iiinova — where your digital self keeps evolving

Neurological Alliance of Scotland @neuroalscotland.bsky.social · 30/09/2026

We are delighted to welcome the National Tremor Foundation as our newest members of NAoS. The National Tremor Foundation (NTF) is an organisation that aims to provide help, support and advice to those living with all forms of neurological tremors irrespective of age. Find out more: tremor.org.uk

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Neurological Alliance of Scotland @neuroalscotland.bsky.social · 30/09/2026

It was wonderful to welcome members both in person and online to our AGM yesterday. Thank you to Alison Brogan, Cyber Resilience Coordinator at @scvo.scot, for joining us as our guest speaker and @alzscot.bsky.social for hosting us at their brilliant National Centre in Edinburgh.

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Neurological Alliance of Scotland @neuroalscotland.bsky.social · 23/09/2026

🚨 Job Opportunity 🚨 We are recruiting a Freelance Membership & Engagement Officer. We're looking for an organised, proactive communicator to support our members, manage communications, and help deliver campaigns and events. Find out more here: goodmoves.org/vacancy/a4sP...

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Neurological Alliance of Scotland @neuroalscotland.bsky.social · 23/09/2026

📢 Missed our recent webinar on mental health and neurological conditions in children and young people? A link to the recording is now available on our website: www.scottishneurological.org.uk/mental-healt...

scottishneurological.org.uk

Supporting the mental health of children and young people

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Neurological Alliance of Scotland @neuroalscotland.bsky.social · 09/09/2026

Please take a moment to nominate NAoS in the Movement for Good Awards. Every nomination increases our chance of receiving a £1,000 award, helping us continue to champion better support and services for people living with neurological conditions across Scotland. Thank you! bit.ly/4iU6HTl

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Nominate now! - Movement for Good awards

We could receive a £1,000 donation with your help through the Movement for Good Draw.

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Neurological Alliance of Scotland @neuroalscotland.bsky.social · 26/08/2026

We are delighted to announce that Alison Brogan from SCVO will be joining us at our AGM in September for a conversation about cyber resilience in the charity sector. Registrations are open for members and associate members: bit.ly/4wLizKR

infographic promoting NAoS AGM. Tuesday 29 September, 10:30-12:30. Alheimer scotland national office Edinburgh/ hybrid via Teams. Alison Brogan, cyber resilience coordinator at SCVO

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Neurological Alliance of Scotland @neuroalscotland.bsky.social · 26/08/2026

Our next policy group meeting will take place next Wednesday 2 Sept, 11-12. We are delighted to welcome Simon Bull, CEO of CMTUK to chair this meeting, where we will discuss our forthcoming mental health webinar and the work we are doing in Scottish Parliament to meet our new #NeuroChampions.

infographic advertising next policy group meeting. Neuro Policy Networking Meeting Neurological Issues of the Day. Registration Open- members only. info@scottishneurological.org.uk. Wednesday 2 September 11-12. Chaired by Simon Bull, CEO of CMTUK

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Neurological Alliance of Scotland @neuroalscotland.bsky.social · 24/08/2026

Are you caring for someone with a neurological condition? Our website offers information for carers, including condition specific support and what to expect if you are new to caring, considering advocacy services, or wishing to plan ahead. Find the information you need: bit.ly/3UwoPIM

inforgraphic on resources for carers provided by the Neurological Alliance of Scotland

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Neurological Alliance of Scotland @neuroalscotland.bsky.social · 19/08/2026

We are delighted to welcome Batten Disease Family Association as the newest members of NAoS. We look forward to working together and raising awareness of children and families affected by Batten disease in Scotland. Find out more about their work here: www.bdfa-uk.org.uk

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Neurological Alliance of Scotland @neuroalscotland.bsky.social · 23/07/2026

Become a member of the Neurological Alliance of Scotland by completing the 'Join Us' form on our website ➡️ bit.ly/4fe6esR Full membership is open to any not for profit organisation who is interested in furthering the objects of the Alliance.

infographic promoting membership of the neurologcial allaince of scotland. Do you work for a UK charity? Do you want to Amplify the voice of your community in Scotland?
Connect with a vibrant community of neurological charities?
Connect with key stakeholders?
Access information and events?
Become a member of the Neurological Alliance of Scotland.

speech bubble with text. "One of the biggest challenges for UK-wide charities is ensuring Scotland isn't an afterthought. The Neurological Alliance of Scotland helps us overcome that. Through the Alliance, we gain access to insights, networks and opportunities that help us better support people affected by polio in Scotland.

