Reposted by Millions Missing PodcastDr. Lucky Tran @luckytran.com · 28/11/2023It's so illogical and dangerous that even after seeing a virus kill tens of millions and disable many more, a majority of people still haven't adapted by making the most simple adjustments to their lives like wearing a mask or staying home when they are sick. 11341101
Reposted by Millions Missing PodcastDavid Tuller @davetuller1.bsky.social · 19/11/2023I'm just dipping my toe in here. I'm terrible with technology, so every new thing is a challenge. For my first post, I figured I'd offer a link to Berkeley's current crowdfunding campaign for Trial By Error, which focused on ME/CFS, long Covid, etc: virology.ws/2023/11/16/t... 03010
Reposted by Millions Missing Podcast155 cm jordnötssmör och hemsökande @funkisfeministen.bsky.social · 16/11/2023ME är inte primärt trötthet utan en influensaliknande reaktion på belastning. funkisfeministen.wordpress.com/2023/11/16/j...funkisfeministen.wordpress.comJag har PEM, inte trötthetAj! Medan jag vaknar så känner jag hur huden och musklerna smärtar. Halsen känns som taggtråd och armhålorna ömmar. Klockan visar 05.32 och jag inser att obehaget i kroppen har väckt mig allde... 177
Reposted by Millions Missing Podcast#MEAction Network @meactnet.bsky.social · 15/11/2023We are excited to announce that #MEpedia has gotten a complete overhaul courtesy of a generous grant! We've updated our software, staging, graphics, & design-- which got an accessibility audit, too! Visit the new MEpedia: me-pedia.org/wiki/Welcome... Learn more: www.meaction.net/2023/11/15/c... 24925
Millions Missing Podcast @millionsmissingpod.bsky.social · 15/11/2023Testimony #9 Hear Litsa Dremousis uninterrupted testimony of her 32+ year journey living with #MyalgicEncephalomyelitis Listen 🔊 sptfy.com/Pj2k Don't just pass on by, PLEASE *share* her important story ❤️ #millionsmissing #pwme #Cancer More info in comments ⬇️ 142
Reposted by Millions Missing PodcastOpen Medicine Foundation (OMF) @openmedf.bsky.social · 14/11/2023As part of this year’s Triple Giving November campaign, we are honored to introduce Sammy Lincroft, a dedicated advocate for chronic illnesses and OMF Supporter! Discover Sammy’s powerful story 👉 www.omf.ngo/Sammys-story. 062
Reposted by Millions Missing PodcastME Foggy Dog @mefoggydog.bsky.social · 14/11/2023Latest #blog post - 'I contacted NICE to make sure that I wasn't going to be pursuing this issue like a dog with a bone unnecessarily' www.mefoggydog.org/2023/11/14/s... #mecfs #pwME #Data #NHS #Healthmefoggydog.orgShake It UP, NICE and the National Reporting and Learning System (NRLS) | ME Foggy DogI asked NICE if the National Reporting and Learning System was suitable to be used as a reporting system to report harms from non-pharmaceutical 'treatments'. 043
Millions Missing Podcast @millionsmissingpod.bsky.social · 14/11/2023Tomorrow 8pm (CET) Testimony #9 - Litsa Dremousis shares her M.E. journey of 32+ years PLEASE SHARE ❤️ For posterity, for a first hand account of our fates and for not letting them quietly sweep us under the rug #MillionsMissing #pwme #MyalgicEncephalomyelitis Linktr.ee/millionsmissingpodcastlinktr.eeMillions Missing Podcast - Listen on Spotify - LinktreeView millionsmissingpodcast’s Linktree. Listen to their music on Spotify here. 021
Reposted by Millions Missing PodcastDan Diamond @ddiamond.bsky.social · 02/11/2023He was 32, a new father, when he got the ALS diagnosis — and made a choice. “He made himself a force,” said a close ally. “It really all came down to nobody can bullshit a guy who’s dying.” ADY BARKAN, activist who fought for universal health care, passes away at 39. Our piece.washingtonpost.comAdy Barkan, activist who fought for universal health care, dies at 39After being diagnosed with the degenerative and ultimately terminal disease ALS, he transformed himself into a symbol for health reform. 141108312
Reposted by Millions Missing PodcastMaría Richardson @diatoma.bsky.social · 28/10/2023Dear fellow #pwME #MECFS #ME #MyalgicEncephalomyelitis #LongCovid, one of the most powerful/informative vids I know is now available on Youtube. @dialoguesmecfs.bsky.social created this extraordinary documentary on the history of #ME #MECFS. Essential info for advocates and researchers in our field. 0247
Reposted by Millions Missing PodcastRachel K. (Tala) @talaattanagra.bsky.social · 10/11/2023I'm selling my skis today — it's a concrete admission that I will never ski again. I loved skiing. I've skied all over the US: I did the back bowls of Vail at 5yo. I've scored well in Nastar races on former Olympic courses. I even mastered the east coast ice fields. Fuck #MEcfs. 3101
Reposted by Millions Missing PodcastSabrina Poirier @sabrinapoirier.bsky.social · 25/10/2023Let’s start a thread of awesome follows on here that relate to #MyalgicEncephalomyelitis #MECFS #LongCovid or #InfectionAssociatedChronicIllnesses. Because it is hard to rebuild community on a new platform…but doing it as a #PwME…nearly impossible. Let’s help each other with safe suggestions. 86026
Reposted by Millions Missing PodcastIt's ME(Jaime) @exceedhergrasp1.bsky.social · 07/10/2023Overjoyed to announce my Concise Clinical Review of ME/CFS in Mayo Clinic Proceedings (with updated diagrams!) Very glad to have worked with Stephanie Grach, and Ravi Ganesh and Tony Chon on this! #MedEd #MedTwitter 🧵 www.mayoclinicproceedings.org/article/S002...mayoclinicproceedings.orgDiagnosis and Management of Myalgic Encephalomyelitis/Chronic Fatigue SyndromeMyalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a chronic neurologic disease often preceded by infection. There has been increased interest in ME/CFS recently because of its significant... 22429157
Reposted by Millions Missing Podcastsibylle dahrendorf @sibylledahrendorf.bsky.social · 17/10/2023Testimony #8 @millionsmissingpod.bsky.social Almost 10 years in 13 minutes. When will our stories finally be heard? #MEcfs #Lyme #FQAD #MCAS #CCI #POTS #SmallFiber #LongList 🎧 podcasts.apple.com/se/podcast/m... Thank you for given me that opportunity. If you can, please do so. #TellYourStory 🙏podcasts.apple.comMillions Missing Podcast i Apple PodcastsSamhälle och kultur · 2023 31810
Millions Missing Podcast @millionsmissingpod.bsky.social · 09/10/2023It is vital that you share your story; your testimony has a critical role in advocating for further exposure, better funded research and to inspire others to share theirs ❤️ Listen to and share the testimonies linktr.ee/millionsmissingpodcast Contact millionsmissingpodcast@gmail.com 041
Reposted by Millions Missing Podcast#MEAction Network @meactnet.bsky.social · 08/10/2023So nice to see so many community members have found us here already! For anyone new to us- we are #MEAction, a US-based non-profit, igniting a global revolution in ME care. ME= myalgic encephalomyelitis aka ME/CFS Learn more at meaction.net. #pwME #MECFS #MyalgicEncephalomyelitis #LongCovidmeaction.netHomewe’re IGNITING A GLOBAL REVOLUTION IN ME CARE Our movement fights for recognition, education, and research so that, one day, all people with ME and CFS will have support and access to compassionate ... 18325