iiinova — where your digital self keeps evolving

PKD Foundation @pkdfoundation.bsky.social · 30/09/2026

The PKD Foundation has awarded a $240,000 grant to USC researcher Zhongwei Li , Ph.D. to study autosomal recessive polycystic kidney disease (ARPKD). 👉https://stemcell.keck.usc.edu/pkd-foundation-provides-support-for-kidney-disease-research-by-zhongwei-li/

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PKD Foundation @pkdfoundation.bsky.social · 04/09/2026

We're helping build the foundation for the next generation of PKD breakthroughs by expanding our collaboration with @CPathInstitute and @CDISC to develop Version 2.0 of the Therapeutic Area User Guide for Polycystic Kidney Disease (TAUG-PKD). youtu.be/eFWos4sUXYs

youtu.be

Therapeutic Area User Guide for Polycystic Kidney Disease (TAUG-PKD) 2.0

YouTube video by PKDFoundation

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PKD Foundation @pkdfoundation.bsky.social · 04/09/2026

Today is PKD Awareness Day. Awareness doesn’t happen on its own. It happens because people are willing to share their stories, invite others to events, and start conversations. Learn how to get involved at pkdcure.org/awarenessday

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Reposted by PKD Foundation

ISNkidneycare @theisn.org · 03/09/2026

🏆 Lillian Jean Kaplan Prize for PKD: Feng Qian. Learn more: bit.ly/4gAospo “I am deeply honored and humbled to receive the Lillian Jean Kaplan International Prize.” Prof. Qian @pkdfoundation.bsky.social

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PKD Foundation @pkdfoundation.bsky.social · 31/08/2026

ADPKD is estimated to affect more than 500,000 Americans (pre- and post-kidney transplant) and 12.4 million people worldwide. PKD Awareness Day is just around the corner. Let's make sure more people know what PKD is, who it affects, and why awareness matters.

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PKD Foundation @pkdfoundation.bsky.social · 24/08/2026

In a new article, our Director of Research, Dr. Chris Chen, Ph.D., explores the growing pipeline of potential ADPKD therapies and why there is reason to be hopeful about the future of treatment. Read more ⬇️ lifesciencedaily.news/adpkd-therap...

lifesciencedaily.news

ADPKD Therapies Beyond Tolvaptan | Life Science Daily News

ADPKD therapies are moving beyond tolvaptan. Explore the gene-directed, metabolic and PAPP-A drugs now in clinical trials.

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PKD Foundation @pkdfoundation.bsky.social · 17/08/2026

Today is National Nonprofit Day! For nearly five decades, the PKD Foundation has worked to improve the lives of everyone affected by PKD through research, education, advocacy, support, and community.

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PKD Foundation @pkdfoundation.bsky.social · 21/07/2026

We're proud to announce our 2026 research grant and fellowship recipients and with it, a 50% increase in our funding. Thanks to the generosity of our supporters, we’ve increased the size of each two-year research grant from $160,000 to $240,000.

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PKD Foundation @pkdfoundation.bsky.social · 07/07/2026

A global Phase 2 clinical research study for adults with autosomal dominant polycystic kidney disease (ADPKD) is currently enrolling participants.

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PKD Foundation @pkdfoundation.bsky.social · 07/07/2026

A global Phase 2 clinical research study for adults with autosomal dominant polycystic kidney disease (ADPKD) is currently enrolling participants.

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PKD Foundation @pkdfoundation.bsky.social · 25/06/2026

The PKD Foundation is deeply saddened by the passing of Dr. James Calvet, a pioneering researcher whose work helped shape our understanding of PKD and inspired generations of scientists.

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PKD Foundation @pkdfoundation.bsky.social · 09/06/2026

A global Phase 2 clinical research study for adults with autosomal dominant polycystic kidney disease (ADPKD) is currently enrolling participants.

