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Matt Rocheleau

@mrochele.bsky.social
166 followers 305 following 25 posts

ALS volunteer advocate | former data & investigations editor at Hearst CT Media & Times Union; Columbia U. adjunct prof; Boston Globe Spotlight reporter

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Matt Rocheleau @mrochele.bsky.social · 03/10/2026
In 2023, a few months after doctors told me I had a relatively slow-progressing form of ALS, I listened to fellow 30-something-year-old Brooke Eby talk about how her journey living with and advocating around this disease had become her “path” and her “purpose.” It inspired me to get involved.
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iamals.bsky.social @iamals.bsky.social · 29/09/2026
ACT for ALS protects $500M in federal ALS research funding over the next 5 years! Our community, legislative champions, allies, and advocates overcame huge hurdles to get this bill passed. We’re incredibly grateful. Thank your legislators: bit.ly/A4A-TY
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iamals.bsky.social @iamals.bsky.social · 29/09/2026
ACT for ALS passed Congress with ONE DAY to spare! 🎉 Your emails, calls, meetings, petition signatures & relentless advocacy made this possible. THANK YOU! Thank our congressional champions: bit.ly/A4A-TY Keep this work going: bit.ly/giveALS
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iamals.bsky.social @iamals.bsky.social · 24/09/2026
ACT for ALS changed what's possible in ALS. In 2021, I AM ALS's advocacy saw it from drafting through passage, securing historic funding, wider access to therapies, and breakthroughs toward a cure. It expires next week. Let's finish what we started: bit.ly/fundALS
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iamals.bsky.social @iamals.bsky.social · 22/09/2026
Today, organizations that represent the ALS community came together to urge Senate Leadership to pass ACT for ALS before critical programs expire on September 30. Urgency is not just a talking point for people with ALS—it is our reality. Take action: bit.ly/fundALS
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Matt Rocheleau @mrochele.bsky.social · 21/09/2026
Both chambers of Congress unanimously passed this bipartisan bill to maintain $500m in vital #ALS research funding. But it’s stalled due to minor wording differences. The deadline is days away. Take 1 minute & tell your senators to FINISH THE JOB www.iamals.org/reauthorize-...
iamals.org
Reauthorize the ACT for ALS! - I AM ALS - ALS is Relentless. So Are We!
ACT for ALS gets us closer to a cure for ALS. Help us reauthorize this critical piece of legislation before it expires in September 2026!
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Matt Rocheleau @mrochele.bsky.social · 21/09/2026
www.iamals.org/reauthorize-... iamals.donordrive.com/participant/... @iamals.bsky.social
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Matt Rocheleau @mrochele.bsky.social · 21/09/2026
www.iamals.org/reauthorize-... iamals.donordrive.com/participant/... @iamals.bsky.social
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iamals.bsky.social @iamals.bsky.social · 21/09/2026
LAST PUSH: ACT for ALS expires September 30. Our community drafted this bill, championed it, and saw it pass in 2021. If it lapses now, people with ALS could wait months they don't have. Protect our progress toward a cure. Tell your senators: Pass the bill → bit.ly/fundALS
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Matt Rocheleau @mrochele.bsky.social · 21/09/2026
Both chambers of Congress unanimously passed this bipartisan bill to maintain $500m in vital #ALS research funding. But it’s stalled due to minor wording differences. The deadline is days away. Take 1 minute & tell your senators to FINISH THE JOB www.iamals.org/reauthorize-...
iamals.org
Reauthorize the ACT for ALS! - I AM ALS - ALS is Relentless. So Are We!
ACT for ALS gets us closer to a cure for ALS. Help us reauthorize this critical piece of legislation before it expires in September 2026!
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Matt Rocheleau @mrochele.bsky.social · 18/07/2026
Got 1 minute to secure $500 million for ALS research? Here’s the best thing you can do right now to help everyone living with #ALS It only takes a minute, & it’s totally free. Watch for instructions 🎥 Link: www.iamals.org/reauthorize-... 🔗 #ALSAwareness #EndALS #MND @iamals.bsky.social
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Matt Rocheleau @mrochele.bsky.social · 18/09/2026
I’m aiming to raise $5,000 for I AM ALS, and I’m asking you to help me reach my goal. iamals.donordrive.com/participants... @iamals.bsky.social brings together people living with ALS, caregivers, loved ones, and advocates to drive progress across research, advocacy, access, and support.
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Matt Rocheleau @mrochele.bsky.social · 18/09/2026
I’m aiming to raise $5,000 for I AM ALS, and I’m asking you to help me reach my goal. iamals.donordrive.com/participants... @iamals.bsky.social brings together people living with ALS, caregivers, loved ones, and advocates to drive progress across research, advocacy, access, and support.
