Sign in

MND Scotland

@mndscotland.bsky.social
246 followers 166 following 631 posts

Making time count for people living with motor neuron disease. linktr.ee/MNDScotland

PostsRepliesMedia
MND Scotland @mndscotland.bsky.social · 5h
We're bringing our legendary Zipslide Challenge to the incredible Pittodrie Stadium in Aberdeen! ⚽ Get ready to soar 49ft along a 492ft zip wire, while helping make a real difference and providing essential support for people living with MND in Scotland 💙 ➡️ Register today: bit.ly/4B2JXHp
000 0
MND Scotland @mndscotland.bsky.social · 23h
🔥👣 MND Scotland Firewalk | Carnoustie | 13 November 2026 👣🔥 Join us next month and walk barefoot across a bed of burning coals (without getting burned!) in support of MND Scotland! ➡️ Sign up today! bit.ly/4yJQMvX ➡️ For full Terms & Conditions: bit.ly/4zr6kVg
010 0
MND Scotland @mndscotland.bsky.social · 15/10/2026
🌴 Win an unforgettable South Africa trip + £5,000 Cash – or Take £15,000 Cash Instead! mnd.the5050raffle.com Every ticket you buy helps fund vital care, support, and research that brings us closer to a cure 💙 #MakeTimeCount #MNDScotland #RaiseHero
000 0
MND Scotland @mndscotland.bsky.social · 13/10/2026
Stadium Soar | Barclays Hampden Stadium | 27 Feb 2027 Tick this incredible adrenaline rush off your bucket list, while raising funds to help make time count for those affected by motor neuron disease in Scotland 💙 ➡️ Limited spaces available - sign up today! bit.ly/4hVg2bk
mndscotland.org.uk
Stadium Soar - MND Scotland
Tick this incredible adrenaline rush off your bucket list, while raising funds to help make time count for those affected by motor neuron disease in Scotland.
010 0
MND Scotland @mndscotland.bsky.social · 13/10/2026
If you have been diagnosed with motor neuron disease (MND), we can help you in a wide range of ways. Visit our website for more information: mndscotland.org.uk/support
000 0
MND Scotland @mndscotland.bsky.social · 13/10/2026
Read the full story here: mndscotland.org.uk/news/multimi...
020 0
MND Scotland @mndscotland.bsky.social · 13/10/2026
In 2022, @lifearc.bsky.social, @mndassoc.bsky.social, @mndoddie5.bsky.social and @mndscotland.bsky.social all joined forces with the Medical Research Council (MRC) and @nihr.bsky.social to fund a £4.25 million investment.
120 0
MND Scotland @mndscotland.bsky.social · 13/10/2026
Motor neuron disease (MND) is one of the most complex challenges in medical research. No single researcher or organisation can solve it alone.
110 0
Reposted by MND Scotland
My Name'5 Doddie Foundation @mndoddie5.bsky.social · 13/10/2026
No single organisation can tackle MND alone. So we joined forces with @lifearc.bsky.social, @mndassoc.bsky.social, @mndscotland.bsky.social,the Medical Research Council & @nihr.bsky.social to fund the MND Collaborative Partnership What's been achieved so far👉 www.myname5doddie.co.uk/news-and-sto...
064 0
MND Scotland @mndscotland.bsky.social · 11/10/2026
In this video filmed for and by MND Scotland, Jackie from Together Mindful leads you through a short mindfulness session aimed at supporting people affected by motor neuron disease 💙 www.youtube.com/watch?v=z31CbD63bO0
youtube.com
Together Mindful | MND Scotland
In this video, Jackie from Together Mindful leads you through a short mindfulness session aimed at supporting people affected by motor neuron disease. For more mindfulness practice please visit - www.together-mindful.com For further support please vis...