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PKD Foundation @pkdfoundation.bsky.social · 18/06/2026

We're excited to see national news coverage highlighting the historic introduction of the first bill ever introduced in Congress specifically focused on polycystic kidney disease. www.nbcchicago.com/news/local/n...

nbcchicago.com

Proposed federal law would direct efforts to find cure for common kidney ailment

There’s hope that new federal legislation could one day help find a cure for polycystic kidney disease (PKD), one of the most common genetic disorders.

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PKD Foundation @pkdfoundation.bsky.social · 09/06/2026

A global Phase 2 clinical research study for adults with autosomal dominant polycystic kidney disease (ADPKD) is currently enrolling participants.

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PKD Foundation @pkdfoundation.bsky.social · 05/06/2026

Today is a landmark moment for the PKD community: for the first time ever, Congress has introduced PKD-specific legislation.

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Reposted by PKD Foundation

PKD Foundation @pkdfoundation.bsky.social · 20/05/2026

A global Phase 2 clinical research study for adults with autosomal dominant polycystic kidney disease (ADPKD) is currently enrolling participants.

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PKD Foundation @pkdfoundation.bsky.social · 26/05/2026

Make a gift today that will have TWICE the impact! In the last year, our incredible donor community has helped PKD Foundation... 💙 Invest more than $2 million in innovative PKD research

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PKD Foundation @pkdfoundation.bsky.social · 22/05/2026

We sat down with Cristen Wathen, Ph.D., LCPC, NCC., to voice questions from the community about mental health and life with PKD. In this conversation, she explores managing anxiety, guidance on seeking support, and communicating needs with others. youtu.be/TyyNLe-C4Yk

youtu.be

Mental Health& PKD: Expert Answers to Community Questions with Cristen Wathen, Ph.D., LCPC, NCC.

YouTube video by PKDFoundation

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PKD Foundation @pkdfoundation.bsky.social · 21/05/2026

It’s Mental Health Action Day, and we want to encourage the PKD community to do something for their mental health today. Take part by choosing one of the following ⬇️

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PKD Foundation @pkdfoundation.bsky.social · 20/05/2026

A global Phase 2 clinical research study for adults with autosomal dominant polycystic kidney disease (ADPKD) is currently enrolling participants.

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PKD Foundation @pkdfoundation.bsky.social · 13/05/2026

The science of PKD is moving faster than ever. We need you to keep the momentum going. Right now, all gifts are matched — thanks to generous donors — up to $30,000. DOUBLE your impact today. pkdcure.org/endPKDnow

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PKD Foundation @pkdfoundation.bsky.social · 07/05/2026

Our 2025 Impact Report is here! Discover the progress we’re driving with the support of our community during one of the most promising times in PKD research. Read the full report ➡️ go.pkdcure.org/IR25Social

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PKD Foundation @pkdfoundation.bsky.social · 30/04/2026

Every piece of information shared through the ADPKD Registry helps researchers better understand polycystic kidney disease. By participating, you can shape the future of ADPKD research. Join today ➡️ pkdcure.org/registry.

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PKD Foundation @pkdfoundation.bsky.social · 22/04/2026

According to Health Resources and Services Administration, over 2,000 children in the U.S. are currently waiting for a life-saving organ transplant. “Kidney Transplantation in Children,” a 2022 PKDCON session helps explain what this journey can look like for PKD families. youtu.be/59kBU9smVF0

youtu.be

Kidney Transplantion in Children

YouTube video by PKDFoundation

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PKD Foundation @pkdfoundation.bsky.social · 20/04/2026

Volunteer Appreciation Week starts today! 💙 The passion, dedication, and commitment of our volunteers continue to move us closer to a future free from PKD. Thank you for all you do.

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PKD Foundation @pkdfoundation.bsky.social · 09/04/2026

In our latest podcast episode, Heedeok Han, MD, explores the benefits of pre-emptive kidney transplants, early referrals, and proactive care to help support better kidney health and quality of life. Listen now: pkdcure.org/PKDChronicle...