Just as importantly, it allows us to contribute to and benefit from a strong collective voice advocating for people living with neurological conditions."

– Kripen Dhrona, British Polio Fellowship

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Neurological Alliance of Scotland @neuroalscotland.bsky.social · 22/07/2026

Applications are currently open to become a NAoS trustee. To be eligible to apply, you must work for a NAoS member charity. If you would like to find out more about the role and how to apply, please email admin@scottishneurological.org.uk. Applications will close 1 September 2026.

infographic advertising trustee vacancy. Apply to be a NAoS trustee. Do you have a passion to support they neurological third sector? Do you want to use your skills in a new way and learn from other experts in the feild? Let's grow together. Applications open for Sept 2026.

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Neurological Alliance of Scotland @neuroalscotland.bsky.social · 17/07/2026

Registrations are open for our upcoming webinar exploring the often-overlooked mental health impact of neurological conditions on children and young people. 📆Monday 7 September, 4-5pm This session is aimed at professionals working with children and young people. Register here ➡️ bit.ly/4fraVP5

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Neurological Alliance of Scotland @neuroalscotland.bsky.social · 01/07/2026

Infographic. map of scotland with text. Do you work for a UK charity?

Do you want to
Amplify the voice of your community in Scotland?
Connect with a vibrant community of neurological charities?
Connect with key stakeholders?
Access information and events? Become a member of the Neurological Alliance of Scotland.

infographic of a speech bubble with text. “As a UK wide health charity with a small staff team it can be really tricky to keep your eyes on everything, and make sure that you are representing your entire community properly. For us here at Inflammatory Neuropathies UK, we thought that our Scottish members were underrepresented by us, and that we weren't always aware of what was happening in Scotland.

The wonderful team at The Neurological Alliance of Scotland have really helped us understand policy and practise in Scotland, have supported our reach and engagement, and effectively represent the interests of both the charity and our community in Scotland.”

- Rich Collins, Inflammatory Neuropathies UK

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Neurological Alliance of Scotland @neuroalscotland.bsky.social · 01/07/2026

July is #DisabilityPrideMonth and we're celebrating the strength, diversity and resilience of the neurological community in Scotland. Learn more about the fantastic members who make our work possible here: bit.ly/4eQAskm

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Neurological Alliance of Scotland @neuroalscotland.bsky.social · 24/06/2026

NAoS was pleased to be at the Scottish Parliament yesterday, joined by two of our members- Glasgow FND Awareness Support and Funding Neuro- to meet with Dawn Black MSP, one of our newly elected Neuro Champions. Many thanks to @dawnblacksnp.bsky.social for her time and commitment in meeting with us.

photo of three women and two men standing in front of a flight of steps at Scottish Parliament.

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Neurological Alliance of Scotland @neuroalscotland.bsky.social · 22/06/2026

This PSP and CBD Awareness Week @pspassociation.bsky.social have published a new report revealing a staggering lack of progress in diagnosing Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD)- both terminal, progressive neurological conditions. Read more 👉 bit.ly/4oIb9FK

PSP and CBD Awareness week infographic. 58% of people were initially misdiagnosed with another condition. 38% of people with PSP or CBD have a named healthcare professional coordinating their care- another 36% would like one but don't have one. 60% of people with PSP or CBD regularly experience feelings of depression, anxiety, frustration or stress related to their condition. 77% of PSP and CBD carers say caring has negatively affected their wellbeing.

