026As we celebrate our 46th anniversary on August 20, we’re grateful for everyone who has helped advance our mission and bring us closer to a world without PKD. Learn more about our organization and how you can get involved at pkdcure.orgpkdcure.orgHome Page - Polycystic kidney disease | PKD treatment research | PKD FoundationPolycystic kidney disease (PKD) is a genetic disorder characterized by the growth of cysts in the kidneys. These cysts can enlarge the kidneys and impair their function over time, leading to symptoms ... 000
PKD Foundation @pkdfoundation.bsky.social · 17/08/2026From a time when there were no known treatments for PKD to today’s golden age of research and discovery, we’ve seen how far the PKD community can go when we work toward a shared vision. 100
PKD Foundation @pkdfoundation.bsky.social · 17/08/2026Today is National Nonprofit Day! For nearly five decades, the PKD Foundation has worked to improve the lives of everyone affected by PKD through research, education, advocacy, support, and community. 100
PKD Foundation @pkdfoundation.bsky.social · 21/07/2026Learn more about these groundbreaking research studies and how they could transform the lives of those living with PKD. go.pkdcure.org/Social2026Gr...go.pkdcure.orgFunded Grants - Polycystic kidney disease | PKD treatment research | PKD FoundationCurrent funded research The goal of the Research Grant and Fellowship Programs will fund critical research to increase understanding of the genetic and pathological processes involved in PKD and to ac... 000
PKD Foundation @pkdfoundation.bsky.social · 21/07/2026This investment reflects the extraordinary promise of today’s science and the urgent need to advance new treatments for the more than 12.4 million people living with PKD worldwide. 100
PKD Foundation @pkdfoundation.bsky.social · 21/07/2026We're proud to announce our 2026 research grant and fellowship recipients and with it, a 50% increase in our funding. Thanks to the generosity of our supporters, we’ve increased the size of each two-year research grant from $160,000 to $240,000. 121
Reposted by PKD FoundationPKD Foundation @pkdfoundation.bsky.social · 07/07/2026A global Phase 2 clinical research study for adults with autosomal dominant polycystic kidney disease (ADPKD) is currently enrolling participants. 101
PKD Foundation @pkdfoundation.bsky.social · 07/07/2026Disclaimer: This research opportunity is being conducted by Calico. The PKD Foundation is sharing this information for awareness purposes only and does not endorse any specific company, product, or clinical trial. Participation is voluntary. 000
PKD Foundation @pkdfoundation.bsky.social · 07/07/2026This investigational treatment has not been approved by the FDA or any other regulatory authority and its safety and efficacy have not been established. Learn more about eligibility and study locations: anchoradpkd.comanchoradpkd.comADPKD Clinical Research StudyExplore options for autosomal dominant polycystic kidney disease (ADPKD) through clinical research. 100
PKD Foundation @pkdfoundation.bsky.social · 07/07/2026The ANCHOR ADPKD study, sponsored by Calico Life Sciences, is evaluating an investigational treatment to determine its effects on ADPKD disease progression. Participation includes study-related care at no cost and may include travel reimbursement. 100
PKD Foundation @pkdfoundation.bsky.social · 07/07/2026A global Phase 2 clinical research study for adults with autosomal dominant polycystic kidney disease (ADPKD) is currently enrolling participants. 101
PKD Foundation @pkdfoundation.bsky.social · 25/06/2026The following tribute was written in partnership by Dr. Stephen Parnell, Dr. Robin Maser, Brenda Magenheimer, and Dr. Darren Wallace. pkdcure.org/blog/in-memo...pkdcure.orgIn Memoriam of Dr. James Calvet - Polycystic kidney disease | PKD treatment research | PKD FoundationOn June 11th, 2026, the PKD community lost a friend, advocate, and scientific pioneer with the passing of Dr. James Calvet, Professor Emeritus of the University of Kansas Medical Center. Jim entered t... 000
PKD Foundation @pkdfoundation.bsky.social · 25/06/2026The following tribute was written in partnership by Dr. Steve Parnell, Dr. Robin Maser, Dr. Brenda Magenheimer, and Dr. Darren Wallace. pkdcure.org/blog/in-memo...pkdcure.orgIn Memoriam of Dr. James Calvet - Polycystic kidney disease | PKD treatment research | PKD FoundationOn June 11th, 2026, the PKD community lost a friend, advocate, and scientific pioneer with the passing of Dr. James Calvet, Professor Emeritus of the University of Kansas Medical Center. Jim entered t... 000
PKD Foundation @pkdfoundation.bsky.social · 25/06/2026His contributions to the field, commitment to mentorship, and dedication to advancing PKD research have left a lasting impact on our community and on countless lives around the world. 100
PKD Foundation @pkdfoundation.bsky.social · 25/06/2026The PKD Foundation is deeply saddened by the passing of Dr. James Calvet, a pioneering researcher whose work helped shape our understanding of PKD and inspired generations of scientists. 110
Reposted by PKD FoundationPKD Foundation @pkdfoundation.bsky.social · 09/06/2026A global Phase 2 clinical research study for adults with autosomal dominant polycystic kidney disease (ADPKD) is currently enrolling participants. 101
