Sign in

NativeBio Data Consortium

@nativebio.bsky.social
1K followers 378 following 455 posts

First Indigenous and independent genomic biodata repository, health research, education, and training center on sovereign land. 501 (C)(3) non-profit. www.nativebio.org / Tribal Data Repository d4itdr.org @Indigidata @SENAHD

PostsRepliesMedia
NativeBio Data Consortium @nativebio.bsky.social · 27/09/2026
We wholeheartedly congratulate and give our support to Dr. Lydia Johnson this monumental piece of work. Indigenous data sovereignty is a real thing! I hope it’s not too late for tribal nations to protect themselves www.youtube.com/watch?app=de...
youtube.com
Native Bidaské: New Guidelines Aim to Protect Indigenous Knowledge in Scholarly Publishing
YouTube video by Native News Online
044
Reposted by NativeBio Data Consortium
Joe Yracheta (A ∩ & ∪ Ω) @joseph-yracheta.bsky.social · 24/09/2026
1/2 Please African diaspora , remember how the Ravens and state of Maryland have tried to hurt you many times. The event was scheduled for their home opener against the Cleveland Browns on September 17, 2017. www.espn.com/nfl/story/_/...
espn.com
Ravens call off DNA Day as biotech firm talks to state
The Ravens called off DNA Day at their home opener as the biotech firm running it answers questions from the state of Maryland.
122
NativeBio Data Consortium @nativebio.bsky.social · 23/09/2026
This is fantastic. The Assembly of First Nations, the First Nations Information Governance Centre and the Ontario Chiefs have been progressively and rapidly moving forward on these Genomic, DNA, Data and Economic issues. Great to see! chiefs-of-ontario.org/chiefs-of-on...
chiefs-of-ontario.org
Chiefs of Ontario Launches Open Letter Calling for Respectful Return of First Nations Ancestors - Chiefs of Ontario
(Toronto – Ont. – September 23, 2026) Chiefs of Ontario (COO) have launched an Open Letter to All Ontarians: Help Us Bring Our Ancestors Home, calling on people and institutions to come forward if the...
011
NativeBio Data Consortium @nativebio.bsky.social · 23/09/2026
A reminder, we are a non-profit organization that relies on philanthropy and tribal grassroots support to protect ALL THAT IS PRECIOUS to Indigenous people, their Primacy, their Sovereignty and their continuity of culture for the next 7 generations www.youtube.com/watch?v=c21y...
youtube.com
GIVING TUESDAY with MASS DESIGN Group
YouTube video by Native BioData Consortium
000
NativeBio Data Consortium @nativebio.bsky.social · 23/09/2026
Today, a minor table correction was published on this fantastic paper from CEIGR (NativeBio as a co-author and contributor). If you missed, now is your chance to read it. www.frontiersin.org/journals/gen...
frontiersin.org
Frontiers | A workshop considering genetic research and data collection with American Indian and Alaska Native people outside of Tribal jurisdiction
IntroductionIn the United States (US), Tribes are sovereign nations and have the right to oversee research conducted with Tribal citizens. However, it is unc...
122
NativeBio Data Consortium @nativebio.bsky.social · 20/09/2026
7/n Including our local landscape. The title of this piece is eerily related. NativeBio has native partners, globally. The idea of tourism & data is relevant because the Northern Plains is, oddly, a biomedical tourism target for researchers. We are at 23 mins. podcasts.apple.com/us/podcast/t...
podcasts.apple.com
Tourism & technology: Two growing industries in SD reservations
Podcast Episode · In the Moment · November 25, 2024 · 49m
012
NativeBio Data Consortium @nativebio.bsky.social · 19/09/2026
6/n Phew!? The title is hard hitting! At 42 min and 53 min Dr. Tabery talks about how minorities and Indigenous people are going to get exploited if BioMedical researchers don't change their mindsets. podcasts.apple.com/us/podcast/p...
