Lynne Kinst @mrskinst.bsky.social · 24/09/2026Swim friends are the best! And swimming has been a huge blessing for our family. She still has a ways to go to reach her goal. Any amount helps! Link in thread. Checks and Venmo will also work. Donations due by October 5. DM with questions. 100
Lynne Kinst @mrskinst.bsky.social · 24/09/2026Swim friends are the best! And swimming has been a huge blessing for our family. She still has a ways to go to reach her goal. Any amount helps! Link in thread. Checks and Venmo will also work. Donations due by October 5. DM with questions. 000
Lynne Kinst @mrskinst.bsky.social · 12/08/2026Hydrating and fueling up for a long travel day. Kids are off to school and now I’m at the airport. Looking forward to seeing all my bleeding disorders peeps in Orlando! Will you be at BDC? Let’s connect!! #bleedingdisorders #bdc2026 000
Lynne Kinst @mrskinst.bsky.social · 01/07/2026Ashley gave her first legislative testimony today in support of #SB1199. She’s now advocated for protecting patient is assistance in California and Washington DC, just like her mama. Passed out of Assembly Health Committee this evening. #allcopayscount #caleg #likemotherlikedaughter 000
Lynne Kinst @mrskinst.bsky.social · 23/06/2026In San Diego building support for the rare disease community in California! Meeting with potential partners because we can accomplish more working together! #raredisease 010
Lynne Kinst @mrskinst.bsky.social · 25/04/2026If you’re in Fresno at the Northern California Bleeding Disorders Foundation Springfest today, please come by to say hello to Christine and I! 000
Lynne Kinst @mrskinst.bsky.social · 20/04/2026Joining a great group of MS Society advocates today at the State Capitol. Working together with other patient groups we can expand our impact and elevate the patient voice. #bleedingdisorders #multiplesclerosis #patientvoice #AllCopaysCount #sb1199 120
Lynne Kinst @mrskinst.bsky.social · 15/04/2026Kicking off with 125 patient advocates from across the country. What can we accomplish together? #bleedingdisorders #advocacy #patientvoice #IEEPO2026 #poweringbreakthroughstogether 000
Lynne Kinst @mrskinst.bsky.social · 12/03/2026First full day of the 2026 Western States Regional Hemophilia Network annual meeting. Our collaboration with the providers at our hemophilia treatment centers is a critical partnership in ensuring all patients have access to quality, equitable and affordable health care. #bleedingdisorders 000
Lynne Kinst @mrskinst.bsky.social · 19/10/2025Last weekend was the CCBDF Unite Walk. It was a beautiful day to raise awareness about bleeding disorders and raise money to support the great programs provided by CCBDF. Thanks to all who supported Kinst-Carey for a Cure! #uniteforbleedingdisorders #peer2peer #thankyou 000
Lynne Kinst @mrskinst.bsky.social · 04/10/2025Just back from science camp and she will be swimming a 500 tomorrow! Just 2 days left to collect donations for her swim-a-thon. Every bit helps. Donations are due on Sunday. You can donate online or Venmo me and I’ll submit it. DM or text me for info… #usaswimmingswimathon 100
Lynne Kinst @mrskinst.bsky.social · 29/09/2025It’s been hectic at our house and our fundraising efforts have stalled out a bit. She has raised $465 of her BIG $1500 goal! Her sights are set high because she is so grateful to have found her “thing” and an awesome team to do it with! Every little bit would help! #usaswimmingswimathon #swimteam 110
Lynne Kinst @mrskinst.bsky.social · 25/09/2025Genentech Advocacy and Access Summit. Collaborating with partners to talk about health care access. Always great to spend time with colleagues who are also friends. #bleedingdisorders #advocacy #AccessToCare 000
Lynne Kinst @mrskinst.bsky.social · 24/09/2025“We felt betrayal. We learned resilience. We promise this will never happen again.” #aidsmemorialgrove #bleedingdisorders #neveragain 000
Lynne Kinst @mrskinst.bsky.social · 16/09/2025The CCA Swim-a-thon is on 10/11. Ashley would love you support - she is trying to raise $1500. Donate online (select Ashley Kinst) or mail a check made out to CCA or Venmo me. DM for more information. All donations must be turned in by October 5. www.ccaswimming.org/page/tu-money 000
Lynne Kinst @mrskinst.bsky.social · 16/09/2025It’s time for the CCBDF Unite Walk. We would love your support as we honor my dad. uniteforbleedingdisorders.org/teams/15861 000
Reposted by Lynne KinstAtticus Finch (of Georgia) @atticus59914029.bsky.social · 12/07/2025Don’t look away. 1313742
