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meetanostomate.bsky.social

@meetanostomate.bsky.social
212 followers 194 following 892 posts

www.MeetAnOstoMate.org - a safe space filled with valuable information and wonderful people always ready to assist.

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meetanostomate.bsky.social @meetanostomate.bsky.social · 26/09/2026
Some ostomates say carnivore diets may reduce blockage risk and pouch volume, but evidence is limited. For ileostomates, dehydration/electrolyte loss and high-output risk are concerns; tough meat can cause blockage if poorly chewed. Consult your doctor. #ostomy #ileostomy #stoma
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meetanostomate.bsky.social @meetanostomate.bsky.social · 8h
Sometimes, having a #stoma can put a strain on a relationship. Open, honest communication can help you understand how each other is feeling. Some couples even recreate their first date to reconnect. Could it help bring back the spark? #ostomy #colostomy #ileostomy #urostomy
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Joshua B. @airjoshb.bsky.social · 10h
I’d like to thank my ileostomy for keeping us in the game 90% of the time since opening The Bistro this year so we can serve so many people and share our journey - may we just keep getting stronger together. #OstomyRun #AutoimmuneAthlete #RunforResilience #5k
Run for Resilience 5k data over a photo of me mid-run showing my ostomy bag
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meetanostomate.bsky.social @meetanostomate.bsky.social · 05/10/2026
A well-fitting pouch system may last 3–7 days. Empty the pouch when it is about 1/3 full. Frequent leaks, skin irritation, pain or difficulty with pouch care are reasons to seek advice from a WOC nurse. Your experience? #ostomy #colostomy #ileostomy #stoma
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meetanostomate.bsky.social @meetanostomate.bsky.social · 16h
Before traveling make a list of the supplies and how many you’ll need. Traveling can be challenging, so pack extra items. Luggage can get lost, so have supplies in your carry-on. Most pharmacies and supply stores don't carry #ostomy supplies. Pre-cut your wafers/barriers. #stoma
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meetanostomate.bsky.social @meetanostomate.bsky.social · 04/10/2026
Many manufacturers offer free #ostomy product samples. Try different options to find what works best for your stoma and lifestyle. If possible, test adhesives on another area of skin first for signs of sensitivity. #stoma #colostomy #ileostomy #urostomy
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meetanostomate.bsky.social @meetanostomate.bsky.social · 30/09/2026
#Ostomy accessories: Adhesive removers (sprays & wipes); Skin protectants (sprays & wipes protect skin from output); Barrier rings & strips; Paste (to fill in creases); Barrier strips (help keep barrier edges from rolling up); Odor eliminators. Which accessories help you? #stoma
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Doctor Pickles @docpickles.bsky.social · 05/10/2026
If you cut your wafers and pouch be sure to get it the right size. Too big can lead to irritation or worse. Too small causes adhesion issues. Your stoma size can change, be sure to measure.
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meetanostomate.bsky.social @meetanostomate.bsky.social · 05/10/2026
A well-fitting pouch system may last 3–7 days. Empty the pouch when it is about 1/3 full. Frequent leaks, skin irritation, pain or difficulty with pouch care are reasons to seek advice from a WOC nurse. Your experience? #ostomy #colostomy #ileostomy #stoma
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meetanostomate.bsky.social @meetanostomate.bsky.social · 20/09/2026
Any tips for intimate moments when living with an ostomy? #ostomy #colostomy #ileostomy #urostomy #stoma #wocn
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meetanostomate.bsky.social @meetanostomate.bsky.social · 03/10/2026
Healthy skin around the #stoma should look like the skin on the rest of the abdomen, free of rashes, redness and irritation. If redness, soreness or broken skin persists or worsens, consult your stoma nurse or healthcare professional. #ostomy #colostomy #ileostomy #urostomy
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Reposted by @meetanostomate.bsky.social
meetanostomate.bsky.social @meetanostomate.bsky.social · 03/10/2026
Life with an #ostomy often means adapting to emotional challenges, changes in body image, and new routines. Many MAO members say that, with time, self-care and mutual support, they’ve learned to live healthy, active lives. What helped you adjust? #stoma #colostomy #ileostomy
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Reposted by @meetanostomate.bsky.social
meetanostomate.bsky.social @meetanostomate.bsky.social · 02/10/2026
For newbies: An #ostomy is an opening in the abdomen (stoma) that reroutes waste from the digestive system to a pouch worn over the #stoma. It is usually a #colostomy (from the colon) or an #ileostomy (from the small intestine). Some ostomies are temporary, others are permanent
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meetanostomate.bsky.social @meetanostomate.bsky.social · 04/10/2026
Many manufacturers offer free #ostomy product samples. Try different options to find what works best for your stoma and lifestyle. If possible, test adhesives on another area of skin first for signs of sensitivity. #stoma #colostomy #ileostomy #urostomy