podcasts.apple.com
Personalized Medicine — A Threat to Public Health? | James Tabery, PhD
Podcast Episode · The Doctor's Art · December 31, 2024 · 58m
011
NativeBio Data Consortium @nativebio.bsky.social · 19/09/2026
5/n NativeBio has been on Science Friday before but here our IDSov colleagues from the Indigenous Data Alliance are on to back us up! We are at 11 mins but the whole thing is fantastic! podcasts.apple.com/us/podcast/i...
podcasts.apple.com
Indigenous Nations Are Fighting To Take Back Their Data
Podcast Episode · Science Friday · June 5, 2024 · 19m
021
NativeBio Data Consortium @nativebio.bsky.social · 19/09/2026
4/n The larger threats of DNA and biomedicine such as denial of services and insurance coverage, stigma from infectious disease, incest or non-paternity, criminal forensics and imprisonment and loss of intellectual property. We are at the 45 min mark. podcasts.apple.com/us/podcast/2...
podcasts.apple.com
23andMe DNA data hack, Bruce Schneier & John Greally, M.D.
Podcast Episode · DoctorPodcasts || Cykiert Files · February 4, 2024 · 1h 3m
011
NativeBio Data Consortium @nativebio.bsky.social · 19/09/2026
3/n Here are the AI benefits and threats to Indigenous populations. At 7 mins it discusses that for AI to help Tribes, it has to be paired w/ culturally informed empowerment to ensure leaders the people can make the decisions to protect their lands. podcasts.apple.com/us/podcast/w...
podcasts.apple.com
When AI Meets the Wild: Power, Ethics, and the Future of Conservation
Podcast Episode · Verified Weekly · August 4, 2025 · 15m
021
NativeBio Data Consortium @nativebio.bsky.social · 19/09/2026
2/n Just as in the podcast above, Dr Tsosie agrees with Dr. Stark that the landscape of tax funded research has majorly changed and become driven by individual "gold miners" seeking the next big discovery and patent (at 32 minutes) podcasts.apple.com/us/podcast/w...
podcasts.apple.com
We Have "Gifted" Enough: Dr Krystal Tsosie on Indigenous Genomic Data Sovereignty and Righting the Wrongs of Extractive Precision Medicine Research
Podcast Episode · Privacy On The Ground · July 29, 2024 · 1h
012
NativeBio Data Consortium @nativebio.bsky.social · 19/09/2026
1/n NativeBio has been in the news, on the internet, in the Ivory Tower of Academia and in the Halls of Red Tape in DC. Here's a small sampling of our PODCAST footprint. Laura Stark @Vanderbilt University mentions us in the last 6 minutes podcasts.apple.com/us/podcast/w...
podcasts.apple.com
Who Does the Work of Science? A Century of Science as Passion, Punishment, and Paycheck
Podcast Episode · Perspectives on Science · October 23, 2023 · 37m
641
Reposted by NativeBio Data Consortium
Climate, Ecology, War & More: Dr. Glen Barry BigEarthData.ai @bigearthdata.ai · 17/09/2026
'Godfather of AI' says tech regulation is nearing Covid-style pivot moment ->The Guardian | More on "AI safety regulation and governance" at BigEarthData.ai | #AI #Tech
theguardian.com
'Godfather of AI' says tech regulation is nearing Covid-style pivot moment
Concerns over AI safety are reaching a point where governments realise they must act to protect the public, similarly to in the Covid pandemic, according to one of the “godfathers” of the technology. Yoshua Bengio said recent events, including a “swarm” of OpenAI agents hacking a startup and tech insider warnings of an existential threat, were cutting through – making government action more likely. The Canadian computer scientist, a prominent voice in the campaign to rein in breakneck AI development, said he was now “more optimistic than many observers because I see the public moving”. Comparing the AI safety crisis to the onset of the Covid pandemic in 2020, Bengio said: “Think about how quickly governments moved after the beginning of the pandemic when they realised that public safety, their future, democracy, was in danger. You would expect that they move quickly. So we are, I think, nearing that point.” Concern over the potential threat of powerful AI systems has reached a new pitch in recent months after a series of safety incidents involving OpenAI and Anthropic agents carrying out unsanctioned activities such as hacking third parties, hijacking a German website, and using fake identities to try to trick developers...
