Elena @misseleneous.bsky.social · 2hThe Attorney General race is a REALLY critical one in MN this fall. We need Keith back in office to keep protecting Minnesotan's rights around healthcare and free speech, support our trans and immigrant neighbors, and keep suing the Trump administration! 15225
Reposted by Elena Mara 👻 aBOOlish I.C.E. @mauratwit.bsky.social · 07/10/2026Vote YES on the school amendment, Minnesota! Skipping the question is the same as a No vote. Yes for school funding that doesn’t affect your tax dollars whatsoever! 03524
Reposted by Elena Ian Coldwater 🧊🚫 @lookitup.baby · 02/10/2026Yeah so we all just got tear gassed on the way out of Rocky Horror, be careful downtown 37564112
Elena @misseleneous.bsky.social · 22/09/2026Q: How to look at large & clinically important data trends, when not all is statistically significant? So much pediatric data can't be "adequately powered" for stats bcse of clinic/location factors Ask clinicians: How does this translate to your practice? Does it change what you're doing? 100
Elena @misseleneous.bsky.social · 22/09/2026Discussion of tension as clinicians who are also researchers. Would love all that data! And, stronger priority is that families come in & reducing barriers to that Healthcare system also has to balance cost in asking additional data. demographics mostly collected because of federal requirements. 101
Elena @misseleneous.bsky.social · 22/09/2026Q: how to look at nuance w/in Hispanic community, especially race? Super hard with how collect healthcare data, also how individuals self-identify with rigid categories Saw some difference in disaggregate data, but not always pieces want to look at because not collected currently to provide care 100
Elena @misseleneous.bsky.social · 22/09/2026Anecdotally, saw more patients where sibling vs parent brought them to visit. Uniquely hard to assess why ppl did not come in-try to ask to reschedule, but families hesitant to get that reason in any data record! Anecdotally, know not leaving the house, but also fear of ICE focusing on hospitals 100
Elena @misseleneous.bsky.social · 22/09/2026Q: Do we have anectodal data to understand reasons why not attending? Fear? less illness if staying home? other? Considered that for ED research, which is why compared to other EDs in midwest for expected patterning. So can't say exactly, but don't believe due to less illness. 100
Elena @misseleneous.bsky.social · 22/09/2026Clinician notes that even if clinic numbers are back to normal, the fear present in family visits is ever present, and still impacts some of the more complex care / surgery needs / etc. It comes up all the time in future health planning. 100
Elena @misseleneous.bsky.social · 22/09/2026Questions for this health breakout: Does this show just an acute drop of trust in healthcare system safety, or ongoing? Children's MN wants to research when/how/if those who missed appts in OMS re-engage with care, but need to wait to see impact (especially for specialty clinics) 100
Elena @misseleneous.bsky.social · 22/09/2026Policy rec to support prenatal and child health care: - increase options for telehealth or home visits - use nurse care managers and community health workers - community engagement to support continuity of care (be proactive in this!) 100
Elena @misseleneous.bsky.social · 22/09/2026No overall change for prenatal visits during metro surge, except for non-English patients, outside of metro, state sponsored insurance: biggest change in Jan. 100
Elena @misseleneous.bsky.social · 22/09/2026Well-child visits, no significant impacts overall, but see changes when look within Hispanic patients, especially for non-English speaking families, 25-72 month olds, and state sponsored insurance. 100
Elena @misseleneous.bsky.social · 22/09/2026presentation 3: Changes in well child & prenatal visits, Allina & Healthpartners, >100 care clinics across metro Jan 2023-Feb 2026 data, lots of stats leading to IRR (oh boy pulling from back of my brain for stats terms) of predicted monthly visits w/ OMS / predicted monthly visits w/out OMS 100
Elena @misseleneous.bsky.social · 22/09/2026Metro surge represented a significant, temporal reduction in pediatric outpatient care -- we may not see the full impacts of this for decades. Policy recs: protections to access to healthcare esp during immigration enforcement activities 100
Elena @misseleneous.bsky.social · 22/09/2026When looked year over year, rate of missed appointments for Hispanic families increased 51% compared to prior 2 years. - 80% decrease for Spanish-speaking families, and 53% for those needing interpretation Somali community less affected than Hispanic community, telemedicine less affected. 100
