iiinova — where your digital self keeps evolving

Niko Suvisto @nikosuvisto.com · 08/08/2026

Today is Severe ME Awareness Day. Every day since the 8th of June 2022 has been a severe ME day for me, a total of 1522 days so far without any end in sight. 1/7 #SevereMEAwarenessDay #MECFS #pwME #Photography

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Niko Suvisto @nikosuvisto.com · 07/08/2026

It’s Severe ME Awareness Week and sleep problems are one of the more significant symptoms of the illness, which in my experience are heightened in the severe stage. Insomnia always reminds me of those darkest moments. 12/12

A blurry black-and-white photograph made using intentional camera movement where subjects are various objects on top of a sideboard in a dark room. The clock radio’s lit numbers are blurry and form a string pattern. The light that peeks from the corner of a blackout curtain illuminates artworks hanging on the wall, a lava lamp, and other personal objects.

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Niko Suvisto @nikosuvisto.com · 07/08/2026

Insomnia, one of the miserable symptoms of myalgic encephalomyelitis. It causes the time to stand still while every minute feels like an hour. A moment when you think about the what-ifs. Or when you reminisce about the past as there is not much of a future ahead. 1/12 TW: Death #SevereMEAwareness

A blurry black-and-white photograph of various objects on top of a sideboard in a dark room. The clock radio’s lit numbers are blurry. The light that peeks from the corner of a blackout curtain illuminates artworks hanging on the wall, a lava lamp, and other personal objects.

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Niko Suvisto @nikosuvisto.com · 06/08/2026

On Sunday, I shared my most recent blog post that told the story of how I was transferred while having very severe ME. Today, I’d like to share my online exhibition, ‘In the Absence of Light’, which tells my whole story of surviving very severe ME. 1/3 #SevereMEAwarenessWeek

A black-and-white photo of a hand resting on a pillow, lit by a flash in an otherwise dark bedroom.

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Niko Suvisto @nikosuvisto.com · 02/08/2026

It’s August now and the official Severe ME Awareness Day is the 8th of August. In past years our community has talked about how a single day for severe ME is not enough. 1/5 #SevereME #MECFS #pwME #Photography nikosuvisto.com/this-is-how-...

A black-and-white photograph of a dark bedroom where Niko is lying on his bed eyes closed while he wears earmuffs. The blinds of the window are shut, and the blackout curtain is lowered. A wheelchair is in front of the window. The room has artworks and an oval-shaped mirror hanging on the walls. A chair with personal objects is next to the bed.

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Niko Suvisto @nikosuvisto.com · 30/07/2026

Part of my morning routine is to drink a glass of water with supplements. Yesterday, I noticed how the light glimmered in the water and reflected off the spoon. The title of this new panoramic project is ‘The Light Only Passes By’, and I chose it for several reasons. 1/3 #MECFS #Photography

A black-and-white panoramic close-up photograph of a glass of water, with supplements and a spoon in it, on top of a chair.

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Niko Suvisto @nikosuvisto.com · 29/06/2026

I thought it would be impossible to find love in my life while being severely ill and disabled. Especially, as I’m trapped inside my room and am 99% bedbound with severe ME. I had given up that idea – yet, I sometimes daydreamed about meeting someone and having a relationship. 1/9 #MECFS #pwME

A black-and-white close-up photograph of hands against a dark shirt, resting on a person’s body. The thumbs and fingers form a heart shape in the middle.

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Niko Suvisto @nikosuvisto.com · 23/06/2026

During the weekend, we Finns celebrated Midsummer, the brightest moment and the longest day of the year, a nightless night. For me, the Eve on Friday was pretty far from a bright day. 1/7 #MECFS #pwME #Photography

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Niko Suvisto @nikosuvisto.com · 17/06/2026

Yesterday was my mom’s name day, and a few relatives visited us. I stayed isolated, and my door was kept shut because too much noise makes my symptoms worse. But I did overhear a conversation about my situation. 1/10 #MECFS #pwME #Photography

A black-and-white portrait photograph of a woman in her sixties. She has a short curly hair, and wears a tiger stripe inspired shirt. She stands near a bedroom corner.