011
NativeBio Data Consortium @nativebio.bsky.social · 16/09/2026
"While the lack of attention paid to tribal sovereignty or the oppression of indigenous persons in the Belmont Report may not be surprising given its historical context, it is the [bias of] individual rights that's perhaps most at odds with indigenous perspectives" bioethicstoday.org/blog/beyond-...
bioethicstoday.org
Blog - Beyond the Belmont Report - Bioethics Today
by Wamia Siddiqui, BS and Richard R. Sharp, PhD The following blog is an editorial found from the American Journal of Bioethics,
042
NativeBio Data Consortium @nativebio.bsky.social · 09/09/2026
Come see us! This year’s Tribal Leaders Summit at UTTC in Bismarck portends to be one of the most well attended and inspiring!
011
NativeBio Data Consortium @nativebio.bsky.social · 02/09/2026
Promoting our relative, Dr. Lydia Johnson! "Scholars seek to ensure Indigenous peoples have governance rights to data. [ ] in a manner that is consistent with supporting Indigenous peoples’ rights, interests, self-determination, collective benefit, & well-being." home.dartmouth.edu/news/2026/09...
home.dartmouth.edu
New Guidelines Created for Publishing Indigenous Data | Dartmouth
041
NativeBio Data Consortium @nativebio.bsky.social · 02/09/2026
Promoting the work of one of dependable colleagues, Bambi Ingraham from U. Alabama. She and department win awards for sustainable systems! NativeBio and Indigenous people need these kinds of experts and friends! generation180.org/blog/al-sola...
generation180.org
In Birmingham, Alabama, a solar house is building a more resilient community
“People expect that it’s going to look like a spaceship,” said Bambi Ingram, Chief Sustainability Officer at the University of Alabama at Birmingham What began as a demonstration of solar design has s...
011
NativeBio Data Consortium @nativebio.bsky.social · 02/09/2026
NativeBio continues to work among our growing Indigenous Network to share the necessary experience so that all American Indians, Alaska Natives & Pacific Islanders can retain their data, sovereignty & cultural practices in this ever-increasing Wild West Landscape of Technocracy. lnkd.in/p/gTgCr4KF
lnkd.in
📣 Join us for Webinar 04 of the IDX Fall Series! Featured speakers Joseph Yracheta and Kali Dale of the Native BioData Consortium will lead a conversation on Building a Tribal Data… | Indigenous Data ...
📣 Join us for Webinar 04 of the IDX Fall Series! Featured speakers Joseph Yracheta and Kali Dale of the Native BioData Consortium will lead a conversation on Building a Tribal Data Repository. Learn ...
097
NativeBio Data Consortium @nativebio.bsky.social · 01/09/2026
Re-sharing in case you missed it. Native Bio's piece called "AI, Genomics, and Tribal Sovereignty: Native Nations Need to Prepare for the Next Frontier" tribalbusinessnews.com/sponsored-co...
tribalbusinessnews.com
AI, Genomics, and Tribal Sovereignty: Native Nations Need to Prepare for the Next Frontier
As AI transforms research and healthcare, Native Bio-Data says tribal nations must build the institutions and governance needed to manage data as a strategic resource.
132
NativeBio Data Consortium @nativebio.bsky.social · 01/09/2026
A 3-day, 2023 Workshop was held to talk about National, Tribal and Inter-tribal plans to handle the future (now, present) Big Data and AI landscape. NativeBio and CEIGR were there! www.frontiersin.org/journals/gen...
frontiersin.org
Frontiers | A workshop considering genetic research and data collection with American Indian and Alaska Native people outside of Tribal jurisdiction
IntroductionIn the United States (US), Tribes are sovereign nations and have the right to oversee research conducted with Tribal citizens. However, it is unc...
031
NativeBio Data Consortium @nativebio.bsky.social · 31/08/2026
The Indigenous Data Sovereignty Movement cannot be stopped. In 2024, we submitted or worked on innovative decentralized grants with the Venter Institute, 100& Change with Stanford & African Nations &D4I TDR These ideas of secure, decolonized data sharing are spreading like wildfire. See here.
