iiinova — where your digital self keeps evolving

#MEAction Network @meactnet.bsky.social · 5h

RECOVER-TLC’s 3rd annual workshop is coming up this November 4-5, 2026. Registration is open. A draft agenda has just been shared. In-person and online attendance options. All the info you need can be found here: ow.ly/aQws50ZYwja #pwME #LongCovid #NIH

Register now for the RECOVER-TLC conference on November 4 and 5, 2026, with virtual and in-person attendance options. A draft agenda has been shared. Graphic used blue background with accents of white and gold.

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#MEAction Network @meactnet.bsky.social · 15/10/2026

Caregiver volunteer Denise Lopez-Majano wants to help spread kindness - 70 acts of kindness by her 70th bday on Dec. 7! The 1st act she suggests is to be kind to yourself! Please share if you committed an act of kindness in comments beneath article! ow.ly/9WaG50ZYb6A

Graphic promoting 70 Acts of Kindness encouraging self-kindness with tips like noting three things you like about yourself and compassionate self-talk. White background with bright blue and yellow accents. Text mirrors what is in the post. 70 acts of kindness! Be kind to yourself! Idea 1 Note there things you like about yourself. Idea 2 Speak to yourself in the same way you would to a friend. QR code leading to the article.

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#MEAction Network @meactnet.bsky.social · 14/10/2026

Have you signed up for our Halloween art workshop yet? It will be October 29th at noon ET- all online & free to join! ow.ly/yJBN50ZXIpn Orion Romero, a #pwME, educator, artist, & MEAction volunteer, will be hosting! Thank you, Orion! Join in & have fun! Register now!

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#MEAction Network @meactnet.bsky.social · 13/10/2026

MEAction's next #caregiver support call is this Saturday - Oct. 17 at 1:30 pm ET. We welcome caregivers of people w/ chronic diseases such as #MyalgicEncephalomyelitis (ME), #LongCOVID, #MCAS, etc! To join the calls, please email caregiver@meaction.net at we will get you set up!

Two hands (one set of hands is brown and the single hand they are clasping is deep brown) gently clasped together symbolizing support. Text: ME caregivers support call 3rd Saturday of the month 1:30 to 3:30 pm ET. For caregivers of people with myalgic encephalomyelitis (ME), Long COVID, and associated conditions. https://www.meaction.net/event-list

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#MEAction Network @meactnet.bsky.social · 06/10/2026

The 1st webinar in the ME/CFS Exchange Webinar Series is Thursday, Oct. 8 at 1 pm ET. It will focus on post-acute infection symptoms. Registration required: ow.ly/2ABp50ZOPKP Hosted by NIH NINDS in partnership with MECFSnet. #NIH #PwME #MECFS

MEAction shares that NIH announces ME/CFS Exchange webinar series starting October 8. Hosted by NINDS in partnership with MECFSnet. Text: Moderator and 4 speakers are listed. October 8th at 1 to 3 pm ET. virtual.

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#MEAction Network @meactnet.bsky.social · 05/10/2026

We are thrilled to bring you 2 new webinars from Denise Lopez- Majano & Kim Moy. "Things We Caregivers Wish We Had Known" w/ Denise on Nov. 1 at 3pm ET. “Being on the Same Team: Strengthening Relationships Through Chronic Illness” w/ Kim on Nov. 15 at 3 pm ET. Registration coming soon!