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Niko Suvisto @nikosuvisto.com · 07/06/2026

They have denied all my disability pension and sickness benefit applications. The appeals are denied as well. I’m deemed fully fit for work and made to collect unemployment "benefits". 1/2 nikosuvisto.com/denied-denie... #MECFS #pwME #Photography #Kela #SocialSecurity

A black-and-white photograph of a pile of papers and envelopes on top of a folder.

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Niko Suvisto @nikosuvisto.com · 12/05/2026

This photograph, titled ‘Suffocated’, was my submission to the A Quiet Storm’s online group exhibition ‘Myalgic Encephalomyelitis Kills’, which launched today on the International ME/CFS Awareness Day. 1/10 www.aquietstorm.me/myalgic-ence... #MECFS #Photography #OnlineExhibition

A grainy black-and-white photograph of a fist holding a white rose against a black background.

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Niko Suvisto @nikosuvisto.com · 10/05/2026

Today is Mother’s Day, and my plan was to write a longer text in honour of my mom, who is my sole caregiver, but I don’t have the energy for that right now. I feel more ill than I usually would. This photograph was taken last week when she came to my room to celebrate Vappu. #Photography #MECFS

A contrasty black-and-white photograph of a woman in her sixties looking at and reaching her hand towards three balloons that hang from the ceiling in front of a window. She has short curly hair, wears a graduation hat, a blouse and a skirt. A shadow of her shape and the balloons are visible behind her.

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Niko Suvisto @nikosuvisto.com · 08/05/2026

Last week my godmother brought me flowers. Image is part of my ongoing self-documentary series ‘Enduring: Life with Severe ME/CFS’.

A black-and-white photograph of a mirror in a dark room that reflects a view of a flower bouquet on top of a sideboard. A table lamp illuminates the flowers.

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Niko Suvisto @nikosuvisto.com · 26/04/2026

I basically never post any photos the same day I take them. Mostly because my illness, ME, won’t allow me to do that. But this image is from today. 1/3

A black-and-white photograph of a woman in her sixties looking outside of a bedroom window. The room appears dark.

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Niko Suvisto @nikosuvisto.com · 22/04/2026

All sorts of supplements are often more readily available. The pile of them grows and grows, but their effect to tackle the symptoms is at best hard to judge. 2/4

A black-and-white photo of a big pile of supplements: darker capsules and white round pills.

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Niko Suvisto @nikosuvisto.com · 22/04/2026

We try to find hope wherever we can, which often means we try out all sorts of "treatments". There are some (off-label) medications to try, but nothing is guaranteed to work and the risks can be high – if you even have access to them. 1/4 #MECFS #pwME #Photography

A black-and-white macro photo of a pile of supplements. A single white round pill is the focal point of the image. It’s surrounded by darker capsules.

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Niko Suvisto @nikosuvisto.com · 15/04/2026

I like writing captions for my photographs, but lately my mind has been way too clogged for it. I have managed to take a few images I’d like to share, but I also want to write texts for them as they feel like important topics. 1/5 #MECFS #pwME #Photography

A black-and-white photograph of Niko, a man sitting in a wheelchair, taking a selfie through a distant mirror. He has raised his camera to his eye level. The room is a bedroom, and it has multiple personal belongings hanging on the walls or scattered on stools and a sideboard. Artworks hang from the wall, and a tall bookshelf is in the corner of the room.

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Niko Suvisto @nikosuvisto.com · 03/04/2026

My Easter meal in 2025. I ate alone in my room while others gathered in the dining room, which is right at the other end of our house. 6/6

A black-and-white photograph taken from Niko’s point of view in bed of a finished meal; empty plates on a wooden tray. In the background is Niko’s bedroom with various objects.

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Niko Suvisto @nikosuvisto.com · 03/04/2026

My mother in our living room during that same Easter photography "trip" in 2024. When my illness was at its most severe I couldn’t even hold a camera. Back then I daydreamt of documenting my mother’s life. 4/6

A black-and-white photograph of Niko’s mother sitting at a table in a dining room. Niko’s own image is reflected on a dark television screen.

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Niko Suvisto @nikosuvisto.com · 03/04/2026

I think it’s always worth to document whatever's in front of you. However mundane or boring it might feel in that moment there might be a time when those captures become important. 1/6 #MECFS #pwME #Photography

A black-and-white photograph of a flower bouquet. A rose is the focal point of the image.