010 0
MND Scotland @mndscotland.bsky.social · 10/10/2026
Good luck to everyone taking part in the William Wallace Running Festival in Stirling today! Whether you are taking part in the 70km, 50km, 10km, or the Wallace Warriors 1-mile challenge, we are so grateful for your support and hope you have a great day! bit.ly/4hBDABY
010 0
MND Scotland @mndscotland.bsky.social · 08/10/2026
Tickets are selling fast for our Comedy Night next month! We're bringing together an incredible line-up of Scottish comedy favourites, including: Kim Blythe, Rosco McClelland, Scott Agnew, and Christopher MacArthur-Boyd - hosted by Raymond Mearns. ➡️ Book your ticket here: bit.ly/495F0B8
010 0
MND Scotland @mndscotland.bsky.social · 08/10/2026
Thank you to the team at the University of York for capturing this wonderful photo of our Interim CEO, Dr Jane Haley MBE, with MND Scotland's patron, HRH The Princess Royal, at Sir Kevin Sinfield CBE’s 7 in 7: The Grand Finale challenge last week 💙
000 0
MND Scotland @mndscotland.bsky.social · 05/10/2026
For just £1 a week, you can be in with a chance of winning £25.00, £1,000, or a fantastic £25,000 prize every week, while helping to support our vision of a world without motor neuron disease 💙 bit.ly/3TlsoS5 #MakeTimeCount #MNDScotland #MNDScotlandLottery
000 0
MND Scotland @mndscotland.bsky.social · 04/10/2026
Thank you to David (pictured left) and Mick (pictured right) for inviting our Interim CEO, Dr Jane Haley MBE, to talk about MND Scotland and motor neuron disease with members of the Penicuik Rotary Club and for the kind donation of £150. We're so grateful to you all for having us 💙
000 0
Reposted by MND Scotland
The Murray Lab @themurraylab.bsky.social · 30/09/2026
A big shout-out to our brilliant postdoc Dr Alannah Mortimer, who spoke about her recent work at the MND Scotland LEARN event in Dumfries!
011 0
MND Scotland @mndscotland.bsky.social · 01/10/2026
Everyone at MND Scotland wishes them the very best of luck! 🥳 If you would like to support their challenge by donating, please visit: www.justgiving.com/page/donald-...
justgiving.com
Donald's fundraiser for MND Scotland
Help Donald Macleod raise money to support MND Scotland
000 0
MND Scotland @mndscotland.bsky.social · 01/10/2026
Joined by five of his friends, Iain Ramsay, Ross Duthie, Eamonn Keane, Alun Williams, and Keith Fairbairn, Donald and the team are walking the East Highland Way (approx. 82 miles) 🏔️ over four days to help raise vital funds for MND Scotland.
justgiving.com
Donald's fundraiser for MND Scotland
Help Donald Macleod raise money to support MND Scotland
100 0
MND Scotland @mndscotland.bsky.social · 01/10/2026
Donald is the eldest of John and Peigi MacLeod’s three sons. He was just 10 years old when his father was diagnosed with MND, and only 13 years old when his father sadly passed away.
100 0
MND Scotland @mndscotland.bsky.social · 01/10/2026
Supported by his loving wife Peigi, their family, friends and John’s police colleagues, a new charity was born which aimed to provide support for others going through this frightening disease.
100 0
MND Scotland @mndscotland.bsky.social · 01/10/2026
In 1981, police officer John Macleod set up the ‘Scottish MND Association’ from his living room, two years after he was diagnosed with motor neuron disease (MND) at age 33.
100 0
MND Scotland @mndscotland.bsky.social · 01/10/2026
Donald Macleod, son of MND Scotland’s founder, John Macleod, is taking on the East Highland Way in support of other families affected by the disease across Scotland 💙
100 0
MND Scotland @mndscotland.bsky.social · 30/09/2026
We would like to give a huge thanks to the wonderful team at Kane Enviro for helping to raise £1,400 for MND Scotland at their recent charity Golf Day! Thank you to Michelle and the team at Kane Enviro for their continued support 💙
000 0
MND Scotland @mndscotland.bsky.social · 30/09/2026
There's still time to book your free place for one of our upcoming LEARN events in Dingwall, Dundee, and Edinburgh: bit.ly/4vysClz ➡️ You can watch the playlist of videos which were recorded as part of our previous LEARN events: bit.ly/4xm1qHV
bit.ly
MND Scotland’s Lived Experience and Researcher Network (LEARN) local events will return in Autumn 2026. - MND Scotland
This year we will be returning to Aberdeen, Dingwall, Dundee, Edinburgh, and Glasgow - with the addition of our first LEARN event in Dumfries to our event calendar.
