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My Friend Kaylen

@myfriendkaylen.bsky.social
2K followers 1.5K following 1.4K posts

🎙️ Former Radio DJ - Philly, CO, NY ♿ NeuroSarcoid = Medically fascinating 🧶 Knitting, Making, Project Person ☔ Rain, trees, animals, night 🥏 Occasional round of Disc Golf 🥍 Sports fan 🥧 Pie 💍 Married, Empty nest

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Reposted by My Friend Kaylen
A Chronic Voice @achronicvoice.com · 30/09/2026
"My #body never turns off & neither does this background monitoring. Every twinge, #ache, or flare gets logged, analysed & accommodated before it becomes a bigger prob. It’s like living inside a list that never stops updating.": buff.ly/mT8GyLc by tanyahindes #ChronicPain #ChronicIllness #awareness
crackednailsandsplitends.co.uk
Things Chronically Ill People Do Just To Function Every Day - Cracked Nails & Split Ends
A personal look at the invisible labour of chronic illness, pain and fatigue. The quiet coping strategies people use just to get through the day.
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My Friend Kaylen @myfriendkaylen.bsky.social · 14/07/2026
Our sweet Lando. We had to say goodbye sooner than expected. I’d like to remember the jolly laughter that bubbled at his antics, his sweet love of just being with us, and so many shenanigans that a few people thought that was his name! Sweet dreams my little buddy. Be at peace, and thank you. #dogs
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AltSpaceForce 🚀🇺🇲 @altspaceforce.altgov.info · 06/04/2026
Humanity's first direct look at the full Mare Orientale on the lunar far side. Usually hidden from Earth, even Apollo crews missed a complete view due to orbit and lighting. This basin appears as a narrow feature on the right limb, just past the dark Grimaldi crater.
Photo of the far side of the moon
NASA/ESA
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My Friend Kaylen @myfriendkaylen.bsky.social · 12/03/2026
We're ready! 🏀 Boiler Up! 🖤💛 Go CATS! 💙🤍 #marchmadness #bbn #kentuckywildcats #purdue #boilerup
Front porch of a cedar home with two college basketball banners. One is Kentucky Wildcats and the other is Purdue Boilermakers. The image has a slight watercolor filter.
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Chronic Illness Humor @chronicillness.bsky.social · 01/03/2026
Me too, banana
a birthday card that says in banana years...you're bread [pic of banana looking sad with a balloon]
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My Friend Kaylen @myfriendkaylen.bsky.social · 26/02/2026
Current profile pic is a watercolor piece titled "Fierce Little Bunny" and was created by artist Lily Seika Jones.
This image is a watercolor painting of a bunny dressed in armor and wielding a spiked mace. 
The artwork is titled "Fierce Little Bunny" and was created by artist Lily Seika Jones.
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My Friend Kaylen @myfriendkaylen.bsky.social · 23/02/2026
Can it be an emotional support chicken even though it's not THE emotional support chicken? 😁 #showmeyourknits 🧶 This is Susan B Anderson's chicken pattern using Michelle Mooney's colorwork chart for inspiration. #knitting #knitsky #chicken #knittingchickens
A knitted chicken using green cotton cashmere yarn from Rowan and a varigated yarn from my stash in green and purple hues. The beak is yellow and wattle and comb are purple.  It's being held up in my hand.
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My Friend Kaylen @myfriendkaylen.bsky.social · 22/02/2026
#showmeyourknits 🧶 says animal things this week. This is a fun one. The pattern is for a doorstop but I just made it into a stuffed toy. Pattern design by Sara Thornett. It's a free download now here www.lovecrafts.com/en-gb/p/owl-... #knitting #toys #owls #rowan #knitsky
A large knitted stuffed owl in soft teal and brown with white accents. It has geometrical striping on the body, lacy wings, and large intarsia knit eyes.
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My Friend Kaylen @myfriendkaylen.bsky.social · 12/02/2026
There's a beautiful phrase that says: "What we give doesn't always return, but what we give is always what we are."