PKD Foundation @pkdfoundation.bsky.social · 18/06/2026Learn more about the bill, and join us in advocating for its passage. pkdcure.org/CuresAct 000
PKD Foundation @pkdfoundation.bsky.social · 18/06/2026The PKD Foundation proudly played a key role in developing and advancing the PKD Cures Act alongside congressional champions, researchers, clinicians, patients, and advocates who all believe families affected by PKD deserve better treatment options and a path toward a cure. 100
PKD Foundation @pkdfoundation.bsky.social · 18/06/2026We're excited to see national news coverage highlighting the historic introduction of the first bill ever introduced in Congress specifically focused on polycystic kidney disease. www.nbcchicago.com/news/local/n...nbcchicago.comProposed federal law would direct efforts to find cure for common kidney ailmentThere’s hope that new federal legislation could one day help find a cure for polycystic kidney disease (PKD), one of the most common genetic disorders. 100
PKD Foundation @pkdfoundation.bsky.social · 09/06/2026Disclaimer: This research opportunity is being conducted by Calico. The PKD Foundation is sharing this information for awareness purposes only and does not endorse any specific company, product, or clinical trial. Participation is voluntary. 000
PKD Foundation @pkdfoundation.bsky.social · 09/06/2026This investigational treatment has not been approved by the FDA or any other regulatory authority and its safety and efficacy have not been established. Learn more about eligibility and study locations: anchoradpkd.comanchoradpkd.comADPKD Clinical Research StudyExplore options for autosomal dominant polycystic kidney disease (ADPKD) through clinical research. 100
PKD Foundation @pkdfoundation.bsky.social · 09/06/2026The ANCHOR ADPKD study, sponsored by Calico Life Sciences, is evaluating an investigational treatment to determine its effects on ADPKD disease progression. Participation includes study-related care at no cost and may include travel reimbursement. 100
PKD Foundation @pkdfoundation.bsky.social · 09/06/2026A global Phase 2 clinical research study for adults with autosomal dominant polycystic kidney disease (ADPKD) is currently enrolling participants. 101
PKD Foundation @pkdfoundation.bsky.social · 05/06/2026It directs the NIH to expand and intensify PKD research across basic, translational, and clinical science, and establishes a working group to develop a comprehensive roadmap for the future of PKD research and innovation. Read our full press release: pkdcure.org/CuresActpkdcure.orgPKD Foundation Applauds Ground-Breaking Introduction of the PKD Cures Act in Congress - Polycystic kidney disease | PKD treatment research | PKD FoundationFirst-ever PKD-specific federal legislation aims to advance the path toward new treatments and a cure for more than 500,000 Americans Kansas City, MO (6/5/2026) — The PKD Foundation applauds the intro... 000
PKD Foundation @pkdfoundation.bsky.social · 05/06/2026The PKD Cures Act, is a bipartisan bill led by Representatives Debbie Wasserman Schultz, along with her colleagues Carol Miller, Emanuel Cleaver, and Don Bacon – all longtime supporters of the PKD community. 100
PKD Foundation @pkdfoundation.bsky.social · 05/06/2026Today is a landmark moment for the PKD community: for the first time ever, Congress has introduced PKD-specific legislation. 100
PKD Foundation @pkdfoundation.bsky.social · 28/05/2026Disclaimer: This research opportunity is being conducted by Calico. The PKD Foundation is sharing this information for awareness purposes only and does not endorse any specific company, product, or clinical trial. Participation is voluntary. 000
Reposted by PKD FoundationPKD Foundation @pkdfoundation.bsky.social · 20/05/2026A global Phase 2 clinical research study for adults with autosomal dominant polycystic kidney disease (ADPKD) is currently enrolling participants. 111
PKD Foundation @pkdfoundation.bsky.social · 26/05/2026And the most exciting part? PKD research is accelerating at a faster rate than ever before. Donate today to help fuel a future without PKD. Thanks to a few generous donors, all gifts will be MATCHED up to $30,000. pkdcure.org/endPKDnowpkdcure.orgDonate to Fiscal Year End 2026 - FYE266This is a pivotal moment in PKD research, and your generosity will help accelerate new breakthroughs and discoveries. Donate today and your gift will be doubled. https://support.pkdcure.org/campaign/... 010
PKD Foundation @pkdfoundation.bsky.social · 26/05/2026💙Grow our patient-powered ADPKD Registry to advance discovery 110
PKD Foundation @pkdfoundation.bsky.social · 26/05/2026💙 Protect critical federal research funding 100
PKD Foundation @pkdfoundation.bsky.social · 26/05/2026💙 Expand our Centers of Excellence network to 81 clinics nationwide 100
PKD Foundation @pkdfoundation.bsky.social · 26/05/2026Make a gift today that will have TWICE the impact! In the last year, our incredible donor community has helped PKD Foundation... 💙 Invest more than $2 million in innovative PKD research 100
PKD Foundation @pkdfoundation.bsky.social · 22/05/2026Dr. Wathen is a counselor educator, tenured associate professor at Palo Alto University, whose work is deeply shaped by her lived experience with chronic illness. As a kidney and liver transplant recipient, she offers a unique perspective on the realities of navigating PKD. 000