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Niko Suvisto @nikosuvisto.com · 26/03/2026

To make matters more complex, I have to travel fully supine, which means only an ambulance or a stretcher taxi can take me anywhere. Or let’s be real—my only destination would be a hospital in an emergency or if a doctor blackmails me to go. 3/7

A black and white photo of a snowy yard where a stretcher taxi has parked. The back doors of the car are open and a stretcher is taken out of it. In the distance is a garbage shelter.

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Niko Suvisto @nikosuvisto.com · 26/03/2026

It’s been exactly two years today since the last time I was outside of my house. Since June 2022, I’ve been outside only a handful of times, and all have been hospital visits. Such was the case two years ago as well. 1/7 #MECFS #pwME #Photography

A black and white photo of an open side window in an otherwise dark bedroom.

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Niko Suvisto @nikosuvisto.com · 19/03/2026

The only clues of the passage of time are the changing view from your window, how the light plays differently in the corners of your dark room from season to season, or when your loved ones get older.’ The full essay, including all images and captions, can be viewed on my website. 6/6

A graphic that reads:

‘Millions of people around the world have been imprisoned by ME. Just like me, their time stands still, but most of them probably can’t document the passage of time as I can. Their lives have been reduced to a mere existence. Maybe every once in a while, something reminds them that time has passed while we all wait for the rest of the world to recognise our emergency.’

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Niko Suvisto @nikosuvisto.com · 19/03/2026

For two years, I have documented the passage of time through my window. The project has turned into a photo essay, and is now live on my website! A short excerpt from it below: 1/6 nikosuvisto.com/the-time-sta... #MECFS #pwME #PhotoEssay #Photography

A black and white photo of Niko, a man in his 30s, sitting upright in a medical bed, looking outside a window. He’s wearing a thick woollen turtleneck sweater. The view from the window reveals a snowy landscape. In the background are a small Christmas tree on a stool and a wheelchair.

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Niko Suvisto @nikosuvisto.com · 12/03/2026

The submissions for our open call online group exhibition, Myalgic Encephalomyelitis Kills, are now open on our website! More details on the website, and the original statement is linked down below. www.aquietstorm.me/open-call-me... #MECFS #pwME #OpenCall #Art

A text: ‘Submissions now open!’

Below it a hand-written text reads ‘Myalgic Encephalomyelitis Kills’.

A text: ‘An online Group Exhibition’.

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Niko Suvisto @nikosuvisto.com · 03/03/2026

If there are flowers in our house, I try to use the opportunity to photograph them. The light in my room is a big problem, and I can’t stay upright for long without my symptoms worsening. So, any close-up or macro work is usually out of the question. #MECFS #Photography #Flowers

A black and white photo of flowers in a vase on a table. The room is dark, and one table lamp lights the flowers and nearby objects like candles, a speaker, and artworks that hang on the wall.

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Niko Suvisto @nikosuvisto.com · 01/03/2026

Every morning, my mother comes to my room and opens my curtains. I can’t do it myself as I’m 99% bedbound due to severe myalgic encephalomyelitis (ME/CFS). During the winter months, the rays of the morning sun reach my room from the other side of the house. #MECFS #pwME #Photography

A black and white photo of Niko’s mother about to open his bedroom’s blackout curtain. The room is still dark and a single ray of sunshine makes a stripe pattern that lights part of his mother.

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Niko Suvisto @nikosuvisto.com · 26/02/2026

Our gallery currently features 8 artists and 9 different exhibitions, with new artist introductions, exhibitions, and blog posts in progress. 5/7

A text: ‘Our exhibitions’. And below it a square-shaped collage of 9 different exhibitions: collages, black and white photographs, digital drawings, and abstract works.

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Niko Suvisto @nikosuvisto.com · 26/02/2026

We have finally finished updating our online art gallery into a dark theme! A Quiet Storm showcases art made by people who have experienced severe ME/CFS. Our full statement is below. www.aquietstorm.me #MECFS #pwME #Art #OnlineArtGallery

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Niko Suvisto @nikosuvisto.com · 25/02/2026

For some reason, I haven’t photographed the door of my room. Maybe it is because I’m always faced the other way around. 1/5 #Photography #MECFS #pwME

A black and white photo of a dark room. The room’s door is partially open and shows a view of a bright hallway. The light from the hallway lits part of the floor.