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Reposted by @meetanostomate.bsky.social
meetanostomate.bsky.social @meetanostomate.bsky.social · 01/10/2026
Around 2 million colorectal cancer cases are diagnosed worldwide each year, and many patients may need an #ostomy. Estimates suggest that people with an ostomy in the U.S. are around 1M, 1M in China, 700K in Europe, 400K in Brazil, 200K in Japan & 60K in South Africa. #stoma
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Reposted by @meetanostomate.bsky.social
meetanostomate.bsky.social @meetanostomate.bsky.social · 30/09/2026
Follow surgeon’s advice on when intimacy is safe. Before getting close, empty the pouch. Consider a cover or special underwear. Choose comfortable positions. Focus on closeness, kisses and hugs. What else makes it comfortable and special? #stoma #ostomy #colostomy #ileostomy
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meetanostomate.bsky.social @meetanostomate.bsky.social · 03/10/2026
Healthy skin around the #stoma should look like the skin on the rest of the abdomen, free of rashes, redness and irritation. If redness, soreness or broken skin persists or worsens, consult your stoma nurse or healthcare professional. #ostomy #colostomy #ileostomy #urostomy
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Reposted by @meetanostomate.bsky.social
meetanostomate.bsky.social @meetanostomate.bsky.social · 02/10/2026
World Ostomy Awareness Day, held annually on the first Saturday of October (October 4th this year), raises awareness, reduces stigma and celebrates life with an #ostomy. Share your stories on MeetAnOstoMate.org and connect with others in the ostomy community. #stoma
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meetanostomate.bsky.social @meetanostomate.bsky.social · 03/10/2026
Life with an #ostomy often means adapting to emotional challenges, changes in body image, and new routines. Many MAO members say that, with time, self-care and mutual support, they’ve learned to live healthy, active lives. What helped you adjust? #stoma #colostomy #ileostomy
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meetanostomate.bsky.social @meetanostomate.bsky.social · 02/10/2026
For newbies: An #ostomy is an opening in the abdomen (stoma) that reroutes waste from the digestive system to a pouch worn over the #stoma. It is usually a #colostomy (from the colon) or an #ileostomy (from the small intestine). Some ostomies are temporary, others are permanent
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Reposted by @meetanostomate.bsky.social
meetanostomate.bsky.social @meetanostomate.bsky.social · 27/08/2026
What members are saying: www.meetanostomate.org -------------------------------------------- #ostomy #colostomy #ileostomy #wocn #uristomy #ostomylife
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meetanostomate.bsky.social @meetanostomate.bsky.social · 02/10/2026
World Ostomy Awareness Day, held annually on the first Saturday of October (October 4th this year), raises awareness, reduces stigma and celebrates life with an #ostomy. Share your stories on MeetAnOstoMate.org and connect with others in the ostomy community. #stoma
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meetanostomate.bsky.social @meetanostomate.bsky.social · 01/10/2026
Around 2 million colorectal cancer cases are diagnosed worldwide each year, and many patients may need an #ostomy. Estimates suggest that people with an ostomy in the U.S. are around 1M, 1M in China, 700K in Europe, 400K in Brazil, 200K in Japan & 60K in South Africa. #stoma
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meetanostomate.bsky.social @meetanostomate.bsky.social · 30/09/2026
Follow surgeon’s advice on when intimacy is safe. Before getting close, empty the pouch. Consider a cover or special underwear. Choose comfortable positions. Focus on closeness, kisses and hugs. What else makes it comfortable and special? #stoma #ostomy #colostomy #ileostomy
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Reposted by @meetanostomate.bsky.social
meetanostomate.bsky.social @meetanostomate.bsky.social · 27/09/2026
One-piece #ostomy system: Easier to apply, sits flatter. Harder to check #stoma fit; Changing whole system to swap bag. Two-piece: Change bag only, switch bag for specific activities, easier to check stoma fit. Couplings can be tricky; order barrier + bag. #colostomy #ileostomy
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Reposted by @meetanostomate.bsky.social
NHS Grampian @nhsgrampian.bsky.social · 30/09/2026
Aberdeen & Aberdeenshire #Ostomy Support Group – Next Meeting 📅 Tuesday 20th October 🕖 7pm–8pm 📍 Inverurie Loco Works FC, Harlaw Park, Harlaw Road, Inverurie, AB51 4SF
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meetanostomate.bsky.social @meetanostomate.bsky.social · 16/09/2026
What is it like to have a barium enema with a stoma? What should someone expect when the contrast passes through the stoma afterward? #ostomy #colostomy #urostomy #ileostomy #stoma #wocn
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meetanostomate.bsky.social @meetanostomate.bsky.social · 27/09/2026
Changing #ostomy system: Empty pouch. Remove wafer with adhesive remover or warm water. Clean the stoma and surrounding skin; avoid soap. Pat dry. Use powder/barrier film if needed. Cut opening, warm wafer with your hands and press around the #stoma. Use ring or paste if needed.
