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Patients for Patient Safety US

@pfps-us.bsky.social
316 followers 284 following 310 posts

PFPS US is a network of people and organizations aligned with the WHO and focused on making healthcare safe in the United States. Led by people who have experienced medical error, we are activated to advance the Global Patient Safety Action Plan 2021-2030

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Patients for Patient Safety US @pfps-us.bsky.social · 30/09/2026
Patients for Patient Safety US (PFPS US) today announced the appointment of Dr. Charity S. Watkins and Vonda Vaden Bates to its Board of Directors. Both bring lived experience of diagnostic errors together with perspective on the role of bias as a contributor to avoidable harm in health care.
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KFF @kff.org · 25/09/2026
While health insurance coverage helps, it doesn’t eliminate cost barriers for women. Our survey shows that many women with insurance are delaying care, skipping recommended tests, rationing medications, or cutting basic needs because of health care costs: on.kff.org/4y4XIn2
KFF graphic titled “Cost shapes everyday health decisions,” that shows data from the 2026 Women’s Health Survey. It shows donut charts below text that says: In the last year, because of cost, women ages 18 to 64: 31% skipped or postponed a recommended medical test or treatment; 27% did not fill a prescription; 17% cut pills in half or skipped doses of medication; 25% spent less money on basic needs.
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MedPage Today @medpagetoday.com · 24/09/2026
More work is needed with regard to antidepressants and muscle relaxants amid efforts to tamp down on polypharmacy and harmful drug-drug interactions, according to nationally representative data. www.medpagetoday.com/geriatrics/gen…
medpagetoday.com
Possible Drug-Drug Interactions Flagged for Older Americans
Many are on 5+ prescription drugs or dietary supplements
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Patients for Patient Safety US @pfps-us.bsky.social · 22/09/2026
We're thrilled to see PFPS US champion Rosie Bartel serving as a co-chair for the IHI Forum!
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STAT @statnews.com · 22/09/2026
If you watched Sunday's @lastweektonight.com and want to better understand the acronym 'TAMPER,' you can read our story — Health Care's Colossus: How UnitedHealth harnesses its physician empire to squeeze profits out of patients. www.statnews.com/2024/07/25/u...
screenshot of John Oliver talking about the story
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Patients for Patient Safety US @pfps-us.bsky.social · 22/09/2026
The Guardians of the Patient Safety Structural Measure are a workgroup of patients and patient safety advocates developed and led by PFPS US Patient Safety Champions. (1/2)
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Patients for Patient Safety US @pfps-us.bsky.social · 17/09/2026
“Artificial intelligence is already reshaping care delivery and improving diagnosis,” says Sue Sheridan, CEO, Patients for Patient Safety, who serves as co-chair of the NAM initiative. aginginamerica.news/2026/09/15/p...
aginginamerica.news
Patient Safety in the Era of AI
| Launching a New National Strategy | Shalini Kathuria Narang | The National Academy of Medicine (NAM) recently launched a national initiative, Patient Safety in the Era of AI, to harness the promi…
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Patients for Patient Safety US @pfps-us.bsky.social · 16/09/2026
Our board gathered patients from across the country to discuss diagnostic errors in medicine across populations with clinicians and govt agency leaders. We've been working on Project PIVOT for more than a year now to change outcomes!
A photo of the board members of Patients for Patient Safety USA photo of the board members of Patients for Patient Safety US
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Patients for Patient Safety US @pfps-us.bsky.social · 15/09/2026
We need your help! The Patient Safety Structural Measure (PSSM) is a new hospital quality measure, adopted by the Centers for Medicare & Medicaid Services (CMS) in 2025.
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Patients for Patient Safety US @pfps-us.bsky.social · 15/09/2026
There's still time to sign up for our World Patient Safety Day webinar! Join us on Thursday to kick off a year of global focus on patient safety risks associated with Non-Communicable Diseases (NCD).
pfps.us
Patient For Patient Safety US | PFPS US
PFPS US is a nonprofit patient-led organization advancing patient safety, reducing medical errors, improving diagnostic accuracy, and promoting safer healthcare in America.