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Neurological Alliance of Scotland @neuroalscotland.bsky.social · 18/06/2026

Thank you to Sharon Turnbull from More Than Fibro who presented at our Members' Meeting this morning as part of our member showcase. If you would like to find our more about their work or get in touch with Sharon, please visit their Facebook page or website: morethanfibro.org

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Neurological Alliance of Scotland @neuroalscotland.bsky.social · 18/06/2026

Professor Anna Glasier OBE, Women's Health Champion for Scotland, delivered an insightful presentation at our Members' Meeting this morning on the unique and unequal health challenges faced by women in Scotland, and the work being done to address such health inequalities in the Women's Health Plan.

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Neurological Alliance of Scotland @neuroalscotland.bsky.social · 16/06/2026

📣New member announcement A very warm welcome to FND Dimensions. FND Dimensions are a charity for people living with functional neurological disorder (FND), their family, friends and supporters, run by trustees and volunteers who themselves are living with FND. Find out more 👉https://bit.ly/4uAlogr

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Neurological Alliance of Scotland @neuroalscotland.bsky.social · 11/06/2026

We are delighted to announce the Women's Health Champion for Scotland, Professor Anna Glasier OBE, will be joining our members' meeting next week to discuss the Women's Health plan and the importance of brain health. 📅18 June, 10:30 - 12:30. This is a member only event.

infographic for neurological alliance of scotland MEMBERS MEETING Thursday 18 June 2026 10.30- 10.30-12.30pm 12.30pm With Professor Anna Glasier OBE, Women's Health Champion

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Neurological Alliance of Scotland @neuroalscotland.bsky.social · 09/06/2026

Breaking: we’ve joined organisations across Scotland calling for the reinstatement of a dedicated Minister for Women’s Health. Without a clear focus, women’s health risks being deprioritised – including in neurological conditions, where women are often disproportionately affected. 📰➡️ bit.ly/4gankst

image showing logos of 35 organisations who co-signed the letter. text reads: we are calling on the First Minister to reinstate the role of Women' Health minister

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Neurological Alliance of Scotland @neuroalscotland.bsky.social · 25/05/2026

Our Programme Director, Alice Struthers, enjoyed being part of the launch event for Voluntary Health Scotland's new report (IN)VISIBLE Health Sex and Gender Inequalities. We’re proud to have contributed to this report, highlighting the impact for people with neuro conditions 👉 bit.ly/4nOPdbA

image of the launch event webinar. Four people in boxes on the top right corner connected by video cameras. Text on screen. Invisible health, sex and gender inequalities. Insights from Scotland's third sector. Recommendations.

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Neurological Alliance of Scotland @neuroalscotland.bsky.social · 21/05/2026

📣 3 of our newly elected #NeuroChampions have been appointed to Scottish Cabinet: 👉Maree Todd MSP, Minister for Mental Wellbeing, Public Health, Sport, Alcohol & Drugs 👉Jamie Hepburn MSP, Minister for Parliamentary Business and Veterans 👉Kirsten Oswald MSP, Minister for Victims and Community Safety

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Neurological Alliance of Scotland @neuroalscotland.bsky.social · 20/05/2026

Our Programme Director, Alice Struthers, was delighted to attend the Essential Tremor Conference in Stirling last week as a guest speaker. It was a fantastic opportunity to connect with others across the neuro community and share our work. Thank you to the Scottish Tremor Society for the invitation.

image of a woman speaking to an audience of seated people. She is speaking in front of a presentation on a screen. The presentation says 'Main themes for adults with essential tremor UK'.

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Neurological Alliance of Scotland @neuroalscotland.bsky.social · 19/05/2026

Movement for Good's special draw is only open for another 5 days and could give us the chance the win essential funds so we can continue advocating for the neuro community. Please consider nominating us today. It takes less than 1 minute! 👉 movementforgood.com/draws/1000?c...

movementforgood.com

Nominate now! - Movement for Good awards

We could receive a £1,000 donation with your help through the Movement for Good Draw.