Reposted by Lynne KinstAtticus Finch (of Georgia) @atticus59914029.bsky.social · 01/07/2025I never want to hear another word about the GOP being the alleged pro life party.... 129817
Lynne Kinst @mrskinst.bsky.social · 14/06/2025Big turnout in Roseville, CA - largest protest I’ve ever seen here. 021
Lynne Kinst @mrskinst.bsky.social · 08/05/2025Every day is a great day to advocate for #bleedingdisorders and #raredisease patients. It’s especially fun when you see a lot of friends. So many, that your group thinks you’re a celebrity but it’s just that the Capitol is like high school or a small college campus. 😂 #advocacyinaction #caleg 000
Lynne Kinst @mrskinst.bsky.social · 30/04/2025Time with my friends, colleagues and fellow EDs is always the very best. Fills my cup. Encourages my soul. Inspires my work. These people are some of the very best!! #workfam❤️ #chapterstafforganization #inspired 000
Reposted by Lynne KinstAlt CDC (they/them) @altcdc.altgov.info · 24/04/2025🛑 For today's call to action: The Trump admin is expanding Schedule F. This could strip civil service protections from thousands of federal workers, including scientists—replacing them with Trump loyalists. 🗓️ Public comment's still open—have at it! 🔗 www.regulations.gov/document/OPM... 21247120
Lynne Kinst @mrskinst.bsky.social · 17/04/2025On World Hemophilia Day, I remember my dad - my inspiration and legacy for the advocacy I do for the #bleedingdisorder and #raredisease communities. I also honor all the women and girls, like myself, who live with bleeding disorders. 🩸 #advocacy #education #familylegacy 000
Lynne Kinst @mrskinst.bsky.social · 05/04/2025Looking forward to another beautiful day in Paradise. Conference kicked off last night. The family can enjoy another day at the pool. 😍 #KinstFamilyFieldTrips #bleedingdisorders #advocacy #education 000
Lynne Kinst @mrskinst.bsky.social · 29/03/2025Yesterday, as others shared at the Celebration of Life I was taken right back to the moment I was told my dad had passed. It has been over 30 years but I still miss him & am so thankful I can do this work for the #bleedingdisorders community to help keep his memory alive. #neverforget #missyoudaddy 010
Lynne Kinst @mrskinst.bsky.social · 28/03/2025Good morning from San Diego! Excited to see more friends, make more connections and learn more for our community today! #bleedingdisorders #advocacy #education 000
Lynne Kinst @mrskinst.bsky.social · 27/03/2025Exhibit hall will be opening soon. Come say hello to the California team at booth #515. #BleedingDisorders #advocacy #education 000
Lynne Kinst @mrskinst.bsky.social · 27/03/2025Kicking off the official Day 1 of Hemophilia Federation of America Annual Symposium at the Advocacy Precon after a great afternoon and evening yesterday with fellow member organizations from across the country. #bleedingdisorders #advocacy #patientvoice 010
Lynne Kinst @mrskinst.bsky.social · 26/03/2025Off to San Diego for the Hemophilia Federation of America Annual Symposium. Hope to see lots of my colleagues and blood brothers and sisters there! #worktravel #bloodfamily #sohappyitsinCA 000
Lynne Kinst @mrskinst.bsky.social · 07/03/2025While we’ve been doing a lot of sightseeing this week, our real purpose for coming was to join with our bleeding disorders community in Washington DC at this critical time to advocate for #bleedingdisorders and #raredisease. #KinstFamilyFieldTrips #nbdf #washingtondays2025 #advocacy 000
Lynne Kinst @mrskinst.bsky.social · 01/03/2025Off on our next adventure! #kinstfamilyfieldtrips #washingtondc #history #advocacy #coolflightattendant 000
Lynne Kinst @mrskinst.bsky.social · 28/02/2025Let’s celebrate all who are rare today! 💕💕 #RareDiseaseDay2025 #ShowYourStripes #bleedingdisorders 000
Lynne Kinst @mrskinst.bsky.social · 26/02/2025Meeting Assemblyman Heath Flora on behalf of #RareDiseasePatients in support of ACR 33 (Rare Disease Day), AB 242 (Newborn Screening for Duchenne’s Muscular Dystrophy, and AB 278 (OHCA Patient Advisory Committee). 1 in 10 Americans have a rare disease. #raredisease #bleedingdisorders #patientvoice 120
Reposted by Lynne KinstThe New Yorker @newyorker.com · 17/02/2025OSHA has repeatedly fined Elon Musk’s companies for serious safety violations. Granting him and his associates access to the agency’s files is an obvious conflict of interest, and would likely discourage workers from filing future complaints.nyer.cmWhat Will DOGE’s Moves on Government Agencies Mean for OSHA?Unions took to the streets—and the courts—to try to keep Elon Musk’s initiative out of the Labor Department. 38795307