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CIDRAP @cidrap.bsky.social · 10/09/2026
Repeat COVID infections tied to higher odds of new health conditions Adults who reported 2 or more infections had 76% higher odds of receiving a new medical diagnosis. Read more: bit.ly/4hleVmc
Sick man sitting on bed looking at thermometer
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Patients for Patient Safety US @pfps-us.bsky.social · 09/09/2026
There's still time to sign up for our World Patient Safety Day webinar on September 17! Check out the agenda and sign up here: www.pfps.us
pfps.us
Patient For Patient Safety US | PFPS US
PFPS US is a nonprofit patient-led organization advancing patient safety, reducing medical errors, improving diagnostic accuracy, and promoting safer healthcare in America.
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University of Minnesota Consortium on Law and Values @umnconsortium.bsky.social · 03/09/2026
Congrats @mtosterholm.bsky.social & @cidrap.bsky.social's Vaccine Integrity Project: 4 new papers reviewing COVID-19, flu & RSV vaccines. Findings show protection from severe illness, hospitalization & death. CIDRAP is a Consortium member center. Read the papers: www.cidrap.umn.edu/vaccine-inte...
Screenshot of a JAMA Perspective titled “Respiratory Season Virus Vaccines: Restoring Confidence and Trust,” by Sandra Adamson Fryhofer, Andrea M. Garcia, Michael T. Osterholm, et al. Osterholm’s affiliation is the Vaccine Integrity Project, Center for Infectious Disease Research and Policy, University of Minnesota.
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Patients for Patient Safety US @pfps-us.bsky.social · 04/09/2026
PFPS US to Host 2026 World Patient Safety Day Webinar on 'The Safe Healthcare System Patients Deserve' www.einpresswire.com/article/9394...
einpresswire.com
PFPS US to Host 2026 World Patient Safety Day Webinar on 'The Safe Healthcare System Patients Deserve'
Patients for Patient Safety US (PFPS US) today announced speakers for its 2026 World Patient Safety Day (WPSD) Webinar, The Safe Healthcare System Patients
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Patients for Patient Safety US @pfps-us.bsky.social · 03/09/2026
Our World Patient Safety Day webinar is on September 17! The webinar event will also highlight emergent developments and solutions to longstanding patient safety challenges in the United States, followed by CMS commentary. Sign up here: www.pfps.us #wpsd #worldpatientsafetyday
pfps.us
Patient For Patient Safety US | PFPS US
PFPS US is a nonprofit patient-led organization advancing patient safety, reducing medical errors, improving diagnostic accuracy, and promoting safer healthcare in America.
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Dr. Céline Gounder @celinegounder.com · 02/09/2026
I think of measles as a mini HIV. Both infect the immune system itself. HIV takes the power to fight. Measles takes what you already learned, erasing 11% to 73% of antibodies in 77 children. Send to a parent on the fence: www.celinegounder.com/p/measles-mea…
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Eric Topol @erictopol.bsky.social · 02/09/2026
What is being done vs #LongCovid and other post-viral serious chronic illness? Not enough. www.nature.com/articles/d41...
nature.com
When do infections lead to long COVID? Scientists close in on triggers and treatments for post-viral syndromes
Hundreds of millions of people have long-term conditions as a result of an infection. Researchers are working out how to help them.
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The Lancet Obstetrics, Gynaecology, & Women’s Health @lancetobgyn-wh.bsky.social · 01/09/2026
Cardiovascular disease is a major cause of maternal mortality & long-term morbidity. But, pregnancy-related cardiovascular complications are under-recognised and variably managed. Read the Series on Cardiovascular Disease & Pregnancy: www.thelancet.com/series-do/ca... @thelancet.com #ESCcongress2026
thelancet.com
Cardiovascular disease and pregnancy
Cardiovascular disease remains one of the leading causes of maternal mortality worldwide and a major driver of long-term morbidity.
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Patient Safety Learning @patientsafetylearning.org · 01/09/2026
Harnessing the potential of AI to bring real benefits for patients - a blog by Jonathan Benger, Chief Executive of NICE, added to the hub. www.pslhub.org/learn/digita...
pslhub.org
NICE: Harnessing the potential of AI to bring real benefits for patients (5 August 2026)
Summary Artificial intelligence has huge potential to improve health and care, but its use must be safe, effective and fair. In this blog, chief executive Jonathan Benger explains how NICE's new AI…
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Eric Topol @erictopol.bsky.social · 31/08/2026
On #LongCovid and profiling my colleague @julialmv.bsky.social @smithsonianmag.bsky.social www.smithsonianmag.com/innovation/m...