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Neurological Alliance of Scotland @neuroalscotland.bsky.social · 18/05/2026

Don't miss Epilepsy Scotland's event bringing together elite athletes with lived experience of epilepsy to discuss resilience, hidden disability, performance, stigma and what can be learned from competing at the highest level while managing a neurological condition. 📆Tues 17 May bit.ly/4uV1z3Z

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Breaking Barriers : Resilience on the Global Stage

Join a panel of world-class athletes for an unmissable conversation about elite sport, epilepsy, and the power of human potential.

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Neurological Alliance of Scotland @neuroalscotland.bsky.social · 18/05/2026

We are delighted to announce that @jamiehepburn.bsky.social is a #NeuroChampion. That's a total of 7 Neuro Champions in the Scottish Parliament (& counting). We look forward to working with MSPs from across the chamber to improve the lives of people affected by neurological conditions in Scotland.

image of an empty holyrood parliament chamber. text reads: intorducing your newly elected Holyrood #NeuroChampions 2026

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Neurological Alliance of Scotland @neuroalscotland.bsky.social · 14/05/2026

This #MentalHealthAwarenessWeek we're sharing resources to support the mental health of people impacted by neurological conditions. Practical resources for supporing the mental health of children and young people 👉 bit.ly/3PBmpqe Condition specific support & support for carers 👉 bit.ly/4dFDTuL

infographic of graphic and text. Graphic of an adult holding a child. text says: mental health resources for supporting children and young people. #mentalhealthawarenessweek #dontassumeimok

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Neurological Alliance of Scotland @neuroalscotland.bsky.social · 13/05/2026

This #MentalHealthAwarenessWeek we're sharing resources to support you, or a loved one, to look after your mental health. Our mental health directory lists general and condition specific support, as well as support for carers, provided by our member charities 👉 bit.ly/4dFDTuL

infographic of text and image. Image of two hands holding each other. Text says - mental health resources, condition specific support. #MentalHealthAwarenessWeek #DontAssumeImOk

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Neurological Alliance of Scotland @neuroalscotland.bsky.social · 12/05/2026

Congratulations to all candidates elected to Parliament on 7 May. We are pleased to introduce our first six Neuro Champions: Dawn Black (SNP) Maggie Chapman (Scottish Greens) Martyn Day (SNP) Helen McDade (Reform UK) Kirsten Oswald (SNP) Maree Todd (SNP) We look forward to working together.

image of scottish parliament. Text reads: introducing your newly elected Holyrood #NeuroChampions2026

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Reposted by Neurological Alliance of Scotland

Action for ME @actionforme.bsky.social · 12/05/2026

🧬Join our Sequence ME & Long Covid Webinar Following the announcement of major funding (£4.75 million) from the UK Government, join our webinar to find out more about what this means for the study, and what happens next. 📅 26 May, 14:30-15:30pm GMT 📍 Register here: us02web.zoom.us/webinar/regi...

Graphic promoting the “Sequence ME & Long Covid Webinar” from Action for ME. The image includes webinar details for Tuesday 26 May, 14:30–15:30, alongside a blue-toned DNA illustration and Action for ME branding.

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Neurological Alliance of Scotland @neuroalscotland.bsky.social · 12/05/2026

Fantastic news today on International ME Awareness Day that the #DecodeME study has been granted an additional £4.75m round of funding. This new funding is a critical step for our and future generations. @actionforme.bsky.social @meactionscotland.bsky.social @meassociation.org.uk

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Reposted by Neurological Alliance of Scotland

#MEAction Scotland @meactionscotland.bsky.social · 11/05/2026

This year, #MEAction Scotland will be running an email campaign aimed at MSPs during ME Awareness Week (11th-17th of May). Last year, in the final budget of that parliament, the Scottish Government earmarked £4.5 million

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Neurological Alliance of Scotland @neuroalscotland.bsky.social · 11/05/2026

Our next policy group meeting is taking place tomorrow, 11:00-12:00, on Teams. The meeting will be a chance to discuss the results from Scotland's elections and learn a bit about the make up of the new Scottish Parliament. Thank you to Mark Jackson from @pspassociation.bsky.social for chairing.

infographic advertising policy group meeting. image of a coffee cup on a table. Text says: Neuro Policy Networking Meeting #25. Neurological Issues of the Day. Registration open. members only. Tuesday 12 May 2026, 11-12. Chaired by mark jackson director of policy and influencing at PSPA.