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Niko Suvisto @nikosuvisto.com · 22/02/2026

The lifts in the video are from 2015 to 2018. To you, it might look like an average exercise montage. Maybe you think to yourself, ‘He moves well.’ 5/11

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Niko Suvisto @nikosuvisto.com · 22/02/2026

A few weeks ago, my friend came over to pick up my old weightlifting shoes so that he could try them out. I haven’t seen or worn the shoes in years. The last time I trained in them was on May 5th, 2018. 1/11 #Photography #MECFS #pwME

A black and white photo of a pair of Nike Romaleos 2 weightlifting shoes on top of an Artek stool.

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Niko Suvisto @nikosuvisto.com · 20/02/2026

I’m Niko Suvisto, a Finnish photographer, and I’m 99% bedbound due to severe myalgic encephalomyelitis (ME/CFS). I’ve had ME for over a decade, and since 2022 I’ve spent my days confined to my bed 24/7. 1/4 #Photography #MECFS #pwME #SelfDocumentary

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Niko Suvisto @nikosuvisto.com · 16/02/2026

Does anyone else have problems uploading videos to Bluesky via the app? I use iOS and I already reinstalled the app but it still doesn’t work. Tried yesterday and today. After selecting the video from my gallery and pressing upload it just shows nothing, just the view on this screenshot.

A screenshot of Bluesky’s empty post making window.

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Niko Suvisto @nikosuvisto.com · 12/02/2026

One way we can raise awareness about death in the ME community is through our art. 3/9

A text: ‘Prompt’

Below it a hand-written text reads ‘Death and M.E.’.

A text: ‘Capture the feelings and impact death has on you and/or the ME/CFS community as a whole’.

A text: ‘Details

Submissions open:
March 12 - April 12, 2026

Who can submit?
Anyone with ME/CFS

When will the exhibition launch?
International ME/CFS Awareness Day
May 12, 2026’.

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Niko Suvisto @nikosuvisto.com · 12/02/2026

Hi! Our online art gallery, A Quiet Storm, will host an open call group exhibition on International ME/CFS Awareness Day, May 12, 2026. The submissions will open on March 12th. Our website is currently updated to a dark theme. Full statement below! 1/9 #MECFS #pwME #OpenCall #OnlineExhibition

A text: ‘Open call!’

Below it a hand-written text reads ‘Myalgic Encephalomyelitis Kills’.

A text: ‘An online Group Exhibition’.

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Niko Suvisto @nikosuvisto.com · 08/02/2026

Cure ME/CFS STILL SICK STILL FIGHTING Part of my series ‘Enduring: Life with Severe ME/CFS’. The hat and the tote are from @crunchme.bsky.social . #Photography #MECFS

A black and white photo of various things hanging on a wall: an oval mirror, a hat that says ‘Cure ME/CFS’, and a tote bag with the text ‘STILL SICK STILL FIGHTING’.

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Niko Suvisto @nikosuvisto.com · 03/02/2026

The only time the sun straight-up reaches my room is during winter mornings. Now it is low enough for its rays to travel all the way from the other side of the house to my room. It’s just a fleeting moment that probably lasts only minutes, but I always welcome it with open arms. 4/4

A black and white photo of a dark hallway which leads to a living room. The sun is visible through the living room’s window and its rays form a sunstar.

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Niko Suvisto @nikosuvisto.com · 03/02/2026

It’s a rare occasion when sunlight reaches my room or touches my now pale skin, which hasn’t felt that kind of warmth directly on it for years. The last time I was outside was the spring of 2024—just a swift transfer to a medical taxi on a cloudy day. 1/4

A black and white photo of a man, Niko, wearing a t-shirt and boxers, sitting in a wheelchair, and taking a photograph with a camera of his reflection in a mirror. The mirror hangs on a wall alongside two empty Christmas calendars, a cap, and a tote bag. An ornament elf is on top of a stool.

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Niko Suvisto @nikosuvisto.com · 01/02/2026

I feel the fog is lifting, and I'm slowly starting to feel more like myself. The photographs are from Thursday morning; the light was bright and it made me feel a bit more alive. 3/3

A black and white photo of an open window in an otherwise dark bedroom. A small Christmas tree is on top of a stool near it.

A black and white photo of multiple glasses, a drinking bottle, and a toothbrush on a chair.