Elena @misseleneous.bsky.social · 22/09/2026Looked at 129K pediatric appointments, 15K during post-metro surge period. Modeled to compare to what may be regular variations (school, flu, etc). Small variation overall in missed appts and rescheduled. But looking by race, much bigger impact. Hispanic patients 11.5% increase in missed appts. 100
Elena @misseleneous.bsky.social · 22/09/2026Presentation 2: How did pediatric outpatient care change after metro surge? how do we tell these stories of children, which often have more public reach? What are individual stories & what is aggregate data and a community story? (photo of Liam, and wow, still have an immediate physical response) 100
Elena @misseleneous.bsky.social · 22/09/20262. Expand community infrastructure "medical neighborhood"--pediatric urgent care, after-hours primary care, telehealth -- more ways for families to access care overall, esp during community disruption 100
Elena @misseleneous.bsky.social · 22/09/2026policy recommendations: 1: stabilize hospital funding! EDs are largely fee for service so volume loss directly cuts revenue and has larger impacts on hospital and community. *So important because pediatric-services deserts lead to higher mortality for critically ill children. 100
Elena @misseleneous.bsky.social · 22/09/2026They also compared to 12 other midwest hospitals during that time! still preliminary--but stronger argument for metro surge being the cause for this drop off, not just a correlation event. Grateful for the folks who enjoy statistics enough (not me!) to do all that work for casual connections... 100
Elena @misseleneous.bsky.social · 22/09/2026Note--this data from Children's Minnesota No real drop off for white kids. 26% decrease for Hispanic kids overall, and 39% during expansion. 12% dropoff for non-urban address (rural families) 100
Elena @misseleneous.bsky.social · 22/09/2026Metro surge PED study was retrospective cohort, looking at ED cases 10/2025 (announcement)-3/2026 (drawdown). Drop in Jan/Feb was *significant, and what would expect to see in usual summer rates. Weeks where off by 500+ patients! 10% reduction over all; 18% reduction during expansion (Jan-Feb) 100
Elena @misseleneous.bsky.social · 22/09/2026Drops in care also leads to drop in revenues-->greater inequities for medicaid/medically complex children, and fewer resources for everyone. huh, wonder if something like medicaid for all would solve something like this? 100
Elena @misseleneous.bsky.social · 22/09/2026Pediatric ER: know its highlight sensitive to social disruption. US PED visits fell 51% during COVID! Especially see dropoff for those without private insurance. -->leads to delayed care, so higher acuity when come in and more pressure on pediatric providers and systems 100
Elena @misseleneous.bsky.social · 22/09/2026Okay breakout 2! Youth Wellbeing track (healthcare focused) - Impact of Operation Metro Surge on Pediatric Emergency Department Volumes - Pediatric Outpatient Care After Operation Metro Surge in Minneapolis - Changes in Well-Child and Prenatal Visits During Operation Metro Surge 100
Elena @misseleneous.bsky.social · 22/09/2026More panelists notes: Immigrant communities are not monoliths! Have to be in community to understand the range of experiences and opinions, especially about something like deportation. Be intentional as a researcher how you navigate those dynamics, especially if you are not a part of the community 100
Elena @misseleneous.bsky.social · 22/09/2026(my personal note--theres been a lot of talk about philanthropy shifting timelines and responsiveness, but I haven't heard that same talk around research. The academic system is also SLOW and rules based and not built to meet the urgency of or needs of community. How can researchers challenge this?) 110
Elena @misseleneous.bsky.social · 22/09/2026Also data, & data quickly, is needed for advocacy. Individual and organizations experienced such a divided legislature this spring, and had to try to convince some legislators that their reality happened. As I said at Foster Advocates, stories most (most) ppl but we need data to move systems. 100
Elena @misseleneous.bsky.social · 22/09/2026Immigrant communities are typically under resourced-- consistent research partnerships are needed! So trust is there before future crises, to help nonprofits build capacity (we need data too!), and to identify solutions early. 100
Elena @misseleneous.bsky.social · 22/09/2026More comments on sharing back with community--handing over a pdf is easy for researchers, but not enough. What are the events, conversations, multiple ways of sharing back? 110
Elena @misseleneous.bsky.social · 22/09/2026"Don't make community a seasoning to your paper, with quotes added in to 'spice up' the research already completed!" Start with being in community to learn and develop research projects. What does co-creation TRULY mean with community? What is the larger holistic community context? 100