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Matt Rocheleau @mrochele.bsky.social · 16/09/2026
ACT for ALS expires Sept. 30 unless Congress reauthorizes it. The House is going home tomorrow — the Senate is our last shot. Tell the Senate to FINISH THE JOB: www.iamals.org/reauthorize-...
iamals.org
Reauthorize the ACT for ALS! - I AM ALS - ALS is Relentless. So Are We!
ACT for ALS gets us closer to a cure for ALS. Help us reauthorize this critical piece of legislation before it expires in September 2026!
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Matt Rocheleau @mrochele.bsky.social · 16/09/2026
ACT for ALS expires Sept. 30 unless Congress reauthorizes it. The House is going home tomorrow — the Senate is our last shot. Tell the Senate to FINISH THE JOB: www.iamals.org/reauthorize-...
iamals.org
Reauthorize the ACT for ALS! - I AM ALS - ALS is Relentless. So Are We!
ACT for ALS gets us closer to a cure for ALS. Help us reauthorize this critical piece of legislation before it expires in September 2026!
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Matt Rocheleau @mrochele.bsky.social · 16/09/2026
Here’s a glimpse of how to live with #ALS in New York City. Donate: iamals.donordrive.com/participant/... Take action: www.iamals.org/progress #EndALS #ALSAwareness #MND @iamals.bsky.social Inspired by HBO’s How To with John Wilson @hbomax.bsky.social @hbo.bsky.social
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Matt Rocheleau @mrochele.bsky.social · 16/09/2026
Here’s a glimpse of how to live with #ALS in New York City. Donate: iamals.donordrive.com/participant/... Take action: www.iamals.org/progress #EndALS #ALSAwareness #MND @iamals.bsky.social Inspired by HBO’s How To with John Wilson @hbomax.bsky.social @hbo.bsky.social
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Matt Rocheleau @mrochele.bsky.social · 13/09/2026
The petition to tell Congress to pass ACT for ALS closes TODAY. More than 12,000 people have signed. Don’t be left out. It takes 30 seconds. Sign now: bit.ly/passA4A Please share!
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Matt Rocheleau @mrochele.bsky.social · 11/09/2026
The House wants to leave DC early. We want them to pass #ACTforALS before they go. We already hit 1,600 signatures in 48 hours — now let's DOUBLE it. Petition closes on Sunday! Please share. www.iamals.org/a4apetition/ #EndALS #ACTforALS #PassTheBill
iamals.org
Finish the Job on ACT for ALS - I AM ALS - ALS is Relentless. So Are We!
A Petition to Congressional Leadership and Members of the Senate and House HELP Committees: We are in a place we didn’t want to be. It’s September and, desp ...
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Matt Rocheleau @mrochele.bsky.social · 11/09/2026
We're over 1,100 signatures strong and counting. ACT for ALS expires September 30 — Congress needs to act now to reauthorize it. Add your name and keep the pressure on: www.iamals.org/a4apetition/ #ActForALS #EndALS
iamals.org
Finish the Job on ACT for ALS - I AM ALS - ALS is Relentless. So Are We!
A Petition to Congressional Leadership and Members of the Senate and House HELP Committees: We are in a place we didn’t want to be. It’s September and, desp ...
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Matt Rocheleau @mrochele.bsky.social · 09/09/2026
The House has ONE WEEK left to renew legislation that provides $500 million for ALS research. ALS doesn't wait. Neither should Congress. Tell them to vote now! 🖊️ Sign the petition and share it with everyone you know: www.iamals.org/a4apetition/
iamals.org
Finish the Job on ACT for ALS - I AM ALS - ALS is Relentless. So Are We!
A Petition to Congressional Leadership and Members of the Senate and House HELP Committees: We are in a place we didn’t want to be. It’s September and, desp ...
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Matt Rocheleau @mrochele.bsky.social · 04/09/2026
Congress has until September 30 to reauthorize ACT for ALS. They have just a few working days left to do it. Join me — tell Congress to act NOW: www.iamals.org/reauthorize-... #ACTforALS #EndALS @iamals.bsky.social
iamals.org
Reauthorize the ACT for ALS! - I AM ALS - ALS is Relentless. So Are We!
ACT for ALS gets us closer to a cure for ALS. Help us reauthorize this critical piece of legislation before it expires in September 2026!
