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LUF

@liveutifree.bsky.social
57 followers 18 following 94 posts

Patient research organization specializing in: 🧬 Underserved and under-diagnosed female health issues 💊 Clinical trial recruitment 🔬 Research design, ethics, logistics 👥 PPIE Our links: liveutifree.com/faq

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LUF @liveutifree.bsky.social · 24/09/2026
Help advance menopause research! Women 18+ experiencing symptoms can take a 20-30 min anonymous survey. Your input shapes future support. uor-redcap.reading.ac.uk/surveys/?s… 🌍💜 #MenopauseResearch
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LUF @liveutifree.bsky.social · 23/09/2026
The latest interview in our Clinician Insight Series is live! Molly talks to Bridget Batty BHSc about the root causes of UTI, as well as treatment pathways in naturopathy and non-antibiotic therapies. Watch the full video on our YouTube channel: youtu.be/2gL6hgvXKLQ
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LUF @liveutifree.bsky.social · 09/09/2026
Are you an aged 14-17 and experience UTIs, or have a child (aged 0-17) who does? Vanderbilt University Medical Center want to develop a personalized care pathway to prevent UTIs Can you help by joining their research study? 🔗https://www.vumc.org/urology/antibiotic-responsible-uti-prevention
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LUF @liveutifree.bsky.social · 02/09/2026
Clinicians: Support the global UTI patient study! Share this 10-min survey with adult patients (18+) who’ve had a UTI. forms.office.com/Pages/ResponsePage… #UTIResearch #PatientVoices
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LUF @liveutifree.bsky.social · 01/09/2026
In this episode of our Clinician Insight Series, Dr. Cinzia Pajoncini discusses the importance of differential diagnosis. www.youtube.com/watch?v=viipBcMskpg Are you a clinician working in a language other than English? We'd love to hear from you! Dr Pajoncini: lamiaginecologa.com
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LUF @liveutifree.bsky.social · 30/08/2026
➤ Are the parent or guardian of a child experiencing recurrent UTIs ➤ Are aged 18+ ➤ Reside in the UK Participation involves a short questionnaire and an online interview. 👍 Max 1 hour 👍 A relaxed chat 👍 Anonymised Survey link🔗‍️https://uor-redcap.reading.ac.uk/surveys/?s=NYDYAFEMLLJW7P3M
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LUF @liveutifree.bsky.social · 19/08/2026
Is fecal matter transfer a viable UTI therapy? Glenn Werneburg, MD, PhD, discusses the latest research on UTI testing, fecal matter transfer (FMT), and catheter-associated UTI. Watch now: youtu.be/wIeNouRiRgc #utisky #endometriosis #recurrentuti #liveutifreewomenshealth
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LUF @liveutifree.bsky.social · 18/08/2026
Listen to our latest podcast episode where Melissa speaks with Dr. Malcolm Starkey about why standard UTI tests fail and how immunotherapy could change UTI treatment. open.spotify.com/episode/2EyXUFpjfq…
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LUF @liveutifree.bsky.social · 03/08/2026
Researchers at Leiden University Center for Infectious Diseases are studying the worldwide impact of UTIs, and your experience matters. ✅ Any gender, anywhere ✅ 18+ years old ✅ Experienced ≥1 UTI as an adult 🔗Find the survey link in our bio. #bladdersmatter #stigma #patientperspective
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LUF @liveutifree.bsky.social · 31/07/2026
Listen to our latest podcast episode where Melissa speaks with Dr. Kiren Gill and Dr. Harry Horsley about extended antibiotic treatment for chronic UTI, and the EAT-UP Trial  open.spotify.com/episode/4d9T7fuAHG…
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LUF @liveutifree.bsky.social · 29/07/2026
Molly talks to Jenna Perkins, RN, WHNP-BC about the impact of the pelvic floor muscles on one's bladder health, as well as overlapping symptoms and other pelvic health conditions.  Watch the full video on our YouTube channel: youtu.be/CxbSlQPQnLg
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LUF @liveutifree.bsky.social · 21/07/2026
Patients, caregivers, or parents with UTI diagnostic testing experience: UW researchers want your input to redesign the process. Complete two 15-min surveys & sign up for focus groups. Link in bio. #utitesting #diagnostics #liveutifree
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LUF @liveutifree.bsky.social · 20/07/2026