Two free caregiving webinars on November 1 and 15 at 3 PM ET for National Family Caregivers Month. Dark brown background with cream accents. Text: November 1st 3 pm Et "Things We Caregivers Wish We Had Known" roundtable discussion facilitated by Denise Lopez-Majano “Being on the Same Team: Strengthening Relationships Through Chronic Illness” with Kim Moy of Caregiver Wisdom. November 15 3 pm Et

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#MEAction Network @meactnet.bsky.social · 02/10/2026

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#MEAction Network @meactnet.bsky.social · 02/10/2026

We are delighted to bring you this new campaign at the request of our amazing caregiver volunteer Denise Lopez-Majano. Denise is turning 70 and wants to help spread kindness throughout our community - 70 acts of kindness by December 7th! DETAILS: ow.ly/1IPH50ZTE55 #pwMe #Caregiver

Bright yellow poster promoting '70 Acts of Kindness' campaign for Denise Lopez-Majano's 70th birthday with QR code to scan. Text: In honor of her 70th birthday, Denise Lopez-Majano is launching a campaign to encourage more kindness in our community and world in a very accessible way! #70by70

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#MEAction Network @meactnet.bsky.social · 01/10/2026

We're excited to bring you a new art workshop on Oct. 29 at 12 PM EST. We have a Halloween theme to celebrate spooky season! One of our wonderful volunteers & #pwME, Orion Romero, will host. ow.ly/2zFU50ZTl4T All you need is pencil, paper & way to join online! #art #spoonie #MECFS

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#MEAction Network @meactnet.bsky.social · 01/10/2026

MEAction’s Partner #Caregiver Support Call led by Kim Moy of Caregiver Wisdom is coming up Oct 4th at 12 pm PDT /8 pm BST. All caregivers welcome. To join, email kim@caregiverwisdom.net. Longtime community member & caregiver Charley Kakel will lead our conversation focusing on Micro-Acts of Joy.

Graphic of woman on a couch participating in a virtual caregiver support call with four diverse people on her laptop screen. Text at top: #MEAction Partner Caregiver Support Call. Text at bottom: First Sunday of every month at 12 pm PT/ # pm ET. Logos for MEAction and Caregiver Wisdom in bottom corners. "All caregivers welcome!" is on a banner in top left.

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#MEAction Network @meactnet.bsky.social · 30/09/2026

Dealing with Uncertainty and Chronic Illness -A Workshop with Marisa Renee Lee is now available to watch! youtu.be/gopHHk_4R4c We had a meaningful time coming together as a community. Huge thanks to Lee (author of Grief is Love and Waiting for Dawn) for leading this workshop. #pwME #pwLC

Portrait of Marisa Renee Lee smiling with information on her workshop video on managing uncertainty and chronic illness. Photo: Black woman with long hair wearing a deep purple top and smiling. On each side of that photo is a picture of one of her books: Waiting for Dawn and Grief is Love. Text above: Dealing with Uncertainty and Chronic Illness- A workshop with Marisa Renee lee. Video now available!

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#MEAction Network @meactnet.bsky.social · 29/09/2026

MEpedia is going strong-- we just received notice that MEpedia reached 20,000 clicks from Google search in the past 28 days alone! Your support helps important knowledge get in the right hands. Check us out at www.me-pedia.org! #pwME #MEpedia #MECFS

Gold badge showing 20K clicks from Google Search for me-pedia.org in the last 28 days.

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#MEAction Network @meactnet.bsky.social · 28/09/2026

It is #MedicaidMonday and we are back with #FrailAndFurious campaign* updates. We have been busy and we want to make sure we share the wins along the way! Full details: www.meaction.net/post/making-... In the past weeks, MEAction advocates have been making real progress across the country.

Infographic showing ME/CFS and Long COVID medical frailty exemption progress in PA, NC, CA, WI, CO, Alaska, Nevada. White background with frail & Furious campaign and MEAction logos at top. Each update is listed in a text box. Outlines of states to the side.

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#MEAction Network @meactnet.bsky.social · 25/09/2026

Have you checked out all the amazing things Pillow Writers has going on lately? So many options! pillowwriters.wordpress.com They are an international ME/CFS writing community, free and open to anyone with ME/CFS or Long Covid. We are honored to host this amazing group! #pwME #pwLC

Calendar listing October events for Pillow Writers with dates and times in GMT and PST, featuring sessions like Early Pillows, Standard Pillows, Pillow Crafters, WIMEL, and Softest Pillows. On cream background with fall leaves at the top.

