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Lab of Lived Experience (Lab OLE)

@laboflivedexp.bsky.social
47 followers 55 following 75 posts

Transforming excluded expertise into collective intelligence, policy change and new ventures. 💛 Community-led 🧬 Universal 🍥 Integrative ⚖️ Justice-first Founder @catsocialintel.bsky.social Biosystems tool: laboflivedexperience.com

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Reposted by Lab of Lived Experience (Lab OLE)
Cat Fraser @catsocialintel.bsky.social · 24/09/2026
Beyond time for a UK national inquiry into the unbelievable levels of harm and neglect this patient population has had inflicted on them by *ALL* our systems. Not just health. Thank you @georgemonbiot.bsky.social
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Cat Fraser @catsocialintel.bsky.social · 12/07/2026
Next Sunday I’ll be sharing my strategic design approach and a new tool that can help communities visualise their complex health journey as systems. Join us for the townhall with Covid 19 Longhaulers @rubyslippahs.bsky.social X @publichealthaction.bsky.social next Sunday 19th : 2pm ET/ 7pm GMT
Image shows COVID-19 LONG-HAULERS along the side and link to YouTube channel. 

Main image : abstract of flowers in background. 
Body copy: Invitation to townhall 
Event: Biosystems: making your story visual
Cat Fraser
2pm ET / 7pm GMT 
July 19 2026
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Cat Fraser @catsocialintel.bsky.social · 12/07/2026
Our health system can’t get us the systemic change we need on its own. But business and finance speak a different language and require a different approach entirely. So we are now applying the climate collapse projected for the planet…to humans. #biosystems
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Cat Fraser @catsocialintel.bsky.social · 10/07/2026
The letter is still open to sign at: protecthumanbiosystems.world And Follow @laboflivedexp.bsky.social to learn more about the community-owned innovation system we are also building to centre our expertise across all of it
protecthumanbiosystems.world
#Protecthumanbiosystems
An international campaign to protect humans like we protect the environment.
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Reposted by Lab of Lived Experience (Lab OLE)
Cat Fraser @catsocialintel.bsky.social · 10/07/2026
UN campaign progress update : 1/⚡️Another global CEO at the centre of climate health + economic change now gets what is happening to our pop health for the first time and is mobilising his influential policy/ design networks for us. #protecthumanbiosystems messaging is working!
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Lab of Lived Experience (Lab OLE) @laboflivedexp.bsky.social · 21/05/2026
It’s more than time for the new paragdigm of #bioreality Please sign and share and let’s get this open letter to the Royal College of Psychiatry to over 1K 👇👇
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Reposted by Lab of Lived Experience (Lab OLE)
Cat Fraser @catsocialintel.bsky.social · 02/05/2026
I love that Anil has found a way to *dance* despite the horrific states his body is forcing him to endure. In awe of the resilience + creativity of our communities and this really feels like a sea change… TW; #severeME owning the language of “living death”. V powerful 🔥
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Reposted by Lab of Lived Experience (Lab OLE)
Cat Fraser @catsocialintel.bsky.social · 31/03/2026
💚 1/ Today we asked the UN @srenvironment.bsky.social to protect people like we protect the environment. Our #protecthumanbiosystems submission: 🌍 A coalition of 50+ signatories across 10+ countries, built in just 2 weeks for #science #systems #business #finance #charities #communities..
Image text: “today we are asked the UN to protect people like we protect the environment.” 
Our coalition and right pointing arrow Image text: “bioscience researchers + clinicians across 10+ countries” with 10 flags: uk, us, Australia, Netherlands, India, Austria, South Africa, Canada and Latvia..Image shows a network of interconnected nodes showing: science, systems, business, finance, communities and charities with text: “cross sectors”
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Lab of Lived Experience (Lab OLE) @laboflivedexp.bsky.social · 29/03/2026
Here’s how the investment community are mobilising their networks on LI right now to build a new market that could invest in our unmet needs #protecthumanbiosystems 👇
Image shows a screenshot of a post about the #protecthumanbiosystems UN campaign by US Women’s Health Founder Coach Geri Stengel to her network of impact and health investors
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Reposted by Lab of Lived Experience (Lab OLE)
Cat Fraser @catsocialintel.bsky.social · 28/03/2026
Almost ready for our first UN deadline submission on Tuesday! Still time to add your name at protecthumanbiosystems.world #protecthumanbiosystems @laboflivedexp.bsky.social @longcovidadvoc.com @shareaction.bsky.social @sunsopeningband.bsky.social @resiapretorius.bsky.social
Image shows the text “40+ founding signatories” and below “leading bioscience researchers and clinicians from 7 countries” with flags of uk, USA, Australia, Netherlands, India, Austria and South Africa below
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Lab of Lived Experience (Lab OLE) @laboflivedexp.bsky.social · 26/03/2026
#protecthumanbiosystems #humanbiosystemsprotection #bioreality
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Lab of Lived Experience (Lab OLE) @laboflivedexp.bsky.social · 26/03/2026
#longcovidawareness #longcovid #longcovidawarenessmonth #fblc #pwlc #pwme #mecfs #pais #pem #iacc #covidisnotover #pandemic #sarscov2 #infection #cleanair #indoorair #healtyindoorair #covid
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Lab of Lived Experience (Lab OLE) @laboflivedexp.bsky.social · 26/03/2026
3/ We thank them for being a founding signatory to the call for human biosystems protection in international law. We have 5 days until our first submission deadline. 🌟Please take 2 mins to add your name and/ or ask a business leader you know to sign >> www.protecthumanbiosystems.world
protecthumanbiosystems.world
#Protecthumanbiosystems
An international campaign to protect humans like we protect the environment.