000 0
MND Scotland @mndscotland.bsky.social · 30/09/2026
We would also like to thank Queen of the South FC for their hospitality and for being so welcoming. Thank you so much to everyone who came along and helped make the event a huge success 💙
100 0
MND Scotland @mndscotland.bsky.social · 30/09/2026
We were joined by our very first furry friend at LEARN - assistance dog Ruffie- who accompanied Rosie from Euan's Guide, who spoke to attendees about the disabled access information for people living with MND. More information can be found here: bit.ly/4de9DXq
100 0
MND Scotland @mndscotland.bsky.social · 30/09/2026
We want to thank Marina McGougan for speaking at the event. Thanks go to the wonderful Dr Alannah Mortimer for her engaging and informative presentation. You can read more about Alannah's research here: bit.ly/4de9wLu
101 0
MND Scotland @mndscotland.bsky.social · 30/09/2026
What a great turnout yesterday for our very first LEARN event in Dumfries! It was great to see so many people come along to meet MND researchers and people affected by MND to share thoughts, experiences, and conversations. Thank you all for your input.
120 0
MND Scotland @mndscotland.bsky.social · 30/09/2026
🔥 Carnoustie - there's just over a month to go until our Firewalk challenge at Angus Alchemy Distillery! Join us on 13 November 2026 for a fun and exciting activity of walking barefoot across a bed of burning coals without getting burned! 🔥 bit.ly/4y7YiQV
mndscotland.org.uk
MND Scotland Firewalk Carnoustie - MND Scotland
Are you brave enough to conquer the Firewalk?
001 0
MND Scotland @mndscotland.bsky.social · 29/09/2026
The MND Scotland team are at Queen of the South Arena in Dumfries today for our LEARN event. We're looking forward to seeing you all soon! bit.ly/3yHsuJc #LEARN2026 #MNDScotland #MakeTimeCount
000 0
MND Scotland @mndscotland.bsky.social · 29/09/2026
We're on route to our third of six LEARN event - can anyone guess where we are?
000 0
MND Scotland @mndscotland.bsky.social · 28/09/2026
Thank you all 💙 bit.ly/3Tse5Lu
bit.ly
000 0
MND Scotland @mndscotland.bsky.social · 28/09/2026
And today, we were able to present this small token of appreciation to say thanks to Sir Kev for his determination, support, and continued efforts to raise important awareness and vital funds towards a vision of a world without motor neuron disease.
110 0
MND Scotland @mndscotland.bsky.social · 28/09/2026
Over the last few months, MND Scotland supporters have been signing good luck, well done, and thank you messages.
100 0
MND Scotland @mndscotland.bsky.social · 28/09/2026
A big thank you to our supporters and volunteers who gave up their own time to join our team today to represent MND Scotland and the MND community.