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#MEAction Network @meactnet.bsky.social · 23/09/2026

Interesting before and after NASA lean test.

Slide: Dysautonomia & Parasympathetic/sympathetic balance. Capillaries seen with maestro microscope

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#MEAction Network @meactnet.bsky.social · 23/09/2026

The afternoon sessions begin with Illuminating the Invisible Infection-Associated Conditions. You might recognize some names for this one. Follow along with our Scientific Director, Jaime Seltzer. @exceedhergrasp1.bsky.social #MECFS #NEISvoid #MyalgicEncephalomyelitis #NIH

Slide from NIH conference with title and speakers. Illuminating the Invisible: Infection-Associated Conditions
Moderated by Joseph Breen, Ph.D., NIAID
Nancy Klimas, M.D., Nova Southeastern University
Judith James, MD., Ph.D., Oklahoma Medical Research
Foundation
Michal Caspi Tal, Ph.D., Massachusetts Institute of
Technology
Alba Azola, M.D., Johns Hopkins University School of
Medicine

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#MEAction Network @meactnet.bsky.social · 23/09/2026

Registration is now open for the RECOVER-TLC’s 3rd annual workshop on Nov. 4-5, 2026. Virtual & in person options: ow.ly/Jwrt50ZQIou "This two-day session includes keynote speakers, interactive panels, input from people with lived experience, and networking opportunities." #MECFS #pwLC

Save the date for RECOVER-TLC's third annual workshop on November 4 and 5, 2026, available in person and virtually. Registration is now open.

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#MEAction Network @meactnet.bsky.social · 22/09/2026

Happy fall! Changing seasons can be tough when you have ME. Can you even notice the change? I have learned that anything I can find any joy in is good to amplify. What do you find joy in? Pumpkins? Leaves? Cooler temps? If this season is not one where you can find joy, sending you extra love!

Bright autumn leaves frame a clear blue sky with the text 'Hello Fall, Welcome cozy season!' and a heart symbol in the center.

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#MEAction Network @meactnet.bsky.social · 22/09/2026

The ME/CFS Exchange Webinar Series launches next month. 1st webinar in the quarterly series will focus on post-acute infection symptoms. October 8th from 1 pm to 3 pm ET via Zoom. Registration required: ow.ly/2ABp50ZOPKP Hosted by NINDS in partnership with MECFSnet. #NIH #PwME #MECFS

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#MEAction Network @meactnet.bsky.social · 21/09/2026

Last #MedicaidMonday, we shared that CMS announced states may use a tier system to determine which Medicaid applicants qualify for the medical frailty exemption from new work requirements. Today, we are going to explain those tiers! #Medicaid #PwME #PwLC #disability #FrailAndFurious

Medicaid 3-tier model with criteria for medical frailty exemption. What may qualify people for the medical frailty exemption? Tier 1: Diagnosis alone, which a doctor has recorded in their records, may meet exemption requirements. Tier 2: Diagnosis with other supplemental information - from past claims and clinical records the state collects for you - may meet exemption requirements. Tier 3: Cases that can't be resolved through available data. Submitting additional documentation may be necessary

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#MEAction Network @meactnet.bsky.social · 21/09/2026

Applications are open for the NextGen IACC Scholarship! Trainees create original research projects using a pre-existing chronic disease dataset in this funded, mentor-led research opportunity. MS, PhD, & MD/PhD trainees in a Canadian uni by the start of 2027 can apply: ow.ly/hUmO50ZOQk2

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#MEAction Network @meactnet.bsky.social · 20/09/2026

We are honored to share an amazing poem sent in for our Severe ME Artists Project. We are featuring “In a Room I Lie (For Rachel)” by Adrian Bagley. Adrian, if I can tag you, let me know! All art: www.meaction.net/severe-me-artists-… Thanks to CoRy Wysz 💤 for the video.