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Lab of Lived Experience (Lab OLE) @laboflivedexp.bsky.social · 26/03/2026
2/ @tinawoods : “More and more evidence from exposome science is showing how closely human and planetary science are interconnected and must be protected in the interest of humanity and global prosperity." - Tina Woods, @business4health
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Lab of Lived Experience (Lab OLE) @laboflivedexp.bsky.social · 26/03/2026
1/ Welcome to the coalition, @TinaWoods , CEO + Founder of @Business4health , Elizabeth Bachrad , Head of Strategy. B4H has deep expertise in new #exposome science, open data, population frameworks + ecosystem building…all areas our #bioscience now needs to integrate into.
Image shows lab of lived experience logo and business for health logo. Text: “a uk-led and mission-led organisation working to bring together business, government and communities to enable people to live longer, healthier and more productive lives.” URL: protecthumanbiosystems.worldMore and more evidence from exposome science is showing how closely human and planetary science are interconnected and must be protected in the interest of humanity and global prosperity."
- Tina Woods, CEO and Founder Business for Health
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Lab of Lived Experience (Lab OLE) @laboflivedexp.bsky.social · 20/03/2026
@longcovidadvoc.com @longcovidsos.bsky.social @remissionbiome.bsky.social @longcovidkids.bsky.social @longcovidjustice.org @longcovidsupport.bsky.social @saferairproject.bsky.social @meactionuk.bsky.social @meactnet.bsky.social @meactionscotland.bsky.social @polybiorf.bsky.social @cvcev.bsky.social
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Lab of Lived Experience (Lab OLE) @laboflivedexp.bsky.social · 20/03/2026
Welcome to the coalition, @shareaction.bsky.social and Sheila Kyobutungi, Head of Health! A world where the #financial system serves the planet and its people must also protect the citizens and workers within it. Responsible investment recognises the need to #ProtectHumanBiosystems
Image shows ShareAction logo with Lab of Lived Experience and text: new founding signatory: an independent charity transforming the financial sector by mobilising their investors to use their financial power and votes, for climate, health and people. Link to protecthumanbiosystems.world
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Lab of Lived Experience (Lab OLE) @laboflivedexp.bsky.social · 15/03/2026
Here on x.com/laboflivedex...
x.com
Lab Of Lived Experience (Lab OLE) on X: "1/ Yesterday on #Longcovidawarenessday we launched our UN campaign to protect people like we protect the environment, which forces business + finance to act. But business doesn’t speak health, so we need to talk to them differently. 🙏Take 2 quick polls to help us translate >> https://t.co/Jxcd2Uayym" / X
1/ Yesterday on #Longcovidawarenessday we launched our UN campaign to protect people like we protect the environment, which forces business + finance to act. But business doesn’t speak health, so we need to talk to them differently. 🙏Take 2 quick polls to help us translate >> https://t.co/Jxcd2Uayym
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Lab of Lived Experience (Lab OLE) @laboflivedexp.bsky.social · 15/03/2026
Here on insta: www.instagram.com/laboflivedexp
instagram.com
Instagram
Create an account or log in to Instagram - Share what you're into with the people who get you.
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Lab of Lived Experience (Lab OLE) @laboflivedexp.bsky.social · 15/03/2026
We couldn’t re-create the easy poll in option here but they are also set up on X and Inst @laboflivedexp for ease
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Lab of Lived Experience (Lab OLE) @laboflivedexp.bsky.social · 15/03/2026
bsky.app/profile/labo...
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Lab of Lived Experience (Lab OLE) @laboflivedexp.bsky.social · 15/03/2026
Thanks yes it’s business/ sustainability rather than health (which likely makes it much safer for politicians, media, leaders to engage)..but it’s good we can align! Announcing a few responsible business + investment signatories this week, but the current list on the site is mostly up to date.