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meetanostomate.bsky.social @meetanostomate.bsky.social · 30/09/2026
#Ostomy accessories: Adhesive removers (sprays & wipes); Skin protectants (sprays & wipes protect skin from output); Barrier rings & strips; Paste (to fill in creases); Barrier strips (help keep barrier edges from rolling up); Odor eliminators. Which accessories help you? #stoma
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Reposted by @meetanostomate.bsky.social
meetanostomate.bsky.social @meetanostomate.bsky.social · 28/09/2026
"Sharing things I think will help the ostomy community." youtube.com/watch?v=8c7t... ----------------------------------------------------- #ostomy #stoma #wocn #colostomy #urostomy #ileostomy #ostomylife
youtube.com
I Made the MOST Dreaded Appointment... Finally | Let's Talk IBD
YouTube video by LetsTalkIBD
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meetanostomate.bsky.social @meetanostomate.bsky.social · 29/09/2026
After surgery, a #stoma may have a little mucus or minor bleeding. As it heals, it should be pink or red, moist, not painful. A small amount of bleeding when cleaning can be normal, but persistent bleeding, pain or unusual changes should be checked. #ostomy #colostomy #ileostomy
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meetanostomate.bsky.social @meetanostomate.bsky.social · 28/09/2026
"Sharing things I think will help the ostomy community." youtube.com/watch?v=8c7t... ----------------------------------------------------- #ostomy #stoma #wocn #colostomy #urostomy #ileostomy #ostomylife
youtube.com
I Made the MOST Dreaded Appointment... Finally | Let's Talk IBD
YouTube video by LetsTalkIBD
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Reposted by @meetanostomate.bsky.social
meetanostomate.bsky.social @meetanostomate.bsky.social · 12/09/2026
Is turmeric (curcumin) generally considered suitable for people living with an ostomy? Has anyone experienced benefits or problems when using it for joint pain or stiffness? Thx. #ostomy #colostomy #urostomy #ileostomy #stoma #wocn
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meetanostomate.bsky.social @meetanostomate.bsky.social · 12/09/2026
Flying with a stoma? Get an aisle seat. Empty your bag before boarding. Tell gate staff you have an ostomy. Security may ask you to pat down the stoma area and swab your hands. Cabin pressure won’t affect your bag. What’s your experience? #ostomy #colostomy #urostomy #ileostomy #stoma #wocn
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meetanostomate.bsky.social @meetanostomate.bsky.social · 13/09/2026
What advice is helpful for someone who has recently had an emergency colostomy and may be considering a reversal in the future? #ostomy #colostomy #stoma #wocn
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meetanostomate.bsky.social @meetanostomate.bsky.social · 17/09/2026
What can help reduce frequent trips after a sigmoid colostomy? If Imodium helps only somewhat and fiber makes things worse, what other approaches have people found useful? #ostomy #colostomy #stoma #wocn
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meetanostomate.bsky.social @meetanostomate.bsky.social · 28/09/2026
Types of #ostomy bags: one-piece; two-piece; drainable (empty & reuse); closed-end (single use); pre-cut (pre-cut opening); cut-to-fit (measured to your stoma); flat (adhesive backing); convex (adapts to wrinkles and scars); pediatric. #stoma #colostomy #ileostomy #urostomy
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meetanostomate.bsky.social @meetanostomate.bsky.social · 28/09/2026
Manufacturer accessories (not the system) may be interchangeable. You may use a pouching system from one manufacturer and accessories from another. Free samples help to decide which manufacturer’s accessories work best for you. #ostomy #stoma #colostomy #ileostomy #urostomy
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meetanostomate.bsky.social @meetanostomate.bsky.social · 20/09/2026
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meetanostomate.bsky.social @meetanostomate.bsky.social · 21/09/2026
Living with a new #ileostomy takes practice. Try free samples from different companies to find what works for you. Barrier rings can help. Keep the skin clean. Use water only or neutral soap. Keep it dry and oil-free. Some foods can thicken output. Your experience? #ostomy #stoma
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meetanostomate.bsky.social @meetanostomate.bsky.social · 27/09/2026
Changing #ostomy system: Empty pouch. Remove wafer with adhesive remover or warm water. Clean the stoma and surrounding skin; avoid soap. Pat dry. Use powder/barrier film if needed. Cut opening, warm wafer with your hands and press around the #stoma. Use ring or paste if needed.