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#MEAction Network @meactnet.bsky.social · 18/09/2026

MCAS...h1 and h2 work synergisticly together. But even better than cleaning up what is released (mast cells), prevent them. Get rid of triggers. Use mast cell stabilizers. Flavonoids are really good. Cromolyn "not the world's best b/c it doesn't absorb."

Slide on mediator-focused management mast cell and neuro-immune -endocrine networks. 3 boxes clinical pattern to identify, management targets, studies needed.

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#MEAction Network @meactnet.bsky.social · 18/09/2026

Quick tip: Klimas in sharing management targets says studies show compression works in terms of dysautonomia/POTS. She acknowledges difficulty in patients wearing compression but to at least use belly and thigh if you cannot manage toes on up. I cannot do high level shares but can manage a tip!

Slide from talk at CDC ME/CFS meeting by Dr. Nancy Klimas. Mediator-focused management Autonomic- hemodynamic dysfunction with 3 boxes: clinical pattern to identify, management targets, and studies needed.

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#MEAction Network @meactnet.bsky.social · 18/09/2026

Around 220 people are attending the ME/CFS CDC meeting right now. Dr. Nancy Klimas of Nova Southeastern University INIM is now speaking. She said it was her first time giving this talk. It is being recorded & will be shared! Very interesting so worth checking out. Klimas has so much knowledge!

First slide from talk by Dr. Klimas. Shows her name and university affiliation in blue box. Text above: How progress in Long COVID is helping us understand ME/CFS. Text below: CDC Stakeholders call

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#MEAction Network @meactnet.bsky.social · 18/09/2026

We made it to the end of #DisabilityVotingRightsWeek! Have you checked your registration & made a voting plan? We gathered a list of resources useful to our community as you exercise your right to vote! Save them! ow.ly/97C050ZOuBu AAPD - The American Association of People with Disabilities

Poster announcing the final day of Disability Voting Rights Week with a QR code linking to resources for the disability community. Text: Disability Voting Rights Week Final Day! Check out our list of resources for the disability community! Disability Voting Rights Week (DVRW) is a nonpartisan movement hosted by the American Association of People with Disabilities and REV UP. MEAction proudly participates each year.

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#MEAction Network @meactnet.bsky.social · 17/09/2026

TOMORROW! The CDC ME/CFS Stakeholder Engagement and Communication (SEC) Conference Call is on Sept. 18th at 3:00 pm ET. Register: ow.ly/iV8W50ZLwx3 Guest speaker: Nancy Klimas, MD. Also featuring program updates from CDC's ME/CFS program staff and a Q&A. #pwME #MECFS #CDC

Announcement for CDC ME/CFS SEC Call on September 18, 2026, from 3 to 4:30 pm ET with registration required. Photo at bottom shows a person on their couch attending an online meeting with a laptop. Blue background with orange accents. Text: CDC ME/CFS SEC Call Featuring a presentation Dr. Nancy Klimas, Director of the Institute for Neuro-Immune Medicine at Nova Southeastern University. Also featuring program updates from CDC's ME/CFS program staff and a Q&A.

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#MEAction Network @meactnet.bsky.social · 17/09/2026

It is #DisabilityVotingRightsWeek. Let's talk mail-in voting. If you are voting by mail please request and return your ballot as early as possible. Each state has different rules so head to www.vote.org/absentee-ballot #RevUp2026 AAPD - The American Association of People with Disabilities

Red mailbox illustration with text encouraging voters to request and return mail ballots early, including a hotline for voting help. Text: Are you voting by mail? Request and return as early as possible. More info at www.vote.org/absentee-ballot. The Election Protection hotline 1 866 OUR VOTE

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#MEAction Network @meactnet.bsky.social · 17/09/2026

#MEAction's next #caregiver support call is Sept. 19 at 1:30 pm ET - 3:30 pm ET. We welcome caregivers of people w/ chronic diseases such as #MyalgicEncephalomyelitis (ME), #LongCOVID, #MCAS, etc! To join the calls, please email caregiver@meaction.net at we will get you set up!