 Muted shades in blues and greens and golds. A person who is rooted like a tree with arms reaching out like branches with leaves. A few birds are flying away and a small nest with birds rests in this welcoming home. The image has distant mountains . It speaks of providing shelter and rest. There is a tiny rabbit hidden at the foot of the tree person's roots. That's because I like rabbits. :) "What we give doesn't always return, but what we give is always what we are."
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AltSpaceForce 🚀🇺🇲 @altspaceforce.altgov.info · 09/02/2026
PBS Kids knows what's up 😎🐰
PBS Kids official Facebook account features a cool rabbit in sunglasses and leathers 
Text reads: We've always loved a bad bunny
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My Friend Kaylen @myfriendkaylen.bsky.social · 01/02/2026
A little grey for #showmeyourknits. I like using grey as a contrast color instead of white. #knitsky 🧶
Nordic mittens being knit with only the thumbs left to do.  They are purple and grey.
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My Friend Kaylen @myfriendkaylen.bsky.social · 28/01/2026
#character #integrity #quotes
People seem not to see that their opinion of the world is also a confession of their character. - Ralph Waldo Emerson quote over a my photograph of a bluebird on a welded wire fence in the country.
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My Friend Kaylen @myfriendkaylen.bsky.social · 07/01/2026
Because I'm Medically Fascinating: Nerve samples from my skin punch biopsies are on their way to Harvard. (🤞🏻 seeing if I'm eligible for Immunoglobulin therapy, IVIG) I feel fancy! #smallfiberneuropathy #dysautonomia #neurosarcoidosis #sarcoidosis #autoimmune #chronicillness #IVIG #spoonies
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My Friend Kaylen @myfriendkaylen.bsky.social · 01/01/2026
A rogue sage bundle decided to burn itself completely out overnight and took some of my adjacent record collection with it. It must have thought 2025 needed a bit more ushering out. #threedognight #sage #happynewyear
A The Dog Night vinyl album with a melted area.
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My Friend Kaylen @myfriendkaylen.bsky.social · 01/01/2026
Rabbit Rabbit! #happynewyear #newmonth #newday Two Young Jacks relief print by Marit Berg.
This is a "Two Young Jacks" relief print by artist Marit Berg. The artwork is a black and white print featuring two hares, or "jacks", in a grassy environment.
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My Friend Kaylen @myfriendkaylen.bsky.social · 22/12/2025
💙💚 #artadventcalendar
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My Friend Kaylen @myfriendkaylen.bsky.social · 21/12/2025
Solstice Blessings! #longestnight #wintersolstice #yule
A festive illustration with text that wishes a happy Winter Solstice featuring rabbits, candles, oranges, pinecones, snowflakes, and a crescent moon.
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My Friend Kaylen @myfriendkaylen.bsky.social · 04/12/2025
Thirty-one! ✨
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My Friend Kaylen @myfriendkaylen.bsky.social · 03/12/2025
🤣🤦🏻‍♀️🤣
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My Friend Kaylen @myfriendkaylen.bsky.social · 02/12/2025
#artadventcalendar
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My Friend Kaylen @myfriendkaylen.bsky.social · 02/12/2025
I call this "Sorting Gone Wrong" AKA "Tantrum with Tupperware." #organizing #reducereuserecycle
Plastic reusable containers and lids strewn on the kitchen floor.
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My Friend Kaylen @myfriendkaylen.bsky.social · 02/12/2025
Beautiful 💙💚 #artadventcalendar
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My Friend Kaylen @myfriendkaylen.bsky.social · 01/12/2025
Rabbit Rabbit!
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My Friend Kaylen @myfriendkaylen.bsky.social · 01/12/2025
My appt with the neuromuscular disease clinic was great! We have a plan. It'll take awhile to get through all the new testing. In the meantime, I'll be happy with the other body systems who got some attention this year and are doing well 😜. #neurosarcoid #dysautonomia #smallfiberneuropathy
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My Friend Kaylen @myfriendkaylen.bsky.social · 24/11/2025
youtube.com/watch?v=hZJR...
youtube.com
War
YouTube video by Edwin Starr - Topic
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My Friend Kaylen @myfriendkaylen.bsky.social · 23/11/2025
My dysautonomia is doing a tango today. #dysautonomia #sarcoidosis #smallfiberneuropathy #chronic #bloodpressure
Primarily two blood pressure readings are shown. One is high at 194/114. The other is low at 103/73. These are both just from standing or doing regular activity like walking to the kitchen. My body's signals can't automatically do what they are supposed to. They can't regulate.
