ME Association @meassociation.org.uk · 02/10/2026An article looking at conditions such as "fibromyalgia, long COVID, endometriosis, chronic fatigue syndrome, and autoimmune disorders, [which] put patients at high risk of experiencing “medical gaslighting”" 151
ME Association @meassociation.org.uk · 02/10/2026The American Psychological Association: The hidden harms of medical gaslighting Read more: www.apa.org/monitor/2026/10/harms-m… #pwME #MECFS #LongCovid #Fibromyalgia #Endometriosis #MedicalGaslighting 1125
ME Association @meassociation.org.uk · 02/10/2026The Guardian Letters: Specialist services are vital to help people with ME/CFS "Readers respond to George Monbiot’s article about how those with myalgic encephalomyelitis, or chronic fatigue syndrome, have been failed by the health system" Read: tinyurl.com/4vryfy2m #pwME #MECFS 021
ME Association @meassociation.org.uk · 30/09/2026ME Association Christmas cards have arrived! Choose from 3 lovely designs and get your 2026 Christmas cards today - £4.50 for a pack of 10, with free UK delivery! meassociation.org.uk/product/christ… #pwME #MECFS #MEAssociation #ChristmasCards #CharityChristmasCards 031
ME Association @meassociation.org.uk · 30/09/2026A review of the current situation regarding gastrointestinal symptoms in Long Covid – especially in relation to factors involved in the causation of persistent diarrhoea & the management options that are available. 011
ME Association @meassociation.org.uk · 30/09/2026Post-COVID Gastrointestinal Symptoms and Disorders of Gut-Brain Interaction: A Focus on Persistent Diarrhea Read more, and Dr Shepherd's comments: meassociation.org.uk/glbn #LongCovid #PostCovid 161
ME Association @meassociation.org.uk · 30/09/2026The UK ME/CFS Biobank have shared updates about their latest work in their newsletter: us7.campaign-archive.com/?u=d5cd5b5… #MECFS #pwME #MyalgicE #MECFSBiobank 031
ME Association @meassociation.org.uk · 30/09/20262/2: PLEASE NOTE: In the interview, Dr S does not refer to CFS when talking to journalists and always refers to ME/CFS or ME. He was not given the opportunity to check the copy here before it was published. 012
ME Association @meassociation.org.uk · 30/09/20261/2: Daily Mail Online: The cause of your chronic and severe fatigue: Scientists studied the make-up of people with the illness... and now think they've found the genetic traits to blame [PAYWALLED] Full article: tinyurl.com/2vkvhrvv #MECFS #pwME #MyalgicE #Research 111
ME Association @meassociation.org.uk · 29/09/2026Bioengineer: Lupus Patients With Stubborn Symptoms May Resemble ME/CFS, New Framework Suggests Read more: meassociation.org.uk/q03z #MECFSmeassociation.org.ukBioengineer: Lupus Patients With Stubborn Symptoms May Resemble ME/CFS, New Framework Suggests - The ME AssociationA new research paper proposes a subtype of Lupus patients with ME/CFS like characteristics. Dr Charles Shepherd provides comment. 077
ME Association @meassociation.org.uk · 29/09/2026Live in Wales? Want to know what new Welsh Gov-funded ME & Long Covid services offer locally? Join ME Voices Wales’ webinar, Fri 2 Oct, 12.30–1.30pm. Swansea Bay UHB’s team will present and answer questions. All Wales welcome! Register: tinyurl.com/2rz2cupc @wamesmecfs.bsky.social #pwME 021
ME Association @meassociation.org.uk · 28/09/2026Search the free information database Medical Matters here: meassociation.org.ukMedical Matters - The ME Association 011
ME Association @meassociation.org.uk · 28/09/2026Medical Matters: Sleep Apnoea Q: What are the symptoms of Sleep Apnoea, does it have any similarities to ME/CFS, and how might it be treated? A: meassociation.org.uk/medical-matter… #pwME #MECFS #Sleep 111
ME Association @meassociation.org.uk · 28/09/2026British Psychological Society ME/CFS Guidelines: September 2026 Update "We have been carrying out further analysis of the responses to our survey about what people with ME/CFS want psychologists to know..." Read the full update: meassociation.org.uk/t2tu #MECFSmeassociation.org.ukBritish Psychological Society ME/CFS Guidelines: September 2026 Update - The ME AssociationRead the September 2026 update on the British Psychological Society (BPS) ME/CFS Guidelines 065
ME Association @meassociation.org.uk · 28/09/2026📢 Help shape the future of care for ME/CFS and Long Covid! The HERITAGE study is looking for people with lived experience of ME/CFS and Long Covid to take part in our study! Get involved: 🔗 heritage.leeds.ac.uk/join #MECFS #LongCOVID #Research #PatientVoice #HealthcareResearch 065