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PKD Foundation @pkdfoundation.bsky.social · 08/04/2026

April is Minority Health Month and an important reminder that equitable care matters. Check out this article by Pranav Garimella, MBBS, MPH, FASN, and Clinic Director at the University of California, San Diego, a PKD Foundation Center of Excellence. www.consultantlive.com/view/rewriti...

consultantlive.com

How Rewriting Race-Based GFR Equations Changed Kidney Transplant Access, With Pranav Garimella, MBBS, MPH

Garimella discusses the history, clinical impact, and rationale for removing race-based GFR from clinical decision-making.

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Reposted by PKD Foundation

ISNkidneycare @theisn.org · 07/04/2026

At #ISNWCN, we spoke with Lilian Kaplan Prize winner Prof. Ron Gansevoort. “Be inspired. We are all clinicians. That's our basic task.” He encourages young nephrologists to pursue research while staying grounded in clinical care. 🎥 bit.ly/3PU8aN3 @pkdfoundation.bsky.social

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PKD Foundation @pkdfoundation.bsky.social · 03/04/2026

Congratulations, Ron T. Gansevoort, professor of medicine and nephrologist at the University Medical Center Groningen in the Netherlands, on receiving the 2026 Lillian Jean Kaplan International Prize for Advancement in the Understanding of polycystic kidney disease.

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PKD Foundation @pkdfoundation.bsky.social · 01/04/2026

Virtual registration is now open for PKDCON 2026! If you can’t join us in Chicago, you don’t have to miss out on all the valuable education. Planning to attend in person? Tickets are still available, but are expected to sell out this April. Register Today go.pkdcure.org/PKDCON26Social

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PKD Foundation @pkdfoundation.bsky.social · 27/03/2026

We excited to join the global kidney community at the World Congress of Nephrology 2026, hosted by the International Society of Nephrology. We look forward to convening with researchers from around the world to share the latest advancements in kidney health, research, and education.

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PKD Foundation @pkdfoundation.bsky.social · 24/03/2026

For more than a decade, patients, donors, and advocates have pushed for living organ donation reform. In an op-ed published in The Kansas City Star, our CEO shares why this moment matters and why Congress must pass the Living Donor Protection Act. ⬇️ www.kansascity.com/opinion/read...

kansascity.com

Donating an organ shouldn’t mean higher insurance bills. Congress, fix this | Opinion

Missouri’s Josh Hawley and Kansas’ Roger Marshall sit on a Senate committee that finally advanced a bill to keep people alive. Get it over the finish line. | Opinion

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PKD Foundation @pkdfoundation.bsky.social · 23/03/2026

⏰ Let us know you’re coming to tomorrow’s webinar! 📣 PKD Advocacy in Action: What it Means and How to Get Involved. ➡️ pkdcure.org/AdvocacyWebinar26

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PKD Foundation @pkdfoundation.bsky.social · 19/03/2026

At PKDCON 2026, leading clinicians and researchers will present on topics that matter most to the PKD community, from the latest research advancements to practical guidance on managing the disease. Register today. ➡️ go.pkdcure.org/PKDCON26Social

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PKD Foundation @pkdfoundation.bsky.social · 12/03/2026

Behind every breakthrough are dedicated scientists like Brittany Lasseigne, Ph.D. When she began collaborating with the PKD research community at the University of Alabama at Birmingham, she quickly recognized both the complexity of the disease and the opportunity to better understand it.

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PKD Foundation @pkdfoundation.bsky.social · 12/03/2026

For World Kidney Day, we’re proud to spotlight the researchers advancing PKD science. Ron Perrone, M.D., has an extensive background in PKD research and currently serves as co-director of the PKD Outcomes Consortium (PKDOC), working in collaboration with us and the Critical Path Institute.

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PKD Foundation @pkdfoundation.bsky.social · 12/03/2026

Today is World Kidney Day, a global opportunity to highlight the important role kidneys play in our overall health— something families living with polycystic kidney disease know all too well.