Is Uromune effective for Recurrent & Chronic UTI? Bob Yang, Consultant Urologist, FRCS Urol, joins Melissa Kramer to discuss how he uses Uromune in his urology practice and what the latest research indicates about its efficacy. Watch now: youtu.be/SPT9TUL43UY #utisky #liveutifree
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LUF @liveutifree.bsky.social · 15/07/2026
The latest interview in our Clinician Insight Series is live! Molly talks to Leah Posthuma, MD and Aubree Ng about their approach to UTI testing and the importance of understanding a person's story. Watch the full video on our YouTube channel: www.youtube.com/watch?v=FuKyHSKTBhU
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LUF @liveutifree.bsky.social · 10/07/2026
Listen to our latest podcast episode where Melissa speaks with Julia Anditsch about all things chronic UTI prevention, including real patient experiences.  open.spotify.com/episode/4G0IiJT207… #dmannose #podcast
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LUF @liveutifree.bsky.social · 09/07/2026
Help break the stigma of recurrent UTIs. 🌍 Join the Leiden University global study to share your experience via a 10-min survey. 🔗https://forms.office.com/Pages/ResponsePage.aspx?id=T4wExFTdvUyASVRXqs0vuBxB1tXO98ZJhriESO55RmtUNkNRVko0WDQ4TE45MTc2MVNRVEUyTDhaSy4u #RecurrentUTI #BladdersMatter
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LUF @liveutifree.bsky.social · 08/07/2026
The latest interview in our Clinician Insight Series is live! Molly talks to Dr Nicholas Faure Walker about the challenges patients with recurrent UTI typically face, as well as overlapping symptoms with other health conditions. Watch the full video: youtu.be/vkQVUuca4m4
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LUF @liveutifree.bsky.social · 07/07/2026
Did you know that MicroGenDX Europe launched in 2025 to provide better access and faster turnaround times for patients in the EU and surrounding countries?  Standard UTI tests often miss the microbes driving persistent infections.  Read the full article:
liveutifree.com
MicroGenDX Europe: Advanced DNA-Based UTI Testing | Live UTI Free | LUF
Did you know that MicroGenDX Europe launched in 2025 to provide better access and faster turnaround times for patients in the EU and surrounding countries? Why is better access to urinary tract infection testing so important? Urinary tr ...
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LUF @liveutifree.bsky.social · 29/06/2026
Listen to our latest podcast episode where Professor Jenny Rohn talks about negative UTI tests and the novel antibiotic treatment she has developed. Link: open.spotify.com/episode/3ca4IyPSs0…
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LUF @liveutifree.bsky.social · 18/06/2026
Can long-term infection in the uterus contribute to endometriosis, and is it connected to urinary symptoms? Christine Metz, PhD, discusses the latest research on endometriosis, and how menstrual blood could be the key to unlocking better diagnostics. Watch now: youtu.be/rQyw2AOVZWw
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LUF @liveutifree.bsky.social · 08/06/2026
Listen to our latest podcast episode where Dr. Aparna Taylor talks about stress, the nervous system, inflammation, gut health and chronic UTI symptoms.  Link: open.spotify.com/episode/59BX1owreZ…
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LUF @liveutifree.bsky.social · 03/06/2026
Do biofilm disruptors work? Dr. Jennifer Kerr, ND, joined Melissa Kramer for an interview to discuss her use of biofilm disruptors in treatment approaches for chronic UTI. Watch now: youtu.be/H9SqDLvf7mg #chronicuti #biofilms #recurrentuti #utisky
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LUF @liveutifree.bsky.social · 27/05/2026
Dr. Jennifer Kerr, ND, joined Melissa Kramer for an interview to discuss how biofilms form in the bladder, why they are so hard to treat, and how she diagnoses chronic UTI in her clinical practice. Watch now: youtu.be/2_aDsrqMVeY #chronicuti #biofilms #recurrentuti #utisky
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LUF @liveutifree.bsky.social · 19/05/2026
New UTI Clinical Trial: 'EAT-UP Trial, are longer courses of treatment dose antibiotics combined with methenamine hippurate more effective treatment at reducing levels of infection and symptoms than standard care. Watch now:  youtu.be/D-YV9GR6peA #chronicuti #clinicaltrial #iveutifree
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LUF @liveutifree.bsky.social · 22/04/2026