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Neurological Alliance of Scotland @neuroalscotland.bsky.social · 05/05/2026

This election, people with neurological conditions deserve strong voices in Parliament. We’re proud that candidates from all the main parties have supported our manifesto and committed to becoming #NeuroChampions2026, but there’s still time to do more. Ask your candidates now 👉 bit.ly/3PF8EXk

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Today’s Challenge, Tomorrow’s Hope: Manifesto for the 2026 Holyrood Elections

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Neurological Alliance of Scotland @neuroalscotland.bsky.social · 27/04/2026

Fantastic to host our neuro hustings last week and hear candidates directly reference our manifesto, support our principles and pledge to become Neuro Champions if elected on the 7 May. Let's get more candidates signed up to become #neurochampions2026! ⭐ Find our more here: bit.ly/3PF8EXk

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Neurological Alliance of Scotland @neuroalscotland.bsky.social · 23/04/2026

This election, we need champions for people with neurological conditions. Ask your local candidates to support the manifesto for change and become a #NeuroChampion2026. Because if not now... when? Download the our candidate letter and write to your candidates today: bit.ly/3PF8EXk

Ask you MSP to become a # NeuroChampion2026 this election. Download out template letter here

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Neurological Alliance of Scotland @neuroalscotland.bsky.social · 21/04/2026

Just two days until our neuro hustings! We have some great candidates lined up, all of whom have a strong interest in neurological health and wellbeing. This is an event for our members only. If you are not a member, feel free to comment below with a question you'd like us to ask the candidates.

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Neurological Alliance of Scotland @neuroalscotland.bsky.social · 20/04/2026

The Neuro Therapy Place is hosting an information session on the role of Oxygen Therapy/ Hyperbaric Oxygen Therapy (HBOT) in supporting the healing of complex wounds. This session is suitable for Care Providers, Healthcare Professionals and other interested referral agencies. More info below.

information session. Wound healing. Beyond standard care: the role of oxygen therapy in supporting complex wouns. Thursday 30 April. 1:30-3:30. The Neuro Therapy Place, 40C Swanfield, Edinburgh, EH6 5RX. RSVP archie@theneurotherapyplace.org.uk

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Neurological Alliance of Scotland @neuroalscotland.bsky.social · 06/04/2026

1 in 6 people in Scotland live with a neurological condition — but far too many face long waits, poor support and fragmented care. This election, ask your local candidates to become a #NeuroChampion2026 and back real change. Download our letter & write to your candidates today: bit.ly/3PF8EXk

Infographic with text: Ask your MSP to become a #NeuroChampion2026 this election. Download our candidate letter here. Neurological Alliance of Scotland.

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Neurological Alliance of Scotland @neuroalscotland.bsky.social · 06/04/2026

We are excited to announce the publication of our updated resources for carers and professionals supporting people with neurological conditions: ➡️ A-Z of Neurological Conditions resource ➡️ Neurological Conditions in the Community leaflet Both are downloadable from our website: bit.ly/4csqTrL

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Neurological Alliance of Scotland @neuroalscotland.bsky.social · 03/04/2026

We are delighted to publish our 2025-2026 Impact Report. Over the past year, we have worked with our members, partners and people with lived experience to ensure neurological voices are heard where decisions are made. 👉 Read our report and see what we achieved together: bit.ly/3PMVvLS

image of 2025-2026 impact report from the neurological alliance of scotland.

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Neurological Alliance of Scotland @neuroalscotland.bsky.social · 03/04/2026

We are pleased to be hosting a neurology – specific hustings for our members on Thursday 23 April, 12:30-2pm, online. This event is for members only. If you are a member of the Neurological Alliance of Scotland and would like to register to attend, please get in touch.

NAoS hustings. Thursday 23 April 12:30-2pm. Meet the parliamentary candidares for the Holyrood elections 2026.