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PKD Foundation @pkdfoundation.bsky.social · 05/03/2026

We are leaving Capitol Hill knowing this work matters. With the recent progress on the Living Donor Protection Act, we’ve seen firsthand that advocacy creates change. Thank you advocates for helping advance research, protect living donors, and support the PKD community. 💙

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PKD Foundation @pkdfoundation.bsky.social · 02/03/2026

We are at a pivotal moment for PKD research. Your donation during National Kidney Month will help keep life-changing research moving forward. And thanks to a generous donor, your gift will be matched, up to $15,000, making 2x the impact. Give Today ➡️ pkdcure.org/NKM2026

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PKD Foundation @pkdfoundation.bsky.social · 28/02/2026

On this Rare Disease Day, we’re proud to share the most up-to-date information for ARPKD patients and families. Our newly updated Patient Handbook includes comprehensive information on ARPKD and congenital hepatic fibrosis (CHF). Download your copy today: pkdcure.org/for-patients...

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PKD Foundation @pkdfoundation.bsky.social · 26/02/2026

The Living Donor Protection Act (LDPA) has moved forward! Thank you to the Senate HELP Committee for voting to advance this important legislation. We look forward to its consideration and passage by the full Senate in the coming months.

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PKD Foundation @pkdfoundation.bsky.social · 18/02/2026

Listen to our newest episode of PKD Chronicles, where we explore everyday lifestyle tips designed to help those living with PKD with Dr. Fouad Chebib and Dr. Moain Abu Dabrh. 🎧 Listen Now pkdcure.org/PKDChroniclesS1Ep10

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PKD Foundation @pkdfoundation.bsky.social · 05/02/2026

We were pleased to see Congress pass, and the President sign into law, the bipartisan Mikaela Naylon Give Kids a Chance Act earlier this week, reauthorizing the Pediatric Priority Review Voucher Program.

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PKD Foundation @pkdfoundation.bsky.social · 03/02/2026

Have you heard of CRISPR base-editing? This emerging tool is currently being used by scientists to advance potential treatments for autosomal dominant polycystic kidney disease (ADPKD). 🧵⬇️

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PKD Foundation @pkdfoundation.bsky.social · 30/01/2026

PKD researchers, we invite you to submit your research abstract for the poster session at the 2026 PKD Connect Conference (PKDCON)—the PKD Foundation’s annual conference that brings together patients, families, clinicians, and researchers. pkdfoundation.jotform.com/253503450999...

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PKD Foundation @pkdfoundation.bsky.social · 29/01/2026

Check out this free resource for PKD patients and families 👇 The Mayo Clinic PKD Resource Center offers articles and videos on diagnosis, genetics, lifestyle management, treatment options, and more. Find reliable and expert-led PKD information at mcpress.mayoclinic.org/polycystic-k...

mcpress.mayoclinic.org

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Reposted by PKD Foundation

PKD International @pkdinternational.bsky.social · 27/01/2026

Autosomal Dominant Polycystic Kidney Disease affects more than just the kidneys. In this webinar, organized by the @pkdfoundation.bsky.social, the systemic impact of the disease is explored, including its effects on the heart, liver, bones, and metabolic health 📹 www.youtube.com/watch?v=biwC...

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PKD Foundation @pkdfoundation.bsky.social · 20/01/2026

You can join advocates from across the country as part of our Virtual Advocacy Day on Thursday, March 5. Together, we’ll make a difference for the PKD community by advocating for federal policies that advance PKD research and care. Registration is now open: pkdcure.org/2026AdvocacyDay

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PKD Foundation @pkdfoundation.bsky.social · 15/01/2026

Regular exercise is a must when you have PKD. However, winter temperatures, ice, and snow can make outdoor workouts hazardous. We asked Lauren Schaffer, a physical therapist at the University of Kansas Health System for advice. Read more on today's blog. pkdcure.org/resources/5-...

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