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#MEAction Network @meactnet.bsky.social · 16/09/2026

Everyone has a role to play in making our elections accessible. If you are voting in person this year, take this guide with you and help identify and address accessibility barriers. ow.ly/s0PV50ZN3nc #DisabilityVote #RevUp2026 AAPD - The American Association of People with Disabilities

On a cream colored background, the words “Be a defender!” and “Report barriers!” are in all-caps blue and red text, respectively. Underneath are the words “Safe, Accessible, Barrier-Free, Encourage others to vote” with alternating red and blue checkmarks next to each term. To the left of that is a graphic of a ballot box, and underneath that are the words “Election Prevention Hotline” in all caps in blue, with the phone number 866-our-vote in red, and the number written out in parentheses.

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#MEAction Network @meactnet.bsky.social · 16/09/2026

Election Protection Hotline. 866-OUR-VOTE Spanish/English - 888-VE-Y-VOTA Asian Languages/English - 888-API-VOTE Arabic/English - 844-YALLA-US Live chat: 866ourvote.org AAPD - The American Association of People with Disabilities & National Disability Rights Network are partners of hotline.

Election Protection Hotline contact numbers for English, Spanish, Asian languages, and Arabic with live chat link for voter assistance. Text: English – 866-OUR-VOTE (866-687-8683)
Spanish/English - 888-VE-Y-VOTA (888-839-8682)
Asian Languages/English - 888-API-VOTE (888-274-8683)
Arabic/English - 844-YALLA-US (844-925-5287)
Live chat: https://866ourvote.org/
Disability Voting Rights Week

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#MEAction Network @meactnet.bsky.social · 15/09/2026

NIH UPDATE: NIAID has released a proposal to eliminate its Division of Clinical Research (DCR) & move the division’s programs and responsibilities into other parts of the Institute. #MEAction has sent a detailed letter to NIAID by email in response to the proposal. www.meaction.net/post/nationa...

NIH update announces NIAID reorganization with MEAction raising concerns about effects on ME and Long COVID research. Photo of NIH building under text: NIAID proposes reorganization. MEAction submits comment and shares concerns about impact on ME and Long COVID research.

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#MEAction Network @meactnet.bsky.social · 15/09/2026

Making your plan to vote is critical! Check out AAPD - The American Association of People with Disabilities' make a plan document to help make sure you are ready: ow.ly/1Hzg50ZMI4Q #DVRW #RevUp2026 is a nonpartisan movement. #DisabilityVote #pwME #MECFS #Disability #VoteReady

A graphic with a cartoon blind person with a service dog. Title text: Be a Confident Voter. Make a Plan to Vote. Subtitle: Make your plan: bit.ly/m/REV-UP-Plan. Below the title is a bullet point list: “Make sure you are registered to vote!; Learn key dates, like election day, early voting, and mail-in voting deadlines; Choose how and when you will vote; Plan for your access needs; Learn what’s on your ballot; Know what to do if you have trouble voting.” Disability voting rights week

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#MEAction Network @meactnet.bsky.social · 15/09/2026

It’s #MedicaidMonday, & we have an important update! CMS announced that states may use a “tier system” to determine which Medicaid applicants qualify for the medical frailty exemption from new community engagement requirements. MEAction staff spoke to @statnews.com: www.statnews.com/2026/09/11/m...

Illustration of two cliffs labeled 2027 and 2028 symbolizing Medicaid coverage loss risks, with MEAction's fight to prevent community impact. Text: "We're looking at two cliffs." MEAction Campaigns Director Ben HsuBorger told STAT. There are two major points when people may lose their Medicaid coverage in the next 2 years. MEAction is fighting to keep our community from falling off either cliff!