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Reposted by @meetanostomate.bsky.social
Dickie Free @dickie-free.bsky.social · 27/09/2026
I preferred two piece. It was way easier to line everything up, then pop the bag on. The interfaces for all the major manufacturers are slim enough that for a fat dude like me,who doesn’t wear form fitting clothes, it was perfectly concealable.
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meetanostomate.bsky.social @meetanostomate.bsky.social · 27/09/2026
One-piece #ostomy system: Easier to apply, sits flatter. Harder to check #stoma fit; Changing whole system to swap bag. Two-piece: Change bag only, switch bag for specific activities, easier to check stoma fit. Couplings can be tricky; order barrier + bag. #colostomy #ileostomy
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Lycopersicon Esculentum @lycopersicon.bsky.social · 26/09/2026
When I was new and it was all cumbersome and confusing, disposable pouches were a nightmare. To this day I still don't care for them because I Don't Want any waste sitting in that bag, and (especially if you are in the US) you are not getting enough pouches to replace it upteen times a day.
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meetanostomate.bsky.social @meetanostomate.bsky.social · 06/09/2026
What pouching systems are easiest for someone new to a temporary ileostomy? Are closed, single-use peel-and-stick pouches a good option? Pros, cons, or better alternatives? Thanks. #ostomy #wocn #stoma
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meetanostomate.bsky.social @meetanostomate.bsky.social · 26/09/2026
Leaks and sore, red, itchy or burning skin around the #stoma are among the most discussed topics in the MeetAnOstoMate Forum. If you’re dealing with similar issues, just ask. Our members are happy to share experiences and helpful advice. #ostomy #colostomy #ileostomy #urostomy
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meetanostomate.bsky.social @meetanostomate.bsky.social · 26/09/2026
Some ostomates say carnivore diets may reduce blockage risk and pouch volume, but evidence is limited. For ileostomates, dehydration/electrolyte loss and high-output risk are concerns; tough meat can cause blockage if poorly chewed. Consult your doctor. #ostomy #ileostomy #stoma
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meetanostomate.bsky.social @meetanostomate.bsky.social · 26/09/2026
Reviews of MeetAnOstoMate - real experiences shared: www.meetanostomate.org/index.php?pa... ------------------------------------------- #ostomy #colostomy #urostomy #ileostomy #wocn #stoma #NSWOC
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meetanostomate.bsky.social @meetanostomate.bsky.social · 25/09/2026
“Thank you, MeetAnOstoMate, for the continued support and shared knowledge. I am still ‘new,’ but I am now not defined by my pouch. I couldn’t imagine how different my experience so far would have been had I not found you.” (МАО member) #ostomy #colostomy #ileostomy #urostomy #stoma
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meetanostomate.bsky.social @meetanostomate.bsky.social · 25/09/2026
A #stoma can change relationship dynamics. Open communication matters, but so does keeping attraction alive: care for yourself, dress to feel confident, and make time to reconnect. Could recreating your first date bring back the spark? :-) #ostomy #colostomy #ileostomy #urostomy
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