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Reposted by My Friend Kaylen
JayIsPainting 🍁 @jayispainting.earthskyart.ca · 16/11/2025
Artists & Art lovers! Time to get geared up for the biggest art event of the year on Bluesky! Last year we had close to 1500 artists from 25 countries posting original work daily from December 1-24
earthskyart.ca
#ArtAdventCalendar
In its 11th year, #artadventcalendar participants post an original piece of art from Dec 1-24. Paintings, drawings, sculpture, textiles, beading, photography. If it’s art and it beautifies th…
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My Friend Kaylen @myfriendkaylen.bsky.social · 16/11/2025
Wild Geese by Mary Oliver #poetry #MaryOliver #nature #love #placeintheworld #belonging
WILD GEESE
Mary Oliver

You do not have to be good.
You do not have to walk on your knees
for a hundred miles through the desert repenting,
You only have to let the soft animal of your body
love what it loves
Tell me about despair, yours, and I will tell you mine,
Meanwhile the world goes on.
Meanwhile the sun and the clear pebbles of the rain
are moving across the landscapes,
over the prairies and the deep trees,
the mountains and the rivers.
Meanwhile the wild geese, high in the clean blue air,
are heading home again
Whoever you are, no matter how lonely,
the world offers itself to your imagination,
calls to vou like the wild geese, harsh and exciting -
over and over announcing your place
in the family of things.
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My Friend Kaylen @myfriendkaylen.bsky.social · 13/11/2025
With the uncertainty of #insurance (and everything else), cataracts are taken care of while my out-of-pocket max has been met. It's been a big medical year. Infusions, gallbladder, thyroid cancer, and all that comes with #neurosarc. Liver issues and seeing if I'm a candidate for IVIG up next! 🤞🏻 🌸
Sixty-two year old woman with long brown and grey hair waving to the camera. She has a shield taped over one eye and large brown medical sunglasses on. Sitting in the passenger seat of a car. She's very grateful for her husband's job provided medical insurance due to preexisting conditions. She's grateful for his care, as well. They navigate a ton of health issues and costs.  #sarcoidosis #autoimmune #longcovid #smallfiberneuropthy #dysautonomia #thyroidcancer #liverfibrosis #IVIG
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My Friend Kaylen @myfriendkaylen.bsky.social · 12/11/2025
Northern lights in the Bluegrass. This is the first time we've seen them with the naked eye here!
Pink and greenish blue hues in the sky over the tree line. Taken with a phone camera with night setting.
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Reposted by My Friend Kaylen
George Takei @georgetakei.bsky.social · 07/11/2025
In a world of Jeffs, be like MacKenzie.
A tweet from My Mixtapez (@mymixtapez) says:
“Billionaire MacKenzie Scott has gifted another $38 million to Atlanta’s Spelman College, bringing her total donations to 8 HBCUs to $387 million in the past 30 days.
She has been donating billions of her wealth every year since her divorce from ex-husband Jeff Bezos in 2019.”
The image shows MacKenzie Scott smiling at an event, and in the corner, a smaller inset photo shows two joyful Spelman College graduates in caps and gowns.
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Seth Abramson @sethabramson.bsky.social · 06/11/2025
New Hampshire just *cannot* stop hitting the Top 10 in basically every ranking
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My Friend Kaylen @myfriendkaylen.bsky.social · 04/11/2025
There's a shelter in place advisory in Louisville. Cargo Plane. www.reddit.com/r/Louisville... #kentucky #louisville #airport #fire
reddit.com
From the Louisville community on Reddit: Plane crash in Louisville
Explore this post and more from the Louisville community
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Reposted by My Friend Kaylen
Robert Reich @rbreich.bsky.social · 04/11/2025
Know your rights when voting today.