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#MEAction Network @meactnet.bsky.social · 14/09/2026

Join us this #DisabilityVotingRightsWeek to Be an Accessible Democracy Defender. Let’s start at the beginning. Register to vote! If you are registered, then check your registration. Both can be done via vote.org #DisabilityVote #pwME AAPD - The American Association of People with Disabilities

Bold red and blue text spelling VOTE with a raised fist as the V, encouraging voter registration for Disability Voting Rights Week Sept. 14-18.

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#MEAction Network @meactnet.bsky.social · 11/09/2026

MEAction is excited to be participating in Disability Voting Rights Week (DVRW) next week -Sept 14-18. Let’s get ready to vote! It is a nonpartisan movement hosted by the AAPD - The American Association of People with Disabilities REV UP campaign. #DisabilityVote #RevUp2026 #pwME

Disability Voting Rights Week from September 14-18, 2026. "Democracy is strongest when accessible to all! Blue background with white banners and red writing. Text at bottom: Disability Voting Rights Week (DVRW) is a nonpartisan movement hosted by the American Association of People with Disabilities and REV UP. MEAction proudly participates each year.

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#MEAction Network @meactnet.bsky.social · 11/09/2026

Attending the Community Symposium on the Molecular Basis of ME/CFS Stanford University. Ron Davis says this symposium has been "the best meeting I have been to for ME/cfs." The previous days are confidential but today is open to the community. It will be recorded & shared! @openmedf.bsky.social

Photo of Ron Davis and Janet Dafoe starting the Symposium. (White elder man and woman sitting in a library on a screen for the meeting)

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#MEAction Network @meactnet.bsky.social · 10/09/2026

Content note: suicide loss . . We hold those we have lost in our hearts always. We must mourn together. Join us in lighting a candle to show your support for suicide prevention, to remember a loved one and for the survivors of suicide. Resources: www.meaction.net/crisis-resources #WSPD

A lit candle glowing softly against a dark background with a message honoring those lost to suicide and encouraging support on World Suicide Prevention Day. Text in full: We hold those we have lost in our hearts always. We say your name. We remember and carry you with us. Join us in lighting a candle to show your support for suicide prevention, to remember a loved one and for the survivors of suicide. World Suicide Prevention Day.

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#MEAction Network @meactnet.bsky.social · 10/09/2026

Content note: Suicide prevention . . Changing the narrative on suicide requires systemic change. It's about shifting from a culture of silence and stigma to one of openness, understanding, and support. Resources: ow.ly/xuOG50ZLHGV #WSPD International Association for Suicide Prevention

Blue background with orange and yellow text reading 'Changing the Narrative on Suicide' and '10 September' for World Suicide Prevention Day.

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#MEAction Network @meactnet.bsky.social · 09/09/2026

The CDC ME/CFS Stakeholder Engagement and Communication (SEC) Conference Call is on Sept. 18th at 3:00 pm ET. Register: ow.ly/iV8W50ZLwx3 Guest speaker: Nancy Klimas, MD. Also featuring program updates from CDC's ME/CFS program staff and a Q&A. #pwME #MECFS #CDC

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#MEAction Network @meactnet.bsky.social · 08/09/2026

Deadline: TONIGHT Sept. 8th. 11:59 pm ET. #MEAction is excited to be partnering with the Writers Guild Initiative (WGI) again to offer creative writing workshops for people with ME and Long COVID. 30 slots available. DETAILS: ow.ly/nTJb50ZGCFF Thank you, WGI! #PwME #PwLC #MECFS

Notebook page background with text announcing Writers Guild Initiative writing workshops with a September 8 application deadline, flanked by blue and pink pens. Logos of MEAction and WGI at the bottom.