smithsonianmag.com
For Many Americans, Covid Is Still a Chronic, Disabling Disease. These Scientists Are Working Tirelessly to Bring Them Relief
Long Covid saps the strength and vitality of patients, who have little recourse to fight it. A team of specialists—including an afflicted researcher working mostly from her bed—is looking for answers
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Patients for Patient Safety US @pfps-us.bsky.social · 31/08/2026
World Patient Safety Day is coming up on September 17! Sign up for our webinar: Confirmed speakers include Susan Brown Sheridan, Senator Chris Van Hollen, Leah Binder, President and CEO of the Leapfrog Group, @ihi.org's Senior Advisor, Patient Safety Patricia McGaffigan, (1/3)
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Patients for Patient Safety US @pfps-us.bsky.social · 27/08/2026
Fiberglass particulates found in bags of saline solution: www.fda.gov/safety/recal...
fda.gov
Baxter Issues Voluntary Nationwide Recall for Two Lots of 0.9% Sodium Chloride Injection Due to Potential Presence of Particulate Matter
FOR IMMEDIATE RELEASE – AUG. 25, 2026 – DEERFIELD, Ill., Baxter International Inc. (NYSE:BAX) is voluntarily recalling two lots of 0.9% Sodium Chloride Injection due to the potential presence of parti...
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STAT @statnews.com · 25/08/2026
With Medicaid under threat, hospitals begin to remake how they care for patients www.statnews.com/2026/08/25/r...
statnews.com
How Trump's cuts are reshaping America’s health system
A scramble to prepare for massive federal cuts across the health care system is hitting rural states like Maine particularly hard.
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Patients for Patient Safety US @pfps-us.bsky.social · 26/08/2026
World Patient Safety is coming up on September 17, and we have a webinar scheduled! Sign up here: www.pfps.us/upcoming-event
pfps.us
Patients For Patient Safety US | Upcoming Events
Patient Engagement and empowerment is perhaps the most powerful tool to improve patient safety.
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Eric Topol @erictopol.bsky.social · 24/08/2026
On AI curing all diseases theinformation.com/articles/ai-...
theinformation.com
Why Scientists See AI Leaders as False Prophets
Eric Topol is a prominent cardiologist known for his research into deploying AI and other technologies to improve healthcare. He considers himself a Demis Hassabis superfan, and when I spoke to him, h...
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MedPage Today @medpagetoday.com · 24/08/2026
"The children who will suffer measles sequelae, who will face compromised immune systems, or who will die of SSPE from the current measles outbreaks are alive now, in kindergarten classrooms." Read the #OpEd from Robert B. Shpiner, MD, at: www.medpagetoday.com/opinion/second…
medpagetoday.com
Opinion | What the Measles Betting Market Does Not Measure
The kids who will suffer sequelae or die are alive now
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Patients for Patient Safety US @pfps-us.bsky.social · 21/08/2026
Attestation stories are a powerful way to inspire hospitals to authentically adopt the CMS Patient Safety Structural Measure. Looking for guidance? PFPS US champions share their stories in these videos: www.pfps.us/attestation-...
pfps.us
Patients For Patient Safety US | Attestation Stories
Patient Engagement and empowerment is perhaps the most powerful tool to improve patient safety.
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Johns Hopkins Berman Institute of Bioethics @bermaninstitute.bsky.social · 21/08/2026
Patients Rush to Look at Test Results, but Many Don't Understand Them — More than one in 20 rated their understanding of the results as poor www.medpagetoday.com/practicemana...
medpagetoday.com
Patients Rush to Look at Test Results, but Many Don't Understand Them
More than one in 20 rated their understanding of the results as poor
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WashU Medicine @washumedicine.bsky.social · 21/08/2026
Early detection is key to slowing Alzheimer's progression. The FDA just cleared C2N Diagnostics' PrecivityAD2 blood test — built on WashU Medicine research — offering 90%+ accuracy and expanding access to earlier diagnosis. bit.ly/4wJriNz
bit.ly
FDA clears blood test to aid evaluation for Alzheimer’s disease | WashU Medicine
The blood-based biomarker test is based on technology developed at WashU Medicine by Randall Bateman, MD, and David Holtzman, MD.