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Neurological Alliance of Scotland @neuroalscotland.bsky.social · 31/03/2026

The Dementia Connect Carers Group (North Ayrshire) is a support group for carers and loved ones run by carers and loved ones. They offer a Dementia Support Pack and a monthly list of events. Both are free. Get in touch with the group via their Facebook page: www.facebook.com/groups/26839...

facebook.com

Facebook

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Neurological Alliance of Scotland @neuroalscotland.bsky.social · 21/03/2026

Transitioning from child to adult services can be challenging. Read Rebecca’s story of a positive and supported transition ➡️ bit.ly/4kYqyA1 Find out ways to support the young people you work with ➡️ bit.ly/4qCMCkL #BrainAwarenessWeek #DontAssumeImOK

infographic for Brain Awareness Week. Speech bubble with text. Text says: Dont assume im ok. Include me in the conversation. "There has been a fair bit of anxiety around moving from the young people's service to the adult's service"

Speech bubble with text. Text says: I do feel included in decisions about my health, I have considered genetic testing for Huntington’s disease and have been supported really well in making decisions around this.

No one has ever made a decision for me regarding this, but they have given me information, resources and time to allow me to make the decision myself.'

speech bubble with text. Text says: My mental health needs are being
met by having the transition meeting,
I have been worried about the change but I feel that the meeting will be reassuring to know that despite moving to a new service; support is still available.

Knowing that there is someone who understands Huntington’s disease well, even if I don’t get to speak to them often, is quite helpful and reassuring too.

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Neurological Alliance of Scotland @neuroalscotland.bsky.social · 21/03/2026

Children and young people with neurological conditions often face unpredictable changes. These changes and transitions can feel overwhelming and destabilising. Find out ways to support the young people you work with here ➡️ bit.ly/4qCMCkL #BrainAwarenessWeek #DontAssumeImOK

infographic of image and text. image of two adults and a child. One adult is holding cards with letters on them. One adult is using sign language. The child is in a wheelchair and uses AAC. Text reads: Dont assume im ok. Include me in the conversation. #BrainAwarenessWeek #DontAssumeImOk

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Neurological Alliance of Scotland @neuroalscotland.bsky.social · 20/03/2026

Loss can take many forms and grief isn’t straightforward. Read Alex’s story on the impact of losing her mum to MS ➡️ bit.ly/4kA4M52 Want to better support children and young people? Download this toolkit ➡️https://bit.ly/4qCMCkL #BrainAwarenessWeek #DontAssumeImOK

infographic of speech bubble and text. Text says: dont assume im ok. Change can be a kind of greif. "We dont talk about loss, death or grief enough:"

image of speech bubble with text. "Loss is a strange thing. We don’t talk about loss, death, or grief enough. We know it exists, and we support those going through it, but loss is more than death.

‘Loss’ encompasses many things, from a physical sudden loss, to a slow and ongoing loss. For me, I experienced both
through my Mum’s MS." Dont assume im ok, change can be a kind of grief

image of speech bubble with text. "Slowly and all too quickly, I had lost pieces of my mum over the course of 8 years.

The loss of my mum was neither quick, nor was it simple. It is therefore important to talk about loss, not only to support those going through it, but to acknowledge the varying types of loss that people go through. " Dont assume im ok, change can be a kind of grief.

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Neurological Alliance of Scotland @neuroalscotland.bsky.social · 20/03/2026

Children and young people may grieve changed abilities, missed milestones, friendships that slip, and a “before” life. Some live with anticipatory grief for a family member whose condition may progress. Want to know how to help? Download this toolkit ➡️ bit.ly/4qCMCkL #BrainAwarenessWeek

Infographic of text and image. A person hugging another person. They look sad. Text: Dont assume im ok, change can be a kind of grief.

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Neurological Alliance of Scotland @neuroalscotland.bsky.social · 19/03/2026

Many children and young people take on caring roles without identifying as a young carer. Read Alex’s story ➡️ bit.ly/3OiDzId Help make sure young people are supported. Check out this toolkit ➡️ bit.ly/4qCMCkL #BrainAwarenessWeek #DontAssumeImOK

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