ME Association @meassociation.org.uk · 26/09/2026Background - The Guardian: Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed: www.theguardian.com/commentisfree/2… #MyalgicEncephalomyelitis #GeorgeMonbiottheguardian.comAbandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed | George MonbiotChanges in guidance and science seem to have little impact on millions of devastated lives. It’s a social crisis playing out behind closed doors, says Guardian columnist George Monbiot 061
ME Association @meassociation.org.uk · 26/09/2026#NatashaDevon shared on social media that she'll cover The Guardian article ME/CFS on the LBC radio programme on Saturday evening (6pm-9pm) and will be joined by the author George Monbiot. Listen here: www.globalplayer.com/catchup/lbc/uk… #MECFS #LBCRadio 2198
ME Association @meassociation.org.uk · 25/09/2026Research Update: MEA Clinical Assessment Toolkit (MEA‑CAT) – Stage II The MEA‑CAT was originally developed for clinicians working in specialist ME/CFS services, helping them assess and monitor patients more effectively. meassociation.org.uk/yyzemeassociation.org.ukResearch Update: MEA Clinical Assessment Toolkit (MEA‑CAT) – Stage II - The ME AssociationExplore the MEA-CAT, a co-produced ME/CFS assessment toolkit with the ME Association. Learn more about stage II of the project. 143
ME Association @meassociation.org.uk · 24/09/2026A massive thank you to all those who ran for us in The Great North Run and raised a whopping £11,155 so far! This will make a big difference in the lives of people with ME/CFS. #ThankYouThursday #ThankYou #GreatNorthRun #pwME #MECFS 061
ME Association @meassociation.org.uk · 24/09/2026We would like to thank George Monbiot for writing this piece & highlighting the issues affecting millions in the UK with ME/CFS. George Monbiot will be discussing the article on Natasha Devon's radio show on Saturday: bsky.appNatasha Devon (@natashadevon.bsky.social)George will be coming on my show this weekend to discuss this very important article. [contains quote post or other embedded content] 0154
ME Association @meassociation.org.uk · 24/09/2026The Guardian: Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed "Changes in guidance and science seem to have little impact on millions of devastated lives. It’s a shocking social crisis playing out behind closed doors" tinyurl.com/mr3p63ve 1157
ME Association @meassociation.org.uk · 24/09/2026Research: Spotlight on Aleyna: The PhD Researcher Using Cutting‑Edge Technology to Uncover New Clues in ME/CFS Dr Katrina Pears, MEA Research Coordinator has interviewed Aleyna Lumsden, PhD researcher jointly based at Rosalind Franklin Institute & University of Oxford. meassociation.org.uk/rywwmeassociation.org.ukResearch: Spotlight on Aleyna: The PhD Researcher Using Cutting‑Edge Technology to Uncover New Clues in ME/CFS - The ME AssociationMetabolomics research is looking to uncover new clues into ME/CFS. Watch Dr Katrina Pears interview PhD researcher Aleyna Lumsden on YouTube. 043
ME Association @meassociation.org.uk · 24/09/2026Research: DISCOVER-ME BBC Radio Norfolk speaks to Prof Simon Carding about DISCOVER-ME – a new multi site European ME/CFS research project. The UK ME/CFS Biobank, which is funded by the MEA Ramsay Research Fund, will be supplying blood samples for this research … meassociation.org.uk/chxj 053
ME Association @meassociation.org.uk · 23/09/20262/2: The next round of volunteer training will take place week beginning the 5th October, so please apply by the end of this week (27th September), interviews taking place next week. Find out more on our website: tinyurl.com/5bt8afap Or by emailing: katharine.leat@meassociation.org.uktinyurl.comME Connect Support - The ME AssociationSupport and information for people with ME, CFS or Long COVID, and their families and carers. Contact us by phoneline, email or Discord. 011
ME Association @meassociation.org.uk · 23/09/20261/2: Final call for this round of new volunteers - apply by 27th September! ME Connect is our frontline support service, offering support to people with ME/CFS over the phone and via email. If you have empathy and understanding for those living with ME/CFS, we would love to hear from you. #MECFS 134
ME Association @meassociation.org.uk · 22/09/20262/2: The ME Association have supported this open letter by signing separately as an organisation, and we are also a member of Forward ME. 051