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Patients for Patient Safety US @pfps-us.bsky.social · 21/08/2026
Attestation stories are a powerful way to inspire hospitals to authentically adopt the CMS Patient Safety Structural Measure. Looking for guidance? PFPS US champions share their stories in these videos: www.pfps.us/attestation-...
pfps.us
Patients For Patient Safety US | Attestation Stories
Patient Engagement and empowerment is perhaps the most powerful tool to improve patient safety.
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Johns Hopkins Berman Institute of Bioethics @bermaninstitute.bsky.social · 20/08/2026
Computer scientist Melanie Mitchell discusses why artificial intelligence doesn’t “think” or “reason” like humans, and how we can create better methods for measuring machine cognition. | Quanta Magazine www.quantamagazine.org/are-we-think...
quantamagazine.org
Are We Thinking Correctly About AI Intelligence? | Quanta Magazine
Computer scientist Melanie Mitchell discusses why artificial intelligence doesn’t “think” or “reason” like humans, and how we can create better methods for measuring machine cognition.
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Patients for Patient Safety US @pfps-us.bsky.social · 17/08/2026
We're looking for people to share attestations with regard to the newly implemented Patient Safety Structural Measure from CMS. Learn more about the 5 domains we're seeking stories for, and about the goals of the group in this webinar: www.youtube.com/watch?v=TVd_...
youtube.com
PFPS US: Guardians PSSM Webinar
YouTube video by Guardians of the PSSM
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CIDRAP @cidrap.bsky.social · 20/08/2026
Emergency room patients often wait 4 hours or more for a hospital bed—some more than a day Emergency department boarding can be risky for patients. A new paper examines how long people wait to be admitted to the hospital. Read more: bit.ly/4go6Knw
Doctors transferring a patient
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Patients for Patient Safety US @pfps-us.bsky.social · 17/08/2026
In this exploratory study, patients and families affected by rare diseases were actively experimenting with GenAI tools to support info seeking and advocacy while simultaneously expressing substantial concern about the reliability, safety & appropriate boundaries of use. jopm.jmir.org/2026/1/e93720
jopm.jmir.org
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Patients for Patient Safety US @pfps-us.bsky.social · 17/08/2026
We're looking for people to share attestations with regard to the newly implemented Patient Safety Structural Measure from CMS. Learn more about the 5 domains we're seeking stories for, and about the goals of the group in this webinar: www.youtube.com/watch?v=TVd_...
youtube.com
PFPS US: Guardians PSSM Webinar
YouTube video by Guardians of the PSSM
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STAT @statnews.com · 03/08/2026
Medicare is removing flexibilities that have allowed medical devices designated as “breakthroughs” by the Food and Drug Administration to leapfrog qualifications for extra payments. www.statnews.com/2026/08/03/c...
statnews.com
Medicare eliminates key pathways used by 'breakthrough' devices for extra payments
Medicare is removing flexibilities that have allowed 'breakthrough' medical devices to leapfrog qualifications for extra payments.
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Patients for Patient Safety US @pfps-us.bsky.social · 31/07/2026
Great episode! "What could a recent U.S. Department of Justice memo mean for people with disabilities and the future of community-based care?" theberylinstitute.org/product/fron...
theberylinstitute.org
Front & Center: Disability Rights, Community Care, and the Future of the Olmstead Decision - The Beryl Institute
The U.S. Department of Justice released a new legal opinion in June regarding the Olmstead decision from the Supreme Court. It was a landmark decision and
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Patients for Patient Safety US @pfps-us.bsky.social · 29/07/2026
More patients are using artificial intelligence (AI) outside hospitals and doctors’ offices to research symptoms and medications, prepare for appointments, and make healthcare decisions. (1/5)
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Patients for Patient Safety US @pfps-us.bsky.social · 29/07/2026
PFPS US President and CEO Susan Brown Sheridan will be on a plenary panel called "Whose Data, Whose Risk" at AcademyHealth's Health Datapalooza event this September 24–25 in Washington, DC! Learn more and join us: academyhealth.org/Datapalooza2... #hdpalooza
academyhealth.org
2026 Health Datapalooza | AcademyHealth
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STAT @statnews.com · 23/07/2026
Explore his series: 'Out of Pocket. Out of Reach.' The cost of employer-based health insurance is crushing workers and businesses. www.statnews.com/health-insur...
statnews.com
Soaring health care costs explored in 'Out of Pocket, Out of Reach'
America’s employer-based health insurance system is crumbling in slow motion. See how, and why, in STAT's 8-part series 'Out of Pocket, Out of Reach.'