Listen to our latest podcast episode where Dr. Pamela Cipriano talks about mold toxicity, chronic bladder symptoms, and how mold can affect the immune system and irritate the bladder. Listen Now: open.spotify.com/episode/1ZAsf7dLeM…
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LUF @liveutifree.bsky.social · 25/03/2026
Have you heard about the Alliance for Patient-Centred UTI Research? @chronicutiaustralia, @cuticuk, @letstalkuti (US), and @liveutifree This week is about sharing UTI experiences, and we'd love to hear yours, so get in touch with any of our organisations! #utistories #womenshealth #utiresearch
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LUF @liveutifree.bsky.social · 06/03/2026
Listen to our latest podcast ep: Dr. Maria Uloko shares ground-breaking insights from her research, talking about how misdiagnosis and knowledge gaps in medicine are impacting people with chronic UTI and vulvar pain. open.spotify.com/episode/2OPMiyZTpN…
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LUF @liveutifree.bsky.social · 10/02/2026
Why is the immune system response to UTI likely one of the reasons that chronic urinary tract infection occurs? Dr. Malcolm Starkey joined Melissa Kramer for an interview to share his research. Watch now: youtu.be/LUADMg3KIqU #liveutifree #bladdersmatter #chronicuti
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LUF @liveutifree.bsky.social · 03/02/2026
How did the standard urine culture become the test used globally for UTI, and why is it so flawed? Dr. Malcolm Starkey  joins Melissa Kramer to share insights about the current state of UTI testing and how his research aims to change patient outcomes. Watch: youtu.be/jtWOTqOGBOc
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LUF @liveutifree.bsky.social · 02/02/2026
Talking about the impact of UTIs on sexual wellbeing and relationships isn't always easy. But it does matter, and researchers need to understand lived experiences. If you're willing to share your experience, you can find the study here: redcap.link/v4ck1yls
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LUF @liveutifree.bsky.social · 29/01/2026
Dr. Henry Schreiber explores UTIs as a whole‑body problem, shares insights on how the gut may serve as a reservoir for UTI‑causing bacteria, inflammation, and why we need better diagnostics and treatments. Listen Now. open.spotify.com/episode/5Udm3L8Pv2…
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LUF @liveutifree.bsky.social · 13/01/2026
Bladder cancer is linked to prolonged inflammation, and catheters cause inflammation, is there a simple way to reduce this risk while also minimizing the risk of catheter-associated UTIs? Dr. Ana Flores-Mireles @afloresmireles.bsky.social  joined us to share her research.https://youtu.be/AC2xddCqu7Y
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LUF @liveutifree.bsky.social · 08/01/2026
We've developed two new tools to enable patients to self-report their perspective on recurrent UTI-going beyond the insights that clinical tests provide to clinicians. We're looking for interview participants with recurrent UTI experience. uor-redcap.reading.ac.uk/surveys/?s…
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LUF @liveutifree.bsky.social · 07/01/2026
It’s not too late to join a clinical trial for a potential new UTI vaccine! Research is underway in the US, Argentina, Belgium, South Africa, and Spain. Learn more and find a research site near you: f.mtr.cool/bozbgbeuvx
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LUF @liveutifree.bsky.social · 06/01/2026
Why do catheters increase the risk of UTI? Dr. Ana Flores-Mireles @afloresmireles.bsky.social joined Melissa Kramer for an interview to share how her own scientific discoveries could lead to long term solutions for patients who are catheterized. Watch now: f.mtr.cool/ikdehrkthw
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LUF @liveutifree.bsky.social · 04/12/2025
Could chronic pain symptoms be a nervous system issue rather than infection? Or both? In this interview, Kate Waters discusses regulating the nervous system to help alleviate chronic urinary symptoms. Watch now: youtu.be/0pbUXvwYKE0 #liveutifree #bladdersmatter #diet #nutrition
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LUF @liveutifree.bsky.social · 27/11/2025
What role does diet play in UTI prevention and management? In this interview, Kate Waters discusses why it's important to look at microbiome health holistically in the context of recurrent or chronic urinary tract infections, and in general. Watch now: youtu.be/E1oQz2o7gMo #liveutifree