ME Association @meassociation.org.uk · 22/09/20261/2: The Overlapping Illness Alliance has written to The Telegraph in response to their article, How having a disability became cool, published on 5 September 2026. Read the letter: www.overlappingillnessalliance.org.… #MECFSoverlappingillnessalliance.org.ukResourcesWe use a third-party service to translate the website content that may collect data about your activity. Please review the details in the privacy policy and accept the service to view the translations. 164
ME Association @meassociation.org.uk · 22/09/2026Ready for a challenge? Take on the London Landmarks Half Marathon, Sunday 4th April 2027, and raise vital funds to support people with ME/CFS! Email fundraising@meassociation.org.uk for more information and for your chance to join team MEA! #MECFS #Fundraising #LLHM2027 031
ME Association @meassociation.org.uk · 21/09/2026Not sure whether you need a Will, or whether the one you wrote years ago still fits your life? Our partners at Octopus Legacy have a free one-minute quiz to help you work out how prepared you are and what, if anything, you might need to do next. Quiz: meassociation.org.uk/2hd8 #MECFS 132
Reposted by ME AssociationGeorge Monbiot @georgemonbiot.bsky.social · 21/09/2026Intending to write another column about the treatment of #ME/CFS patients this week, pegged to new research findings on the biological basis. My question for sufferers: Are any of you still being offered inappropriate (psych/GET etc) "treatments"? Please email george at monbiot dot info. Thanks. 131711288
ME Association @meassociation.org.uk · 21/09/2026ME Connect is open as usual, more info here: meassociation.org.ukME Connect Support - The ME AssociationSupport and information for people with ME, CFS or Long COVID, and their families and carers. Contact us by phoneline, email or Discord. 010
ME Association @meassociation.org.uk · 21/09/2026Notice: Please note, due to unforeseen circumstances, our Head Office is temporarily understaffed. If your call is non-urgent we would appreciate you waiting to call till the end of the week. #MEAssociation #Membership #MEConnect #MECFS 101
ME Association @meassociation.org.uk · 18/09/20262/2 Did you know you can see the MEA's latest Facebook and Instagram posts without needing a social media account, via the live Social Media Wall on our website: meassociation.org.uk/smww #MECFS #LongCovid #MEAssociation 020
ME Association @meassociation.org.uk · 18/09/20261/2 Please follow us on socials Following our social media channels is the easiest way to keep up-to-date with all the latest ME/CFS and Long Covid news, research announcements and charity updates Click here to find all our social URLs: linktr.ee/measocials 132
ME Association @meassociation.org.uk · 18/09/2026When you shop online with @easyfundraising.bsky.social a percentage of your purchase is donated to The ME Association at no extra cost to you. If you are already signed up, thank you! And if you'd like to support the MEA, you can sign up here: meassociation.org.uk/easyfeasyfundraising.org.ukYou shop. Your cause gets money. For free.Join 2.4m people raising free donations via 8,000+ shops & sites. 041
ME Association @meassociation.org.uk · 17/09/20263/3 Search the free information database Medical Matters here: meassociation.org.uk/medm #MECFS #Hypergraphia #CognitiveDysfunctionmeassociation.org.ukMedical Matters - The ME Association 000
ME Association @meassociation.org.uk · 17/09/20262/3 A: meassociation.org.uk/medical-matt... N.B. Hypergraphia = increased use of words when writing letters/emails etcmeassociation.org.ukHypergraphia/increased use of words when writing letters and emails - The ME AssociationThat’s a very interesting question because it’s something that I […] 100
ME Association @meassociation.org.uk · 17/09/20261/3 Medical Matters: Hypergraphia Dr Charles Shepherd and the ME Association's other advisers answer questions from members of the MEA. Q: Do you know if people with ME/CFS are more likely to experience Hypergraphia? 100
ME Association @meassociation.org.uk · 17/09/20263/3 Also, we now offer read online copies for healthcare professionals outside the UK (choosing the overseas option) via the same link. meassociation.org.uk/hcpr N.B. The NHS modules poster is available as a free download on our website: meassociation.org.uk/6k05meassociation.org.ukNHS e-Learning Modules Poster - The ME AssociationNHS e-Learning Hub now has CPD modules on ME/CFS. This […] 011