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STAT @statnews.com · 23/07/2026
Who is to blame for the rising cost of health care? @bobjherman.bsky.social answers.
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STAT @statnews.com · 23/07/2026
Sanofi's Lantus pen for diabetes care is facing supply issues amid larger shifts in the insulin market. www.statnews.com/2026/07/23/s...
statnews.com
Popular insulin product enters shortage as other pens leave market
The Lantus Solostar insulin pen isn't in official FDA shortage, but patients are having a tough time finding it.
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Lizzy Lawrence @lizzylawrence.bsky.social · 21/07/2026
Must read reporting from @elaineywchen.bsky.social on LifeMD, a popular telehealth company that put profits over patient safety while prescribing obesity drugs, according to former employees: www.statnews.com/2026/07/20/l...
statnews.com
Telemedicine company touted by Novo Nordisk stressed profits over patient safety, ex-workers say
LifeMD, a popular telehealth company, has been accused by former employees of pressing clinicians to mete out prescriptions more rapidly without sufficient screening and follow-up.
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STAT @statnews.com · 22/07/2026
TODAY Office Hours with STAT’s @bobjherman.bsky.social Join us for a candid conversation about the reporting behind his Out of Pocket, Out of Reach series, the findings that surprised him most, and the most important lessons for health care’s future. www.statnews.com/event/out-of...
statnews.com
Office Hours with STAT's Bob Herman
Office Hours with STAT's Bob Herman: Join us at 1 p.m. EST July 22 to learn more about his series on the soaring costs of employer-based health insurance.
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Patients for Patient Safety US @pfps-us.bsky.social · 23/07/2026
Putting the Patient Back in Patient Safety: Why coproduction is necessary more than ever amid complexity and innovation: www.ihi.org/library/publ...
ihi.org
Putting the Patient Back in Patient Safety
Explore why engaging patients and families as partners in the coproduction of safety is essential to advancing safer care in an era of growing complexity, technological innovation, and changing consum...
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Patients for Patient Safety US @pfps-us.bsky.social · 20/07/2026
In our latest Patients for Patient Safety US newsletter: 🌎 PFPS US Champion Susan Perry, CEO of SpeechMED, helped to raise awareness for the Saving Lives and Reducing Health Care Waste by Improving Diagnosis in Medicine Act. (1/3)
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STAT @statnews.com · 20/07/2026
LifeMD, a popular telehealth company, has been accused by former employees of pressing clinicians to mete out prescriptions more rapidly without sufficient screening and follow-up. www.statnews.com/2026/07/20/l...
statnews.com
Telemedicine company touted by Novo Nordisk stressed profits over patient safety, ex-workers say
LifeMD, a popular telehealth company, has been accused by former employees of pressing clinicians to mete out prescriptions more rapidly without sufficient screening and follow-up.
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Patients for Patient Safety US @pfps-us.bsky.social · 16/07/2026
PFPS US supports Bicameral, Bipartisan Legislation to Reduce Medical Misdiagnosis and improve Patient Reporting: uspolitics.einnews.com/pr_news/9271...
uspolitics.einnews.com
PFPS US supports Bicameral, Bipartisan Legislation to Reduce Medical Misdiagnosis and improve Patient Reporting
Van Hollen, Luján, Beyer, Schrier, Van Drew Introduce Saving Lives and Reducing Health Care Waste by Improving Diagnosis in Medicine Act
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drahimsa.bsky.social @drahimsa.bsky.social · 16/07/2026
Deepfake “doctors” are a problem—here are 7 keys to stopping them www.ama-assn.org/practice-man...
ama-assn.org
Deepfake “doctors” are a problem—here are 7 keys to stopping them
There’s a need for clear, enforceable protections against unauthorized AI generated deepfakes that threaten patient safety. Learn more with the AMA.
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Stephen @healthydata.bsky.social · 16/07/2026
Only ~5% of healthcare LLM studies used real patient data. Most “evidence” is clean exams and synthetic cases. If a vendor can’t show real‑world performance, treat their benchmark scores as marketing, not assurance. healthydata.science/from-pilots-...
Health AI in the Real World infographic showing key findings on adoption, safety, clinician impact, autonomy gaps, and trust from 2026 healthcare AI evidence.
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