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LUF @liveutifree.bsky.social · 25/11/2025
A clinical trial for a potential new UTI vaccine is underway. Eligible volunteers in the US, Argentina, Belgium, South Africa, and Spain can participate. Learn more about how you can join the study: liveutifree.com/uti-vaccine-clinica…
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LUF @liveutifree.bsky.social · 10/11/2025
Grant funding has been awarded to an Australia-based research team to develop a new therapeutic that targets biofilms involved in urinary tract infections. Watch our interview with Prof. Begoña Heras and Dr. Jason Paxman, at the La Trobe Institute for Molecular Science: youtu.be/CS_wW63rH04
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LUF @liveutifree.bsky.social · 08/11/2025
Our latest episode: Dr. Indira Mysorekar explores how bladder health differs between people assigned female at birth and those assigned male, how menopause and chronic inflammation increase UTI risk, and what the future of care might look like. open.spotify.com/episode/19JkBRMkEI…
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LUF @liveutifree.bsky.social · 04/11/2025
Joining a recurrent UTI study means contributing to research with potential long-term impact. A clinical trial for a new UTI vaccine is enrolling in the US, Argentina, Belgium, and South Africa. Find a research site near you: liveutifree.com/uti-vaccine-clinica…
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LUF @liveutifree.bsky.social · 28/10/2025
Wherever you are in the world, you're invited to participate in this new study! UK researchers want to hear from patients about the real-life impact of recurrent or chronic UTIs. docs.google.com/forms/d/e/1FAIpQLSf…
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LUF @liveutifree.bsky.social · 21/10/2025
Listen to our latest podcast episode where Professor Chris Harding explores the new VESPER clinical trial, a landmark study for people with recurrent urinary tract infections who haven’t improved with first-line prevention. open.spotify.com/episode/595rpADSDo…
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LUF @liveutifree.bsky.social · 15/10/2025
A study for a new UTI vaccine is currently looking for volunteers. Participants will be randomly assigned to a study group and researchers will track their health outcomes over a 14 month period. Learn more here: liveutifree.com/uti-vaccine-clinica…
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LUF @liveutifree.bsky.social · 14/10/2025
Could phages in your own urine shape future UTI treatment? Esme Brinsden @phagecollection.bsky.social joined us for an interview to share insights about The Phage Collection Project and how you can get involved. Watch now: youtu.be/sLZ498LegBA #phagetherapy #liveutifree
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LUF @liveutifree.bsky.social · 09/10/2025
Listen to our latest podcast episode where Amanda Burkardt and Dr. Mayukh Das share their novel approach to eliminating UTI-causing bacteria, with phage therapy.  open.spotify.com/show/1jdS4IhxYq3PF…
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LUF @liveutifree.bsky.social · 19/09/2025
Listen to our latest podcast episode where Dr. Lindsay Burnett talks about the complex relationship between pelvic floor disorders, the urinary microbiome, and recurrent UTI symptoms. Check it out now:  open.spotify.com/episode/0RC6Muntjr…
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LUF @liveutifree.bsky.social · 17/09/2025
Biotia has launched a new UTI diagnostic, now available in all US states. Read more about Biotia-ID Urine, how to order, and how their telehealth service can support the process: liveutifree.com/telehealth-for-uti
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LUF @liveutifree.bsky.social · 16/09/2025
Which UTI supplements do patients find most helpful? Julia Anditsch and Melissa Kramer discuss their experiences with UTI, and what patients in the communities they've built say about UTI supplements. Watch now: youtu.be/c-4YhBslZt8 #UTISky #iveutifree #bladdersmatter #utisupplements
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LUF @liveutifree.bsky.social · 15/09/2025
Research on UTI prevention is happening! A clinical trial for a potential new UTI vaccine is underway. The study will assess its efficacy and safety over one year. Learn more about eligibility and how to join here: liveutifree.com/uti-vaccine-clinica…
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