ME Association @meassociation.org.uk · 17/09/20262/3 If you'd like to nominate your GP to be added to the mailing list to receive the ME Association's ME Medical magazine, please complete the form via the link below. Or if you are a healthcare professional (HCP), please do feel free to add your name to the list: meassociation.org.uk/hcprmeassociation.org.ukHealthcare 4 ME: ME Medical - The ME AssociationSign up below to receive ME Medical, the free quarterly […] 111
ME Association @meassociation.org.uk · 17/09/20261/3 ME Medical - The Autumn 2026 Edition has been sent out to healthcare professionals & GP surgeries on our current mailing list In this edition, we've included the NHS eLearning Poster on the back cover to point healthcare professionals towards this resource. 121
ME Association @meassociation.org.uk · 16/09/2026A new research paper, published in Elsevir, has identified changes to cerebral (brain) blood flow in patients with Long Covid. Dr Charles Shepherd, MEA Hon. Medical Adviser, provides comments on the blog: meassociation.org.uk/jo9c #MECFS #pwME #LongCovid #PostCovid #Researchmeassociation.org.ukResearch finds changes to cerebral blood flow in people with Long Covid - The ME AssociationA new research paper, published in Elsevir has identified changes to cerebral (brain) blood flow in patients with Long Covid. 0126
ME Association @meassociation.org.uk · 16/09/2026Last Friday, MEA Associate Trustee, Nicki Strong, attended a private viewing event at the Royal Opera House for the I Would Be There If I Could arts project. Find out more about the event: meassociation.org.uk/bp30 #MECFS #pwME #MyalgicE #LongCovid #IWouldBeThereIfICould #Mirrorbox 013
ME Association @meassociation.org.uk · 15/09/20263/3: The AGM will include: - Voting on any resolutions to be considered - Charity updates If you are a member of the ME Association and wish to attend, please use the link below to register by November 29th 11:59pm. meassociation.org.ukMEMBERS ONLY - Notice of Annual General Meeting of The ME Association and Registration - The ME AssociationFind the details for how members can sign up to attend the ME Association's 2026 AGM here. 000
ME Association @meassociation.org.uk · 15/09/20262/3: The AGM is open to all members of the ME Association, who may attend either online via ZOOM or in person at our office: 7 Apollo Office Court, Radclive Road, Gawcott, Buckinghamshire, MK18 4DF. 100
ME Association @meassociation.org.uk · 15/09/20261/3: MEMBERS ONLY – Notice of Annual General Meeting of The ME Association and Registration The next Annual General Meeting (AGM) of The ME Association will be held on December 8th 2026, 2pm – 3pm. meassociation.org.uk/AGM2026 #MECFS 110
ME Association @meassociation.org.uk · 15/09/2026Research: MedRXiv Preprint: Seven replicated genomic associations of ME/CFS This genome wide association study involved 1268 people with ME/CFS and healthy controls who were obtained from the UK Biobank. Read more: meassociation.org.uk/7a28 #MECFS #pwME #MyalgicE #Researchmeassociation.org.ukResearch: MedRXiv Preprint: Seven replicated genomic associations of ME/CFS - The ME AssociationOn the 14th of September, MedRXiv published a new preprint paper. This genome wide association study involved 1268 people with ME/CFS and healthy controls who were obtained from the UK Biobank. 030
ME Association @meassociation.org.uk · 14/09/2026Attention MEA Members: The Autumn 2026 edition of the ME Essential Magazine is on its way to you! This edition also includes a copy of the NHS ME/CFS Learning Modules poster, which you can cut out & give to your local Healthcare Providers to promote medical education on ME/CFS. 011
ME Association @meassociation.org.uk · 14/09/2026@wamesmecfs.bsky.social (The Welsh Association for ME/CFS Support) are hosting a webinar in which Swansea Bay Health Board’s Adferiad Service will be talking about how their service can support people with ME/CFS to self-manage. Register online here: tinyurl.com/4ejcpra4 022
ME Association @meassociation.org.uk · 14/09/2026The MEA had the privilege of attending a reception for the B12 consortium at Parliament at the invite of the Pernicious Anaemia Society. Read more: meassociation.org.uk/rw9p #MECFS #pwME #LongCovid #B12meassociation.org.ukThe MEA attended Parliament for the B12 consortium reception - The ME AssociationThe ME Association attended the B12 Consortium reception at Parliament. 010