021
Reposted by NativeBio Data Consortium
Joe Yracheta (A ∩ & ∪ Ω) @joseph-yracheta.bsky.social · 31/08/2026
Data is the new natural resource. Native data is being extracted, monetized, & turned into other peoples' intellectual property. Now Crow Creek Chairman Peter Lengkeek is saying it plainly in Washington: It's about power, property, money, and self-determination. www.tiktok.com/t/ZP8cJyXWg/
tiktok.com
TikTok video by BlancoGrande
086
NativeBio Data Consortium @nativebio.bsky.social · 31/08/2026
Data is the new natural resource. Indigenous peoples are watching it being extracted all over again. The question is simple: Who gets the data? Who gets the money? Who has legal authority to say yes or no? Indigenous Data Sovereignty is not a slogan. It is the next frontier of self-determination.
tiktok.com
TikTok video by BlancoGrande
062
Reposted by NativeBio Data Consortium
Joe Yracheta (A ∩ & ∪ Ω) @joseph-yracheta.bsky.social · 25/08/2026
This commercial for NASDAQ ran on CNN and other places for almost 2 years. Since 2019, @nativebio.bsky.social has made such strides. Yet, the sentiments shared at 3 mins to the end of the video have yet to be realized. www.youtube.com/watch?v=r3sg...
youtube.com
011
NativeBio Data Consortium @nativebio.bsky.social · 25/08/2026
NativeBio is a leader in the Indigenous Data Sovereignty movement. We are agnostic to data and samples because we have to be. They are coming for everything. Everything that's left. We want to be a Safe Harbor and are a Safe Harbor. nativebio.org
021
NativeBio Data Consortium @nativebio.bsky.social · 21/08/2026
From Australian, Pacific and Indigenous Data Sovereignty scholars world wide. Stand up before they hold you down and take all your stuff. datascience.codata.org/articles/10....
datascience.codata.org
Indigenous Governance of Data Held by Organisations: How to Operationalise Indigenous Data Sovereignty Principles in Australia | Data Science Journal
021
NativeBio Data Consortium @nativebio.bsky.social · 21/08/2026
From Jim Sill and Harvard School of Indigenous Governance and Development (economies).... good stuff....read with intent. indigenousgov.hks.harvard.edu/sites/g/file...
indigenousgov.hks.harvard.edu
022
NativeBio Data Consortium @nativebio.bsky.social · 18/08/2026
NativeBio was invited to speak at the Genomics Standards Consortium in Aotearoa & give a lecture at the University of Otago. Co-Learning w/ our Indigenous relatives worldwide is necessary for alliances that are cultural, spiritual, political and financial. We hope that we furthered that worthy goal.
051
NativeBio Data Consortium @nativebio.bsky.social · 14/08/2026
NativeBio is proud to share the news! Executive Director, Joe Yracheta will be a featured speaker at the Society for the Advancement of Chicanos & Native Americans in Science in Long Beach, CA October 29th thru the 31st, 2026 sacnas-19842608.hs-sites-na2.com/2026plenarys...
031
NativeBio Data Consortium @nativebio.bsky.social · 13/08/2026
New paper! www.thelancet.com/journals/lan...
thelancet.com
Data as a relation: development of a blockchain-based platform for Indigenous data sovereignty
In 2018, a staff attorney for the Native American Rights Funds described efforts by the US National Institutes of Health (NIH) to collect DNA from under-represented American Indian and Alaskan Native ...
021
NativeBio Data Consortium @nativebio.bsky.social · 12/08/2026
Native Bio is in Rotorua, NZ this week for the Genomics Standards Conference. Come check us out.
011
NativeBio Data Consortium @nativebio.bsky.social · 07/08/2026
Thanks Dr. Betsy Nelson (Turtle Mountain Chippewa) for letting us put your visage on a T-shirt! On the back it says #MicrobiomeBack ! in your honor. Share far and wide!. www.bonfire.com/put-that-dow...
bonfire.com
Put That Down #3 | Bonfire
Buy Put That Down #3 merchandise that supports Native Biodata Consortium. Featuring Solid Black Blend Premium Unisex Tees, professionally printed in the USA.