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Lab of Lived Experience (Lab OLE) @laboflivedexp.bsky.social · 15/03/2026
Can we ask them to support our UN campaign and sign the letter ? Backed by global science and systems leaders to show that this is a sustainability crisis now >> www.protecthumanbiosystems.world
protecthumanbiosystems.world
#Protecthumanbiosystems
An international campaign to protect humans like we protect the environment.
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Lab of Lived Experience (Lab OLE) @laboflivedexp.bsky.social · 15/03/2026
#longcovidawarenessmonth #longcovidawareness #pais #bioscience #globalhealth #planetaryhealth #longcovid #pwlc #pwme #fblc #covidisnotover #pandemic #sarscov2 #disability #iacc
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Lab of Lived Experience (Lab OLE) @laboflivedexp.bsky.social · 15/03/2026
5/ Thank you for helping us translate our collective health, we will use these results in our UN campaign. Add your name here: protecthumanbiosystems.world #mybioreality #protecthumanbiosystems Community-led. Justice-First. Always 💛
protecthumanbiosystems.world
#Protecthumanbiosystems
An international campaign to protect humans like we protect the environment.
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Lab of Lived Experience (Lab OLE) @laboflivedexp.bsky.social · 15/03/2026
4/ Q2 : Which of your biosystems feel *most* destabilised right now? (Add in comments) Neurological Energy Vascular Immune (Add more as needed)
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Lab of Lived Experience (Lab OLE) @laboflivedexp.bsky.social · 15/03/2026
3/ Q 1 : How would you describe your biosystems state of health right now? (Comment below) Optimal Stressed Compromised Failing Collapsed
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Lab of Lived Experience (Lab OLE) @laboflivedexp.bsky.social · 15/03/2026
2/ Here is the systems language business does understand >> What are human biosystems? Our interconnected biological systems (immune, neurological, vascular, energy) that are under threat from repeated infections and other environmental impacts. (like climate change)
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Lab of Lived Experience (Lab OLE) @laboflivedexp.bsky.social · 15/03/2026
1/ Yesterday for #Longcovidawarenessday we launched our UN campaign to protect people like we protect the environment, which forces business + finance to act. But business doesn’t speak health, so we need to talk to them differently. 🙏Take 2 quick polls to help us translate
Image asks: “help us translate our collective health into systems” #mybiorealityImage asks “What are human biosystems? Our interconnected biological systems (immune, neurological, vascular, energy) that are under threat from repeated infections and other environmental impacts.

(like climate change)Image asks: How would you describe your biosystems state of health right now?

With options: optimal, stressed, compromised, failing, collapsed Image asks: POLL 2: Which of your biosystems feel *most* destabilised right now? (Add others in comments)
Neurological, energy, vascular, gut, immune, autonomic, endochrine
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Lab of Lived Experience (Lab OLE) @laboflivedexp.bsky.social · 14/03/2026
www.protecthumanbiosystems.world
protecthumanbiosystems.world
#Protecthumanbiosystems
An international campaign to protect humans like we protect the environment.
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Lab of Lived Experience (Lab OLE) @laboflivedexp.bsky.social · 14/03/2026
Somehow we are now 6 years into this… For #LongCovidAwarenessDay we are launching a global campaign and letter to the UN that business & systems leaders are signing up to, along with our bioscience leaders and clinicians. Add your name at: protecthumanbiosysems.world
Image shows lab of lived experience logo and a long Covid awareness ribbon, with the words “end the silent damage. It’s time to protect people (like we protect the environment) 
Join the campaign at: protecthumanbiosystems.world
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Lab of Lived Experience (Lab OLE) @laboflivedexp.bsky.social · 11/03/2026
6/ Thank you to everyone who have contributed so far to get us to this point. We’re looking forwards to showing you how our vision will become a reality now… Unlocking new allies, funding and action beyond all the amazing #LongCovidAwareness activity this month.
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Lab of Lived Experience (Lab OLE) @laboflivedexp.bsky.social · 11/03/2026
5/ 🩵Integrative : Every system needs excluded expertise, it should not be siloed 🩵Justice-first Every venture must build the pathway to economic justice
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Lab of Lived Experience (Lab OLE) @laboflivedexp.bsky.social · 11/03/2026
4/ More on our principles (we welcome your feedback and plan to iterate as we grow) : 🩵Community-owned: Every model must build community wealth, not extract or consume 🩵Universal: Everyone needs to protect their health…not just the “sick and disabled.”…
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Lab of Lived Experience (Lab OLE) @laboflivedexp.bsky.social · 11/03/2026
3/ Our small experiments and behind the scenes work, tells us we are on the right track. Over the next few days we’ll introduce you to our first live projects: Community + Justice. Always. 💛Community biotrends tool ⚖️UN campaign
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Lab of Lived Experience (Lab OLE) @laboflivedexp.bsky.social · 11/03/2026
2/ After 20 years of @catsocialintel building for the future of work, society and purpose-led ventures…we have built the networks to inspire us. Encouraging us to create a world that moves us away from the era of institutional empty promises + endless extraction.