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#MEAction Network @meactnet.bsky.social · 04/09/2026

Have any thoughts for the long weekend? For those of us in the US, we have a bank holiday weekend. For so many of us, we barely register it because our days can rarely change. For some of us, maybe someone is at home that is normally at work or school. #LaborDay #PwME #MECFS #PwLC

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#MEAction Network @meactnet.bsky.social · 31/08/2026

Jaime Seltzer @exceedhergrasp1.bsky.social shares how community & arts help bring us all together as we fight together for a better life for us all. This is a clip of Coffee With a Clinician hosted by @batemanhornecenter.bsky.social for Severe ME Month. youtu.be/HlfbfyRl3K8?... #SevereME

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#MEAction Network @meactnet.bsky.social · 31/08/2026

MEAction Scientific Director Jaime Seltzer @exceedhergrasp1.bsky.social speaks at the special Severe ME Coffee with a Clinician hosted by our friends at @batemanhornecenter.bsky.social along w/ @openmedf.bsky.social & @solveme.bsky.social . See the full video: youtu.be/HlfbfyRl3K8?...

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#MEAction Network @meactnet.bsky.social · 30/08/2026

¡Nos entusiasma compartir noticias de Pillow Writers en Español! A partir del 1 de septiembre, contaremos con una anfitriona invitada especial: la reconocida poeta Maria R. Palacios, quien conducirá nuestras sesiones de Pillow Writers en Español. ow.ly/IKTt50ZGSxF

Colorful decorative pillows arranged on a couch with vibrant patterns and textures in a cozy setting. Another picture of a woman with dark hair and medium skin tone wearing pink headphones and smiling. Text: Pillow Writers en Español El martes, 1 de septiembre de 2026 retorna Pillows en Español el primer martes de cada mes a las 13:00h, hora de Colombia.
¡Le damos la bienvenida a María R. Palacios!

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#MEAction Network @meactnet.bsky.social · 29/08/2026

As we come to the end of Severe ME Awareness month, we want to share so much love to each member of our community - whether you can be online or whether we know your story - we hold you in love. We fight for you. We show up over and over determined to create change. #PwME #SevereME

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#MEAction Network @meactnet.bsky.social · 28/08/2026

#MEAction is excited to announce we are partnering with the Writers Guild Initiative (WGI) again to offer creative writing workshops for people with ME and Long COVID. Deadline to apply: Sept. 8th. 30 slots available. DETAILS: ow.ly/nTJb50ZGCFF Thank you, WGI! #PwME #PwLC

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#MEAction Network @meactnet.bsky.social · 27/08/2026

You are invited to the MEAction Artist Salon on Nov. 22nd at 3 pm ET. ow.ly/HVzo50ZG6Ga The salon is a creative, virtual gathering where everyone in our community is invited to attend live and share their art with the wider community. All types of artwork are welcome! #pwME

Invitation card for MEAction Virtual Artist Salon on November 22 at 3:00 pm ET with colorful abstract painted background.

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#MEAction Network @meactnet.bsky.social · 26/08/2026

Calling all constituents in West Virginia and Maine - WE NEED YOUR HELP! The Senate Labor-HHS Appropriations Subcommittee is expected to discuss including $50 million in appropriations for the ME/CFS Research Roadmap in upcoming weeks! Toolkit: ow.ly/J6TT50ZFRjx #MyalgicEncephalomyelitis

Call West Virginia and Maine senators to support ME/CFS Research Roadmap funding with a provided toolkit for advocacy. Graphic with an outline of the state of Maine and the state or West Virginia are on either side of a road going through the image. Text above: ME/CFS Research Roadmap Action Request! f you live in West Virginia or Maine, CALL YOUR SENATOR and tell them to support appropriations for ME/CFS Research Roadmap. Toolkit provided!

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#MEAction Network @meactnet.bsky.social · 25/08/2026

We are sharing a few samples from the amazing Writers Gallery that is part of our Severe ME Artists Project! All writings available in our still gallery to be read: www.meaction.net/severe-me-ar... Or read aloud at our community watch party (thanks @corywysz.bsky.social): youtu.be/deJLdcQr3W4?...

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