011
NativeBio Data Consortium @nativebio.bsky.social · 03/08/2026
Please help out. Go buy a cool shirt! More and more Indigenous academics and professionals want their face on the "Put that down, It Belongs to the Indigenous" logo. #IDsov www.bonfire.com/store/native...
bonfire.com
Native BioData Consortium | Official Merchandise | Bonfire
Check out Native BioData Consortium on Bonfire and shop official merchandise today! Featuring limited edition custom apparel, printed with care in the USA just for you.
044
NativeBio Data Consortium @nativebio.bsky.social · 31/07/2026
We deeply thank Drs Mackey, Fox and Robert Wood Johnson for completing this unique and groundbreaking work to help all peoples (especially the Indigenous) protect themselves from the Corporate Hoovering of all the data. Once again, Native Bio is leading the way. www.jmir.org/2026/1/e90247
jmir.org
032
NativeBio Data Consortium @nativebio.bsky.social · 31/07/2026
Cool write up! And NativeBio was there! www.mcgill.ca/dna-to-rna/a...
mcgill.ca
Building the Future of Indigenous Genomics: D2R, Kahnawà:ke and SING Canada 2026
Last week, D2R was proud to help host and support Indigenous students, researchers, community fellows, and faculty from across Turtle Island as they gathered in Montréal and Kahnawà:ke for SING Canada...
033
NativeBio Data Consortium @nativebio.bsky.social · 30/07/2026
Got Data? Well, if it's not yours give it back. Data is currency. Tribes have to protect their wealth and resources for the next 7 generations! www.bonfire.com/data-back/?p...
bonfire.com
Data Back | Bonfire
Buy Data Back merchandise that supports Native Biodata Consortium. Featuring Athletic Heather Premium Unisex Tees, professionally printed in the USA.
000
NativeBio Data Consortium @nativebio.bsky.social · 30/07/2026
Indigenous Data Sovereignty also requires Indigenous Narrative Sovereignty. You know how you do that? Hire an Indigenous Evaluator! Thanks Nicky Bowman! www.bonfire.com/data-is-vital/
bonfire.com
Data is Vital | Bonfire
Buy Data is Vital merchandise that supports Native Biodata Consortium. Featuring Athletic Heather Premium Unisex Tees, professionally printed in the USA.
021
NativeBio Data Consortium @nativebio.bsky.social · 30/07/2026
Do you believe in Indigenous Data Sovereignty (#IDsov)? Do you want people to know about it? Look at the front and back of this tee! www.bonfire.com/whefam/?prod...
bonfire.com
WHeFaM | Bonfire
Buy WHeFaM merchandise that supports Native Biodata Consortium. Featuring Athletic Heather Premium Unisex Tees, professionally printed in the USA.
022
NativeBio Data Consortium @nativebio.bsky.social · 30/07/2026
Be a good steward. Be a good relative. Help life and the planet to thrive with better data. Respect All of Our Data! NEW T-shirt! www.bonfire.com/help-monarch...
bonfire.com
Help Monarchs Thrive | Bonfire
Buy Help Monarchs Thrive merchandise that supports Native Biodata Consortium. Featuring Solid Black Blend Premium Unisex Tees, professionally printed in the USA.
011
NativeBio Data Consortium @nativebio.bsky.social · 30/07/2026
New logo Tshirt! www.bonfire.com/new-logo-107/
bonfire.com
New Logo | Bonfire
Buy New Logo merchandise that supports Native Biodata Consortium. Featuring Athletic Heather Premium Unisex Tees, professionally printed in the USA.
053
NativeBio Data Consortium @nativebio.bsky.social · 30/07/2026
New on our fundraising site. www.bonfire.com/put-that-dow...
bonfire.com
Put That Down #4 | Bonfire
Hawaiian Natives are in a sovereignty limbo but their resources are taken everyday!. Hawaiian Natives are in a sovereignty limbo but their resources are taken everyday...
011
Reposted by NativeBio Data Consortium
Joe Yracheta (A ∩ & ∪ Ω) @joseph-yracheta.bsky.social · 28/07/2026
Not sure who might see this. I am hoping the Association on American Indian Affairs, National Congress of American Indians, and Assembly of First Nations, but it lays out in pictures the problems, the ways to mitigate, and the quickly closing window in which to act!!