A black and white photo of an older woman looking down with hair curlers and a sweater on.

A black and white photo of an outlet and cables going across a floor. In the foreground is a chair which has a glass and a toothbrush on top of it.

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Niko Suvisto @nikosuvisto.com · 01/02/2026

I barely touched my camera in January. There was just so much stuff in December—way too much. I have felt physically wired, drained, sleep deprived, utterly exhausted, and, of course, also poisoned by the post-exertional malaise (PEM, which is the hallmark ME/CFS symptom). 1/3 #Photography #MECFS

A black and white photo of a light that peaks through from below a closed door in a dark room.

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Niko Suvisto @nikosuvisto.com · 14/12/2025

My room was originally my parents, so it had a lot of stuff that wasn’t mine and still does. We finally got rid of a huge linen closet and replaced it with a bookshelf. My photo books were all just piled up on the sideboard. Now everything has a place and it’s so much nicer to look at! #MECFS

A black and white photo of a man holding a tilted closet. Another person is crouched next to him and holding onto the closet as well. The setting is a bedroom, and in the background personal belongings are visible.

A black and white photo of a tall bookshelf full of books in a bedroom corner. Piled stools are in front of the shelf. A mirror, artworks and personal belongings hang on the walls.

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Niko Suvisto @nikosuvisto.com · 13/12/2025

Photo from November 2025. I was able to keep my functioning more stable during the last month, which resulted in more photographs, probably more than any other month this year. #MECFS #pwME #Photography

A black and white photo of a man’s hand, taken from his point of view, reaching towards a sun shining through a faraway window, seen through a doorway.

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Niko Suvisto @nikosuvisto.com · 11/12/2025

A friend of mine sent me these lovely flowers. #Photography

A black and white photo of a flower bouquet in a vase on top of a sideboard. A table lamp is the only light source. There is a candle, cards, a glass bird, a clock radio, and a vase on the sideboard as well. An artwork hangs on the wall behind them.

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Niko Suvisto @nikosuvisto.com · 06/12/2025

Today is Finland’s Independence Day. I usually post my photograph of our flag, but this time I want to talk about something else. Some of you know that I’ve participated in a class-action complaint against the state of Finland. 1/10 #MECFS #pwME #Photography #Finland

A black and white photograph of a hand grabbing a striped duvet.

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Niko Suvisto @nikosuvisto.com · 30/11/2025

In the end, the only thing that matters is us having each other. My days will always be full of happiness, wherever we are or in whatever situation. 8/8

A collage of two photos. One photo of a man’s, Niko’s, hand with a yellow gold signet-style tiger’s eye ring on his left hand ring finger and a gold wristwatch. Another photo of a woman’s, Line’s, hand with pinkish nails and a yellow gold dark green tourmaline ring with diamonds on her left hand ring finger.

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Niko Suvisto @nikosuvisto.com · 30/11/2025

We both have endured a lot, especially during these past few years. Life’s fragility looms over us every day, which makes us act — we want to and need to do things now. You don’t know what the future holds, good or bad, so it’s better to take action now. 3/8

A black and white photo of a man, Niko, in a dark suit and a tie, sitting in a hospital bed, showing a ring in its box to a phone’s camera, which is held by another person.

A black and white photo of a man, Niko, in a dark suit and a tie, sitting in a hospital bed, while using his phone and having a slight smile on his face. His mother, Päivi, stands next to him and they are having a conversation. In the background a wheelchair and basketball jerseys are visible.

A man, Niko, wearing a navy suit, a chambray button-down collared shirt, and a striped tie, is sitting on a hospital bed. He has a yellow gold signet-style ring with a tiger’s eye stone on his left hand ring finger, and he has a gold watch on his wrist. He is looking at the camera.

A black and white photo of a man, Niko, in a dark suit and a tie, lying on a hospital bed. He has earmuffs on, looks at the camera and makes a peace sign with his hand.

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Niko Suvisto @nikosuvisto.com · 30/11/2025

I have some exciting news! Two weeks ago, on the 16th of November, my partner and I got engaged! 1/8

A black and white photo of a man, Niko, wearing a suit, a button-down collared shirt, and a tie. He has a signet-style ring on his left hand ring finger, and he holds a ring with a tourmaline stone and diamonds between his thumb and index finger. He has a watch on his wrist.

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