Elena @misseleneous.bsky.social · 22/09/2026Also, does community have ACCESS to the research? Not just is it behind a publication paywall, but is it in accessible language for non-technical folks? Is it translated for those who are ESL? How are researchers sharing BACK with the community? 111
Elena @misseleneous.bsky.social · 22/09/2026Encouraging researchers to actually be in community, not be afraid to ask questions, and do with vs just in and out. (YES. the reason I do community-based participatory research vs traditional academic research) 100
Elena @misseleneous.bsky.social · 22/09/2026Flagging that its not just community orgs that stepped up, but a lot of local businesses, and they typically don't have the same employee/mental health support structures. How are they being supported ongoing? 100
Elena @misseleneous.bsky.social · 22/09/2026Over two decades ago! (2003). MN has always hosted a regional field office that covers multiple states, another reason our state was chosen. And, deep reminder that metro surge didn't just impact twin cities. All of MN was impacted, and many communities in greater MN were deeply targeted 100
Elena @misseleneous.bsky.social · 22/09/2026Switching to brief notes from lunch panel of direct service orgs responding to immediate impact to their own communities. Question asked of audience: Do you know when ICE offices opened in MN? 100
Elena @misseleneous.bsky.social · 22/09/2026"A statewide eviction moratorium is what needed from beginning, but we didn't have the political leaders with the moral clarity or will to make this happen. So, the people instituted an eviction moratorium on their own!" YES. 👏 What can we take from this response to imagine and build new systems? 111
Elena @misseleneous.bsky.social · 22/09/2026"Let's be clear: rental assistance is transfer of wealth to landlords. It's not a a sustainable structural solution. The $21M in state rent relief went to the same landlords trying to evict all our neighbors. And this was the most recent housing crisis, but its the 5th time in the last 10 years..." 100
Elena @misseleneous.bsky.social · 22/09/2026Closeout thoughts from amazing housing presenter: "We could decide that keeping people housed at all times, especially in a crisis, is something we want to prioritize! Or we keep doing what we're doing right now and say we can't change these complicated rules that aren't serving our community..." 100
Elena @misseleneous.bsky.social · 22/09/2026Question on data shifts: look at eviction rates after St Paul passed an eviction pause and Frey (boooo) vetoed one in Minneapolis. They are stark! (I know @homelinemn.org put out data about this a while ago, I'll try to find and link later. 230
Elena @misseleneous.bsky.social · 22/09/2026FHF was already a known entity to philanthropy, able to be intermediary--trust us and we trust community groups, so able to speed up moving money. As soon as you get away from responses that are built on personal relationships, thats when systems put in fraud prevention. 120
Elena @misseleneous.bsky.social · 22/09/2026Question: "assuming we are going to encounter crises in the future" and recognition of ways housing funds are siloed in systems, where do we go from here? Big developments in philanthropy world that hope will carry forward as muscle memory and structures. 110
Elena @misseleneous.bsky.social · 22/09/2026Definitely know this challenge from my own experience with our neighborhood rent relief fund! Our decision making was assessed each month, based on what other resources were present in the community and how much we had.... 110
Elena @misseleneous.bsky.social · 22/09/2026Ex: Hennepin County only provides assistance if current eviction proceeding--not because they don't care about prevention, but because have only a tenth of funding they need and that's how they decided to triage. How can mutual aid practices not replicate the scarcity of state systems. 130
Elena @misseleneous.bsky.social · 22/09/2026Question on decision processes for distributing rent relief. Lots of variation, but especially in the beginning it was "get the $$ out the door." So many ways for how to triage and distribute. And how to help community & government orgs manage who had school/other funds available, who didn't, etc. 110
Elena @misseleneous.bsky.social · 22/09/2026Question about parent-child relationships for CVT clients. Big impact on disregulated child behaviors. Heaviness of conversations related to completing DOPA forms (delegation of parental authority), how to make those decisions and when/how to talk to children about that. 120
Elena @misseleneous.bsky.social · 22/09/2026"Public safety" operations are NOT neutral across populations they affect. I know how much I was affected. My family still recovering from that trauma. and our experience and harm is a drop compared to what our neighbors and CVT clients experienced. Report forthcoming from CVT! 120