iiinova — where your digital self keeps evolving

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Dr. Lucky Tran @luckytran.com · 28/11/2023

It's so illogical and dangerous that even after seeing a virus kill tens of millions and disable many more, a majority of people still haven't adapted by making the most simple adjustments to their lives like wearing a mask or staying home when they are sick.

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David Tuller @davetuller1.bsky.social · 19/11/2023

I'm just dipping my toe in here. I'm terrible with technology, so every new thing is a challenge. For my first post, I figured I'd offer a link to Berkeley's current crowdfunding campaign for Trial By Error, which focused on ME/CFS, long Covid, etc: virology.ws/2023/11/16/t...

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#MEAction Network @meactnet.bsky.social · 15/11/2023

We are excited to announce that #MEpedia has gotten a complete overhaul courtesy of a generous grant! We've updated our software, staging, graphics, & design-- which got an accessibility audit, too! Visit the new MEpedia: me-pedia.org/wiki/Welcome... Learn more: www.meaction.net/2023/11/15/c...

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Millions Missing Podcast @millionsmissingpod.bsky.social · 15/11/2023

The Millions Missing Podcast is and always will be nonprofit, non-monetized and ad-free Please subscribe, rate and review the podcast on your podcast platform of choice, as it helps others to find and take part of the important testimonies ❤️

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Millions Missing Podcast @millionsmissingpod.bsky.social · 15/11/2023

Where to find the podcast: linktr.ee/millionsmissingpodcast If you, or someone you know, is too ill to write or record your testimony, let us work together to platform that important testimony.Message here on X, or send an email to millionsmissingpodcast@gmail.com You are not alone ❤️

linktr.ee

Millions Missing Podcast - Listen on Spotify - Linktree

View millionsmissingpodcast’s Linktree. Listen to their music on Spotify here.

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Millions Missing Podcast @millionsmissingpod.bsky.social · 15/11/2023

Testimony #9 Hear Litsa Dremousis uninterrupted testimony of her 32+ year journey living with #MyalgicEncephalomyelitis Listen 🔊 sptfy.com/Pj2k Don't just pass on by, PLEASE *share* her important story ❤️ #millionsmissing #pwme #Cancer More info in comments ⬇️

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Open Medicine Foundation (OMF) @openmedf.bsky.social · 14/11/2023

As part of this year’s Triple Giving November campaign, we are honored to introduce Sammy Lincroft, a dedicated advocate for chronic illnesses and OMF Supporter! Discover Sammy’s powerful story 👉 www.omf.ngo/Sammys-story.

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Millions Missing Podcast @millionsmissingpod.bsky.social · 14/11/2023

Tomorrow 8pm (CET) Testimony #9 - Litsa Dremousis shares her M.E. journey of 32+ years PLEASE SHARE ❤️ For posterity, for a first hand account of our fates and for not letting them quietly sweep us under the rug #MillionsMissing #pwme #MyalgicEncephalomyelitis Linktr.ee/millionsmissingpodcast

linktr.ee

Millions Missing Podcast - Listen on Spotify - Linktree

View millionsmissingpodcast’s Linktree. Listen to their music on Spotify here.

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Dan Diamond @ddiamond.bsky.social · 02/11/2023

He was 32, a new father, when he got the ALS diagnosis — and made a choice. “He made himself a force,” said a close ally. “It really all came down to nobody can bullshit a guy who’s dying.” ADY BARKAN, activist who fought for universal health care, passes away at 39. Our piece.

washingtonpost.com

Ady Barkan, activist who fought for universal health care, dies at 39

After being diagnosed with the degenerative and ultimately terminal disease ALS, he transformed himself into a symbol for health reform.

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María Richardson @diatoma.bsky.social · 28/10/2023

Dear fellow #pwME #MECFS #ME #MyalgicEncephalomyelitis #LongCovid, one of the most powerful/informative vids I know is now available on Youtube. @dialoguesmecfs.bsky.social created this extraordinary documentary on the history of #ME #MECFS. Essential info for advocates and researchers in our field.

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Rachel K. (Tala) @talaattanagra.bsky.social · 10/11/2023

I'm selling my skis today — it's a concrete admission that I will never ski again. I loved skiing. I've skied all over the US: I did the back bowls of Vail at 5yo. I've scored well in Nastar races on former Olympic courses. I even mastered the east coast ice fields. Fuck #MEcfs.

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Sabrina Poirier @sabrinapoirier.bsky.social · 25/10/2023

Let’s start a thread of awesome follows on here that relate to #MyalgicEncephalomyelitis #MECFS #LongCovid or #InfectionAssociatedChronicIllnesses. Because it is hard to rebuild community on a new platform…but doing it as a #PwME…nearly impossible. Let’s help each other with safe suggestions.

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It's ME(Jaime) @exceedhergrasp1.bsky.social · 07/10/2023

Overjoyed to announce my Concise Clinical Review of ME/CFS in Mayo Clinic Proceedings (with updated diagrams!) Very glad to have worked with Stephanie Grach, and Ravi Ganesh and Tony Chon on this! #MedEd #MedTwitter 🧵 www.mayoclinicproceedings.org/article/S002...

mayoclinicproceedings.org

Diagnosis and Management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome

Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a chronic neurologic disease often preceded by infection. There has been increased interest in ME/CFS recently because of its significant...

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Millions Missing Podcast @millionsmissingpod.bsky.social · 17/10/2023

The #millionsmissing will not be quietly swept under the rug. Thank you for sharing, Sibylle!

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sibylle dahrendorf @sibylledahrendorf.bsky.social · 17/10/2023

Testimony #8 @millionsmissingpod.bsky.social Almost 10 years in 13 minutes. When will our stories finally be heard? #MEcfs #Lyme #FQAD #MCAS #CCI #POTS #SmallFiber #LongList 🎧 podcasts.apple.com/se/podcast/m... Thank you for given me that opportunity. If you can, please do so. #TellYourStory 🙏

podcasts.apple.com

‎Millions Missing Podcast i Apple Podcasts

‎Samhälle och kultur · 2023

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Millions Missing Podcast @millionsmissingpod.bsky.social · 09/10/2023

It is vital that you share your story; your testimony has a critical role in advocating for further exposure, better funded research and to inspire others to share theirs ❤️ Listen to and share the testimonies linktr.ee/millionsmissingpodcast Contact millionsmissingpodcast@gmail.com

The image shows the silhouette of a human face, with a white outline against a black background. Over the top of the image it reads Millions Missing -.share your story

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#MEAction Network @meactnet.bsky.social · 08/10/2023

So nice to see so many community members have found us here already! For anyone new to us- we are #MEAction, a US-based non-profit, igniting a global revolution in ME care. ME= myalgic encephalomyelitis aka ME/CFS Learn more at meaction.net. #pwME #MECFS #MyalgicEncephalomyelitis #LongCovid

meaction.net

Home

we’re IGNITING A GLOBAL REVOLUTION IN ME CARE Our movement fights for recognition, education, and research so that, one day, all people with ME and CFS will have support and access to compassionate ...

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