100 0
MND Scotland @mndscotland.bsky.social · 28/09/2026
Thank you, Sir Kev - what an incredible day! 🏃 We want to say a huge THANK YOU to Sir Kevin Sinfield CBE, his incredible team, and everyone who came along to show their support at today's 7 in 7: The Grand Finale 🏉
121 0
MND Scotland @mndscotland.bsky.social · 28/09/2026
What an incredible day so far! We're thrilled to see MND Scotland's patron, HRH The Princess Royal, at today’s Extra Mile at Sir Kev's 7 in 7: The Grand Finale challenge 💙 bit.ly/4iHmiFV
000 0
MND Scotland @mndscotland.bsky.social · 28/09/2026
Thank you to former England rugby captain, Lewis Moody, for taking the time to say hello to the MND Scotland team today! 🏉 Moody bravely revealed in October 2025 that he had been diagnosed with MND. He continues to raise important awareness around MND and is a huge support to the MND community 💙
010 0
MND Scotland @mndscotland.bsky.social · 28/09/2026
Thank you to reporter, John Maguire and the lovely team at BBC Breakfast for speaking with and interviewing MND Scotland supporters, Katie and David, who spoke about the impact Sir Kev's event has on the MND community. You can watch their interview via BBC iPlayer 💙 bit.ly/3Tse5Lu
010 0
MND Scotland @mndscotland.bsky.social · 28/09/2026
A huge well done to Linda MacDonald from Penicuik in Midlothian, for banging the drum and helping the team set in their way in Shiptonthorpe! 🥁 Linda is living with bulbar MND - she and is a dedicated supporter of MND Scotland. Go Linda! 💙
000 0
MND Scotland @mndscotland.bsky.social · 28/09/2026
The MND Scotland team are excited to be in York today to cheer on Sir Kevin Sinfield MBE and his team for the second day of his 7 in 7: The Grand Finale - 2026 Challenge! 🏉 🏃 💙 donate.giveasyoulive.com/fundraisin…
010 0
MND Scotland @mndscotland.bsky.social · 27/09/2026
🎉 Wishing the best of luck to everyone taking part in the Loch Ness Marathon today! We are so grateful for your support 💙 and we hope you get the weather for it! www.lochnessmarathon.com
110 0
MND Scotland @mndscotland.bsky.social · 26/09/2026
A special message from Sir Kev Sinfield for MND Scotland supporters 💙 Donate today: bit.ly/4iHmiFV Thank you for all your support, Kev, and good luck to you and the team! 🏉
010 0
MND Scotland @mndscotland.bsky.social · 25/09/2026
Thank you to Ron Marr who held a raffle at his 90th birthday party and raised £1,000 for MND Scotland, and in memory of his wife, Margaret who sadly passed away in 1998. Ron (pictured left) with MND Scotland Fundraising Lead, Fiona Gibson (right), at Lodge St. David No.78 in Dundee 💙
000 0
MND Scotland @mndscotland.bsky.social · 24/09/2026
Thank you to Will, Stuart W, Stuart B, Brian, and Karl - also known as "Team Remiges V" - for welcoming our Interim CEO, Dr Jane Haley, to the Crowne Plaza in Dyce last weekend for a wonderful Dinner & Dance event ahead of their World’s Toughest Row challenge in December ⛵ bit.ly/4u7UVao
000 0
MND Scotland @mndscotland.bsky.social · 24/09/2026
MND Scotland Comedy Night | Sunday 29 November 2026 | The Glee Club An unforgettable evening of stand-up comedy featuring Kim Blythe, Rosco McClelland, Scott Agnew, and Christopher MacArthur-Boyd - hosted by Raymond Mearns! Book your ticket here: bit.ly/495F0B8
000 0
MND Scotland @mndscotland.bsky.social · 23/09/2026
Thank you to the NoSFL for the donation of £1,000. The funds were raised at the first match of the season and in support of a number of connections to MND within the League. Pictured here is Brian Johnston (right) from NoSFL with MND Scotland Trustee, Richard Ribchester 💙
010 0
MND Scotland @mndscotland.bsky.social · 23/09/2026
With just over 13 weeks to go, we're thrilled to launch our Christmas cards! 🎄 This year, we have added two brand new designs to our Christmas card collection: 'Little Red Truck' and 'Noel'. These are alongside two of our favourites, 'Ho Ho Ho' and 'Merry Christmas'🎅 bit.ly/47aAikh
000 0
MND Scotland @mndscotland.bsky.social · 23/09/2026
Ionis and Otsuka Pharmaceutical yesterday announced positive topline results from their FUSION clinical trial. The trial was of a drug called Ulefnersen, a genetic intervention designed to treat inherited FUS-MND. Here's what we know so far: bit.ly/4rui86y
000 0
MND Scotland @mndscotland.bsky.social · 22/09/2026
🔥 Carnoustie - there's not long to go until our Firewalk challenge! 🔥 ➡️ Angus Alchemy Distillery 📆 13 November 2026 ⏰ 5.30pm 🎫 Sign up today! bit.ly/4eHNXCE #MNDScotland #MakeTimeCount #MND
000 0