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Reposted by My Friend Kaylen
A Chronic Voice @achronicvoice.com · 31/10/2025
"Another key benefit of #walking is that it enhances communication between the #brain’s left & right hemispheres. Research suggests that..strengthens connectivity between the 2 sides..by activating the corpus callosum.": buff.ly/K0Rqlmk via thebestbrainpossible #HealthAndWellness #exercise #spoonie
buff.ly
Walking Your Way to Better Mental Health - The Best Brain Possible
Walking is one of the most effective and accessible ways to improve your mental well-being. Lace up your shoes and start today!
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My Friend Kaylen @myfriendkaylen.bsky.social · 26/10/2025
Lando stuck his face in the mud. Nothing else. Just his face. #dogs
Black cockapoo sitting politely on the blue tiled kitchen floor while his human takes a picture of his shenanigans. His face is covered in mud.
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Reposted by My Friend Kaylen
The Associated Press @apnews.com · 23/10/2025
Ballerina Misty Copeland has taken one last passionate spin on the ballet stage before saying goodbye.
bit.ly
Misty Copeland hangs up her pointe shoes after performing for adoring crowd at retirement show
Ballerina Misty Copeland has taken one last passionate spin on the ballet stage before saying goodbye.
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KOJAMF🤘🖤🤘 @kojamf.bsky.social · 05/10/2025
Dr. Jane Goodall filmed an interview with Netflix in March 2025 that she understood would only be released after her death.
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My Friend Kaylen @myfriendkaylen.bsky.social · 23/09/2025
Someone had a long travel day. #Lando #dogs #RV #travel
Black cockapoo sleeping on the camper floor.
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My Friend Kaylen @myfriendkaylen.bsky.social · 21/09/2025
Have you ever smelled the trunk of a ponderosa pine? Vanilla! #NewMexico #nature #trees
A trunk is of a ponderosa pine is in the foreground with shrubby dessert plants and rocks in the back.
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My Friend Kaylen @myfriendkaylen.bsky.social · 11/09/2025
Whale remembers. Ancient tides. Turtle steadies. Adjust my stride. Rabbit softens. I am known. Tree holds me. I am home. Green surrounds. I enwreathe. Wind becomes me, as I breathe. I ground. I remember. I rise. Woven into the Whole. Kaylen Wells Cirillo
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My Friend Kaylen @myfriendkaylen.bsky.social · 03/08/2025
My mom started it! Every year, my family has a competition to see who can grow the longest red noodle bean. 🫘 My daughter and I are currently tied at 21.5". #familyfun #gardening
A bean plant in a barrel pot with long, thin, dark reddish purple beans. Like a long green bean.
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My Friend Kaylen @myfriendkaylen.bsky.social · 01/08/2025
Rabbit Rabbit! #rabbitrabbit #firstofthemonth #traditions #folklore
Wild rabbit sitting in a field of clover.
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My Friend Kaylen @myfriendkaylen.bsky.social · 31/07/2025
Hmmm 🧐 💛 🧶
There are six circles, each a different color, with labels, and with numbers faintly visible within them. The meme says "If you cannot see a number you: Have a cold (blue with faint #4).
Have a Headache (green with faint #2). Need Sleep (pink with faint #0). Need Water (brown with faint #6) Need Yarn (yellow with NO number😄) Have Low Blood Sugar (orange with faint #9)
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My Friend Kaylen @myfriendkaylen.bsky.social · 29/06/2025
Post your favorite Doctor Who. Wrong answers only
Alan Alda as Hawkeye in the TV show M.A.S.H.. He is in his green uniform and slightly smiling.
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Middle-aged Muppet Mama @middleagedmuppetma.bsky.social · 25/06/2025
Hmm, gosh, if only there was a government program with documented history showing it's a good idea 🤔 www.bbc.com/news/magazin...
bbc.com
Why Finnish babies sleep in cardboard boxes
For 75 years, Finland's expectant mothers have been given a box of baby clothes and bedding by the state. Some say it helped Finland achieve one of the world's lowest infant mortality rates.
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James B. Greenberg, Professor Emeritus @zavaletas.bsky.social · 21/06/2025
Arguing with Trump supporters rarely works. But what if the answer isn’t more facts—but better questions?
jamesbgreenberg.substack.com
How to Talk with MAGA Republicans Without Losing Your Mind
Why real dialogue begins not with facts, but with values—and the courage to listen.
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