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Lab of Lived Experience (Lab OLE) @laboflivedexp.bsky.social · 11/03/2026
1/ Community-owned AND Justice-first. There’s a lot of discussion around how to design and build for chronic illness/ post viral communities in tech and innovation right now, so we thought it was a good time to set out our own position on all of it…
Blue post “community-owned” with a flashing lightbulb icon A list of Lab of Lived Experience’s data + design principles : 
- community ownership 
- Universal 
- Integrative 
- Justice-first
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Lab of Lived Experience (Lab OLE) @laboflivedexp.bsky.social · 20/06/2025
3/ How do we scale something that's so fundamentally broken at the source? #10YearPlan #TransformNHS #HealthcareInnovation #PublicHealth #HealthPolicy www.thetimes.com/article/72d9...
thetimes.com
Simple blood test could provide first reliable diagnosis for ME
Discovery of signature patterns of molecules in the blood of ME patients may signify a turning point in diagnosis, typically made by ­ruling out other illnesses
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Lab of Lived Experience (Lab OLE) @laboflivedexp.bsky.social · 20/06/2025
2/ .. for multi-system, multi-organ diseases affecting millions of patients) ...while burning through £££ billions on treatments that don't work and creating massive workforce impact when we get this wrong... Shouldn't we maybe fix the science first?
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Lab of Lived Experience (Lab OLE) @laboflivedexp.bsky.social · 20/06/2025
1/ What if: before we scale the technology and roll out an even faster way to provide even more: 🚩mis-diagnosis 🚩medical gaslighting 🚩harmful psychologisation 🚩wrong data and coding (all systematically baked into existing tests, policies, processes and culture in the NHS…
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Lab of Lived Experience (Lab OLE) @laboflivedexp.bsky.social · 20/05/2025
This is exactly why we have started to build new models and frameworks at Lab of Lived Experience to protect our human biosystems and energy as a new-urgent, sustainability practice. Here’s Violet Affleck telling the adults what they need to do!⚡️⚡️⚡️ yaleglobalhealthreview.com/2025/05/18/a...
yaleglobalhealthreview.com
A Chronically Ill Earth: COVID Organizing as a Model Climate Response in Los Angeles
BY VIOLET AFFLECK I spent the January fires in Los Angeles arguing with my mother in a hotel room. She was shell-shocked, astonished at the scale of destruction in the neighborhood where she raised…
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Lab of Lived Experience (Lab OLE) @laboflivedexp.bsky.social · 20/05/2025
A daughter of two Hollywood actors continues to be the most gutsy, outspoken on the ongoing pandemic and the mass disability it’s causing, and is now connecting it all to our climate response….after her experience of the Palisades burning down.
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Reposted by Lab of Lived Experience (Lab OLE)
Cat Fraser @catsocialintel.bsky.social · 15/05/2025
Great to chat to @peterholbrook.bsky.social @socialenterpriseuk.bsky.social today on the ongoing pandemic impacts to SMEs and livelihoods, and an urgent need to mobilise social ent finance….
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Lab of Lived Experience (Lab OLE) @laboflivedexp.bsky.social · 12/05/2025
From: laboflivedexperience.substack.com/p/data-scien... #Humanbiosustainability #millionsmissing #severeme #StillTheSaME
laboflivedexperience.substack.com
Data Science as Resistance: Community-Powered Health Equity
Part 3: Energy-Aware Design and Human BioSustainability
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Lab of Lived Experience (Lab OLE) @laboflivedexp.bsky.social · 12/05/2025
We sombrely mark #MEAwarenessDay #WorldMEDay 2025 with an extract from our latest article: WE ARE WORKING TO SAVE THE PLANET, WHILST LETTING HUMAN BIOSYSTEMS & ENERGY COLLAPSE AROUND US Time for a new approach.
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Lab of Lived Experience (Lab OLE) @laboflivedexp.bsky.social · 09/05/2025
9/ @thecanaryuk.bsky.social @thesicktimes.bsky.social / END
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Lab of Lived Experience (Lab OLE) @laboflivedexp.bsky.social · 09/05/2025
8/ Our final part of the Data Science for Resistance Series: Part 3 - Community-powered health equity, features work: @catherinehale.bsky.social @johnpring.bsky.social @abrokenbattery.bsky.social @catsocialintel.bsky.social @longcovidadvoc.com @nicolajeffery.bsky.social
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Lab of Lived Experience (Lab OLE) @laboflivedexp.bsky.social · 09/05/2025
7/Let’s help business make human biosystems protection society's #1 sustainability goal. 💥💥 Immediate next steps: a convening with impact investors, systems thinkers and business leaders to design our starting point.
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