iiinova — where your digital self keeps evolving

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Eloise Powers @elnopower.bsky.social · 25/09/2026

Northern Goshawk It is a medium-large raptor in the family Accipitridae. Adults have a conspicuous, speckled white eyebrow that flares behind a bright red or yellow eye, separating the dark crown from the slate-gray back and wings. 📸: @dickvanduijn

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Michelle says: Be kind. Always. ❤️ @snarkysillysad.bsky.social · 31/08/2026

Royal flycatcher crest display: 🔊 #AGoodPlace Source: www.reddit.com/r/Damnthatsi...

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ME/CFS Science @mecfsscience.org · 13/05/2026

1) 🇬🇧 Good news from the UK: the government is investing 4.75 million pounds in the study "Sequence ME & Long Covid" It will allow the sequencing of 6000 ME/CFS samples previously collected through DecodeME. The project is led by the University of Edinburgh and Action for ME.

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Jonathan Slater @jonathanslater.bsky.social · 05/05/2026

Tulips say ELLO. And Good morning Blue Sky

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Robert Saunders (aka McMullen) @roberthmcmullen.bsky.social · 04/05/2026

So far I’ve raised £375 for Sequence ME and Long Covid. If anyone would like to help me reach my target of £500 I would be most appreciative: www.justgiving.com/page/robafme

justgiving.com

Rob’s birthday fundraiser for Sequence ME & Long Covid

Help Robert Saunders raise money to support Action for M.E.

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Robert Saunders (aka McMullen) @roberthmcmullen.bsky.social · 30/04/2026

Since 2013 I’ve raised £20,000+ for ME research charities. This year I’m raising money for Sequence ME & Long Covid as I think this is our best chance of understanding the causes and mechanisms of ME/CFS, which will lead to the development of effective treatments: www.justgiving.com/page/robafme

justgiving.com

Rob’s birthday fundraiser for Sequence ME & Long Covid

Help Robert Saunders raise money to support Action for M.E.

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ME/CFS Science @mecfsscience.org · 20/04/2026

1) 🇩🇪 There are now multiple trials of Immunoadsorption/plasmapheresis on ME/CFS. We've tried to make a brief overview but feel free to add studies in case we missed some. Looks like all of them are from Germany. Mostly look forward to the 2 sham-controlled trials.

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David Tuller @davetuller1.bsky.social · 04/04/2026

Now Trudie Chalder says "recovery from CFS" through CBT doesn't mean absence of symptoms and getting back to regular life but is more about accepting and coming to terms with chronic illness. Huh??? Isn't that acknowledging that CBT doesn't really produce "recovery"? virology.ws/2026/04/03/t...

virology.ws

Trial By Error: Professor Chalder Downgrades Definition of "Recovery" | Virology Blog

By David Tuller, DrPH President Trump’s words and actions are routinely mind-boggling but never surprising, given past experience. The same is true of paper ...

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Tom Kindlon @tomkindlon.bsky.social · 28/03/2026

From @onelife_livedwell on IG: The PACE trial shaped an entire research paradigm, but the methodology tells a more complicated story. This is what happens when lived experience and research conclusions don’t align and why how we define things matters so much. #mecfs #longcovid #pwme #cfs

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Tom Kindlon @tomkindlon.bsky.social · 26/03/2026

The 126th edition of the Research Digest brings together clinical, biological, and lived-experience perspectives to strengthen our understanding of long COVID and its overlap with ME/CFS. emerge.org.au/researchdige... #MEcfs #LongCovid #PwME #SevereME

emerge.org.au

Research Digest | Issue 126 – Emerge Australia

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Simon McGrath @simonmcg.bsky.social · 23/03/2026

Our ME/CFS onset age study gets the usual incisive summary from this team (we found an early peak in adolescence and a later one in early middle age).

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ME/CFS Science @mecfsscience.org · 21/03/2026

1) 🔬🦠New article: we've made a comprehensive overview of the immune system in ME/CFS, analyzing major studies of the past 40 years. A longread with separate chapters on: - viral persistence - cytokines - neuroinflammation - antibodies - immune cells such as NK, B, and T cells

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Tom Kindlon @tomkindlon.bsky.social · 17/03/2026

News Release 16-Mar-2026 "Inappropriate antibiotic use for COVID-19 is linked to resistance: Study warns that using Azithromycin against viral infections could quickly make it less effective against the bacterial diseases it can actually fight" www.eurekalert.org/news-release... #COVID19 #COVID

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Tom Kindlon @tomkindlon.bsky.social · 13/03/2026

Hope to see a few of you at this 👋. #MEcfs #LongCovid #CFS #PwME

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Adam @abrokenbattery.bsky.social · 11/03/2026

TW: assisted suicide 30 min interview with Samuel’s mother and doctor. Samuel developed #MECFS after a Covid infection and chose assisted suicide. Before his death he asked for his story to be used to raise awareness. English Subs (edited with ChatGPT) youtu.be/_w0v7he88Uo?...

youtu.be

Austrian TV | ME/CFS | Samuel’s mother talks about his assisted suicide

YouTube video by Broken Battery

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ME/CFS Science @mecfsscience.org · 12/03/2026

Interesting research project on ME/CFS and Long Covid 👇 "Our research consultation offers a structured, research-focused review [...] The process begins with an in-depth analysis of the participant’s genetic info, focusing on genes and variants of interest."

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Tom Kindlon @tomkindlon.bsky.social · 11/03/2026

From USA Genome-wide DNA methylation profiling in COVID-19 positive patients reveals alterations in pathways linked to neurological dysfunction link.springer.com/article/10.1... Screenshot from Science for ME weekly update #LongCovid #NeuroPASC #PASC #PwLC #postcovid #postcovid19

Genome-wide DNA methylation profiling in COVID-19 positive patients reveals alterations in pathways linked to neurological dysfunction — Zameer et al.
"Our study shows that SARS-CoV-2 infection is associated with widespread, severity-specific epigenetic changes in peripheral blood, with minimal overlap in differentially methylated regions and genes among mild, moderate, and severe cases."

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Pina @pinam.bsky.social · 09/03/2026

Mit dem Podcast von Prof. Yesim Erim u. Prof. Volker Köllner, von vielen Ärzt*innen gehört, wird mit med. unhaltbaren Äusserungen bzgl. #MECFS eine Grenze überschritten: MECFS wird bis zur Belanglosigkeit degradiert, die angenommene Zahl Betroffener auf 1000! begrenzt, Symptome verharmlost...

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