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iamals.bsky.social @iamals.bsky.social · 07/08/2026
ACT for ALS is one step closer to reauthorization! 🎉 Each vote YOU helped secure supports the largest bucket of federal ALS funding in history: ACT for ALS. Thank your legislators: bit.ly/A4A-TY
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Matt Rocheleau @mrochele.bsky.social · 05/08/2026
BREAKING: Act for ALS officially passes Senate! 💙 While there are still a few steps before the bill — and its $500 million for ALS research — becomes law, we want to celebrate this massive milestone. Thank your legislators: www.iamals.org/thank-you-a4a/ @iamals.bsky.social #endals #alsawareness
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Matt Rocheleau @mrochele.bsky.social · 28/07/2026
This green toy soldier is confined to a wheelchair, relies on a ventilator, & communicates by using their eyes to type on a screen because ALS has robbed them of the ability to move, breathe, & speak. You can help. It only takes a minute. Donate & learn more: OperationEndALS.org @iamals.bsky.social
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iamals.bsky.social @iamals.bsky.social · 22/07/2026
🎉 BIG WIN FOR THE ALS COMMUNITY 🎉 ACT for ALS just PASSED the House! This happened because YOU took action, but we're not stopping until the bill is signed into law. Contact your Senators today and help get ACT for ALS signed into law: bit.ly/fundALS #ActForALS #EndALS
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iamals.bsky.social @iamals.bsky.social · 22/07/2026
Brian & Sandra have spent 8+ years driving change for the ALS community. Thanks to Hop On A Cure, they're back for #IceBucketChallenge2026! They're challenging @quigley.house.gov, Team Gleason, Sen. Lisa Murkowski, and the I AM ALS community. Help reauthorize ACT for ALS. bit.ly/fundALS
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iamals.bsky.social @iamals.bsky.social · 15/09/2025
We're launching our Push for Progress campaign to accelerate ALS research, expand treatment access, & secure $1BN in federal funding over 3 years. ALS is at a tipping point CLOSE to new treatments, but thousands will lose access unless we TAKE ACTION @ iamals.org/progress
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iamals.bsky.social @iamals.bsky.social · 20/07/2026
ALS prevalence is expected to rise by more than 10% by 2030. More people will need access to promising therapies. That's why ACT for ALS must move forward. ALS doesn't wait. Neither can we. Ask your representative to cosponsor ACT for ALS: bit.ly/fundALS
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iamals.bsky.social @iamals.bsky.social · 16/07/2026
Thanks to your hard work and advocacy, we're closer than ever to reauthorizing ACT for ALS and protecting federal funding for ALS research and access to promising therapies. The House is likely to vote on ACT for ALS next week. Ask your Representative to vote YES: bit.ly/fundALS
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iamals.bsky.social @iamals.bsky.social · 15/07/2026
Thank you @TeamGleason and @SteveGleason for all your support in driving progress towards passing ACT for ALS. Let's keep this momentum going. Ask your Representatives to VOTE YES on ACT for ALS: bit.ly/fundALS
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Chris Fusco @fuscochris.bsky.social · 18/07/2026
Donate to end #ALS: p2p.onecause.com/teamracefora...
p2p.onecause.com
2026 Team Race for ALS- Chicago Marathon - Chris Fusco
Kevin Patula and I met in first grade. We effectively grew up in each other's homes, and have been Little League teammates, high school classmates, college roommates and in each other's weddings. Kevi...
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Chris Fusco @fuscochris.bsky.social · 18/07/2026
Challenge accepted @mrochele.bsky.social. Tagging in @danwetzel.bsky.social and Erik Kantz to keep this train moving. Donate at the link in the comments.
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Matt Rocheleau @mrochele.bsky.social · 18/07/2026
Got 1 minute to secure $500 million for ALS research? Here’s the best thing you can do right now to help everyone living with #ALS It only takes a minute, & it’s totally free. Watch for instructions 🎥 Link: www.iamals.org/reauthorize-... 🔗 #ALSAwareness #EndALS #MND @iamals.bsky.social
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Emily Sweeney @emilysweeney22.bsky.social · 16/07/2026
Challenge accepted! 🙌
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Matt Rocheleau @mrochele.bsky.social · 15/07/2026
I'm living w. #ALS I'm taking the #CJ2KIceBucketChallenge Share, donate fundraise.massgeneralbrigham.org/chrisjohnson28 & push for funding www.iamals.org/progress I challenge @emilysweeney22.bsky.social @mrballen.bsky.social @fuscochris.bsky.social & RunLIC #ALSAwareness #EndALS @iamals.bsky.social
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Chris Fusco @fuscochris.bsky.social · 14/07/2026
My latest post aiming to raise money and awareness for ALS reaearch focuses on @mrochele.bsky.social. Read all about Matt here: www.facebook.com/100008985881...
facebook.com
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