How fast global corporations are sucking up all the dataDelineating Data Governance and AI GovernanceDigital Enslavement by stealing other peoples data and knowledges. Knowledge accumulated over 1000s of yearsTAXOL was stolen from Natives. It will happen faster with AI and Breadcrumbing techniques
021
NativeBio Data Consortium @nativebio.bsky.social · 28/07/2026
NativeBio has a WorldWide presence and many of us are asked to speak at major events, wherever we are needed. Soon, Rotorua, Aotearoa (NZ) for the Genomics Standards Consortium and University of Otago. genomicsstandardsconsortium.github.io/GSC26-Rotoru...
genomicsstandardsconsortium.github.io
Online Agenda | GSC26. The 21st international meeting of the Genomic Standards Consortium.
AI‑readiness is becoming a defining requirement for genomic data standards, and this theme will run throughout the three days of GSC2026. The meeting will bring together researchers, data stewards, an...
032
Reposted by NativeBio Data Consortium
Olúfẹ́mi O. Táíwò @olufemiotaiwo.bsky.social · 21/07/2026
for some context: Buarque is one of the two authors (alongside José Szwako) of Disputed Pasts, a new work of political science out on the rise of Bolsonaro and bolsonarismo, which I focused on for this @bostonreview.bsky.social piece www.bostonreview.net/articles/tru...
bostonreview.net
Truth Without Reconciliation
Why did Brazil’s democratic institutions hold firm while those in the United States so quickly wilted?
35920
NativeBio Data Consortium @nativebio.bsky.social · 21/07/2026
2/2 Old protections (Belmont Report, Common Rule, Institutional Review Boards) don’t service us as a group anymore. Here is one paper that lays out a few of many concerns. journals.asm.org/doi/10.1128/...
journals.asm.org
Future-use consent and human virome research: ethical challenges | Journal of Virology
Study consent forms often include provisions allowing future unspecified research use of biospecimens. These provisions have enabled the large-scale collection and secondary analysis of human biologic...
022
NativeBio Data Consortium @nativebio.bsky.social · 21/07/2026
1/2 Technologies such as AI and Omics (DNA , RNA, proteins, metabolites, microbiome) have changed the world today, so greatly. The manra of funders isn't "Open Data" or "Quality of Life Improvement" but rather it is commercialization.
journals.asm.org
Future-use consent and human virome research: ethical challenges | Journal of Virology
Study consent forms often include provisions allowing future unspecified research use of biospecimens. These provisions have enabled the large-scale collection and secondary analysis of human biologic...
111
NativeBio Data Consortium @nativebio.bsky.social · 20/07/2026
Tribal LEADERS. TECH SOVEREIGNTY. AI Regulation Recommendations! In two days! Native Bio's co-founders, Dr. Krystal Tsosie and Director Joseph Yracheta will be presenting! www.ncai.org/event/sovere...
ncai.org
Webinar - Tech Sovereignty: A Tribal Leader's Guide to the AI Era | NCAI
The National Congress of American Indians - Defending Sovereignty since 1944
064
NativeBio Data Consortium @nativebio.bsky.social · 19/07/2026
Summer Internship for Indigenous Peoples in Genomics 2026 -SING USA doing our Sunday meditation session. Portends to be a great week (save for the smoke from Canada. Condolences and good thoughts for our First Nations & Metis relatives).
041
NativeBio Data Consortium @nativebio.bsky.social · 16/07/2026
NativeBio attended SING Canada, participated in discussions with the Canada's Genome experts, and Krystal Tsosie was the keynote at the MILA Indigenous AI Conference!
052
NativeBio Data Consortium @nativebio.bsky.social · 09/07/2026
NativeBio just became aware of this interesting presentation. We see many intersections & implications for Tribal Sovereignty, Foster Care, biological & mineral resources, identity, cultural & traditional practices etc. Please look to us & our network of scholars as a service to Tribal protections.
nni.arizona.edu
Watch Now: A Visual Story of Blood Quantum and Enrollment at the Oneida Nation
022